Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 In a message dated 3/28/01 1:58:17 PM Eastern Standard Time, Scherb@... writes: << Garry was sitting around the bus yard this morning reading a magazine. He found this car seat. We don't figure JJ will ever be out of one for his safety and our peace of mind. It is expensive but here in CA you might be able to get Regional Center to pay. >> , We have the gorilla car seat for Maddie (hate that name). It holds occupants up to 120 pounds (course, she's still a peanut, but I wanted something to last). It costs $640, but I got $500 of that through FDSS funds. I am going to be registering for new funds for the year '01 and was thinking of getting that stroller???? MaClaren, it's called I think???? Anybody here have it?? What's your opinion? We didn't bring a stroller when we went to DW last week, intending to just rent at the park. Problem was that we had to take a bus to each park from our hotel and waiting in those bus lines with our little princess was absolutely BRUTAL to poor Duff. So I called the hotel and they delivered a stroller I rented from downtown Disney. Made ALL the difference. Maddie is still so hard to contain and small that I think we'll make use of a stroller for a while. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 In a message dated 3/28/01 1:58:01 PM Eastern Standard Time, Scherb@... writes: << Garry was sitting around the bus yard this morning reading a magazine. He found this car seat. We don't figure JJ will ever be out of one for his safety and our peace of mind. It is expensive but here in CA you might be able to get Regional Center to pay. >http://www.columbiamedical.com >> Neat car seat !!!!!! Thanks for the site. I have filed this for the future. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 In a message dated 3/28/01 2:26:00 PM Eastern Standard Time, duffey48@... writes: << Made ALL the difference. Maddie is still so hard to contain and small that I think we'll make use of a stroller for a while. >> Here I am responding to my own post....LOL But I wanted to add that we do have a great coach. One of those three wheelers (joggers). My SIL had bought it for us because Maddie was getting bigger and sticking her foot down and stopping the wheels on regular strollers. The three wheelers are nice because she can't do that. However, they are BIG and not compact, and so we just couldn't bring it with us!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 Donna, We got the Convaid stroller for . I don't remember exactly why I liked it better than the McClaren. I think it was because we were looking for a more " all terrain " type of stroller that we could take camping and for hikes. The Convaid is available with the bigger wheels for that. The down side is that it costs about $1900. We were able to get Regional Center (state) funds and CCS (Calif. Childrens Services) to pay for it. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2001 Report Share Posted March 28, 2001 An alternative to a car seat (if funding is not available, since they are so expensive) is the harness they use on the school buses. Our school district gave me the number of the local distributor and they can be purchased for about $100.00. They are sized to fit the child and anchor to the frame of your car. Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2011 Report Share Posted August 10, 2011 We got a recaro monza reha for Aden. It is a special needs seat, our insurance required that it be designated as a special needs seat in order to pay. I called the insurance and told them I had a script for one and asked how to get one they told me which provider to go to locally. If you don & #39;t have a local provider they may have you use someone national or they may have you purchase the seat yourself and then they reimburse you. I definitely recommend the recaro monza reha car seat if your little guy has problems with heat too. It is the coolest seat available because it has mesh on the sides for ventilation. And as a neat bonus it has built in mp3 speakers Hugs Mom to Aden (8 DS ADHD ASD) and Aren 4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 We got the Graco Nautilus 3-in-1 car seat ($137.98 at Walmart). It converts 3 ways: 1) 4-position 5-point harness car seat (use from 20 - 65 lbs) 2) Adjustable high-back belt-positioning booster (use from 30 to 100 lbs) 3) Backless booster (use from 40 to 100 lbs.) It is rated for higher weights than most car seats or booster seats. Our son is 5.5 years old and is still under 65 lbs even though he is taller than most kids his age with DS. We are still able to use the 5-point harness with him since it adjusted 2 positions higher than most other car seats. The headrest also adjusts much higher than most car seats. Once he hits 65 lbs we'll have to take off the 