Re: Re: Severe or Moderate autism

[Guest guest]

That's kind of my point Margaret, more familiar with being told everything is ticketyboo than the opposite.

Vicky

Re: Severe or Moderate autism

We are encouraged by service providers - I am thinking of social services - to put up with an extreme situation as if it is normal.So we struggle on to the point where collapse may happen. If we complain/can't cope, then it is our fault, not that the situation is impossible.

I had a meeting with social services earlier this week to update my carerr's assessment. This time I had an advocate supporting me who doesn't have a background in disability. She therefore had a fresh perspective - and her view was that the situation with H was incredibly demanding and that I was doing an enormous amount. The social worker was trying to make it sound like the current situation was pretty good...

I recent spoke with a retired clinical psychologist from an academic background who is now doing sessional work with families with disabled children. They said that they were hearing repeatedly from families that, when they asked for help, professionals would say that they were not so badly off as others and that they shouldn't ask for more help.

I think a lot of us may be familiar with this situation.

Margaret

> > Dear All,

> >

> > ATEC score for my son is around 52-58 range. We have worked a lot to reach

> > here, from 115.

> >

> > His school teacher reminds me all the time, he is very severe. She never

> > says anything good about my son. T.A says, he has done very well today, he

> > did this and all, then the teacher would say only for a short time.

> >

> > This teacher used be his pre-school teacher(private pre-school) where we

> > paid lots of money and didn't see any improvement. So we decided to stop

> > the pre-school.

> >

> > My son has improved a lot, but this teacher is always negative. Whenever

> > she sees me she says, I need some social worker like respite care, to help

> > with him.

> >

> > My son is not aggressive, he used to be hyper but now not that much. he

> > eats well, use toilet, sleep well. He likes people and all,

> >

> > We have worked hard to make him sit on table and do the work. Now teacher

> > complaining that he is o.k. with sitting task, but doesn't do any

> > imaginative play, she is complaining. I am getting very upset, as we worked

> > hard and thought he is on moderate.

> >

> > Regards

> >

> > Jabi

> >

> >

>

> --

> Sent from my mobile device

>

[Guest guest]

> Thank you for all the support.  I need to learn to cope with her comments.

**Hopefully remembering 'you dont know my kid you hardly see them' will help.

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is