Re: WHOA!

[Guest guest]

Dreamer,

Whoa, what a time you've had! I don't even know what

to say, except bless you and I am sending my prayers

for some restful days and resolution of these

difficulties. laura

--- dreamer_plus <dreamer_plus@...> wrote:

> I took Jimmy to the eye dr here for what our ER said

> would be follow up, confirmation he was going to be

> OK with his eye injury. The opthamologist decided

> Jimmy was NOT OK with the injury and sent us to a

> specialist straight from his office Thursday

> afternoon. We hd to wait for that specialst cuz his

> office was already closed for the day and he had to

> finish a surgery he was doing to come see Jimmy. He

> sent us immediately to Univ of Chicago in Hyde Park.

> There was a glitch in paperwork and between the

> docs, so they held us from heading there till friday

> noon time. We were not sure if it was for consult or

> what. Bekky and I took Jimmy and it took us just

> almost 5 hours to get there. The speccialists there

> had known it would take us that long to get there,

> so they waited. (their office was closed by the time

> we got there)

> they planned to immeditaely whish Jimmy to emergency

> surgery, but the OR was backlogged. They prepped

> Jimmy for surgery aprox 6 PM but by 1 am they still

> could not get him in, we sat in preop the whole

> time. At 1 am they sent us over to the childrens

> hospital to grab a couple hours sleep as we had been

> waiting for surgery for nearly 36 hours by then,

> sitting on the edge of seats literally and nothing

> to eat or drink that whole time...

> At 7 am they took us back over for a new preop and

> told us it would be a 2 hour surgey. It lasted from

> 8 30 until approx 6 pm. They had to completely

> rebuild an eyeball for Jimmy. They were not sure

> they could save it at all....every part of his

> eye,macula, was destroyed, retina was detached

> sclera was ruptured, conjutiva seperated, cornea

> ruined. Vitreous leaked out. They still will not

> know if he has any vision for 6 months. His eye dr

> said he may never do contact sports or blue collar

> work. For now he must stay on his tummy flat for the

> next 5 days or so. In approx 6 months they will have

> to goback and remove cataracts caussed by this

> surgery and exchange silicone oil that they have

> filled his eye with. He is not to go back to

> school....and when he does go back, hemay not have

> PE class for at least the rest of this school year

> and will need PT and OT.

> Jimmy has difficulty with anesthesia and altho

> surgery ended last nite, he still has not cleared

> the anesthesia so he remains " out " at this

> time...(he had this same difficult when he was

> anestethized for an MRI a couple years ago)

> The hospital sent us home partly becuz Ray got

> released from VA while we were en route to Hyde

> Park, even tho I had Rays shoes, walker and clothes

> and keys and wallet, VA decided to release Ray

> anyway, they sent him home in a hospital gown and

> arranged another patient to drive him home. Jimmys

> doctors thought Jimmy might do better if he could be

> near his daddy and Rays docs thought Ray would do

> better if he could be closer to Jimmy. Jimmys docs

> also decided since I am a nurse, I could watch him

> just as well at home. Bekky proved to also be a very

> awesome caregiver, the docs and nurses at Comers

> Childrens hospital were quite impressed with her!!!

> Ray has a complete and total med overhaul and will

> get O2 within the next 2 weeks for 24 hour use. I

> still have not figured out why they are waiting 2

> weeks as altho I tried multiple times to communicate

> with his docs, they never once returned my calls.

> (our usual experience with the VA) I certainly do

> not understand a need for O2 and then putting it off

> 2 weeks!!!

> Ray has a list of upcoming VA appts and Jimmy has a

> list of upcoming appts in Hyde Park and some in Oak

> Forest. (his surgeon moved him to Oak Forest for my

> convenience)

> We are hoping to finally celebrate Krystals birthday

> tomorrow nite and have her cake and give her her

> gifts, (she has been on hold since Thursday)

> Aside from that it looks like we are going tobe

> laying VERY low and staying very very close to home

> for quite awhile. The surgeons also warned us the

> eye repair is going to be extremely and

> devastatingly financially overwhelming and that the

> hospital is extremely aggressive in collection.