5-point harness and start using the seat belt with it. The adjustable height headrest has a built in belt positioner that keeps the seat belt in the right position for their height. We can use it that way until he reaches 100 lbs. Don't know what we'll do after that, but we'll have to deal with that when the time comes. Bonnie, mom to (5.5 y/o son with DS/ASD) > > So I though it would be simpler to get a special car seat for my son who is 5 going on 6yrs old, but it's not easy. Does anyone have a special car seat? Since our kids grow and still need car seats what do we do? I have call all the providers that are listed as suppliers of the special car seats within 25 miles and none have them. So does this mean I need to buy a $1,000 car seat on my own? or can something be done? I'm a bit lost I'm sure I can get a pediatrician to prescribe it, my son's doctor said he will but what would I do with a prescription? any ideas? please > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 We have the High Back Booster Car Seat from Safety 1st @ Costco and it say it can hold up to 40 to 100 lbs but he is getting big for it he is only 45 lbs but I don't know the straps are the ones that are becoming small for him I just adjusted it again and I think we are good for maybe 4 months but I would really like for the insurance to pay for one of those car seats made for older children. It's important for his safety and mine to keep him in one, this kids hits me with anything while I drive anything he can get his hands on this including his shoes and cloths anything. > > > > So I though it would be simpler to get a special car seat for my son who is 5 going on 6yrs old, but it's not easy. Does anyone have a special car seat? Since our kids grow and still need car seats what do we do? I have call all the providers that are listed as suppliers of the special car seats within 25 miles and none have them. So does this mean I need to buy a $1,000 car seat on my own? or can something be done? I'm a bit lost I'm sure I can get a pediatrician to prescribe it, my son's doctor said he will but what would I do with a prescription? any ideas? please > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 If you're looking for a regular 5 point car seat that holds a larger child (not a special needs seat) there are a couple on the market. The recaro prosport ($225-$300) has the highest weight I could find for use with the harness 90lbs. Also the britax frontier 85 ($225-$280) for use with the harness up to 85lbs. If you want to go the insurance route and get a special needs seat they can go up to 150lbs depending on the seat.  I found that a lot of the locally available seats were really deceptive, because they say that the seat is for a child up to 100lbs, but when you look really close that is for use as a booster with your cars seat belt. As an example the safety first seat at costco says up to 100lbs but if you check the specks it says the max for use with the 5 point harness is 40lbs.  Hope this helps, To: Sent: Friday, August 12, 2011 10:29 AM Subject: Re: Car Seats  We have the High Back Booster Car Seat from Safety 1st @ Costco and it say it can hold up to 40 to 100 lbs but he is getting big for it he is only 45 lbs but I don't know the straps are the ones that are becoming small for him I just adjusted it again and I think we are good for maybe 4 months but I would really like for the insurance to pay for one of those car seats made for older children. It's important for his safety and mine to keep him in one, this kids hits me with anything while I drive anything he can get his hands on this including his shoes and cloths anything. > > > > So I though it would be simpler to get a special car seat for my son who is 5 going on 6yrs old, but it's not easy. Does anyone have a special car seat? Since our kids grow and still need car seats what do we do? I have call all the providers that are listed as suppliers of the special car seats within 25 miles and none have them. So does this mean I need to buy a $1,000 car seat on my own? or can something be done? I'm a bit lost I'm sure I can get a pediatrician to prescribe it, my son's doctor said he will but what would I do with a prescription? any ideas? please > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 Wow I never though of it like that I guess thats it, I was breaking my head thinking how was it that it can hold a 100 lbs child if he almost outgrows it at 45 lbs. thanks for that input ) I will check again to see if I can find the right one this time. > > > > > > So I though it would be simpler to get a special car seat for my son who is 5 going on 6yrs old, but it's not easy. Does anyone have a special car seat? Since our kids grow and still need car seats what do we do? I have call all the providers that are listed as