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Re: terry

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could cameron pass some of that sleepiness to nathan,

at age 9 he is an insomniac I swear, has been mostly

since a toddler, a good baby, but anymore 3-6hours a

nite, last nite about 3, and still going, he got up by

himself around 7am, fell asleep at 320am and its after

2pm going and going and going, most of our days are

like this, and they got out after lunch due to

snow/weather he is playing his gameboy queitly at

least. for now anyways.lol. shawna.

--- leah leah wrote:

>

> terry,

> cameron went to school today, but he doesn't seem

> better. he gets off bus

> around 400pm, he was sleeping by 445 pm....i had to

> shake and rattle and

> roll to wake him up for dinner....the kid has gotta

> eat, he's skin and bones

> now.... so he ate dinner and was back in bed by

> 730pm... i am so worried...

> i am taking him to another doc next week....i am

> just not satisfied with the

> answer...no kid should be this sleepy..... thanks

> for asking and good luck

> with the med supply people and trainer.... hope they

> are able to help

> out......tc leah

>

>

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  • 4 weeks later...

Terry,

I truly sympathize with what you are going through. The only thing I

could think of to add is can you take for a ride in the car. Brook

really loves this when he is going stir crazy on weekends or holiday breaks

with no school. I don't know how difficult it would be but it might really

be worth it. Sending good wishes to you and your family.

Marisa

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Terry,

One more thought for , does he like bubbles. If he does you can buy

battery operated and musical bubble blowers. Brook has one that blows bubbles

and when the bubbles land on it ,iteither plays a melody or a musical note.

It looks like a large plastic ice cream cone with the cone part being green.

I think we got it at ToysR US. If you can't find it and think he might like

it I would be happy to send you mine. Let me know.

Marisa

Mom to Miles14, Brook11 and Gennie3

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Hi Marisa,

That is so sweet of you! Thank you for the offer. We will check at Toys R

Us and I can also check at etoys. has always liked bubbles...that

might be right up his alley! Thanks again!

Terry

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one thing i do because it seems like school is always out here too, with

snow and teacher inservices etc. i have some of the same programs on the

computer that nathan does at school and he will do these for awhile and

often stop requesting school, sara, (aid) or " kids " He is very routine, it

breaks his heart to not have school on sat,lol. but loves church on sundays.

shawna.

Re: terry

> Terry,

> I truly sympathize with what you are going through. The only thing I

> could think of to add is can you take for a ride in the car.

Brook

> really loves this when he is going stir crazy on weekends or holiday

breaks

> with no school. I don't know how difficult it would be but it might

really

> be worth it. Sending good wishes to you and your family.

> Marisa

>

>

>

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  • 10 years later...
Guest guest

Happy birthday !

's little sis turned 5 yesterday. My baby's a big girl now!

Sent from my iPhone

>

>

>

> Thank you Charlyne and congratulations to Zeb!

>

> New to the group

>

> Hi All,

>

> I am new to this group. My son, Sid (Siddhartha) will turn 4 tomorrow.

>

> He has Down Syndrome and has just been unofficially diagnosed with Autism.

>

> As I am sure is the case with everyone else, a lot of his delays were

>

> attributed to DS, which seems to be an all-pervasive label for anything that

>

> is wrong with him. It is only in the last month that I suspected autism, and

>

> when I asked his SLT and OT, they confirmed that suspicion.

>

> As I do more research, it is clear that Sid is quite autistic, and we

>

> just didn't know. He is non-verbal, and non-communicative. His gross motor

>

> skills are decent, though his fine-motor could use some help.

>

> I am thrilled to have found this group, and even more thrilled that it

>

> has this large group of members. Is it very common to have language delays

>

> in this group of kids? Do we have any kids that talk? I am really not sure

>

> what hope to hold out for his future. I feel put back to the day that Sid

>

> was born and I learned of his extra chromosome. In the days that followed I

>

> have never once regretted the Trisomy, but now I am not sure what to expect

>

> any more.

>

> Well, this is a long message already. I had just wanted to say " Hello

>

> Everybody " !

>

> Regards,

>

> Vaish (mom to Sid, 4)

>

>

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Guest guest

Thanks . Happy Birthday to your daughter too!

Terry

New to the group

>

> Hi All,

>

> I am new to this group. My son, Sid (Siddhartha) will turn 4 tomorrow.

>

> He has Down Syndrome and has just been unofficially diagnosed with Autism.

>

> As I am sure is the case with everyone else, a lot of his delays were

>

> attributed to DS, which seems to be an all-pervasive label for anything that

>

> is wrong with him. It is only in the last month that I suspected autism, and

>

> when I asked his SLT and OT, they confirmed that suspicion.

>

> As I do more research, it is clear that Sid is quite autistic, and we

>

> just didn't know. He is non-verbal, and non-communicative. His gross motor

>

> skills are decent, though his fine-motor could use some help.

>

> I am thrilled to have found this group, and even more thrilled that it

>

> has this large group of members. Is it very common to have language delays

>

> in this group of kids? Do we have any kids that talk? I am really not sure

>

> what hope to hold out for his future. I feel put back to the day that Sid

>

> was born and I learned of his extra chromosome. In the days that followed I

>

> have never once regretted the Trisomy, but now I am not sure what to expect

>

> any more.

>

> Well, this is a long message already. I had just wanted to say " Hello

>

> Everybody " !

>

> Regards,

>

> Vaish (mom to Sid, 4)

>

>

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