Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 Welcome . Try reading some of the archives - you can get loads of help on this list. We neither flame, defame, deride nort pick on people. And on top of that there isalmost always someone to answer your questios. Tell us where you live - might be a lsit mate near by. Sara Cohen Mom of 6. Youngest - Elie 25 yrs 11 mo old, DS-ASD, lives with hsi friend and careagiver in his own home. Pix available on his face book page - EYAL COHEN On Fri, May 27, 2011 at 11:02 PM, wrote: > > > Hi all! I'm , a 25 year old single mom. I have 2 kids, DS Cody who > is 6 (DS, ASD) and DD Stormie who is 2. Just wanted to introduce myself! > With several specialist appointments coming up, I'm sure I will have plenty > of questions for u! > > > -- Sara- different pathways lead to Nirvana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2011 Report Share Posted May 27, 2011 Hi and welcome, my name is I'm 26 years old also a single mom also. I only have one child his name is Elias he is 5 years old is dx is DS, MDO, secondary to Autism and at risk for ADHD more like he already has it. > > Hi all! I'm , a 25 year old single mom. I have 2 kids, DS Cody who is 6 (DS, ASD) and DD Stormie who is 2. Just wanted to introduce myself! With several specialist appointments coming up, I'm sure I will have plenty of questions for u! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 I didn't even think of telling you where I am! Ha! That's how well my brain was working. I live outside of the Dallas/fort worth metroplex. Close enough to get to specialists, but far enough out to not have more than 1 neighbor. I have been reading posts over the last week, and I'm glad to see I'm not the only single mom dealing with the every day struggles of having a differently abled child! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2011 Report Share Posted May 28, 2011 Welcome, ! Liz Mom to Tori 11 y.o. DS/ASD/OCD/ODD/GERD/Hashimotos/ and a few more acronyms! On Fri, May 27, 2011 at 11:02 PM, wrote: > > > Hi all! I'm , a 25 year old single mom. I have 2 kids, DS Cody who > is 6 (DS, ASD) and DD Stormie who is 2. Just wanted to introduce myself! > With several specialist appointments coming up, I'm sure I will have plenty > of questions for u! > > > -- *Liz* Let me win, but if I cannot win, let me be brave in the attempt. - Special Olympics Motto-RIP Eunice Kennedy Shriver “When we long for life without difficulties, remind us that oaks grow strong in contrary winds and diamonds are made under pressure.-Author Unknown " Knowing trees, I understand the meaning of patience. Knowing grass, I can understand persistence. " - Hal Borland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2011 Report Share Posted June 24, 2011 Hi Vaish, Welcome to the group! I wanted to tell you that my son share's you son's birthday tomorrow. will be 14 tomorrow. Terry New to the group Hi All, I am new to this group. My son, Sid (Siddhartha) will turn 4 tomorrow. He has Down Syndrome and has just been unofficially diagnosed with Autism. As I am sure is the case with everyone else, a lot of his delays were attributed to DS, which seems to be an all-pervasive label for anything that is wrong with him. It is only in the last month that I suspected autism, and when I asked his SLT and OT, they confirmed that suspicion. As I do more research, it is clear that Sid is quite autistic, and we just didn't know. He is non-verbal, and non-communicative. His gross motor skills are decent, though his fine-motor could use some help. I am thrilled to have found this group, and even more thrilled that it has this large group of members. Is it very common to have language delays in this group of kids? Do we have any kids that talk? I am really not sure what hope to hold out for his future. I feel put back to the day that Sid was born and I learned of his extra chromosome. In the days that followed I have never once regretted the Trisomy, but now I am not sure what to expect any more. Well, this is a long message already. I had just wanted to say " Hello Everybody " ! Regards, Vaish (mom to Sid, 4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2011 Report Share Posted June 24, 2011 Vaish - welcome to the list. Where are you. Some of us have found it helps if we are near some other families - to share war stories- but also to learn how the system where you are works. Speech. My son had 2 words until age 5. Rabbit and mother - both in a language other than English. I found my notes form those years - I sent a 20 wowrd list of words in Hebrew that he responded to although he didn't speak. Now at almost 26, he speaks in short blocky sentences. Definitely can get his needs known. One verbal trick he uses is that he will form a question of what he wants us to ask him. IE: Did you have a good time playing golf? Are you feeling sick? Are you hungry? Ah also used baby sign (approximations of ASL) for nouns and verbs when he was younger. HE gradually dropped sign as he learned how to talk. Sign was key in helping him learn not to tantrum - tantrums being his frustration at not being understood. We love to chat on this list - feel free to join in. Sara, Mom of 6, Elie is the youngest, age almost 26 . Lives with his friend caregiver in the NORth GA mountains. He loves to order food in the restaurant, but then he gets stuck and starts to stutter while giving the wait person his order. Usually he speaks pretty clearly, but not in restaurants! On Fri, Jun 24, 2011 at 3:27 PM, Vaishnavi Sarathy < vaishnavisarathy@...