Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 I am so sorry Gareth (and you) have to go through so much. May Friday be a turning point towards good health. Lori Mom to Isaac 14 and Tony 12 _____ From: [mailto: ] On Behalf Of mfroof@... Sent: Wednesday, October 12, 2011 3:15 PM To: Subject: Z/Gareth update Hi, Everyone........I never would because I couldn't be there with Gareth. There was no way I would allow someone to do something with him that I didn't approve/see, etc, bec ause he wouldn't be able to tell me what was going on. They (school system) wanted to admit Gareth at one point and I told them the room would have to be for two.....him and me. Most of us start their meds from home....is that not an option for you? <<I think the anti-Parkinsonian drugs are longer-acting with better results>> I thought the Amantadine was great for Gareth till the horrible tics/tremors started, profuse sweating, and back to constant teeth grinding. The psych doc added another med to counter the affects and that caused Gareth to black out. I did LOVE the immediate verbal response that I got from him and the fact that he actually wanted to do things with us instead of veggie out all day in his swing.. Well.....we have definitely been down this road before. I'm asking that everyone keeps Gareth in their thoughts and prayers this Freddy. He perforated his left ear (3rd time this year) 3 weeks ago and they have decided it's best to go in and clean out the mandible bone (?) area and insert a tube into the ear drum - if it's healed over already. Since we are finding all these immunological deficiencies, the PCP and ENT feel that the antibiotics aren't getting into the bone, where the underlying infection just festers, and that is why that one ear keeps getting re-infected and rupturing when there's no indication of a cold or sinus infection. This will be the 4th surgery in 6 months........... Take care, Everyone. Margaret Mom to Gareth, 23 y/o, DS/ASD/OCD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 OMG! Margaret! Keep us posted, please! Liz > ** > > > Hi, Everyone........I never would because I couldn't be there with > Gareth. There was no way I would allow someone to do something with him > that > I didn't approve/see, etc, bec ause he wouldn't be able to tell me what was > > going on. They (school system) wanted to admit Gareth at one point and I > told them the room would have to be for two.....him and me. Most of us > start > their meds from home....is that not an option for you? > > <<I think the anti-Parkinsonian drugs are longer-acting with better > results>> > > I thought the Amantadine was great for Gareth till the horrible > tics/tremors started, profuse sweating, and back to constant teeth > grinding. The > psych doc added another med to counter the affects and that caused Gareth > to > black out. I did LOVE the immediate verbal response that I got from him > and the fact that he actually wanted to do things with us instead of veggie > > out all day in his swing.. > > Well.....we have definitely been down this road before. I'm asking that > everyone keeps Gareth in their thoughts and prayers this Freddy. He > perforated his left ear (3rd time this year) 3 weeks ago and they have > decided > it's best to go in and clean out the mandible bone (?) area and insert a > tube > into the ear drum - if it's healed over already. Since we are finding all > these immunological deficiencies, the PCP and ENT feel that the antibiotics > > aren't getting into the bone, where the underlying infection just festers, > and that is why that one ear keeps getting re-infected and rupturing when > there's no indication of a cold or sinus infection. This will be the 4th > surgery in 6 months........... > > Take care, Everyone. > Margaret > Mom to Gareth, 23 y/o, DS/ASD/OCD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 Hi Margaret, & nbsp; & nbsp;The same thing happened to CJ when he was very young. & nbsp;The infections, perforated ear drums and the antibiotics thing as well. & nbsp;He had the surgery to clean out everything and they even reconstructed his ear drum. & nbsp;Anyway, I was just curious if Gareth eats lots or any dairy? & nbsp;As soon as I took dairy out of his diet all the infection problems cleared up. I hope everything goes well and he will start to feel better soon. God Bless You! Sent from my Palm Pre on the Now Network from Sprint On Oct 12, 2011 4:21 PM, Lori & lt;uccpowell@... & gt; wrote: & nbsp; I am so sorry Gareth (and you) have to go through so much. May Friday be a turning point towards good health. Lori Mom to Isaac 14 and Tony 12 _____ From: [mailto: ] On Behalf Of mfroof@... Sent: Wednesday, October 12, 2011 3:15 PM To: Subject: Z/Gareth update Hi, Everyone........I never would because I couldn't be there with Gareth. There was no way I would allow someone to do something with him that I didn't approve/see, etc, bec ause he wouldn't be able to tell me what was going on. They (school system) wanted to admit Gareth at one point and I told them the room would have to be for two.....him and me. Most of us start their meds from home....is that not an option for you? & lt; & lt;I think the anti-Parkinsonian drugs are longer-acting with better results & gt; & gt; I thought the Amantadine was great for Gareth till the horrible tics/tremors started, profuse sweating, and back to constant teeth grinding. The psych doc added another med to counter the affects and that caused Gareth to black out. I did LOVE the immediate verbal response that I got from him and the fact that he actually wanted to do things with us instead of veggie out all day in his swing.. Well.....we have definitely been down this road before. I'm asking that everyone keeps Gareth in their thoughts and prayers this Freddy. He perforated his left ear (3rd time this year) 3 weeks ago and they have decided it's best to go in and clean out the mandible bone (?) area and insert a tube into the ear drum - if it's healed over already. Since we are finding all these immunological deficiencies, the PCP and ENT feel that the antibiotics aren't getting into the bone, where the underlying infection just festers, and that is why that one ear keeps getting re-infected and rupturing when there's