Struggling again with Gareth's health

[Guest guest]

Hi, Everyone...I know that there are nurses, doctors, and medically smart

people on this site. I desperately need a Dr House. Gareth's pain came

back with a vengeance Sunday afternoon. I had him in to the PCP Monday and

he did a mess of blood work....CBC, SED rate, enzymes, lipids, thyroid. I

haven't heard from him since then and I know that means everything was

normal. This kid is in soooooooooooo much pain, low grade fever, and still

losing weight. He's down 18 #'s now since June 1. The PCP doesn't think it's

*pleurisy* but digestive related. I went on line Monday and found diets for

Gall bladder disease but he's still in pain on that diet. Basically, he

can't eat anything, and doesn't want to eat, because he knows it will be

painful afterward. What can it be?!?!? Blood work is negative, gallbladder

ultrasound is normal, Endocsopy is normal, CT scan of abdomen is normal,

Chest X-Ray is normal, TB test negative. This kid isn't faking the extreme

pain and I'm not making it up (like the looks from the docs indicate). He's

got those immunology deficiencies but no one seems to care that he's had a

low grade fever for over two weeks now. Any ideas and suggestions would

GREATLY be appreciated....no matter how *off the mark* they are. Email

privately if you want. I even took him off the Amantadine thinking that was the

cause but it obviously isn't since he hasn't had it since Aug 1.

Take care, Everyone,

Margaret

Mom to Gareth, 23 y/o, DS/ASD/OCD