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margaret,

i am rolling in the floor....i love your comment,\\\lets just take him off

all meds " heheh i bet the teachers looked frightened and full of

panic....lmao way to go mom!!!:-) and whose says humor can't be full of

meaning and fear to the other side..hehehe even more interesting is the

school quack who doesnt see the autism... i guess all three other doctors

are wrong....imagine that one....lmao leah

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  • 1 month later...
Guest guest

In a message dated 3/5/01 6:29:31 PM Pacific Standard Time,

writes:

> It's very rare that I

>

Margaret, are you kidding? You were there for me with comforting words when

we put Sheena to sleep....btw, it's two weeks today.....sigh......

Hugs,

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  • 10 years later...

Hi Margaret,

Praying for you and Gareth- you guys have been through so much- enough already!!

Hugs,

To:

From: uccpowell@...

Date: Wed, 12 Oct 2011 16:21:33 -0500

Subject: RE: Z/Gareth update

I am so sorry Gareth (and you) have to go through so much. May Friday be a

turning point towards good health.

Lori

Mom to Isaac 14 and Tony 12

_____

From: [mailto: ] On Behalf

Of mfroof@...

Sent: Wednesday, October 12, 2011 3:15 PM

To:

Subject: Z/Gareth update

Hi, Everyone........I never would because I couldn't be there with

Gareth. There was no way I would allow someone to do something with him that

I didn't approve/see, etc, bec ause he wouldn't be able to tell me what was

going on. They (school system) wanted to admit Gareth at one point and I

told them the room would have to be for two.....him and me. Most of us start

their meds from home....is that not an option for you?

<<I think the anti-Parkinsonian drugs are longer-acting with better

results>>

I thought the Amantadine was great for Gareth till the horrible

tics/tremors started, profuse sweating, and back to constant teeth grinding.

The

psych doc added another med to counter the affects and that caused Gareth to

black out. I did LOVE the immediate verbal response that I got from him

and the fact that he actually wanted to do things with us instead of veggie

out all day in his swing..

Well.....we have definitely been down this road before. I'm asking that

everyone keeps Gareth in their thoughts and prayers this Freddy. He

perforated his left ear (3rd time this year) 3 weeks ago and they have

decided

it's best to go in and clean out the mandible bone (?) area and insert a

tube

into the ear drum - if it's healed over already. Since we are finding all

these immunological deficiencies, the PCP and ENT feel that the antibiotics

aren't getting into the bone, where the underlying infection just festers,

and that is why that one ear keeps getting re-infected and rupturing when

there's no indication of a cold or sinus infection. This will be the 4th

surgery in 6 months...........

Take care, Everyone.

Margaret

Mom to Gareth, 23 y/o, DS/ASD/OCD

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Margaret, I remember. Gareth showed me and Zeb his Penn State ID. I don't think

it's such a big deal for Zeb. He is most proud of the fact that he has learned

to independently take a city bus to the campus and back to his townhouse. He

walks a block to get the bus and it's a short ride to the campus. We live in an

area with no public transportation. He has never been on a public city bus other

than a school bus.

Charlyne

Subject: Sara/

To:

Date: Thursday, October 13, 2011, 5:53 PM

 

<<think you mean the MASTOID BONE>>

Hi, Everyone....Sara.....yes!!! The mandible is the jaw....sorry about

that. I didn't even noticed till you pointed it out.

Charlyne.....so glad to hear that Zeb is doing so well. I still remember

how proud Gareth was telling people he was going to Penn State. Although

he wasn't away from home, I know how much it meant to him.

Take care, Everyone.

Margaret

Mom to Gareth, 23 y/o, DS/ASD/OCD

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