Re: DS/ASD Conference in Colorado

[Guest guest]

Are there grants that parents like us can apply for to attend such things?

Desi

To: DS-AUTISM < >

Sent: Thursday, August 11, 2011 9:26 AM

Subject: DS/ASD Conference in Colorado

Hi, everyone!!! I just spoke with Robin Zaborek from the DS-Autism

Connection and she wanted me to let you all know that they apologize for

only holding a 1-day conference but being it is the 1st of hopefully many

more to follow, it was somewhere to start. With this being said, she wanted

me to tell you that they are hoping that if not next year, the following

year they will do a 2 day conference with more great sessions at a hotel..so

accommodations will be more readily available for the group.

After chatting with Robin for a bit, I mentioned our dual picnic many of us

attended years back, and she said that she definitely wants to hook up with

and possibly hold annual picnics here on the east coast, with conferences on

the west coast..

I am planning on putting a can outside my door to collect funds so I can get

there...

--

Liz DeSantis " Anyone can give up, it's the easiest thing in the world to do.

But to hold it together when everyone else would understand if you fell

apart, that's true strength. " - Reeves

" Let me win, but if I cannot win, let me be brave in the attempt'. - Special

Olympics Motto-RIP Eunice Kennedy Shriver

“When we long for life without difficulties, remind us that oaks grow strong

in contrary winds and diamonds are made under pressure.-Author Unknown

" Knowing trees, I understand the meaning of patience. Knowing grass, I can

understand persistence. " Â - Hal Borland

[Guest guest]

Desi: They are offering scholarships for the conference itself... You can

contact them about that. I am TRYING desperately to convince the county to

pay for my airfare and hotel with funding Tori was approved for (but they

typically don't pay for this stuff).

Liz

On Thu, Aug 11, 2011 at 3:32 PM, Desi McKenzie wrote:

> **

>

>

> Are there grants that parents like us can apply for to attend such things?

> Desi

>

>

> To: DS-AUTISM < >

> Sent: Thursday, August 11, 2011 9:26 AM

> Subject: DS/ASD Conference in Colorado

>

>

> Hi, everyone!!! I just spoke with Robin Zaborek from the DS-Autism

> Connection and she wanted me to let you all know that they apologize for

> only holding a 1-day conference but being it is the 1st of hopefully many

> more to follow, it was somewhere to start. With this being said, she

> wanted

> me to tell you that they are hoping that if not next year, the following

> year they will do a 2 day conference with more great sessions at a

> hotel..so

> accommodations will be more readily available for the group.

>

> After chatting with Robin for a bit, I mentioned our dual picnic many of us

> attended years back, and she said that she definitely wants to hook up with

> and possibly hold annual picnics here on the east coast, with conferences

> on

> the west coast..

>

> I am planning on putting a can outside my door to collect funds so I can

> get

> there...

>

> --

> Liz DeSantis " Anyone can give up, it's the easiest thing in the world to

> do.

> But to hold it together when everyone else would understand if you fell

> apart, that's true strength. " - Reeves

> " Let me win, but if I cannot win, let me be brave in the attempt'. -

> Special

> Olympics Motto-RIP Eunice Kennedy Shriver

>

> “When we long for life without difficulties, remind us that oaks grow

> strong

> in contrary winds and diamonds are made under pressure.-Author Unknown

>

> " Knowing trees, I understand the meaning of patience. Knowing grass, I can

> understand persistence. " - Hal Borland

>

>

[Guest guest]

The county?? How??

I feel like I'm seriously not getting the services we should get. Medicaid

would be a nice one...a behaviorist, respite. I have a call in to the DDD to

talk about a monthly " mom's day out " respite program. I'm going to ask what

else I'm missing out on..

Sent from my iPhone

> Desi: They are offering scholarships for the conference itself... You can

> contact them about that. I am TRYING desperately to convince the county to

> pay for my airfare and hotel with funding Tori was approved for (but they

> typically don't pay for this stuff).

>

> Liz

>

> On Thu, Aug 11, 2011 at 3:32 PM, Desi McKenzie wrote:

>

>> **

>>

>>

>> Are there grants that parents like us can apply for to attend such things?

>> Desi

>>

>>

>> To: DS-AUTISM < >

>> Sent: Thursday, August 11, 2011 9:26 AM

>> Subject: DS/ASD Conference in Colorado

>>

>>

>> Hi, everyone!!! I just spoke with Robin Zaborek from the DS-Autism

>> Connection and she wanted me to let you all know that they apologize for

>> only holding a 1-day conference but being it is the 1st of hopefully many

>> more to follow, it was somewhere to start. With this being said, she

>> wanted

>> me to tell you that they are hoping that if not next year, the following

>> year they will do a 2 day conference with more great sessions at a

>> hotel..so

>> accommodations will be more readily available for the group.

