RE: Margaret/Frustrated....Gareth update - pass over if you please!!!

November 7, 2011

Hi Margaret,

I would feel so frustrated too- the needs/demands of autism are relentless.

I'm glad that church is a place of refuge for you. Does your church offer any

retreats in your area where you could get away for a weekend on your own? A

family friend told me of a retreat center in Long Branch, NJ (at the Jersey

shore) that offers various retreat weekends throughout the year.

I find that I need to purposely schedule activities/time for myself whenever

possible to " recharge my batteries " . If I don't, it can be too hard/overwhelming

to do what is necessary to help . This is esp. true when the winter comes

and the days are shorter- even a cup of coffee with a neighbor/friend and not

talking about disabilities for a little while can sometimes be a good respite.

Thinking and praying for all of us to find those moments of refreshment that we

all need to keep going.

Hugs,

Mom to , 8 yrs. old DS-PDD/NOS

Northern New Jersey

Colon Cancer Survivor, 2+ years

To:

From: mfroof@...

Date: Sun, 6 Nov 2011 08:58:54 -0500

Subject: Frustrated....Gareth update - pass over if you please!!!

Hi, Everyone....just voicing frustration here. I won't feel hurt if you

pass over!!! I am soooooooooo fed up with this Autism crap....the

inability to relate pain part. Last night, after the big football game that

Gareth

and Dad watched, I went to get him ready for bed. He wouldn't get up out

of the couch and said *Arm hurt.* I looked at his arm.....the one that had

the IV in for 3 days, and the sucker is red, swollen, blotchy, and 3 " of

harden vein above AND below the IV site. It's 9:45 at night, for crying

out loud!!! Off to the ER, for 2 1/2 hrs. The doc said phlebitis is very

painful......why didn't he say something during the day?!?!? This didn't

just happen while he watched TV last night.....it's been festering for 2

days!!! Geeeeeeeesssssshhhh!!! The, the doc was going to put him on

antibiotics. I said *read the chart....he's on Ciprofloxacin already.* They sent

him home and said to put warm compresses on it and give him pain meds. I'm

off to Church.....my place of refuge anymore.

Take care, Everyone,

Margaret

Mom to Gareth, 23 y/o, DS/ASD/OCD

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