Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 : I have her number, but it's downstairs in the file cabinet. I'll get it later.I got sidetracked today by the earthquake. j At 05:33 PM 2/28/01 EST, you wrote: >In a message dated 2/28/01 12:57:04 PM Pacific Standard Time, > writes: > > >> Have you considered Cincinnati? (is it closer/cheaper to get there?) Bonnie >> is in Cincinnati and has as much understanding as Dr. Capone and >> is very compassionate. >> >> She'll return a phone call if you want to try and call her to talk to her >> about what her clinic would do for you. And, I think you should do the same >> with Kennedy Krieger. Make sure what they might offer for you is actually >> going to be helpful to you from a distance. >> >> > >Joan, after what I've been through gathering medical records to send to Dr. >, you better believe I am going to thoroughly research before I make a >trip out there!! > >Well, we are in Dallas/Fort Worth area of Texas.....guess Cincinatti is just >as far/close.....still a plane ride anyway! > >Leah just IM'd me about Bonnie , how funny! The DS clinics down >here anyway, all they do is check for the health issues....nothing really has >been done for behavioral issues, other diagnoses combined with DS, things of >that nature. They DO know they exist, but not enough " bitching " about it to >start up a clinic for mental health issues! They ARE planning a clinic of >sorts for the older person with DS.....seems most places deal with children >and not adults......don't they know our children will soon be adults???? DUH! > >Thanks for the info......I'm keeping notes.... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 At 02:47 PM 2/28/01 -0800, you wrote: >: Here you go: She's with CCDD (Cincinatti Center for Dev. Disabled.) If the number doesn't work, you're looking for the DS clinic or Bonnie . 513/636-4691 Try to create a tangible list of the things you want from a clinic visit. What kinds of evals do you want, what topics do you want to discuss, etc. j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Joan. This information is helpful. I am expecting a call from her. You actually get her voice mail directly when you call the DS clinic there! Lauri in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 > > This information is helpful. I am expecting a call from her. You > actually > get her voice mail directly when you call the DS clinic there! > > Lauri in MI > Lauri, I cant' tell you how many times I have called there, both when I lived in Cincinnati and since moving to Vegas. I ALWAYS find Dr. easier to get a hold of than our regular pediatrician. In fact, that was one major complaint I have with Ped's. I tell them up front, that I dont' want to spend hours upon hours trying to get in contact with them. If Dr. can answer/return calls so quickly, I'm sure they can too.I very rarely call the Ped with an " emergeny " type problem (fewer than once every one to 2 years!), but when I do, I dont' want to be waiting one or two days to get them! Dr. is great! S ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 At 05:39 AM 3/1/01 -0800, you wrote: I ALWAYS find Dr. easier >to get a hold of than our regular pediatrician. >Dr. is great! EAch physician/medical provider has a distinct personality when dealing with parents/consumers. Dr. is very accessible. She is even more knowledgeable. I think she expresses greater compassion for our struggles as parents than most--though many have that compassion and don't express it. Or, they have trouble saying things like, " I wish there was more I could do...I wish I could help you, but I feel lost. " I would gather that's what Dr. felt. He's a pretty nice guy, really. Bonnie will talk straight talk to you. She'll tell you the pros and cons of coming to see her. She'll tell you what she can and cannot do in the big political world of hospitals. I found that so helpful, I just can't tell you. j Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 In a message dated 3/1/01 8:42:17 AM Eastern Standard Time, stolzfamily@... writes: << If Dr. can answer/return calls so quickly, I'm sure they can too.I very rarely call the Ped with an " emergeny " type problem (fewer than once every one to 2 years!), but when I do, I dont' want to be waiting one or two days to get them! Dr. is great! S ____________________________________________________________ >> , I had my first conversation with her today. She was so helpful and very kind. I actually set up an appointment for Gene to see her for an evaluation when we are on our way to Florida for spring break. We just need to drive a little further east than we usually do! It is exciting to me to know that at last I will be bringing him to someone who has met kids like him before! I think we are also going to be able to meet with the speech pathologist there and also, maybe, the Dr. from the autism clinic as well. I am putting all further meds on hold ( after the Adderal nightmare day ) until after we meet with her the end of this month. Lauri in MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Lauri: Thanks for the good report!! I'll keep my fingers crossed. You will like Bonnie. One thing I was surprised by is that she's a little short......(about 4 feet 4, I'd say). After years of over-bearing, tall MEN, it was hard for me to adjust! Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 lauri, i hope you and gene have a great visit with dr. patterson...ashton has never seen her, but i have met her at conferences and she is very kind and compassionate and an expert at her work....good luck,leah ps does anyone know what she charges for a visit > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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