>>

>> After chatting with Robin for a bit, I mentioned our dual picnic many of us

>> attended years back, and she said that she definitely wants to hook up with

>> and possibly hold annual picnics here on the east coast, with conferences

>> on

>> the west coast..

>>

>> I am planning on putting a can outside my door to collect funds so I can

>> get

>> there...

>>

>> --

>> Liz DeSantis " Anyone can give up, it's the easiest thing in the world to

>> do.

>> But to hold it together when everyone else would understand if you fell

>> apart, that's true strength. " - Reeves

>> " Let me win, but if I cannot win, let me be brave in the attempt'. -

>> Special

>> Olympics Motto-RIP Eunice Kennedy Shriver

>>

>> “When we long for life without difficulties, remind us that oaks grow

>> strong

>> in contrary winds and diamonds are made under pressure.-Author Unknown

>>

>> " Knowing trees, I understand the meaning of patience. Knowing grass, I can

>> understand persistence. " - Hal Borland

>>

>>

[Guest guest]

:

What we have here in PA., handled by the counties is called *FSS *Family

Support Services - Funding in MR; financial help for respite care, in-home

therapy, aides, equipment, family education, recreation, diapers, camp..

Liz

--

Liz DeSantis " Anyone can give up, it's the easiest thing in the world to do.

But to hold it together when everyone else would understand if you fell

apart, that's true strength. " - Reeves

" Let me win, but if I cannot win, let me be brave in the attempt'. - Special

Olympics Motto-RIP Eunice Kennedy Shriver

“When we long for life without difficulties, remind us that oaks grow strong

in contrary winds and diamonds are made under pressure.-Author Unknown

" Knowing trees, I understand the meaning of patience. Knowing grass, I can

understand persistence. " - Hal Borland

[Guest guest]

I get absolutely NOTHING here in NJ. No, wait...every two years I can submit a

list of non-medical expenses...respite care, special needs classes, camps, and

programs, to the DDD. Regardless of what is on that list, I usually get a check

for about $1500, to last the two years until the next check. Which is a nice

gesture, but doesn't go very far in a place where babysitters start at $10/hr!

The behaviorist from school is doing parent training. So I'm learning how to

help ...but I do have 3 other kids. High on my wish list is an ABA

person to work with , daily, on home/community skills. But insurance

doesn't cover that, so...

*sigh*

Sent from my iPhone

> :

>

> What we have here in PA., handled by the counties is called *FSS *Family

> Support Services - Funding in MR; financial help for respite care, in-home

> therapy, aides, equipment, family education, recreation, diapers, camp..

>

> Liz

> --

> Liz DeSantis " Anyone can give up, it's the easiest thing in the world to do.

> But to hold it together when everyone else would understand if you fell

> apart, that's true strength. " - Reeves

> " Let me win, but if I cannot win, let me be brave in the attempt'. - Special

> Olympics Motto-RIP Eunice Kennedy Shriver

>

> “When we long for life without difficulties, remind us that oaks grow strong

> in contrary winds and diamonds are made under pressure.-Author Unknown

>

> " Knowing trees, I understand the meaning of patience. Knowing grass, I can

> understand persistence. " - Hal Borland

>

>

>

[Guest guest]

: I think a while back we had a discussion on here as to where the best

support services were for our kids, and from what I remember PA. came out

close to the top....Surprised the heck out of me, but was happy because at

that point we were looking to move out of PA...and then decided against it.

Liz

> **

>

>

> I get absolutely NOTHING here in NJ. No, wait...every two years I can

> submit a list of non-medical expenses...respite care, special needs classes,

> camps, and programs, to the DDD. Regardless of what is on that list, I

> usually get a check for about $1500, to last the two years until the next

> check. Which is a nice gesture, but doesn't go very far in a place where

> babysitters start at $10/hr!

>

> The behaviorist from school is doing parent training. So I'm learning how

> to help ...but I do have 3 other kids. High on my wish list is an ABA

> person to work with , daily, on home/community skills. But insurance

> doesn't cover that, so...

>

> *sigh*

>

>

>

> Sent from my iPhone

>

>

>

> > :

> >

> > What we have here in PA., handled by the counties is called *FSS *Family

> > Support Services - Funding in MR; financial help for respite care,

> in-home

> > therapy, aides, equipment, family education, recreation, diapers, camp..

> >

> > Liz

> > --

> > Liz DeSantis " Anyone can give up, it's the easiest thing in the world to

> do.

> > But to hold it together when everyone else would understand if you fell

> > apart, that's true strength. " - Reeves

> > " Let me win, but if I cannot win, let me be brave in the attempt'. -

> Special

> > Olympics Motto-RIP Eunice Kennedy Shriver

> >

> > “When we long for life without difficulties, remind us that oaks grow

> strong

> > in contrary winds and diamonds are made under pressure.-Author Unknown

> >

> > " Knowing trees, I understand the meaning of patience. Knowing grass, I

> can

> > understand persistence. " - Hal Borland

> >

> >

> >