's disease? Mayo clinic in sdale vs. Minnesota?

[Guest guest]

Anyone here have experience with this? It isn't AI (it is

hereditary), but my neuro is having me tested for this. She's

grasping at straws at this point, I think. I've only had one test

related to my liver come back abnormal, and don't have it in front

of me, so don't remember what it is, exactly. Since most of what I

have read indicats that 's attacks the liver, first, I'm

skeptical, but I'm willing to try anything at this point.

All my doctor's are bugging out on me, too. Now my neurologist, who

has been trying so hard to find a diagnosis, told me Thursday that

she is going to take a backseat and try to let the other doctors

figure it out. She's out of ideas.

My gp (who is great), is thinking I may need to go to s Hopkins

or Mayo Clinic for a dx. I have an appointment with a rheumy at

UCLA in a couple of weeks, so if he can't point me in the right

direction, we may have to go.

Which brings me to my next question...the sdale clinic is much

closer to us than the one in Minnesota. Has anyone dealt with

either, or both, and is there a reason (other than more doctors) to

go to the larger Mayo Clinic, or is the AZ clinic just as good?

Thanks,

[Guest guest]

, I've been to Mayo Clinic at Rochester and highly recommend it.

It's not just that it has more doctors (not an insignificant advantage),

there are services available at Rochester that aren't found at sdale or

ville.

They do more research at Rochester. More equipment. More facilities. More

specialties. They see more patients per year.

They have a 's Disease Clinic at Rochester:

http://www.mayoclinic.org/wilsons-disease/index.html

You have a better chance for an accurate diagnosis at Rochester. s

Hopkins would also be an excellent choice.

So sorry that you still don't know exactly what your diagnosis is.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] 's disease? Mayo clinic in sdale vs.

Minnesota?

> Anyone here have experience with this? It isn't AI (it is

> hereditary), but my neuro is having me tested for this. She's

> grasping at straws at this point, I think. I've only had one test

> related to my liver come back abnormal, and don't have it in front

> of me, so don't remember what it is, exactly. Since most of what I

> have read indicats that 's attacks the liver, first, I'm

> skeptical, but I'm willing to try anything at this point.

>

> All my doctor's are bugging out on me, too. Now my neurologist, who

> has been trying so hard to find a diagnosis, told me Thursday that

> she is going to take a backseat and try to let the other doctors

> figure it out. She's out of ideas.

>

> My gp (who is great), is thinking I may need to go to s Hopkins

> or Mayo Clinic for a dx. I have an appointment with a rheumy at

> UCLA in a couple of weeks, so if he can't point me in the right

> direction, we may have to go.

>

> Which brings me to my next question...the sdale clinic is much

> closer to us than the one in Minnesota. Has anyone dealt with

> either, or both, and is there a reason (other than more doctors) to

> go to the larger Mayo Clinic, or is the AZ clinic just as good?

>

> Thanks,

>

>