no indication of a cold or sinus infection. This will be the 4th surgery in 6 months........... Take care, Everyone. Margaret Mom to Gareth, 23 y/o, DS/ASD/OCD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2011 Report Share Posted October 12, 2011 Hi Margaret, Praying that this resolves Gareth's ear problems. Charlyne Subject: Z/Gareth update To: Date: Wednesday, October 12, 2011, 4:15 PM  Hi, Everyone........I never would because I couldn't be there with Gareth. There was no way I would allow someone to do something with him that I didn't approve/see, etc, bec ause he wouldn't be able to tell me what was going on. They (school system) wanted to admit Gareth at one point and I told them the room would have to be for two.....him and me. Most of us start their meds from home....is that not an option for you? <<I think the anti-Parkinsonian drugs are longer-acting with better results>> I thought the Amantadine was great for Gareth till the horrible tics/tremors started, profuse sweating, and back to constant teeth grinding. The psych doc added another med to counter the affects and that caused Gareth to black out. I did LOVE the immediate verbal response that I got from him and the fact that he actually wanted to do things with us instead of veggie out all day in his swing.. Well.....we have definitely been down this road before. I'm asking that everyone keeps Gareth in their thoughts and prayers this Freddy. He perforated his left ear (3rd time this year) 3 weeks ago and they have decided it's best to go in and clean out the mandible bone (?) area and insert a tube into the ear drum - if it's healed over already. Since we are finding all these immunological deficiencies, the PCP and ENT feel that the antibiotics aren't getting into the bone, where the underlying infection just festers, and that is why that one ear keeps getting re-infected and rupturing when there's no indication of a cold or sinus infection. This will be the 4th surgery in 6 months........... Take care, Everyone. Margaret Mom to Gareth, 23 y/o, DS/ASD/OCD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 MArgaret - think you mean the MASTOID BONE> That is frequently the repository of infection since it is such spongy bone - lots of little tiny air pockets to hide in. > ** > > > Hi, Everyone........I never would because I couldn't be there with > Gareth. There was no way I would allow someone to do something with him > that > I didn't approve/see, etc, bec ause he wouldn't be able to tell me what was > > going on. They (school system) wanted to admit Gareth at one point and I > told them the room would have to be for two.....him and me. Most of us > start > their meds from home....is that not an option for you? > > <<I think the anti-Parkinsonian drugs are longer-acting with better > results>> > > I thought the Amantadine was great for Gareth till the horrible > tics/tremors started, profuse sweating, and back to constant teeth > grinding. The > psych doc added another med to counter the affects and that caused Gareth > to > black out. I did LOVE the immediate verbal response that I got from him > and the fact that he actually wanted to do things with us instead of veggie > > out all day in his swing.. > > Well.....we have definitely been down this road before. I'm asking that > everyone keeps Gareth in their thoughts and prayers this Freddy. He > perforated his left ear (3rd time this year) 3 weeks ago and they have > decided > it's best to go in and clean out the mandible bone (?) area and insert a > tube > into the ear drum - if it's healed over already. Since we are finding all > these immunological deficiencies, the PCP and ENT feel that the antibiotics > > aren't getting into the bone, where the underlying infection just festers, > and that is why that one ear keeps getting re-infected and rupturing when > there's no indication of a cold or sinus infection. This will be the 4th > surgery in 6 months........... > > Take care, Everyone. > Margaret > Mom to Gareth, 23 y/o, DS/ASD/OCD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2011 Report Share Posted October 13, 2011 Oh, Margaret. I hope the surgery is the last one for a long time! Sent from my iPhone > Hi Margaret, > Praying that this resolves Gareth's ear problems. > Charlyne > > > > > Subject: Z/Gareth update > To: > Date: Wednesday, October 12, 2011, 4:15 PM > > > > Hi, Everyone........I never would because I couldn't be there with > > Gareth. There was no way I would allow someone to do something with him that > > I didn't approve/see, etc, bec ause he wouldn't be able to tell me what was > > going on. They (school system) wanted to admit Gareth at one point and I > > told them the room would have to be for two.....him and me. Most of us start > > their meds from home....is that not an option for you? > > <<I think the anti-Parkinsonian drugs are longer-acting with better > > results>> > > I thought the Amantadine was great for Gareth till the horrible > > tics/tremors started, profuse sweating, and back to constant teeth grinding. The > > psych doc added another med to counter the affects and that caused Gareth to > > black out. I did LOVE the immediate verbal response that I got from him > > and the fact that he actually wanted to do things with us instead of veggie > > out all day in his swing.. > > Well.....we have definitely been down this road before. I'm asking that > > everyone keeps Gareth in their thoughts and prayers this Freddy. He > > perforated his left ear (3rd time this year) 3 weeks ago and they have decided > > it's best to go in and clean out the mandible bone (?) area and insert a tube > > into the ear drum - if it's healed over already. Since we are finding all > > these immunological deficiencies, the PCP and ENT feel that the antibiotics > > aren't getting into the bone, where the underlying infection just festers, > > and that is why that one ear keeps getting re-infected and rupturing when > > there's no indication of a cold or sinus infection. This will be the 4th > > surgery in 6 months........... > > Take care, Everyone. > > Margaret > > Mom to Gareth, 23 y/o, DS/ASD/OCD > > Quote Link to comment Share on other sites More sharing options...
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