Guest guest Posted November 13, 2011 Report Share Posted November 13, 2011 We went through years of trauma, not getting a diagnosis, and not knowing what was wrong with my older daughter. We went to the Diagnostic Center at Children's Hospital of Philadelphia, and finally, we got a diagnosis that made sense. I'm glad you checked it out. Here is a link to an article that might interest you. The doctors that diagnosed my daughter are the ones who were able to diagnose the child profiled here... http://www.nytimes.com/2008/06/15/magazine/15diagnosis-t.html?ref=magazine You should consider having that testing with the tilt table. It will give you data that may be able to tell if Gareth has dysautonomia or not. > ** > > > <<Dysautonomia>> > > Hi, Everyone....Ariella....I have never heard of this and Googled to read > about it. It sure fits Gareth to a T....right down to the neuro-vaso > syncopes, pneumonias, connective tissue background, and lack of energy in > the > afternoon. I will ask this new Cardiologist what he thinks. They did > recommend that Gareth do the tilt table and I said I saw no reason to > subject him > to that since we knew he had the OH. Thanks for the information....it's > much appreciated. > > Take care, Everyone. > Margaret > Mom to Gareth 23 y/o, DS/ASD/OCD > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2011 Report Share Posted November 14, 2011 Margaret: I just read about Gareth being admitted to hospital again - I'm so sorry. Thinking of you, and hoping that you and the docs will be able to get him stabilized. Sue, Mom to Milly, 23yrs, DS & Autism > > <<Dysautonomia>> > > Hi, Everyone....Ariella....I have never heard of this and Googled to read > about it. It sure fits Gareth to a T....right down to the neuro-vaso > syncopes, pneumonias, connective tissue background, and lack of energy in the > afternoon. I will ask this new Cardiologist what he thinks. They did > recommend that Gareth do the tilt table and I said I saw no reason to subject him > to that since we knew he had the OH. Thanks for the information....it's > much appreciated. > > Take care, Everyone. > Margaret > Mom to Gareth 23 y/o, DS/ASD/OCD > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2012 Report Share Posted April 15, 2012 Ariella, You're fine. It is a disturbing book. It's great that you are sensitive enough to be hurt by it! That's an important quality in our world - to point out what's hurtful and to never forget. I know you understand that. Thanks for helping us not forget. Joan Quote Link to comment Share on other sites More sharing options...
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