Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 Where is NC are you?? We are in Cary NC From: [mailto: ] On Behalf Of marifermm Sent: Friday, October 28, 2011 9:17 PM To: Subject: Intro. from NC Hi everyone, I've been " lurking " , trying to learn as much as possible. My son (only child) with DS was diagnosed within the spectrum back in August of this year. We suspected for years (He is 6 now) but all the " professionals " would say no way, good eye contact, easy to engage, etc. but we saw things that were not present on the rest of the DS community. He walked very late, among other things. I think one of the last events we attended with the DS association was at a gym. My son was maybe about 3 and wasn't even standing on his own. I remember sitting on the mats behind another mom who had a son about 6 months older than mine when suddenly her boy came RUNNING to her and gave her a tight hug. I just wanted to cry right there. Then at a picnic while kids of all ages (all with DS) were having a wonderful time at the sprinklers mine wanted nothing to do with it and when they clapped for some reason, he cried and the list goes on and on. Like some others have expressed, it became too painful to attend these events. I don't send him to PS although shortly before the diagnosis I had met the director of an afterschool program who is also in charge of a program where college students are paired with a child with autism so he attends the af. twice/week and he gets to interact with typical kids who by the way are smitten by him as he is the youngest and a cutie, if mom can say so : ) Also, the student comes 2x/week for two hours and interacts with him during which time I can take care of other things as long as I stay in the house so I am getting much needed free time to do other neglected things. Also, our church (which we found a few months ago) has a fantastic children's ministry, so good, we attend twice every weekend, for him and also because the Pastor delivers the bests life empowering, faith strenghtening sermons I ever heard and finding this church has become a turning point so I am no longer (or rarely) in tears on a regular basis. It used to be a weekly event and now, more than ever I see my son as the special gift from God that he has entrusted me with although I feel God must really think a lot beeter of me than I do : ) On the bright side besides having access to these programs (not free, but low cost) now I know how to teach my son, whereas before I was clueless. I just realized I wrote a very long intro. Thank you if you got this far and thank you for all the wisdom, knowledge and struggles you share with the group.By the way, I recognize a few of the members from the Eintein list. Hi! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 And Nereida is in NC as well. Welcome ! I am in N GA with Elie, age 26 - and DONE WITH SCHOOL!!! > ** > > > Where is NC are you?? We are in Cary NC > > From: [mailto: ] On > Behalf > Of marifermm > Sent: Friday, October 28, 2011 9:17 PM > To: > Subject: Intro. from NC > > Hi everyone, > I've been " lurking " , trying to learn as much as possible. My son (only > child) with DS was diagnosed within the spectrum back in August of this > year. We suspected for years (He is 6 now) but all the " professionals " > would > say no way, good eye contact, easy to engage, etc. but we saw things that > were not present on the rest of the DS community. He walked very late, > among > other things. I think one of the last events we attended with the DS > association was at a gym. My son was maybe about 3 and wasn't even standing > on his own. I remember sitting on the mats behind another mom who had a son > about 6 months older than mine when suddenly her boy came RUNNING to her > and > gave her a tight hug. I just wanted to cry right there. > > Then at a picnic while kids of all ages (all with DS) were having a > wonderful time at the sprinklers mine wanted nothing to do with it and when > they clapped for some reason, he cried and the list goes on and on. Like > some others have expressed, it became too painful to attend these events. > > I don't send him to PS although shortly before the diagnosis I had met the > director of an afterschool program who is also in charge of a program where > college students are paired with a child with autism so he attends the af. > twice/week and he gets to interact with typical kids who by the way are > smitten by him as he is the youngest and a cutie, if mom can say so : ) > Also, the student comes 2x/week for two hours and interacts with him during > which time I can take care of other things as long as I stay in the house > so > I am getting much needed free time to do other neglected things. > > Also, our church (which we found a few months ago) has a fantastic > children's ministry, so good, we attend twice every weekend, for him and > also because the Pastor delivers the bests life empowering, faith > strenghtening sermons I ever heard and finding this church has become a > turning point so I am no longer (or rarely) in tears on a regular basis. It > used to be a weekly event and now, more than ever I see my son as the > special gift from God that he has entrusted me with although I feel God > must > really think a lot beeter of me than I do : ) > > On the bright side besides having access to these programs (not free, but > low cost) now I know how to teach my son, whereas before I was clueless. > > I just realized I wrote a very long intro. Thank you if you got this far > and > thank you for all the wisdom, knowledge and struggles you share with the > group.By the way, I recognize a few of the members from the Eintein list. > Hi! