Re: Oh, one more thing....

[Guest guest]

been there done that, but they say the meds are pretty good for it now.

I had mine done and it came up positive.

Guess you already read that huh?

----- Original Message -----

From: <eRene@...>

< >; <SalineInfo >

Sent: Monday, December 17, 2001 10:10 PM

Subject: Oh, one more thing....

> Oh, I also will be having a bone density scan done after

> the first of the yr since they think I have

> osteoporosis. Just one more thing to look forward to...

>

> e

>

>

[Guest guest]

,

Ya know, I've read that exercising too much, eating too

much veggies, fruits, grains, etc can also cause

osteoporosis. Well, if all the good stuff is also bad

for us, what the hell are we supposed to do?????

As for the meds, I think I read that you are going to

try Fosamax? Am I correct? Be careful with that med.

I have not met one woman that has had good luck with

that med. They have all had horrible side effects, my

mom included. A much safer med is Actonel. I took it

about a yr ago, and didn't have any side effects. I

have also taken care of many women who are taking it and

tolerate it much better than Fosamax.

There is also an IV treatment that helps immensely,

although I don't know if it's being used all over the

country. A world renowned bone doctor here in Denver

started experimenting with it back in 1995 when I was

working in homecare as an IV nurse. The women got the

treatments once a month, and it really worked. Even men

were getting it. If your'e interested, I can get the

name for you. It was originally used for Paget's

Disease.

e

> been there done that, but they say the meds are pretty good for it now.

>

> I had mine done and it came up positive.

> Guess you already read that huh?

> ----- Original Message -----

> From: <eRene@...>

> < >; <SalineInfo >

> Sent: Monday, December 17, 2001 10:10 PM

> Subject: Oh, one more thing....

>

>

> > Oh, I also will be having a bone density scan done after

> > the first of the yr since they think I have

> > osteoporosis. Just one more thing to look forward to...

> >

> > e

> >

> >

[Guest guest]

Well, as you know, the test is a 'nit'! However, waiting to hear the

results..... is something more!

However, I was shocked that mine showed no real problems. My internist

wanted me to go on the medication anyway, and after reviewing all the

contraindications, I chose to decline his offer for 'preventative

medication'. Decided I would prefer to walk a couple more blocks a day, or

dance a couple more Cha-Chas! My mother, who looks like my sister, just had

her 84th birthday --- and last year was the first time her bone density test

showed that she appeared to be having some osteoporosis. She has also been

ballroom dancing for at least 40-years non-stop!

Thanks for all this great info!

Martha M.

Martha Murdock

National Silicone Implant Foundation

www.topica.com/lists/BreastImplantNews/

[Guest guest]

Yes it is true the things we do that are good for us are also sometimes bad,

sorta like you have to find that happy medium. I have upped my weight

training and of course stopped running allong time ago, I still think that

the cardio I do now is good but before nope, over did it no doubt, I used to

run 6-7 miles everyday for about 3 years, straight, that was dumb I really

put the pressure on my body.esp since I was just coming off of cigarettes

and bad habbit with speed duh, not bright, so yeah I agree I am not to sure

I don't think implants are the culprit on this issue but maybe I can thank

them in a silly way, as I never would have gotten sick, hence no bone

density study hence, never known I had it till I was old and broke a bone,

that is how 90 percent of people I think maybe found out they have it.

My Dr has not prescribed meds yet, I am not in dire need of them at this

very moment, though I will start them maybe in a month when we meet to

disuss it, I do not feel my pain issues are the bone thing could be but I

doubt it, and I know my head stuff def had nothing to do with the osteo, I

think that all women with backgrounds like us should be checked,but then you

know how people love to put things off....

ANyhow I am aware of that new med your talking about, I hear it is mucho

expensive and actually isn't approved yet by the FDA till April ha ha ha

figures anyhow I will try whatever I have to I guess what can I do right?

Thanks for the info,

----- Original Message -----

From: <eRene@...>

< >

Sent: Monday, December 17, 2001 10:51 PM

Subject: Re: Oh, one more thing....

> ,

>

> Ya know, I've read that exercising too much, eating too

> much veggies, fruits, grains, etc can also cause

> osteoporosis. Well, if all the good stuff is also bad

> for us, what the hell are we supposed to do?????

>

> As for the meds, I think I read that you are going to

> try Fosamax? Am I correct? Be careful with that med.

> I have not met one woman that has had good luck with

> that med. They have all had horrible side effects, my

> mom included. A much safer med is Actonel. I took it

> about a yr ago, and didn't have any side effects. I

> have also taken care of many women who are taking it and

> tolerate it much better than Fosamax.

