Guest guest Posted October 25, 2011 Report Share Posted October 25, 2011 Alina, Jake did not do trick or treat for a long time. When we first tried he wore a simple black cape. The next year a fireman's jacket. He has never worn a mask. The past 2 years he has wore a buzzlightyear disney costume that he likes to wear year round. Not sure what he will do this year. We are actually going to let him try to pick out something himself. It may work, it may not. He doesnt always enjoy going door to door. Last year he hung out with us and passed out candy, dressed in his costume for about 30 minutes and then went inside to watch videos. It is what it is. One year he made the entire neighborhood and seemed to have a blast. One year I took our two kids to a friends neighborhood and had to have my husband come get him because he had pooped in his diaper and I for some reason had no extra diapers. Oh well! LOL! If your daughter will wear a seat suite I would get a white one and paint on it, " i'm a ghost " or a black one tha says " I'm a bat " and leave it at that. If people dont understand....urgh they drive me nuts. Jake is 12 and although he does pee in the potty he does not always poop in the potty. He also goes in cycles where he will not use the potty. Most of the time this is some kind of change in routine or control he is trying to maintain on his part. Luckily for us he does now wake up dry which is a nice change after dealing with the wet sheets and blankets for so long. It does get easier. We just have to remember to enjoy those slower times when life is not so crazy and appreciate all the things when live is not so chaotic. Mostly because we all know it is going to kick in again at some point and things will be crazy for awhile! LOL! Hang in there! Holly Busy busy... Hi All... I have been following some emails for a while but I tend not to reply as I'm pretty new to the whole dual diagnosis.. I have more questions than answers and more to learn than to teach at this point... Belive me that all the posts are an amazing learning tool.. Just to read that most moms here feel that overwhelming feeling and it;s not just me calms me down.. makes me feel I'm not alone and I'm not such a bad mom for feeling that way. Latelly our battles are with insurance trying to get Gabby a push chair/stroller. She is 90 lbs and growing... I watch her diet, I control her carbs and she is taking tyroid medication.. but it;s in her genes.. she will be tall and big.. so no regular stroller will support her and Insurances are taking all their time... Gabby is walking more and more everyday.. longer distances and I feel confident taking her some places.. but there is always that fear of the unexpected that something might trigger her behavior and she will just drop to the floor and that's that. She could also run into a moving car.. (which already happend 2 times...Ugghhh so scary) and well.. I send my case.. got aproved by one insurance but not by the other.. and we are on the " waiting period of the appeal reviewing process) that takes 30 plus days... While this is one of my issues... I wonder.. how are your kids with halloween? Gabby hates dressing up.. last year i decided to just dress her as a cheerleeder.. Got her sweat pants and a Jersey.. people were mean saying " you are not dress up " TO HER!!!! (seriously???)) this year I got in my mind to make it better and invested hours making her a fairy outfit... It has tulle, wings, flowers and for her liking.. LIGHTS... I know I went overboard with all the things... but I think I was compensating for last year failure... She wont weare it... So I took all the flowers off.. and no wings still wont even touch it... Took the lights and it;s now plain blue tulle dress.... Still nothing... So now... she will be a beautiful cat... dreess in black pants and turtle neck... a nice tail and some ears I will make later... DONE... No more torture for her or me... Silly things that happens here... I'm gratefull today. my issues TODAY are this " simple " I can deal with other stuff instead.. Like other posts I read. yeap.. potty sucks.. Cant do it.. had try so many times.. and nothing.. hiding things like keys, socks, shoes.. refusing to put shoes, some nights she strips and soakes her bed with pee... so not only I have to do laundry but have to give her a hole bath.. (if I dont do it in th middle of the night....when I discover her doing that) Ok.. I'm done.. just vented a little.. and I apreciate if you read me.. I just need a friend.. some one who understands, and even laugh with me of our everyday things.. I think this group it;s just that... Friends, family, support and beyond... Alina Christy Gabby's mom ASD/DS 6 but today she thinks she is 19! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2011 Report Share Posted October 25, 2011 hated dressing up until last year. DH took him to the costume shop, he chose his own costume and wore it. He trick or treated a little, but it was frustrating. He wanted to go IN every house, and honestly I don't like teaching him to go up to someone's house and go right in, kwim?? The high school is doing a trick or treat thing on Sunday and I think we may just do that. This year, he's getting a handed-down fireman costume. He loves wearing the fire hat and won't mind the black pants and suspenders. If he hates it, we have a racecar driver one, and others that were used by his brothers. It's nice that he has older brothers! I agree about this list. It's really, really hard to find anyne who understands our reality. The conflicting feelings: love, worry, hope, fear, overwhelm. Who else gets that?? Sent from my iPhone > Hi All... > > I have been following some emails for a while but I tend not to reply as I'm pretty new to the whole dual diagnosis.. I have more questions than answers and more to learn than to teach at this point... > Belive me that all the posts are an amazing learning tool.. > Just to read that most moms here feel that overwhelming feeling and it;s not just me calms me down.. makes me feel I'm not alone and I'm not such a bad mom for feeling that way. > Latelly our battles are with insurance trying to get Gabby a push chair/stroller. > She is 90 lbs and growing... I watch her diet, I control her carbs and she is taking tyroid medication.. but it;s in her genes.. she will be tall and big.. so no regular stroller will support her and Insurances are taking all their time... > Gabby is walking more and more everyday.. longer distances and I feel confident taking her some places.. but there is always