Guest guest Posted August 4, 2011 Report Share Posted August 4, 2011 <<Did Gareth lose any hair from the Plaquenil? I know about getting the eye exams 2 times yearly but is there anything else you noticed?...........Hemophagocytic lymphohistiocytosis (HLH) is a rare but potentially fatal disease >> Hi, Everyone....Cyndi....please.....don't get yourself all upset like I did when I read about sine Scleroderma for the first time. Gareth had less than 5 yrs!!! Look at the word....potentially. That doesn't mean it will happen all the time. As for the Plaquenil, it takes about 3 months to start noticing the difference. G's hair did not fall out completely but it has gotten a lot thinner....due to the Plaquenil and the hypothyroidism. Take care, Everyone. Margaret Mom to Gareth, 23 y/o, DS/ASD/OCD Quote Link to comment Share on other sites More sharing options...
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