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 Welcome, ! Sara, tell us how you _really_ feel about Elie being finished with school?? <g> <3 Sent from my iPhone > And Nereida is in NC as well. > > Welcome ! I am in N GA with Elie, age 26 - and DONE WITH SCHOOL!!! > > > > > ** > > > > > > Where is NC are you?? We are in Cary NC > > > > From: [mailto: ] On > > Behalf > > Of marifermm > > Sent: Friday, October 28, 2011 9:17 PM > > To: > > Subject: Intro. from NC > > > > Hi everyone, > > I've been " lurking " , trying to learn as much as possible. My son (only > > child) with DS was diagnosed within the spectrum back in August of this > > year. We suspected for years (He is 6 now) but all the " professionals " > > would > > say no way, good eye contact, easy to engage, etc. but we saw things that > > were not present on the rest of the DS community. He walked very late, > > among > > other things. I think one of the last events we attended with the DS > > association was at a gym. My son was maybe about 3 and wasn't even standing > > on his own. I remember sitting on the mats behind another mom who had a son > > about 6 months older than mine when suddenly her boy came RUNNING to her > > and > > gave her a tight hug. I just wanted to cry right there. > > > > Then at a picnic while kids of all ages (all with DS) were having a > > wonderful time at the sprinklers mine wanted nothing to do with it and when > > they clapped for some reason, he cried and the list goes on and on. Like > > some others have expressed, it became too painful to attend these events. > > > > I don't send him to PS although shortly before the diagnosis I had met the > > director of an afterschool program who is also in charge of a program where > > college students are paired with a child with autism so he attends the af. > > twice/week and he gets to interact with typical kids who by the way are > > smitten by him as he is the youngest and a cutie, if mom can say so : ) > > Also, the student comes 2x/week for two hours and interacts with him during > > which time I can take care of other things as long as I stay in the house > > so > > I am getting much needed free time to do other neglected things. > > > > Also, our church (which we found a few months ago) has a fantastic > > children's ministry, so good, we attend twice every weekend, for him and > > also because the Pastor delivers the bests life empowering, faith > > strenghtening sermons I ever heard and finding this church has become a > > turning point so I am no longer (or rarely) in tears on a regular basis. It > > used to be a weekly event and now, more than ever I see my son as the > > special gift from God that he has entrusted me with although I feel God > > must > > really think a lot beeter of me than I do : ) > > > > On the bright side besides having access to these programs (not free, but > > low cost) now I know how to teach my son, whereas before I was clueless. > > > > I just realized I wrote a very long intro. Thank you if you got this far > > and > > thank you for all the wisdom, knowledge and struggles you share with the > > group.By the way, I recognize a few of the members from the Eintein list. > > Hi! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 What - y'll didn;t catch my happy dance?? Of course the last year - the very last year was wonderful. Still - I have necver regretted NOT getting up at 5:30 Am to get him on a bus for 6:15 for school which started at 8AM!!!!! > ** > > > Welcome, ! > > Sara, tell us how you _really_ feel about Elie being finished with school?? > <g> > > <3 > > Sent from my iPhone > > > > > > And Nereida is in NC as well. > > > > Welcome ! I am in N GA with Elie, age 26 - and DONE WITH SCHOOL!!! > > > > On Sat, Oct 29, 2011 at 12:02 PM, Zahn > wrote: > > > > > ** > > > > > > > > > > Where is NC are you?? We are in Cary NC > > > > > > From: [mailto: ] On > > > Behalf > > > Of marifermm > > > Sent: Friday, October 28, 2011 9:17 PM > > > To: > > > Subject: Intro. from NC > > > > > > Hi everyone, > > > I've been " lurking " , trying to learn as much as possible. My son (only > > > child) with DS was diagnosed within the spectrum back in August of this > > > year. We suspected for years (He is 6 now) but all the " professionals " > > > would > > > say no way, good eye contact, easy to engage, etc. but we saw things > that > > > were not present on the rest of the DS community. He walked very late, > > > among > > > other things. I think one of the last events we attended with the DS > > > association was at a gym. My son was maybe about 3 and wasn't even > standing > > > on his own. I remember sitting on the mats behind another mom who had a > son > > > about 6 months older than mine when suddenly her boy came RUNNING to > her > > > and > > > gave her a tight hug. I just wanted to cry right there. > > > > > > Then at a picnic while kids of all ages (all with DS) were having a > > > wonderful time at the sprinklers mine wanted nothing to do with it and > when > > > they clapped for some reason, he cried and the list goes on and on. > Like > > > some others have expressed, it became too painful to attend these > events. > > > > > > I don't send him to PS although shortly before the diagnosis I had met > the > > > director of an afterschool program who is also in charge of a program > where > > > college students are paired with a child with autism so he attends the > af. > > > twice/week and he gets to interact with typical kids who by the way are > > > smitten by him as he is the youngest and a cutie, if mom can say so : ) > > > Also, the student comes 2x/week for two hours and interacts with him > during > > > which time I can take care of other things as long as I stay in the > house > > > so > > > I am getting much needed free time to do other neglected things. > > > > > > Also, our church (which we found a few months ago) has a fantastic > > > children's ministry, so good, we attend twice every weekend, for him > and > > > also because the Pastor delivers the bests life empowering, faith > > > strenghtening sermons I ever heard and finding this church has become a > > > turning point so I am no longer (or rarely) in tears on a regular > basis. It > > > used to be a weekly event and now, more than ever I see my son as the > > > special gift from God that he has entrusted me with although I feel God > > > must > > > really think a lot beeter of me than I do : ) > > > > > > On the bright side besides having access to these programs (not free, > but > > > low cost) now I know how to teach my son, whereas before I was > clueless. > > > > > > I just realized I wrote a very long intro. Thank you if you got this > far > > > and > > > thank you for all the wisdom, knowledge and struggles you share with > the > > > group.By the way, I recognize a few of the members from the Eintein > list. > > > Hi! > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2011 Report Share Posted October 29, 2011 Sent from my iPhone > What - y'll didn;t catch my happy dance?? Of course the last year - the > very last year was wonderful. Still - I have necver regretted NOT getting > up at 5:30 Am to get him on a bus for 6:15 for school which started at > 8AM!!!!! > > > > > ** > > > > > > Welcome, ! > > > > Sara, tell us how you _really_ feel about Elie being finished with school?? > > <g> > > > > <3 > > > > Sent from my iPhone > > > > > > > > > > > And Nereida is in NC as well. > > > > > > Welcome ! I am in N GA with Elie, age 26 - and DONE WITH SCHOOL!!! > > > > > > On Sat, Oct 29, 2011 at 12:02 PM, Zahn > > wrote: > > > > > > > ** > > > > > > > > > > > > > > Where is NC are you?? We are in Cary NC > > > > > > > > From: [mailto: ] On > > > > Behalf > > > > Of marifermm > > > > Sent: Friday, October 28, 2011 9:17 PM > > > > To: > > > > Subject: Intro. from NC > > > > > > > > Hi everyone, > > > > I've been " lurking " , trying to learn as much as possible. My son (only > > > > child) with DS was diagnosed within the spectrum back in August of this > > > > year. We suspected for years (He is 6 now) but all the " professionals " > > > > would > > > > say no way, good eye contact, easy to engage, etc. but we saw things > > that > > > > were not present on the rest of the DS community. He walked very late, > > > > among > > > > other things. I think one of the last events we attended with the DS > > > > association was at a gym. My son was maybe about 3 and wasn't even > > standing > > > > on his own. I remember sitting on the mats behind another mom who had a > > son > > > > about 6 months older than mine when suddenly her boy came RUNNING to > > her > > > > and > > > > gave her a tight hug. I just wanted to cry right there. > > > > > > > > Then at a picnic while kids of all ages (all with DS) were having a > > > > wonderful time at the sprinklers mine wanted nothing to do with it and > > when > > > > they clapped for some reason, he cried and the list goes on and on. > > Like > > > > some others have expressed, it became too painful to attend these > > events. > > > > > > > > I don't send him to PS although shortly before the diagnosis I had met > > the > > > > director of an afterschool program who is also in charge of a program > > where > > > > college students are paired with a child with autism so he attends the > > af. > > > > twice/week and he gets to interact with typical kids who by the way are > > > > smitten by him as he is the youngest and a cutie, if mom can say so : ) > > > > Also, the student comes 2x/week for two hours and interacts with him > > during > > > > which time I can take care of other things as long as I stay in the > > house > > > > so > > > > I am getting much needed free time to do other neglected things. > > > > > > > > Also, our church (which we found a few months ago) has a fantastic > > > > children's ministry, so good, we attend twice every weekend, for him > > and > > > > also because the Pastor delivers the bests life empowering, faith > > > > strenghtening sermons I ever heard and finding this church has become a > > > > turning point so I am no longer (or rarely) in tears on a regular > > basis. It > > > > used to be a weekly event and now, more than ever I see my son as the > > > > special gift from God that he has entrusted me with although I feel God > > > > must > > > > really think a lot beeter of me than I do : ) > > > > > > > > On the bright side besides having access to these programs (not free, > > but > > > > low cost) now I know how to teach my son, whereas before I was > > clueless. > > > > > > > > I just realized I wrote a very long intro. Thank you if you got this > > far > > > > and > > > > thank you for all the wisdom, knowledge and struggles you share with > > the > > > > group.By the way, I recognize a few of the members from the Eintein > > list. > > > > Hi! > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2011 Report Share Posted October 31, 2011 Thank you all for the warm welcome! , we live on the south side of Charlotte in a small town, minutes from SC. not that close to Cary : ( I have a lot to catch up. Thank you again! Quote Link to comment Share on other sites More sharing options...
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