> wrote: > ** > > > Hi All, > > I am new to this group. My son, Sid (Siddhartha) will turn 4 tomorrow. > He has Down Syndrome and has just been unofficially diagnosed with Autism. > As I am sure is the case with everyone else, a lot of his delays were > attributed to DS, which seems to be an all-pervasive label for anything > that > is wrong with him. It is only in the last month that I suspected autism, > and > when I asked his SLT and OT, they confirmed that suspicion. > As I do more research, it is clear that Sid is quite autistic, and we > just didn't know. He is non-verbal, and non-communicative. His gross motor > skills are decent, though his fine-motor could use some help. > I am thrilled to have found this group, and even more thrilled that it > has this large group of members. Is it very common to have language delays > in this group of kids? Do we have any kids that talk? I am really not sure > what hope to hold out for his future. I feel put back to the day that Sid > was born and I learned of his extra chromosome. In the days that followed I > have never once regretted the Trisomy, but now I am not sure what to expect > any more. > Well, this is a long message already. I had just wanted to say " Hello > Everybody " ! > > Regards, > Vaish (mom to Sid, 4) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2011 Report Share Posted June 24, 2011 Chester County had the BEST help for parents thru their MR/DD county office. I bet they have contact lists as well. The ARC has a nursery as well - altho I will not vouch for the quality. Loved our time living there - 2000-2006. On Fri, Jun 24, 2011 at 6:50 PM, emagine_graphix < maddiepsmommy6908@...> wrote: > ** > > > Hi everyone....my name is Beth, and I just joined. Im a 31yr old single > mother of a 3yr old baby girl who as you know, is both downs and autistic. > She is my whole world and I would love to meet some parents in the chester > county pa area especially for playdates. So just say the word if your > interested > > > -- Sara- different pathways lead to Nirvana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 Thanks for the information .  Noah just turned 11 last month and is going into 5th grade.  We are thinking of buying a house since the housing is limited for us.  The new housing on Little Creek in Bradford Cove looks great, but I haven't heard good things about the school system.  There really isn't any other housing options, and I think my husband is dead set on buying.  I will check out Chesapeake schools. Thanks for the information. Lynn > ** > > > Hello! I am new to the group and wanted to introduce myself. I am a Navy > wife, mother of 3 wonderful children and my youngest has Down Syndrome and > recently given a dual diagnosis, ASD. My youngest, Noah, is moderate to > severe and has the most wonderful spirit about him. Noah has no medical > issues as far as heart condition, respiratory, digestive etc. that many Down > Syndrome children have. I am completing my AA degree at the local community > college and have started UNCW working on my BA in Education. I am currently > in ville, NC, for about another year and will be moving to the > Norfolk VA area. If anyone out there can give me a heads up on the Special > Education around Norfolk area, I would appreciate it. I have heard > conflicting reports about Virginia Beach and Chesapeake being the best. I am > thrilled that I found this support group. > Lynn > > > -- Sara- different pathways lead to Nirvana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2011 Report Share Posted July 3, 2011 NORVA is cheaper than Chesapeake. Don't know what is going on in Portsmouth. Va Beach HAD year round schooling - don't know if the whole district is doing that. We bought 3 houses in NORVA in the off and on 16 years we spent there. Want particulars about neighborhoods there, I can help. Can't help with the other cities, but people on the DS group CAN> and will. There are a few Navy wives in the group. One thing - check to see if the school district you are considering has individual governance. IF they do, then you have to check EACH school as to their philosophy, attitude, parent involvement, etc. We deliberately picked outside Gate 4 to ensure the school for Elie and the h/s for our older son still with us. On Sun, Jul 3, 2011 at 10:30 PM, Lynn McIntosh wrote: > ** > > > Thanks for the information . Noah just turned 11 last month and is > going into 5th grade. We are thinking of buying a house since the housing > is limited for us. The new housing on Little Creek in Bradford Cove looks > great, but I haven't heard good things about the school system. There > really isn't any other housing options, and I think my husband is dead set > on buying. I will check out Chesapeake schools. Thanks for the information. > Lynn > > > > > ** > > > > > > > > > Hello! I am new to the group and wanted to introduce myself. I am a Navy > > > wife, mother of 3 wonderful children and my youngest has Down Syndrome > and > > > recently given a dual diagnosis, ASD. My youngest, Noah, is moderate to > > > severe and has the most wonderful spirit about him. Noah has no medical > > > issues as far as heart condition, respiratory, digestive etc. that many > Down > > > Syndrome children have. I am completing my AA degree at the local > community > > > college and have started UNCW working on my BA in Education. I am > currently > > > in ville, NC, for about another year and will be moving to the > > > Norfolk VA area. If anyone out there can give me a heads up on the > Special > > > Education around Norfolk area, I would appreciate it. I have heard > > > conflicting reports about Virginia Beach and Chesapeake being the best. I > am > > > thrilled that I found this support group. > > > Lynn > > > > > > > > > > > -- > > Sara- different pathways lead to Nirvana. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2011 Report Share Posted December 15, 2011 Welcome Katy.Your child - any of them - is not a monster! I'm horrified *for* you.We have such a wide variety of kids and families and cultures here. One of the key elements to this group - that I hope has been retained during my absence - is acceptance and respect for each person's perspective. That means the word " should " likely doesn't show up too much!Take some time to cruise our archives and get to know us. It's been a little quiet lately, but I find this to be a very accepting and *smart* group of people. warmly,JoanJoan Guthrie Medlen, " list owner " Mother of Andy, 22, who has DS-asd, celiac, and is nonverbal.www.DownSyndromeNutrition.com Quote Link to comment Share on other sites More sharing options...
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