> The gas for travel back and forth is also going to

> be difficult. Not sure just how we are going to

> handle all that at this time.

> Please keep us in your prayers. It sure has been a

> very hard week or 2. Right now me and Bekky are

> FINALLY going tolay down and get some MUCH needed

> sleep- and something to eat..FINALLY. The cafeteria

> there was always closed when the docs would allow us

> a moment to slip out......and we are pretty hungry.

> LOL.

> I do want to say- the people who work at Univ of

> Chicago are AMAZING, WONDERFUL, most kind....every

> single person we encountered from transportation

> aides to coffee shop workers to security guards!!!!!

> even the people in the parking garage. Never in my

> life have I encountered such kind peole in a

> hospital setting. I also have to say I am so proud

> of Jimmy. He is an ideal patient, he is uncommonly

> patient and good and so very very brave. I have such

> amazing kids!!!!

>

>

>

>

>

__________________________________

Start your day with - Make it your home page!

http://www./r/hs

[Guest guest]

Dreamer,

Whoa, what a time you've had! I don't even know what

to say, except bless you and I am sending my prayers

for some restful days and resolution of these

difficulties. laura

--- dreamer_plus <dreamer_plus@...> wrote:

> I took Jimmy to the eye dr here for what our ER said

> would be follow up, confirmation he was going to be

> OK with his eye injury. The opthamologist decided

> Jimmy was NOT OK with the injury and sent us to a

> specialist straight from his office Thursday

> afternoon. We hd to wait for that specialst cuz his

> office was already closed for the day and he had to

> finish a surgery he was doing to come see Jimmy. He

> sent us immediately to Univ of Chicago in Hyde Park.

> There was a glitch in paperwork and between the

> docs, so they held us from heading there till friday

> noon time. We were not sure if it was for consult or

> what. Bekky and I took Jimmy and it took us just

> almost 5 hours to get there. The speccialists there

> had known it would take us that long to get there,

> so they waited. (their office was closed by the time

> we got there)

> they planned to immeditaely whish Jimmy to emergency

> surgery, but the OR was backlogged. They prepped

> Jimmy for surgery aprox 6 PM but by 1 am they still

> could not get him in, we sat in preop the whole

> time. At 1 am they sent us over to the childrens

> hospital to grab a couple hours sleep as we had been

> waiting for surgery for nearly 36 hours by then,

> sitting on the edge of seats literally and nothing

> to eat or drink that whole time...

> At 7 am they took us back over for a new preop and

> told us it would be a 2 hour surgey. It lasted from

> 8 30 until approx 6 pm. They had to completely

> rebuild an eyeball for Jimmy. They were not sure

> they could save it at all....every part of his

> eye,macula, was destroyed, retina was detached

> sclera was ruptured, conjutiva seperated, cornea

> ruined. Vitreous leaked out. They still will not

> know if he has any vision for 6 months. His eye dr

> said he may never do contact sports or blue collar

> work. For now he must stay on his tummy flat for the

> next 5 days or so. In approx 6 months they will have

> to goback and remove cataracts caussed by this

> surgery and exchange silicone oil that they have

> filled his eye with. He is not to go back to

> school....and when he does go back, hemay not have

> PE class for at least the rest of this school year

> and will need PT and OT.

> Jimmy has difficulty with anesthesia and altho

> surgery ended last nite, he still has not cleared

> the anesthesia so he remains " out " at this

> time...(he had this same difficult when he was

> anestethized for an MRI a couple years ago)

> The hospital sent us home partly becuz Ray got

> released from VA while we were en route to Hyde

> Park, even tho I had Rays shoes, walker and clothes

> and keys and wallet, VA decided to release Ray

> anyway, they sent him home in a hospital gown and

> arranged another patient to drive him home. Jimmys

> doctors thought Jimmy might do better if he could be

> near his daddy and Rays docs thought Ray would do

> better if he could be closer to Jimmy. Jimmys docs

> also decided since I am a nurse, I could watch him

> just as well at home. Bekky proved to also be a very

> awesome caregiver, the docs and nurses at Comers

> Childrens hospital were quite impressed with her!!!

