Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 BIG CYBER HUG {{{{{{{{{{{{{{{{{{hug}}}}}}}}}}}}}}}}}}}} COMING FROM THE LEHIGH VALLEY, PA!!! -- Liz DeSantis " The person who follows the crowd will usually get no further than the crowd. The one who walks alone is likely to find himself in places no one has ever been before. " " Creativity in living is not without its attendant difficulties, for peculiarity breeds contempt. And the unfortunate thing about being ahead of your time is that when people finally realize you were right, they'll say it was obvious all along. " ---Temple Grandin " Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength. " - Reeves " Knowing trees, I understand the meaning of patience. Knowing grass, I can understand persistence. " - Hal Borland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2011 Report Share Posted October 19, 2011 Hi Margaret: Milly and I live in London, Ont, Canada. We moved here together with my late husband's family in 1990, and like the city, it is a medical centre in Ontario, which is nice, plus services are pretty good. Milly was born in North Bay, Ont in 1987, after my husband died (car accident when she was just 7 weeks old), we decided to move to a larger centre. His family had emigrated here from Kenya when she was 5 months old, to be with us. We are very, very close, and they have been a wonderful support to me, although as the years have passed, they have not been able to give as much practical support, due to age and other commitments. My family is in England (I am a Brit), my mom passed away, but my dad has been to visit us several times. He too loves Milly, but again, not much practical support for me. My girl is a beautiful, adorable young lady, very social on her own terms. I believe that she is the one who got all of us (my in-laws and me) through the death of her father, kept us focused and busy. She was (how shall we say?) " easy-going " until the dreaded puberty hit. then began the temper tantrums and resistance to change (it seemed that that was when the autism " kicked in " so to speak, although she did self-stim a lot when younger) and life became not just tiring, but emotionally draining too. She is non-verbal, functions at about the age of 3, but has the hormonal feelings of anyone her age. She has a mind of her own, a temper (from her father I'm sure and a great stubborn streak (from me), lots of " spunk " as staff at her morning program say, and is very smart at getting others to do everything for her. We did a major medication change 2 years ago, very traumatic and difficult, but resulted in a 40lb weight loss and a new, more-aware Milly, wonderful. The down side was that she began SIBs, hitting the side of her head, and we've been addressing that with Behaviour Therapy. It's tough, but when I read all the messages here, it helps to put things into perspective. Sue > > BIG CYBER HUG {{{{{{{{{{{{{{{{{{hug}}}}}}}}}}}}}}}}}}}} > COMING FROM THE LEHIGH VALLEY, PA!!! > > -- > Liz DeSantis " The person who follows the crowd will usually get no further > than the crowd. The one who walks alone is likely to find himself in places > no one has ever been before. " > > " Creativity in living is not without its attendant difficulties, for > peculiarity breeds contempt. And the unfortunate thing about being ahead of > your time is that when people finally realize you were right, they'll say it > was obvious all along. " ---Temple Grandin > " Anyone can give up, it's the easiest thing in the world to do. But to hold > it together when everyone else would understand if you fell apart, that's > true strength. " - Reeves > " Knowing trees, I understand the meaning of patience. Knowing grass, I can > understand persistence. " - Hal Borland > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2011 Report Share Posted October 24, 2011 Hi Margaret: I actually replied earlier to your question, but I don't think my message was posted. I don't see it anywhere. I live in London, Ontario, Canada. It is a large medical centre, and there are some good supports here. However, like many of you, I found that I do not " fit " into many of the support groups here, they are either higher-functioning DS groups, younger children, or people with just autism. Plus, as time has gone by, I just don't have the time to invest in attending these. Sue > > Hi, Everyone.........oh, can I relate to your post!!! You have > said before that Mateo and Gareth are so much alike, and you're right on > target!!! *Selective mutism* ......boy, if that doesn't describe Gareth to a > * T * , nothing does!!! That Amantadine was sooooooooooo nice in that he > started responding to questions and willingly talking....now I am back to > " Gareth, I asked you a question. Please, answer me. " " What? " he says, as > if I was talking to the wall the whole time!!! I hope the Zoloft works for > Mateo. We tried that on Gareth years ago, but it caused asthma attacks. > Just watch him closely. Cyber hugs coming your way, Lady. > > Sue....welcome to the group. Patience.........!!! Good grief, I pray > EVERY night for patience....just for one more day, dear Lord!!! My son is > Gareth, 23 y/o, DS/ASD/OCD. Where do you live? > > Holly & Shane.....Thank you, for spelling out my life, too. I think all > of us need one large group cyber hug!!! > > Take care, Everyone. > Margaret > > Quote Link to comment Share on other sites More sharing options...
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