Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 Hi again, Guess I was a little vague. I've been on the net for a long time and I'm used to being obscure about everything. I guess that really doesn't matter all that much anymore. Thanks for the responses I got to my introduction. I'm in Southeast Missouri about an hour and a half south of St. Louis Mo. If anyone does know a good rheumatologist around here or even a good one in St Louis I would really be most grateful... You know the thing that's getting me right now? I'm absolutely terrified. Seriously. I'm on some horrible emotional rollercoaster. I cry all the time or I want to cry all the time. The more upset I get the more my fingers and toes burn. I don't know who to turn to. I've been reading y'alls post and y'all seem like your coping! I can't even imagine it. Is it normal to feel like your life is totally over? It's killing me to type! I cannot eat without pain. What is the point? I guess I'll just have me a big ole helping of the whine and cheese! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 , there is hope for a better future. As soon as possible, you need to find a rheumatologist. Sometimes it takes a long time to get in to see one, because they are in short supply. So find one ASAP. Do you already have a diagnosis of RA? Sometimes it takes a while to get a correct diagnosis, because the symptoms of some of these autoimmune diseases overlap. But if you have RA, the sooner you are put on a DMARD (disease-modifying anti-rheumatic drug), the better. RA can cause damage to the joints early on. Most of the time the rheumy has to experiment in order to find the right combination of meds for you. I have been on methotrexate, then Arava, then for me the third time was the charm with Enbrel. I do have a few aches and pains, but nothing like the unbearable pain I used to have. I live my life basically the same as I did before RA. I do consider myself lucky in being able to say that. So don't give up hope. There is life after RA. Take action now to try to defeat it. Get an appointment with a rheumy. Then be the squeaky wheel until you get relief. Good luck. Sue On Monday, October 31, 2005, at 02:13 PM, theonlyerinyes wrote: > > You know the thing that's getting me right now? I'm absolutely > terrified. Seriously. I'm on some horrible emotional rollercoaster. > I cry all the time or I want to cry all the time. The more upset I > get the more my fingers and toes burn. I don't know who to turn to. > I've been reading y'alls post and y'all seem like your coping! I > can't even imagine it. Is it normal to feel like your life is totally > over? It's killing me to type! I cannot eat without pain. What is > the point? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 , there is hope for a better future. As soon as possible, you need to find a rheumatologist. Sometimes it takes a long time to get in to see one, because they are in short supply. So find one ASAP. Do you already have a diagnosis of RA? Sometimes it takes a while to get a correct diagnosis, because the symptoms of some of these autoimmune diseases overlap. But if you have RA, the sooner you are put on a DMARD (disease-modifying anti-rheumatic drug), the better. RA can cause damage to the joints early on. Most of the time the rheumy has to experiment in order to find the right combination of meds for you. I have been on methotrexate, then Arava, then for me the third time was the charm with Enbrel. I do have a few aches and pains, but nothing like the unbearable pain I used to have. I live my life basically the same as I did before RA. I do consider myself lucky in being able to say that. So don't give up hope. There is life after RA. Take action now to try to defeat it. Get an appointment with a rheumy. Then be the squeaky wheel until you get relief. Good luck. Sue On Monday, October 31, 2005, at 02:13 PM, theonlyerinyes wrote: > > You know the thing that's getting me right now? I'm absolutely > terrified. Seriously. I'm on some horrible emotional rollercoaster. > I cry all the time or I want to cry all the time. The more upset I > get the more my fingers and toes burn. I don't know who to turn to. > I've been reading y'alls post and y'all seem like your coping! I > can't even imagine it. Is it normal to feel like your life is totally > over? It's killing me to type! I cannot eat without pain. What is > the point? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 Hi , I do not post as much as I read. It is difficult to deal with. I do not say much because I am still on the emotional roller coaster. It sometimes helps just to know that others are going through what you are. You have support here, that's what we are here for. Being in constant pain allows us to partake of " whine and cheese " as well. I live in Texas as well. Cassy --- In , " theonlyerinyes " <erinye@c...> wrote: > > Hi again, > > Guess I was a little vague. I've been on the net for a long time and > I'm used to being obscure about everything. I guess that really > doesn't matter all that much anymore. Thanks for the responses I got > to my introduction. > > I'm in Southeast Missouri about an hour and a half south of St. Louis > Mo. If anyone does know a good rheumatologist around here or even a > good one in St Louis I would really be most grateful... > > You know the thing that's getting me right now? I'm absolutely > terrified. Seriously. I'm on some horrible emotional rollercoaster. > I cry all the time or I want to cry all the time. The more upset I > get the more my fingers and toes burn. I don't know who to turn to. > I've been reading y'alls post and y'all seem like your coping! I > can't even imagine it. Is it normal to feel like your life is totally > over? It's killing me to type! I cannot eat without pain. What is > the point? > > I guess I'll just have me a big ole helping of the whine and cheese! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 Hi , I do not post as much as I read. It is difficult to deal with. I do not say much because I am still on the emotional roller coaster. It sometimes helps just to know that others are going through what you are. You have support here, that's what we are here for. Being in constant pain allows us to partake of " whine and cheese " as well. I live in Texas as well. Cassy > > Hi again, > > Guess I was a little vague. I've been on the net for a long time and > I'm used to being obscure about everything. I guess that really > doesn't matter all that much anymore. Thanks for the responses I got > to my introduction. > > I'm in Southeast Missouri about an hour and a half south of St. Louis > Mo. If anyone does know a good rheumatologist around here or even a > good one in St Louis I would really be most grateful... > > You know the thing that's getting me right now? I'm absolutely > terrified. Seriously. I'm on some horrible emotional rollercoaster. > I cry all the time or I want to cry all the time. The more upset I > get the more my fingers and toes burn. I don't know who to turn to. > I've been reading y'alls post and y'all seem like your coping! I > can't even imagine it. Is it normal to feel like your life is totally > over? It's killing me to type! I cannot eat without pain. What is > the point? > > I guess I'll just have me a big ole helping of the whine and cheese! > > > Quote Link to comment Share on other sites More sharing options...
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