> Ray has a complete and total med overhaul and will

> get O2 within the next 2 weeks for 24 hour use. I

> still have not figured out why they are waiting 2

> weeks as altho I tried multiple times to communicate

> with his docs, they never once returned my calls.

> (our usual experience with the VA) I certainly do

> not understand a need for O2 and then putting it off

> 2 weeks!!!

> Ray has a list of upcoming VA appts and Jimmy has a

> list of upcoming appts in Hyde Park and some in Oak

> Forest. (his surgeon moved him to Oak Forest for my

> convenience)

> We are hoping to finally celebrate Krystals birthday

> tomorrow nite and have her cake and give her her

> gifts, (she has been on hold since Thursday)

> Aside from that it looks like we are going tobe

> laying VERY low and staying very very close to home

> for quite awhile. The surgeons also warned us the

> eye repair is going to be extremely and

> devastatingly financially overwhelming and that the

> hospital is extremely aggressive in collection.

> The gas for travel back and forth is also going to

> be difficult. Not sure just how we are going to

> handle all that at this time.

> Please keep us in your prayers. It sure has been a

> very hard week or 2. Right now me and Bekky are

> FINALLY going tolay down and get some MUCH needed

> sleep- and something to eat..FINALLY. The cafeteria

> there was always closed when the docs would allow us

> a moment to slip out......and we are pretty hungry.

> LOL.

> I do want to say- the people who work at Univ of

> Chicago are AMAZING, WONDERFUL, most kind....every

> single person we encountered from transportation

> aides to coffee shop workers to security guards!!!!!

> even the people in the parking garage. Never in my

> life have I encountered such kind peole in a

> hospital setting. I also have to say I am so proud

> of Jimmy. He is an ideal patient, he is uncommonly

> patient and good and so very very brave. I have such

> amazing kids!!!!

>

>

>

>

>

__________________________________

Start your day with - Make it your home page!

http://www./r/hs

[Guest guest]

So Dreamer, let me get this straight. Your sister wrote you that other note

about " stepping up " to care for your mom after you sent her the post below about

your hubby and son??? I guess if I'm correct then I cannot believe what she

asked of you! You have a full plate and your mom needs care outside of her

home. Wow, she just doesn't have a clue what you're dealing with because she

can't see through what she's dealing with it seems. My heart goes out to you -

you cannot take care of everyone!

barb k.

--- dreamer_plus wrote:

> I took Jimmy to the eye dr here for what our ER said

> would be follow up, confirmation he was going to be

> OK with his eye injury. The opthamologist decided

> Jimmy was NOT OK with the injury and sent us to a

> specialist straight from his office Thursday

> afternoon. We hd to wait for that specialst cuz his

> office was already closed for the day and he had to

> finish a surgery he was doing to come see Jimmy. He

> sent us immediately to Univ of Chicago in Hyde Park.

> There was a glitch in paperwork and between the

> docs, so they held us from heading there till friday

> noon time. We were not sure if it was for consult or

> what. Bekky and I took Jimmy and it took us just

> almost 5 hours to get there. The speccialists there

> had known it would take us that long to get there,

> so they waited. (their office was closed by the time

> we got there)

> they planned to immeditaely whish Jimmy to emergency

> surgery, but the OR was backlogged. They prepped

> Jimmy for surgery aprox 6 PM but by 1 am they still

> could not get him in, we sat in preop the whole

> time. At 1 am they sent us over to the childrens

> hospital to grab a couple hours sleep as we had been

> waiting for surgery for nearly 36 hours by then,

> sitting on the edge of seats literally and nothing

> to eat or drink that whole time...

> At 7 am they took us back over for a new preop and

> told us it would be a 2 hour surgey. It lasted from

> 8 30 until approx 6 pm. They had to completely

> rebuild an eyeball for Jimmy. They were not sure

> they could save it at all....every part of his

> eye,macula, was destroyed, retina was detached

> sclera was ruptured, conjutiva seperated, cornea

> ruined. Vitreous leaked out. They still will not

> know if he has any vision for 6 months. His eye dr

> said he may never do contact sports or blue collar

> work. For now he must stay on his tummy flat for the

> next 5 days or so. In approx 6 months they will have

> to goback and remove cataracts caussed by this

> surgery and exchange silicone oil that they have

> filled his eye with. He is not to go back to

> school....and when he does go back, hemay not have

> PE class for at least the rest of this school year

> and will need PT and OT.

