little moments to be self proud :-)

[Guest guest]

OK so, I think my RA is kinda atypical, it is not symmetrical and it comes and

goes sometimes in hours and sometimes days in all kinds of strange places.

Currently it is in my left ankle, (which looks terribly sprained) and my right

hip and groin and my left wrist and middle finger and thumb and my right jaw.

Tomorrow who knows what part of me will be miserable? and sometimes things look

awful but do not urt so much and sometimes I just am achy and sometimes I am

literally screaming out much as I try not to.

People always get angry at my husband and kids for not being more help--- I

guess people have no clue about bipolar in kids or seizures or cerebal palsy or

anything about any of my husbands issues----and I get weary trying to explain,

no hubby should not drive, bipolar 17 can't drive (she is too unstable, erratic,

and to full of major panic....15 year old is not yet old enough and 10 year old

might now not drive due to eye and anyway, also his seizures.

My proud moments? When I CA figure out how to accomplish the things I want to

accomplish! I learned how to fold laundry with...my elbows- for the days my

wrists and or fingers could not tolerate it. I learned how to manage to drain a

pot of pasta if my wrists are flaring- I put on a heavy sweathsirt, and hold the

pot with several layers of thicknes using forearms and keeping it close--- or I

just scoop the pasta and do not bother to drain it, LOL.

I realized I can use the phone with more ease with a headset...(my wrist and

shoulder could not tolerate holding the phone) I changed how I dress so I can

now dress independantly most of the time again.(skirts work great so do slide on

scuff sandals)

I now usually remember tokeep a phone in my pocket fully charged at all tims,

along with a bottle of water with the cap loosened....I keep crutches and wrist

splints in key places just in case.....I got grab bars by toilet and

tub......and a toilet riser. I also had my easy chair put up on a plywood

platform.

I take adavantage of the good days- writing out bills if myhands are good but my

feet bad....going shopping when my feet-legs are good and hands are bad.....

I get so proud of my silly self when I have some body part flaring and it poses

a challenge to me and I find some creative way to work it out. And becuz I

flare in so many different body parts I never can use one dadaptation tomorow

again, I usually need an entirely diferent way to do things tomorrow.

Be proud of yourself when you can find ways to still do things- it IS a

challenge and you deserve to be proud of yourself.

[Guest guest]

You are so right. You deserve to be proud of yourself, everyone here

deserves to be proud of him/herself when you discover a creative new

way to do something. We all face challenges people without disabilities

don't even dream of. Sometimes I think it's great that in the midst of

such pain and difficulty, my mind is being stimulated by having to be

inventive. :-)

And, by the way, please *do* share your discoveries. You can have a

little brag moment (very healthy!) and, at the same time, help others

in the group.

Prakasha

On Nov 11, 2005, at 10:35 PM, dreamer_plus wrote:

> OK so, I think my RA is kinda atypical, it is not symmetrical and it

> comes and goes sometimes in hours and sometimes days in all kinds of

> strange places.  Currently it is in my left ankle, (which looks

> terribly sprained) and my right hip and groin and my left wrist and

> middle finger and thumb and my right jaw.  Tomorrow who knows what

> part of me will be miserable?  and sometimes things look awful but do

> not urt so much and sometimes I just am achy and sometimes I am

> literally screaming out much as I try not to.

> People always get angry at my husband and kids for not being more

> help--- I guess people have no clue about bipolar in kids or seizures

> or cerebal palsy or anything about any of my husbands issues----and I

> get weary trying to explain, no hubby should not drive, bipolar 17

> can't drive (she is too unstable, erratic, and to full of major

> panic....15 year old is not yet old enough and 10 year old might now

> not drive due to eye and anyway, also his seizures. 

>

> My proud moments?  When I CA figure out how to accomplish the things

> I want to accomplish!  I learned how to fold laundry with...my elbows-

> for the days my wrists and or fingers could not tolerate it.  I

> learned how to manage to drain a pot of pasta if my wrists are

> flaring- I put on a heavy sweathsirt, and hold the pot with several

> layers of thicknes using forearms and keeping it close--- or I just

> scoop the pasta and do not bother to drain it, LOL.