suppliers of the special car seats within 25 miles and none have them. So does this mean I need to buy a $1,000 car seat on my own? or can something be done? I'm a bit lost I'm sure I can get a pediatrician to prescribe it, my son's doctor said he will but what would I do with a prescription? any ideas? please > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 Question about seats....Can you use the harness AND the car seat belt...or is that dangerous?? I had been doing that since Wesley was getting the harness off of his shoulders so I used the seat belt over the seat instead of behind the seat so as to make sure he stayed in....he for some reason does not mind the seat belt on him ....it is just the harness that he takes off... AND could I use strong velcro to keep the harness on ...so that he cannot slip it off.....I think I need to go through a safety check as this discussion is making me wonder if I am doing things properly.... Annie To: From: cyn12gar3@... Date: Fri, 12 Aug 2011 22:39:32 +0000 Subject: Re: Car Seats Wow I never though of it like that I guess thats it, I was breaking my head thinking how was it that it can hold a 100 lbs child if he almost outgrows it at 45 lbs. thanks for that input ) I will check again to see if I can find the right one this time. > > > > > > So I though it would be simpler to get a special car seat for my son who is 5 going on 6yrs old, but it's not easy. Does anyone have a special car seat? Since our kids grow and still need car seats what do we do? I have call all the providers that are listed as suppliers of the special car seats within 25 miles and none have them. So does this mean I need to buy a $1,000 car seat on my own? or can something be done? I'm a bit lost I'm sure I can get a pediatrician to prescribe it, my son's doctor said he will but what would I do with a prescription? any ideas? please > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 is 6 and only about 40#. He's the same height as his sister, I think about 42 " . He's just tiny. We have a Britax seat for him in the van, I think it's the Decathlon. It has a 5-PT harness to a pretty high weight, then converts to a high-backed booster. In DH's car, we have a Britax Boulevard. It also has a high weight limit for 5-PT harness, and converts to a booster. Sent from my iPhone > We got the Graco Nautilus 3-in-1 car seat ($137.98 at Walmart). It converts 3 ways: > > 1) 4-position 5-point harness car seat (use from 20 - 65 lbs) > 2) Adjustable high-back belt-positioning booster (use from 30 to 100 lbs) > 3) Backless booster (use from 40 to 100 lbs.) > > It is rated for higher weights than most car seats or booster seats. Our son is 5.5 years old and is still under 65 lbs even though he is taller than most kids his age with DS. We are still able to use the 5-point harness with him since it adjusted 2 positions higher than most other car seats. The headrest also adjusts much higher than most car seats. Once he hits 65 lbs we'll have to take off the 5-point harness and start using the seat belt with it. The adjustable height headrest has a built in belt positioner that keeps the seat belt in the right position for their height. We can use it that way until he reaches 100 lbs. Don't know what we'll do after that, but we'll have to deal with that when the time comes. > > Bonnie, mom to (5.5 y/o son with DS/ASD) > > > > > > So I though it would be simpler to get a special car seat for my son who is 5 going on 6yrs old, but it's not easy. Does anyone have a special car seat? Since our kids grow and still need car seats what do we do? I have call all the providers that are listed as suppliers of the special car seats within 25 miles and none have them. So does this mean I need to buy a $1,000 car seat on my own? or can something be done? I'm a bit lost I'm sure I can get a pediatrician to prescribe it, my son's doctor said he will but what would I do with a prescription? any ideas? please > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 Frontier, that's the one in DH's car. Maybe the Boulevard's in the van? Very confused! Sent from my iPhone > If you're looking for a regular 5 point car seat that holds a larger child (not a special needs seat) there are a couple on the market. The recaro prosport ($225-$300) has the highest weight I could find for use with the harness 90lbs. Also the britax frontier 85 ($225-$280) for use with the harness up to 85lbs. If you want to go the insurance route and get a special needs seat they can go up to 150lbs depending on the seat. > > I found that a lot of the locally available seats were really deceptive, because they say that the seat is for a child up to 100lbs, but when you look really close that is for use as a booster with your cars seat belt. As an example the safety first seat at costco says up to 100lbs but if you