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Z/Gareth update

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Hi, Everyone........I never would because I couldn't be there with

Gareth. There was no way I would allow someone to do something with him that

I didn't approve/see, etc, bec ause he wouldn't be able to tell me what was

going on. They (school system) wanted to admit Gareth at one point and I

told them the room would have to be for two.....him and me. Most of us start

their meds from home....is that not an option for you?

<<I think the anti-Parkinsonian drugs are longer-acting with better

results>>

I thought the Amantadine was great for Gareth till the horrible

tics/tremors started, profuse sweating, and back to constant teeth grinding.

The

psych doc added another med to counter the affects and that caused Gareth to

black out. I did LOVE the immediate verbal response that I got from him

and the fact that he actually wanted to do things with us instead of veggie

out all day in his swing..

Well.....we have definitely been down this road before. I'm asking that

everyone keeps Gareth in their thoughts and prayers this Freddy. He

perforated his left ear (3rd time this year) 3 weeks ago and they have decided

it's best to go in and clean out the mandible bone (?) area and insert a tube

into the ear drum - if it's healed over already. Since we are finding all

these immunological deficiencies, the PCP and ENT feel that the antibiotics

aren't getting into the bone, where the underlying infection just festers,

and that is why that one ear keeps getting re-infected and rupturing when

there's no indication of a cold or sinus infection. This will be the 4th

surgery in 6 months...........

Take care, Everyone.

Margaret

Mom to Gareth, 23 y/o, DS/ASD/OCD

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