>

> There is also an IV treatment that helps immensely,

> although I don't know if it's being used all over the

> country. A world renowned bone doctor here in Denver

> started experimenting with it back in 1995 when I was

> working in homecare as an IV nurse. The women got the

> treatments once a month, and it really worked. Even men

> were getting it. If your'e interested, I can get the

> name for you. It was originally used for Paget's

> Disease.

>

> e

> > been there done that, but they say the meds are pretty good for it now.

> >

> > I had mine done and it came up positive.

> > Guess you already read that huh?

> > ----- Original Message -----

> > From: <eRene@...>

> > < >; <SalineInfo >

> > Sent: Monday, December 17, 2001 10:10 PM

> > Subject: Oh, one more thing....

> >

> >

> > > Oh, I also will be having a bone density scan done after

> > > the first of the yr since they think I have

> > > osteoporosis. Just one more thing to look forward to...

> > >

> > > e

> > >

> > >

[Guest guest]

,

The name of that IV drug is Aredia. Is that the one you

were thinking of? It's generic name is pamidronate

disodium.

I know that the bone doctor here was the first in the

world back in 1995 to use the drug for osteoporosis with

incredible results. And being one of the IV nurses that

was involved in the research protocol, I saw the

results. I followed these pts for over a yr, most of

them 2.5 yrs, and their bone density tests improved

greatly, and their rate of fractures decreased so much

it was amazing. This doc was also using it on pts who

had bone CA. And while there were only 4 pts in the

study who had bone CA, all men, all 4 had their bone CA

put into remission.

When I left homecare in 1998, the study was still going

on, and I never followed up to see what became of it.

But Aredia really seemed to show some promise. Side

effects were bone and muscle soreness immediately after

infusion lasting about 12 hrs (but not severe). And

some study participants developed cold symptoms like a

stuffy nose during the infusion, then it would go away

immediately after the infusion. Not one person dropped

out of the study during the 3 yrs I was involved in the

study. I would go to their home, start an IV, hook them

up to a portable IV pump, and the infusion would run

over 2 hrs. Vitals would be taken at the start of the

infusion and at the end. The IV would be pulled at the

end of the infusion. I would monitor for side effects

the entire time, and not once did anyone develop any

adverse side effects other than the ones I listed

above. The only pain was having to be hooked up to an

IV for 2 hrs, but at least it was only once a month.

e

[Guest guest]

Thanks e,

This is great news! . . . Has the study been

completed? Is the drug being used now?

Rogene

--- eRene@... wrote:

> ,

>

> The name of that IV drug is Aredia.

__________________________________________________

[Guest guest]

Rogene,

I would imagine the study has been completed, but I'm

not positive since I left the research team in 1998. It

sounded like thinks it may be approved by the FDA

in the spring (if we're talking about the same drug). I

do know that the drug was being used when I left the

study in 1998, and the doctor pioneering the study was

getting more and more study participants, so much so

that we nurses couldn't keep up with him (there were

only 4 of us that had met and fulfilled the research

criteria to administer the drug and monitor the pts). I

know the physician was very happy with the results, but

then again, we all know how drugs can look so promising

and then fall short just when they are ready to hit the

market.

I'll have to see if I can contact the physician and see

what's going on; or else contact the homecare agency I

worked at and see if they're still administering it, or

if they know what's going on. I personally wouldn't

mind having an IV started on me once a month if the

results were immediate and that promising!

e

> Thanks e,

>

> This is great news! . . . Has the study been

> completed? Is the drug being used now?

>

> Rogene

>

>

> --- eRene@... wrote:

>

> > ,

> >

> > The name of that IV drug is Aredia.

>

> __________________________________________________

>

[Guest guest]

e,

Eating too much fruits and veggies is not a cause of osteoporosis. This is

just plain false.

In fact, fruits and veggies are a great source of organic calcium, and

alkalize the body. It is proteins that cause osteoporosis, because of the

great amount of acids that they create in the body. Your body will pull

calcium out of your bones in order to neutralize all the acids from

excessive protein, animal and dairy consumption, and yes, grains. But not

fruits and veggies, no way!

So, please do not believe this fallacy that fruits and veggies cause

osteoporosis. It is not true.

Patty

----- Original Message -----

From: <eRene@...>

< >

Sent: Monday, December 17, 2001 9:51 PM

Subject: Re: Oh, one more thing....

> ,

>

> Ya know, I've read that exercising too much, eating too

> much veggies, fruits, grains, etc can also cause

> osteoporosis. Well, if all the good stuff is also bad

> for us, what the hell are we supposed to do?????