check the specks it says the max for use with the 5 point harness is 40lbs. > > Hope this helps, > > > > To: > Sent: Friday, August 12, 2011 10:29 AM > Subject: Re: Car Seats > > > We have the High Back Booster Car Seat from Safety 1st @ Costco and it say it can hold up to 40 to 100 lbs but he is getting big for it he is only 45 lbs but I don't know the straps are the ones that are becoming small for him I just adjusted it again and I think we are good for maybe 4 months but I would really like for the insurance to pay for one of those car seats made for older children. It's important for his safety and mine to keep him in one, this kids hits me with anything while I drive anything he can get his hands on this including his shoes and cloths anything. > > > > > > > > > > So I though it would be simpler to get a special car seat for my son who is 5 going on 6yrs old, but it's not easy. Does anyone have a special car seat? Since our kids grow and still need car seats what do we do? I have call all the providers that are listed as suppliers of the special car seats within 25 miles and none have them. So does this mean I need to buy a $1,000 car seat on my own? or can something be done? I'm a bit lost I'm sure I can get a pediatrician to prescribe it, my son's doctor said he will but what would I do with a prescription? any ideas? please > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 Thanks ) > > > > > > > > So I though it would be simpler to get a special car seat for my son who is 5 going on 6yrs old, but it's not easy. Does anyone have a special car seat? Since our kids grow and still need car seats what do we do? I have call all the providers that are listed as suppliers of the special car seats within 25 miles and none have them. So does this mean I need to buy a $1,000 car seat on my own? or can something be done? I'm a bit lost I'm sure I can get a pediatrician to prescribe it, my son's doctor said he will but what would I do with a prescription? any ideas? please > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2011 Report Share Posted August 13, 2011 Hi Annie, everyone, It is dangerous for ANYone to put the shoulder belt behind them. I wonder if your way of positioning the car belt will hold the car seat securely enough? When my son was getting out of the harness, I used a Twixit clip,(they are inexpensive and have many uses!)from Pampered Chef, and put it just a few inches below his chin. Legal, safe, I don't know, but I believe safer than not being in the harness. Depending on your son, maybe just tying a string around it would work. I can't think of anything siimilar to the twixit clip, but if you look at at them online, you may get an idea. In our county, Saratoga, NY, the county has a person trained to evaluate and teach you how to install and use your carseat. They even provided a friend with a new carseat when it was discovered the one he was using was all wrong for him. Might be worth checking around. I used the EZ-on Pro harness from about 5-12 years, first with a booster seat then just in the car, as Nick wanted to put the shoulder strap behind his head. I am sure they have sizes for larger kids, as well, in cases where they can be dangerous to the driver or other kids in the back seat. Hope this helps! Joni, Nick's mom Nick is 14 DS/ASD From Saratoga County, NY, anyone else live here?? > > > Question about seats....Can you use the harness AND the car seat belt...or is that dangerous?? I had been doing that since Wesley was getting the harness off of his shoulders so I used the seat belt over the seat instead of behind the seat so as to make sure he stayed in....he for some reason does not mind the seat belt on him ....it is just the harness that he takes off... > AND could I use strong velcro to keep the harness on ...so that he cannot slip it off.....I think I need to go through a safety check as this discussion is making me wonder if I am doing things properly.... > Annie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2011 Report Share Posted August 13, 2011 And I should mention that Medicaid Waiver paid for the harness and booster seat. > > > > > > Question about seats....Can you use the harness AND the car seat belt...or is that dangerous?? I had been doing that since Wesley was getting the harness off of his shoulders so I used the seat belt over the seat instead of behind the seat so as to make sure he stayed in....he for some reason does not mind the seat belt on him ....it is just the harness that he takes off... > > AND could I use strong velcro to keep the harness on ...so that he cannot slip it off.....I think I need to go through a safety check as this discussion is making me wonder if I am doing things properly.... > > Annie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2011 Report Share Posted August 14, 