Guest guest Posted June 27, 2011 Report Share Posted June 27, 2011 Just wanted to let you all know that Dr. Capone just responded to my email about ...and I have left a message for Cyndi telling her.(she was cc'd on it). Here is what he said: HI All I looked at the videos on YT – looks miserable The episodes don’t seem to be seizures – has anyone done an EEG – or too difficult to do He has some upper airway resistance/stridor making me think again of risk for sleep apnea/low oxygen. If he is on a vent the physicans also are concerned about airway obstruction or chronic lung disease. I’m sure a sleep study would be difficult to get done. Will they try and take him off the vent if he is able? Does anyone think he might need a tracheostomy? -- *Liz* Let me win, but if I cannot win, let me be brave in the attempt. - Special Olympics Motto-RIP Eunice Kennedy Shriver “When we long for life without difficulties, remind us that oaks grow strong in contrary winds and diamonds are made under pressure.-Author Unknown " Knowing trees, I understand the meaning of patience. Knowing grass, I can understand persistence. " - Hal Borland Quote Link to comment Share on other sites More sharing options...
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