> Jimmy has difficulty with anesthesia and altho

> surgery ended last nite, he still has not cleared

> the anesthesia so he remains " out " at this

> time...(he had this same difficult when he was

> anestethized for an MRI a couple years ago)

> The hospital sent us home partly becuz Ray got

> released from VA while we were en route to Hyde

> Park, even tho I had Rays shoes, walker and clothes

> and keys and wallet, VA decided to release Ray

> anyway, they sent him home in a hospital gown and

> arranged another patient to drive him home. Jimmys

> doctors thought Jimmy might do better if he could be

> near his daddy and Rays docs thought Ray would do

> better if he could be closer to Jimmy. Jimmys docs

> also decided since I am a nurse, I could watch him

> just as well at home. Bekky proved to also be a very

> awesome caregiver, the docs and nurses at Comers

> Childrens hospital were quite impressed with her!!!

> Ray has a complete and total med overhaul and will

> get O2 within the next 2 weeks for 24 hour use. I

> still have not figured out why they are waiting 2

> weeks as altho I tried multiple times to communicate

> with his docs, they never once returned my calls.

> (our usual experience with the VA) I certainly do

> not understand a need for O2 and then putting it off

> 2 weeks!!!

> Ray has a list of upcoming VA appts and Jimmy has a

> list of upcoming appts in Hyde Park and some in Oak

> Forest. (his surgeon moved him to Oak Forest for my

> convenience)

> We are hoping to finally celebrate Krystals birthday

> tomorrow nite and have her cake and give her her

> gifts, (she has been on hold since Thursday)

> Aside from that it looks like we are going tobe

> laying VERY low and staying very very close to home

> for quite awhile. The surgeons also warned us the

> eye repair is going to be extremely and

> devastatingly financially overwhelming and that the

> hospital is extremely aggressive in collection.

> The gas for travel back and forth is also going to

> be difficult. Not sure just how we are going to

> handle all that at this time.

> Please keep us in your prayers. It sure has been a

> very hard week or 2. Right now me and Bekky are

> FINALLY going tolay down and get some MUCH needed

> sleep- and something to eat..FINALLY. The cafeteria

> there was always closed when the docs would allow us

> a moment to slip out......and we are pretty hungry.

> LOL.

> I do want to say- the people who work at Univ of

> Chicago are AMAZING, WONDERFUL, most kind....every

> single person we encountered from transportation

> aides to coffee shop workers to security guards!!!!!

> even the people in the parking garage. Never in my

> life have I encountered such kind peole in a

> hospital setting. I also have to say I am so proud

> of Jimmy. He is an ideal patient, he is uncommonly

> patient and good and so very very brave. I have such

> amazing kids!!!!

>

>

>

>

>

__________________________________

Start your day with - Make it your home page!

http://www./r/hs

[Guest guest]

So Dreamer, let me get this straight. Your sister wrote you that other note

about " stepping up " to care for your mom after you sent her the post below about

your hubby and son??? I guess if I'm correct then I cannot believe what she

asked of you! You have a full plate and your mom needs care outside of her

home. Wow, she just doesn't have a clue what you're dealing with because she

can't see through what she's dealing with it seems. My heart goes out to you -

you cannot take care of everyone!

barb k.

--- dreamer_plus wrote:

> I took Jimmy to the eye dr here for what our ER said

> would be follow up, confirmation he was going to be

> OK with his eye injury. The opthamologist decided

> Jimmy was NOT OK with the injury and sent us to a

> specialist straight from his office Thursday

> afternoon. We hd to wait for that specialst cuz his

> office was already closed for the day and he had to

> finish a surgery he was doing to come see Jimmy. He

> sent us immediately to Univ of Chicago in Hyde Park.