2011 Today at the 's day event for autism they had a station were they were showing a sample of the EZ-on Pro harness and how it needs to be used. I was like this is what everyone is taking about, I felt the light go on and I'm like ok this is what I need ) > > > > > > Question about seats....Can you use the harness AND the car seat belt...or is that dangerous?? I had been doing that since Wesley was getting the harness off of his shoulders so I used the seat belt over the seat instead of behind the seat so as to make sure he stayed in....he for some reason does not mind the seat belt on him ....it is just the harness that he takes off... > > AND could I use strong velcro to keep the harness on ...so that he cannot slip it off.....I think I need to go through a safety check as this discussion is making me wonder if I am doing things properly.... > > Annie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2011 Report Share Posted August 14, 2011 Ok this is good but the EZ-on Pro harness needs to be ordered online right? so did you buy everything and they reimburse you or how was the process. They get everything to your? > > > > > > > > > Question about seats....Can you use the harness AND the car seat belt...or is that dangerous?? I had been doing that since Wesley was getting the harness off of his shoulders so I used the seat belt over the seat instead of behind the seat so as to make sure he stayed in....he for some reason does not mind the seat belt on him ....it is just the harness that he takes off... > > > AND could I use strong velcro to keep the harness on ...so that he cannot slip it off.....I think I need to go through a safety check as this discussion is making me wonder if I am doing things properly.... > > > Annie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2011 Report Share Posted August 14, 2011 I'm having trouble finding this harness online...anyone have a bookmark they can share? Sent from my iPhone > Ok this is good but the EZ-on Pro harness needs to be ordered online right? so did you buy everything and they reimburse you or how was the process. They get everything to your? > > > > > > > > > > > > > > Question about seats....Can you use the harness AND the car seat belt...or is that dangerous?? I had been doing that since Wesley was getting the harness off of his shoulders so I used the seat belt over the seat instead of behind the seat so as to make sure he stayed in....he for some reason does not mind the seat belt on him ....it is just the harness that he takes off... > > > > AND could I use strong velcro to keep the harness on ...so that he cannot slip it off.....I think I need to go through a safety check as this discussion is making me wonder if I am doing things properly.... > > > > Annie > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2011 Report Share Posted August 14, 2011 http://www.ezonpro.com/index.shtml They cary the ones for bus use only and the ones for family/parents http://www.ezonpro.com/products/familyVehicle/86yHarness.shtml > > > > > > > > > > > > > > > Question about seats....Can you use the harness AND the car seat belt...or is that dangerous?? I had been doing that since Wesley was getting the harness off of his shoulders so I used the seat belt over the seat instead of behind the seat so as to make sure he stayed in....he for some reason does not mind the seat belt on him ....it is just the harness that he takes off... > > > > > AND could I use strong velcro to keep the harness on ...so that he cannot slip it off.....I think I need to go through a safety check as this discussion is making me wonder if I am doing things properly.... > > > > > Annie > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2011 Report Share Posted August 18, 2011 Ok I just found the E-Z-ON on a catalogue I use to order some of Elias stuff I can't believe I never payed attention to it but if your looking for a supplier it's on www.abilitations.com and direct site location is http://store.schoolspecialtyonline.net/OA_HTML/xxssi_ibeSearchResults.jsp?type=s\ earch & minisite=10206 & query=91300372128 Hope it help someone else I was going crazy > > > > > > > > > > > > > > > Question about seats....Can you use the harness AND the car seat belt...or is that dangerous?? I had been doing that since Wesley was getting the harness off of his shoulders so I used the seat belt over the seat instead of behind the seat so as to make sure he stayed in....he for some reason does not mind the seat belt on him ....it is just the harness that he takes off... > > > > > AND could I use strong velcro to keep the harness on ...so that he cannot slip it off.....I think I need to go through a safety check as this discussion is making me wonder if I am doing things properly.... > > > > > Annie > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.