Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Margaret! Tori was quite out of sorts last evening as well. Then got up out of bed 2x within an hour telling us she wasn't tired..although she could barely keep her eyes open..then got touchy, feely, pinchy, grabby. She even piddled her pants not once, but twice within an hour..and fought with me about getting into the bathroom and getting on the toilet. WTH!! You, Leah and the others that were on here before I jumped in just about 8 years ago have been my life lights..and you all have been so very honest from the get-go about the good, the bad and the ugly..but THIS IS OUR LIFE..and each and every one of us lives it everyday....and come here for the support and understanding others cannot offer. That is the wonder of this group!! Liz > ** > > > Hi, Everyone.....Today, there are two sides to my *coin in life*. The > wonderful, optimistic, half full glass side is the fact that it is sunny > and > 68 outside. I just put two loads of towels/blankets/comforter out to dry. > The flip side (which I am ashamed to be B^ & %$*@# about due to Ashton's > issues) is the fact it is all from smeared poop because a certain > individual > refused to call for help in cleaning himself. He left two dirty, poopy > washcloths in the sink, poop on the toilet seat, and then, went in and > sat/laid > on his bed. Yesterday was a really bad day, too, with Gareth and Leah, > bless her heart, was trying to help me!!! We have known each other since > this site started up....Okieleah, she was at first!!! For the new people, > there are many of us that have held each others hands and walked through > life > for more than 12-13 yrs. > > This is our lives..........the good, the bad, and the downright ugly. > > Take care, Everyone, and continuing praying for Ashton,. Our prayers are > being heard. > Margaret > Mom to Gareth, 23 y/o, DS/ASD/OCD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Same here! Both pee and poo messes, changed bedding & today he won't get out of bed. Whines instead of talking or goes back to signing, when he wants/needs something. He's not sick, recovering well, just out of sorts too. He knows I'm upset...(about Leah and Ashton)...I'm grieving/praying with a broken heart. Even those of us who aren't as active online are deeply tied to and effected by each one in this group. I'll need to spend some one on one time with him when he wakes up to encourage him. For now, I'm off to find a Bissel Spotbot Pet spot cleaner for the peed on carpet. If it works for animals it MUST work for human urine too right?! Lord, can't think of anyone else I could say that to; but this group! Jaylene, mom to Luca 28 yrs DS/ASD/OCD Re: two sides of the coin Margaret! Tori was quite out of sorts last evening as well. Then got up out of bed 2x within an hour telling us she wasn't tired..although she could barely keep her eyes open..then got touchy, feely, pinchy, grabby. She even piddled her pants not once, but twice within an hour..and fought with me about getting into the bathroom and getting on the toilet. WTH!! You, Leah and the others that were on here before I jumped in just about 8 years ago have been my life lights..and you all have been so very honest from the get-go about the good, the bad and the ugly..but THIS IS OUR LIFE..and each and every one of us lives it everyday....and come here for the support and understanding others cannot offer. That is the wonder of this group!! Liz > ** > > > Hi, Everyone.....Today, there are two sides to my *coin in life*. The > wonderful, optimistic, half full glass side is the fact that it is sunny > and > 68 outside. I just put two loads of towels/blankets/comforter out to dry. > The flip side (which I am ashamed to be B^ & %$*@# about due to Ashton's > issues) is the fact it is all from smeared poop because a certain > individual > refused to call for help in cleaning himself. He left two dirty, poopy > washcloths in the sink, poop on the toilet seat, and then, went in and > sat/laid > on his bed. Yesterday was a really bad day, too, with Gareth and Leah, > bless her heart, was trying to help me!!! We have known each other since > this site started up....Okieleah, she was at first!!! For the new people, > there are many of us that have held each others hands and walked through > life > for more than 12-13 yrs. > > This is our lives..........the good, the bad, and the downright ugly. > > Take care, Everyone, and continuing praying for Ashton,. Our prayers are > being heard. > Margaret > Mom to Gareth, 23 y/o, DS/ASD/OCD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 I am really new, like 2 months new here..but i am so greatful that there are people on here who know exactly what the other one is going thru. It must have been something in the air last night cause also would not go to bed--had to give her another dose of melatonin at 1100 and she also wet the bed. She tried to hide the evidence by sneaking everything in the laundry room. Its frustrating and you dont know if its gonna happen again in 1 day, 2 day but you know it will happen again. I havnt seen the inside of my mother in laws house since she got it (6 years now), or my sister in laws house (5 years) because im sure they are afraid she is gonna pee on something. I blame myself sometimes because when we would get together they would ask hows things going and you think you would be able to vent without being judged huh.. Ive never met Leah or Ashton but my heart melts and i pray for them. Some people will never know what its like to have a special needs child and never understand what we all go thru. Betsy mom to 14 > > Hi, Everyone.....Today, there are two sides to my *coin in life*. The > wonderful, optimistic, half full glass side is the fact that it is sunny and > 68 outside. I just put two loads of towels/blankets/comforter