> I realized I can use the phone with more ease with a headset...(my

> wrist and shoulder could not tolerate holding the phone) I changed how

> I dress so I can now dress independantly most of the time

> again.(skirts work great so do slide on scuff sandals)

> I now usually remember tokeep a phone in my pocket fully charged at

> all tims, along with a bottle of water with the cap loosened....I keep

> crutches and wrist splints in key places just in case.....I got grab

> bars by toilet and tub......and a toilet riser.  I also had my easy

> chair put up on a plywood platform. 

>

> I take adavantage of the good days- writing out bills if myhands are

> good but my feet bad....going shopping when my feet-legs are good and

> hands are bad.....

> I get so proud of my silly self when I have some body part flaring

> and it poses a challenge to me and I find some creative way to work it

> out.  And becuz I flare in so many different body parts I never can

> use one dadaptation tomorow again, I usually need an entirely diferent

> way to do things tomorrow. 

> Be proud of yourself when you can find ways to still do things- it IS

> a challenge and you deserve to be proud of yourself. 

>  

>

>

>

>

>

>

>

[Guest guest]

You are so right. You deserve to be proud of yourself, everyone here

deserves to be proud of him/herself when you discover a creative new

way to do something. We all face challenges people without disabilities

don't even dream of. Sometimes I think it's great that in the midst of

such pain and difficulty, my mind is being stimulated by having to be

inventive. :-)

And, by the way, please *do* share your discoveries. You can have a

little brag moment (very healthy!) and, at the same time, help others

in the group.

Prakasha

On Nov 11, 2005, at 10:35 PM, dreamer_plus wrote:

> OK so, I think my RA is kinda atypical, it is not symmetrical and it

> comes and goes sometimes in hours and sometimes days in all kinds of

> strange places.  Currently it is in my left ankle, (which looks

> terribly sprained) and my right hip and groin and my left wrist and

> middle finger and thumb and my right jaw.  Tomorrow who knows what

> part of me will be miserable?  and sometimes things look awful but do

> not urt so much and sometimes I just am achy and sometimes I am

> literally screaming out much as I try not to.

> People always get angry at my husband and kids for not being more

> help--- I guess people have no clue about bipolar in kids or seizures

> or cerebal palsy or anything about any of my husbands issues----and I

> get weary trying to explain, no hubby should not drive, bipolar 17

> can't drive (she is too unstable, erratic, and to full of major

> panic....15 year old is not yet old enough and 10 year old might now

> not drive due to eye and anyway, also his seizures. 

>

> My proud moments?  When I CA figure out how to accomplish the things

> I want to accomplish!  I learned how to fold laundry with...my elbows-

> for the days my wrists and or fingers could not tolerate it.  I

> learned how to manage to drain a pot of pasta if my wrists are

> flaring- I put on a heavy sweathsirt, and hold the pot with several

> layers of thicknes using forearms and keeping it close--- or I just

> scoop the pasta and do not bother to drain it, LOL.

> I realized I can use the phone with more ease with a headset...(my

> wrist and shoulder could not tolerate holding the phone) I changed how

> I dress so I can now dress independantly most of the time

> again.(skirts work great so do slide on scuff sandals)

> I now usually remember tokeep a phone in my pocket fully charged at

> all tims, along with a bottle of water with the cap loosened....I keep

> crutches and wrist splints in key places just in case.....I got grab

> bars by toilet and tub......and a toilet riser.  I also had my easy

> chair put up on a plywood platform. 

>

> I take adavantage of the good days- writing out bills if myhands are

> good but my feet bad....going shopping when my feet-legs are good and

> hands are bad.....

> I get so proud of my silly self when I have some body part flaring

> and it poses a challenge to me and I find some creative way to work it

> out.  And becuz I flare in so many different body parts I never can

> use one dadaptation tomorow again, I usually need an entirely diferent

> way to do things tomorrow. 

> Be proud of yourself when you can find ways to still do things- it IS

> a challenge and you deserve to be proud of yourself. 

>  

>

>

>

>

>

>

>