Update Burns released Hospital/Warning Lengthy explanation of test/treatme

[Guest guest]

Group was released from the hospital yesterday. We are exhausted. I want to

thanks each and everyone of you who prayer, tried to help from a far,and wrote

in concern of . I was told that they do not know what was wrong with ,

they may never know, but they helped him recover. I felt like an episode of

Mystery Diagnosis. Lots of test were Done with results coming back negative.

's Disease,Mono,CMV,any kind of infections(white blood count was

normal)Thyroid TSH,T3,T4 so his T3 was a little low at 0.38 and normal was .9.

The ANA test for Lupus came back positive however that test can have a false

positive so they are doing additional testing that takes 1-2 wks to come back.

Hasimoto's Thyroiditis came back negative. His Ferrintine Levels were extremely

high as in 21,981 and it was a signal to HLH so they tested for that but again

it takes 1/2 weeks. His liver enzymes to start off were in the 7,000 as normal

in in the low hundreds his ALT was 7,7000 and AST was 5,500 and his kidneys and

adrenal glads were failing. Now he went into the hospital with pneumonia,

aspiration pneumonia on Sunday June 19th, by Monday June 20, he was doing better

and moved out of ICU within hours was having difficulty breathing and moved

back to the ICU. The Dr. told me that would have to be place on a BPap

maching and in the near future possibly a ventilator. As the Dr. and I were

speaking 's BP started dropping, 60,50, 40 and the Dr. yells get the paddles

and they are doing CPR. I was watching the screen praying that he did not flat

line. was placed on a ventilator and me asking what the happened. How did

he go from getting better to almost dying. The Dr. said what could have happened

is the med that they gave to put him to sleep can cause a drop in blood

pressure(BP)so that could be what happened. After lost oxygen to his liver,

kidney, and adrenal glads those organs were sickened that quickly. The Dr.

researched prior labs for and said his liver,kidneys and adrenal glads did

not show any sickness prior to hospital admit so they believed all of that

happened due to the med they gave him. Pretty scary I almost lost him because of

their negligence.They could have been ready with dopamine to bring his BP back

up and he would not have arrested to my understanding. While we are glad to be

home I am still worried about as he is not sleeping, and still having

diarrhea, etc. They did find a crack and fluid on his right hip as I suspect

that was because he fell out of the bed in Our Lady of Peace back in March.

has lost muscle mass and I did not realize this until we left the hospital and

was walking. I have to find out what to do to help him regain muscles.

Cyndi Burns

[Guest guest]

THANK GOD!! Sorry to here your still waiting on answers. But at least now you

can be at some what peace in your own home. Our prayers are still with you all.

Bobbie.Jo mom to 5 DS,ASD,ADHD and Kayde 4