out to dry. > The flip side (which I am ashamed to be B^ & %$*@# about due to Ashton's > issues) is the fact it is all from smeared poop because a certain individual > refused to call for help in cleaning himself. He left two dirty, poopy > washcloths in the sink, poop on the toilet seat, and then, went in and sat/laid > on his bed. Yesterday was a really bad day, too, with Gareth and Leah, > bless her heart, was trying to help me!!! We have known each other since > this site started up....Okieleah, she was at first!!! For the new people, > there are many of us that have held each others hands and walked through life > for more than 12-13 yrs. > > This is our lives..........the good, the bad, and the downright ugly. > > Take care, Everyone, and continuing praying for Ashton,. Our prayers are > being heard. > Margaret > Mom to Gareth, 23 y/o, DS/ASD/OCD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Liz, they are the ones missing out. I think the last time my mil stayed with us is when was going thru her screaming phase. I would have to carry her out to the school bus kicking and screaming man you had to see her face lol. Now that I think about it, it did stop her from staying with us when she visits :-) I always thought about writing a book of my stories Betsy > > > > > > Hi, Everyone.....Today, there are two sides to my *coin in life*. The > > > wonderful, optimistic, half full glass side is the fact that it is sunny > > and > > > 68 outside. I just put two loads of towels/blankets/comforter out to > > dry. > > > The flip side (which I am ashamed to be B^ & %$*@# about due to Ashton's > > > issues) is the fact it is all from smeared poop because a certain > > individual > > > refused to call for help in cleaning himself. He left two dirty, poopy > > > washcloths in the sink, poop on the toilet seat, and then, went in and > > sat/laid > > > on his bed. Yesterday was a really bad day, too, with Gareth and Leah, > > > bless her heart, was trying to help me!!! We have known each other since > > > this site started up....Okieleah, she was at first!!! For the new > > people, > > > there are many of us that have held each others hands and walked through > > life > > > for more than 12-13 yrs. > > > > > > This is our lives..........the good, the bad, and the downright ugly. > > > > > > Take care, Everyone, and continuing praying for Ashton,. Our prayers are > > > being heard. > > > Margaret > > > Mom to Gareth, 23 y/o, DS/ASD/OCD > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Margaret, People used to say to me that they felt funny complaining about their kids when I so clearly had it " worse " with Ian. The way I see it, everyone's issues are 100% to them, and one can drown in 2 inches of water as well as 20 feet. There is no comparing. Right now, I know we have a raw deal end, and that's just what we have to handle. On Thanksgiving, Ian had a major behavioral episode at a local fancy shmancy restaurant, involving many broken glasses and plates -- but at least not $1000 worth of damage like the time he tore up an Applebee's. It is what it is. Some days good, some days not so good, some days better than good -- so we take them as they come. My own struggle is to keep from murdering the CEO of the organization that has Ian -- the CEO broke my son and Ian just hasn't recovered since the b%^ & (rd unilaterally made a decision that no one else agreed with and that traumatized my son so badly he will never be the same. Sure, I'm thinking of Leah and Ashton and my heart breaks for the pain that family is experiencing. But what we experience is valid too. CK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2011 Report Share Posted November 29, 2011 CK, Thank you for this invaluable perspective: " The way I see it, everyone's issues are 100% to them, and one can drown in 2 inches of water as well as 20 feet. There is no comparing. " I am so sorry to hear that Ian has been traumatized, as I am sure you have been in the bargain. Sorry doesn't begin to convey it, actually, but it stinks beyond description. Where is he living now? Is it possible to get Ian moved to another organization or have you run out of options? It sounds so exhausting, and impossible, and sad. And thank you for the validation of each family's struggle. You are absolutely right to remind us of that. As for the CEO- your restraint in doing bodily harm to him is remarkable....May he receive fitting treatment for the harm he has brought to your son. God Bless Us, Every One (Feeling more like " Have MERCY! ENOUGH IS ENOUGH!) Beth > > Margaret, > > People used to say to me that they felt funny complaining about their kids > when I so clearly had it " worse " with Ian. The way I see it, everyone's > issues are 100% to them, and one can drown in 2 inches of water as well as > 20 feet. There is no comparing. > > Right now, I know we have a raw deal end, and that's just what we have to > handle. On Thanksgiving, Ian had a major behavioral episode at a local > fancy shmancy restaurant, involving many broken glasses and plates -- but at > least not $1000 worth of damage like the time he tore up an Applebee's. It > is what it is. > > Some days good, some days not so good, some days better than good -- so we > take them as they come. > > My own struggle is to keep from murdering the CEO of the organization that > has Ian -- the CEO broke my son and Ian just hasn't recovered since the > b%^ & (rd unilaterally made a decision that no one else agreed with and that > traumatized my son so badly he will never be the same. > > Sure, I'm thinking of Leah and Ashton and my heart breaks for the pain that > family is experiencing. But what we experience is valid too. > > CK > > > > Quote Link to comment Share on other sites More sharing options...
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