that fear of the unexpected that something might trigger her behavior and she will just drop to the floor and that's that. She could also run into a moving car.. (which already happend 2 times...Ugghhh so scary) and well.. I send my case.. got aproved by one insurance but not by the other.. and we are on the " waiting period of the appeal reviewing process) that takes 30 plus days... > > While this is one of my issues... I wonder.. how are your kids with halloween? Gabby hates dressing up.. last year i decided to just dress her as a cheerleeder.. Got her sweat pants and a Jersey.. people were mean saying " you are not dress up " TO HER!!!! (seriously???)) > this year I got in my mind to make it better and invested hours making her a fairy outfit... It has tulle, wings, flowers and for her liking.. LIGHTS... I know I went overboard with all the things... but I think I was compensating for last year failure... > > She wont weare it... > So I took all the flowers off.. and no wings > still wont even touch it... > Took the lights and it;s now plain blue tulle dress.... > Still nothing... > > So now... she will be a beautiful cat... dreess in black pants and turtle neck... a nice tail and some ears I will make later... > DONE... > No more torture for her or me... > Silly things that happens here... > I'm gratefull today. my issues TODAY are this " simple " I can deal with other stuff instead.. > Like other posts I read. yeap.. potty sucks.. Cant do it.. had try so many times.. and nothing.. hiding things like keys, socks, shoes.. refusing to put shoes, some nights she strips and soakes her bed with pee... so not only I have to do laundry but have to give her a hole bath.. (if I dont do it in th middle of the night....when I discover her doing that) > Ok.. I'm done.. just vented a little.. and I apreciate if you read me.. I just need a friend.. some one who understands, and even laugh with me of our everyday things.. I think this group it;s just that... > Friends, family, support and beyond... > > Alina Christy > Gabby's mom ASD/DS 6 but today she thinks she is 19! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2011 Report Share Posted October 26, 2011 Tori has always loved to dress up (no mask though) but would never trick or treat. She'd rather answer the door and give out the goodies. This is the first year she actually wanted to go to the Miracle League Trick or Treat and she had a BLAST!!! Liz > ** > > > hated dressing up until last year. DH took him to the costume shop, > he chose his own costume and wore it. He trick or treated a little, but it > was frustrating. He wanted to go IN every house, and honestly I don't like > teaching him to go up to someone's house and go right in, kwim?? The high > school is doing a trick or treat thing on Sunday and I think we may just do > that. > > This year, he's getting a handed-down fireman costume. He loves wearing the > fire hat and won't mind the black pants and suspenders. > > If he hates it, we have a racecar driver one, and others that were used by > his brothers. > > It's nice that he has older brothers! > > I agree about this list. It's really, really hard to find anyne who > understands our reality. The conflicting feelings: love, worry, hope, fear, > overwhelm. Who else gets that?? > > > > Sent from my iPhone > > > > > > Hi All... > > > > I have been following some emails for a while but I tend not to reply as > I'm pretty new to the whole dual diagnosis.. I have more questions than > answers and more to learn than to teach at this point... > > Belive me that all the posts are an amazing learning tool.. > > Just to read that most moms here feel that overwhelming feeling and it;s > not just me calms me down.. makes me feel I'm not alone and I'm not such a > bad mom for feeling that way. > > Latelly our battles are with insurance trying to get Gabby a push > chair/stroller. > > She is 90 lbs and growing... I watch her diet, I control her carbs and > she is taking tyroid medication.. but it;s in her genes.. she will be tall > and big.. so no regular stroller will support her and Insurances are taking > all their time... > > Gabby is walking more and more everyday.. longer distances and I feel > confident taking her some places.. but there is always that fear of the > unexpected that something might trigger her behavior and she will just drop > to the floor and that's that. She could also run into a moving car.. (which > already happend 2 times...Ugghhh so scary) and well.. I send my case.. got > aproved by one insurance but not by the other.. and we are on the " waiting > period of the appeal reviewing process) that takes 30 plus days... > > > > While this is one of my issues... I wonder.. how are your kids with > halloween? Gabby hates dressing up.. last year i decided to just dress her > as a cheerleeder.. Got her sweat pants and a Jersey.. people were mean > saying " you are not dress up " TO HER!!!! (seriously???)) > > this year I got in my mind to make it better and invested hours making > her a fairy outfit... It has tulle, wings, flowers and for her liking.. > LIGHTS... I know I went overboard with all the things... but I think I was > compensating for last year failure... > > > > She wont weare it... > > So I took all the flowers off.. and no wings > > still wont even touch it... > > Took the lights and it;s now plain blue tulle dress.... > > Still nothing... > > > > So now... she will be a beautiful cat... dreess in black pants and turtle > neck... a nice tail and some ears I will make later... > > DONE... > > No more torture for her or me... > > Silly things that happens here... > > I'm gratefull today. my issues TODAY are this " simple " I can deal with > other stuff instead.. > > Like other posts I read. yeap.. potty sucks.. Cant do it.. had try so > many times.. and nothing.. hiding things like keys, socks, shoes.. refusing > to put shoes, some nights she strips and soakes her bed with pee... so not > only I have to do laundry but have to give her a hole bath.. (if I dont do > it in th middle of the night....when I discover her doing that) > > Ok.. I'm done.. just vented a little.. and I apreciate if you read me.. I > just need a friend.. some one who understands, and even laugh with me of our > everyday things.. I think this group it;s just that... > > Friends, family, support and beyond... > > > > Alina Christy > > Gabby's mom ASD/DS 6 but today she thinks she is 19! > > > > > > Quote Link to comment Share on other sites More sharing options...
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