> There was a glitch in paperwork and between the

> docs, so they held us from heading there till friday

> noon time. We were not sure if it was for consult or

> what. Bekky and I took Jimmy and it took us just

> almost 5 hours to get there. The speccialists there

> had known it would take us that long to get there,

> so they waited. (their office was closed by the time

> we got there)

> they planned to immeditaely whish Jimmy to emergency

> surgery, but the OR was backlogged. They prepped

> Jimmy for surgery aprox 6 PM but by 1 am they still

> could not get him in, we sat in preop the whole

> time. At 1 am they sent us over to the childrens

> hospital to grab a couple hours sleep as we had been

> waiting for surgery for nearly 36 hours by then,

> sitting on the edge of seats literally and nothing

> to eat or drink that whole time...

> At 7 am they took us back over for a new preop and

> told us it would be a 2 hour surgey. It lasted from

> 8 30 until approx 6 pm. They had to completely

> rebuild an eyeball for Jimmy. They were not sure

> they could save it at all....every part of his

> eye,macula, was destroyed, retina was detached

> sclera was ruptured, conjutiva seperated, cornea

> ruined. Vitreous leaked out. They still will not

> know if he has any vision for 6 months. His eye dr

> said he may never do contact sports or blue collar

> work. For now he must stay on his tummy flat for the

> next 5 days or so. In approx 6 months they will have

> to goback and remove cataracts caussed by this

> surgery and exchange silicone oil that they have

> filled his eye with. He is not to go back to

> school....and when he does go back, hemay not have

> PE class for at least the rest of this school year

> and will need PT and OT.

> Jimmy has difficulty with anesthesia and altho

> surgery ended last nite, he still has not cleared

> the anesthesia so he remains " out " at this

> time...(he had this same difficult when he was

> anestethized for an MRI a couple years ago)

> The hospital sent us home partly becuz Ray got

> released from VA while we were en route to Hyde

> Park, even tho I had Rays shoes, walker and clothes

> and keys and wallet, VA decided to release Ray

> anyway, they sent him home in a hospital gown and

> arranged another patient to drive him home. Jimmys

> doctors thought Jimmy might do better if he could be

> near his daddy and Rays docs thought Ray would do

> better if he could be closer to Jimmy. Jimmys docs

> also decided since I am a nurse, I could watch him

> just as well at home. Bekky proved to also be a very

> awesome caregiver, the docs and nurses at Comers

> Childrens hospital were quite impressed with her!!!

> Ray has a complete and total med overhaul and will

> get O2 within the next 2 weeks for 24 hour use. I

> still have not figured out why they are waiting 2

> weeks as altho I tried multiple times to communicate

> with his docs, they never once returned my calls.

> (our usual experience with the VA) I certainly do

> not understand a need for O2 and then putting it off

> 2 weeks!!!

> Ray has a list of upcoming VA appts and Jimmy has a

> list of upcoming appts in Hyde Park and some in Oak

> Forest. (his surgeon moved him to Oak Forest for my

> convenience)

> We are hoping to finally celebrate Krystals birthday

> tomorrow nite and have her cake and give her her

> gifts, (she has been on hold since Thursday)

> Aside from that it looks like we are going tobe

> laying VERY low and staying very very close to home

> for quite awhile. The surgeons also warned us the

> eye repair is going to be extremely and

> devastatingly financially overwhelming and that the

> hospital is extremely aggressive in collection.

> The gas for travel back and forth is also going to

> be difficult. Not sure just how we are going to

> handle all that at this time.

> Please keep us in your prayers. It sure has been a

> very hard week or 2. Right now me and Bekky are

> FINALLY going tolay down and get some MUCH needed

> sleep- and something to eat..FINALLY. The cafeteria

> there was always closed when the docs would allow us

> a moment to slip out......and we are pretty hungry.

> LOL.

> I do want to say- the people who work at Univ of

> Chicago are AMAZING, WONDERFUL, most kind....every

> single person we encountered from transportation

> aides to coffee shop workers to security guards!!!!!

> even the people in the parking garage. Never in my

> life have I encountered such kind peole in a

> hospital setting. I also have to say I am so proud

> of Jimmy. He is an ideal patient, he is uncommonly

> patient and good and so very very brave. I have such

> amazing kids!!!!

>

>

>

>

>

__________________________________

Start your day with - Make it your home page!

http://www./r/hs