Filisann

[Guest guest]

I am so glad to see that your are still posting here, I am with you

and the advice your Dr gave you in regards to implants and your

illness. I too believe that it is best, since the implants are gone

to move forward and treat the problem that still exists without

bringing the implants up too much. I did mention them to my new Dr

but only in passing, I simply said that was when my symptoms started

and that while I had no proof that it was the implants I decided I

did not even like them enough to risk it, I looked at it like ya

know, if there was even a 1% chance I would get better that was worth

it, took that chance and never looked back, and it worked out for me.

I too had days when I could hardly move or get out of bed so yeah I

know what you are saying.

It is tough to just go to the Dr and leave out the implant issue,

however, it is definetly something that might be in your best

interest.

Good luck and please keep us posted and stay in touch, I care and so

do the others here,

Love,

In @y..., " filisann2000 " <Filisann@c...> wrote:

> It's been a long time since I posted---but I'm lurking and reading

> messages. Happy New Year to you girls!!

>

> I e-mailed a doctor at UCSD this morning regarding my situation and

> was amazed that he called me almost right away. This doctor was

> involved a while back in some studies on silicone----even though he

> admitted he was one that thought it was a possible problem he gave

me

> a bunch of talk on the studies. He did say that there was no more

> funding or studies and there would definitely be no more in the

> future.

>

> He suggested that I (if I were his wife) do not mention silicone or

> my implants to any doctor in the future unless they specifically

ask

> me about it. He said that if I keep mentioning it and questioning

> that I would be " labled " and the very doctors that are trying to

help

> me would no longer be willing to do so. Soooooo, I will try and do

> that. After boo hooing about it, I decided he is probably right.

He

> was extremely nice and very kind.

>

> My white count and lymphocyte count continue to rise but I actually

> feel pretty good. I always think back to how sick I was for almost

> two years before I had my implants out. I had days when I couldn't

> even get up. I am now functional and refusing to give up. I'm

going

> out kicking. I gave up my anti-depressants--I'm tired of feeling

> like the victim. I'm doing more to entertain " me " and trying to

live

> every day--one day at a time.

>

> I wish you all peace with yourselves and a very happy New Year.

> Warm hugs, Phyllis:-)

[Guest guest]

Hi e, and Phyllis,

I have to agree with e. The true issue here, is that we've been chemically poisoned! It doesn't matter how much or how less, we've been lied too while this toxic crap was put into our bodies and we're still being lied too and lied about. And just because I won't tell these Doctor's what "they" want to hear, they have now destroyed my medical history, labeled me as severely psychotic and if I let them get away with it, I'll end up on Psych Drugs and who knows what else. As a matter of fact, today I was told by the hospital where I had my MRI's done, that if I don't bring back my films, they would turn me over to their Legal Dept. I signed a Release Form and when I told her these films were mine, she informed me, by Missouri State Law - the films were the property of the Hospital for ten yr's. I also called my U.S. Congresswoman's Office today, asking what they found out about the status of my SSD (without going into all the words she spoke, contradicting herself), she said that her hands were tied, but the good news is that I am now in the system! Now isn't that nice, especially since I thought for the last four years and two months, I was in the system?

You can't go down fighting, until you first stand up for what is right! When my kids were little, one of them asked me, "Mommy, how do you know what's the right thing or the wrong thing to do?" And I said, "Usually the right thing is the hardest thing to do!" I'm going to keep telling the truth, they are going to keep lying and I'm going to keep telling the truth.

Please everyone, have a wonderful week-end and keep in mind, that none of us have done anything wrong. And "we" are not the bad guy!

Love and Hugs............

e L <e_Rene@...> wrote:

Have to stick my two cents in here and disagree. We are all part of this support group because of these implants. The implants made us ill, the doctors lied to us. Why should we have to shut up and not mention our implants? Yes, I do agree that many, many doctors turn away and decide to tune us out when we bring up our implants; however, that is THEIR problem, not ours. If they don't want to listen to us, then perhaps they are in the wrong profession. You don't have to agree with your pt, but you SHOULD be empathetic and still try to keep an open mind, especially since they (the doctors) say there is no conclusive research stating that implants cause illness. And for this reason alone, it is all the more reason they should be listening to us and keeping an open mind---not telling us to keep quiet if we want adequate treatment!! I am way too outspoken and angry to keep quiet. If we do that it's like all of us committing suicide---essentially we're all giving up and allowing the medical establishment to win! We need to speak up and voice our concerns and our experiences. So one doctor doesn't want to hear about implant illness--another one might! And I, for one, am on a roll, looking to topple every doctor off his thrown who screws around with me!! And god help those who cross my path!!

e

----- Original Message -----

From: carrie_heer

Sent: Wednesday, January 02, 2002 6:36 AM

Subject: Filisann

I am so glad to see that your are still posting here, I am with youand the advice your Dr gave you in regards to implants and yourillness. I too believe that it is best, since the implants are goneto move forward and treat the problem that still exists withoutbringing the implants up too much. I did mention them to my new Drbut only in passing, I simply said that was when my symptoms startedand that while I had no proof that it was the implants I decided Idid not even like them enough to risk it, I looked at it like yaknow, if there was even a 1% chance I would get better that was worthit, took that chance and never looked back, and it worked out for me.I too had days when I could hardly move or get out of bed so yeah Iknow what you are saying.It is tough to just go to the Dr and leave out the implant issue,however, it is definetly something that might be in your bestinterest.Good luck and please keep us posted and stay in touch, I care and sodo the others here,Love,In @y..., "filisann2000" <Filisann@c...> wrote:> It's been a long time since I posted---but I'm lurking and reading> messages. Happy New Year to you girls!!>> I e-mailed a doctor at UCSD this morning regarding my situation and> was amazed that he called me almost right away. This doctor was> involved a while back in some studies on silicone----even though he> admitted he was one that thought it was a possible problem he gaveme> a bunch of talk on the studies. He did say that there was no more> funding or studies and there would definitely be no more in the> future.>> He suggested that I (if I were his wife) do not mention silicone or> my implants to any doctor in the future unless they specificallyask> me about it. He said that if I keep mentioning it and questioning> that I would be "labled" and the very doctors that are trying tohelp> me would no longer be willing to do so. Soooooo, I will try and do> that. After boo hooing about it, I decided he is probably right.He> was extremely nice and very kind.>> My white count and lymphocyte count continue to rise but I actually> feel pretty good. I always think back to how sick I was for almost> two years before I had my implants out. I had days when I couldn't> even get up. I am now functional and refusing to give up. I'mgoing> out kicking. I gave up my anti-depressants--I'm tired of feeling> like the victim. I'm doing more to entertain "me" and trying tolive> every day--one day at a time.>> I wish you all peace with yourselves and a very happy New Year.> Warm hugs, Phyllis:-)