Guest guest Posted May 25, 2000 Report Share Posted May 25, 2000 Liz and Tammy: Following is our letter of medical necessity. I am sorry this took so long. We are having major computer problems and I just decided to type it in and send it this way. Hope this isn't too late. Please note that we are getting the DOC band, so there is language specific to that end. Sue Letter of Medical Necessity Re: Luck To Whom It May Concern: I am writing on behalf of the above named patient for whom we are requesting orthotic correction of his cranial malformation of non-synostotic origin. is a child with a skull deformity as a result of a number of complicating factors. These have included that is one of twin who suffered twin-to-twin syndrome, requiring C-section because of tachycardia, prematurity at 29 weeks, postpartum requiring intubation and NICU care for six weeks for management of airway, hydronephrosis, anemia and hypertension. Because of early birth and supine positioning throughout this care this has resulted in deformational forces on a prematurely developed calvarial vault. Moreover, this has been compounded by right side torticollis and appropriate positioning to avoid sudden infant death as recommended by the American Academy of Pediatricians. These factors have resulted in an obvious cranial vault asymmetrical deformity characterized as a parallelogram with right occipital flattening, right frontal prominence and anterior positioning of the right ear. Attempts to positionally correct this without more aggressive intervention has been limited. Because of this, is a candidate for non-surgical molding therapy. While there are some centers that may correct this type of positional deformity with surgery, the surgery is not without significant risks and associated costs. The medical literature currently supports the use of a non-operative, non-invasive correction of this condition through use of dynamic orthodic cranioplasty. This involves correction of the abnormal head shape with external forces. We feel that in 's case the deformity is significant enough and that he is an appropriate age for head molding to help improve the asymmetric deformity. The results of dynamic orthodic cranioplasty typically show good improvement and there are certainly many children who have near complete improvement. The success correlates with the age at the beginning of treatment and with the severity of the deformity. It is important that the treatment be started early enough in development to take advantage of the flexibility of the infant's skull. Beyond a certain age, external molding will not be possible and surgery is the only alternative if the deformity remains significant. It makes the most sense, from and economic and risk standpoint, to correct these problems when they are easily corrected non-invasively rather than to either leave them uncorrected and suffer natural consequences or to offer a surgical solution that adds expense and risk. It is on this basis that a treatment approach which involves dynamic cranioplasty is medically indicated in cases like these. We will continue to follow throughout the course of his treatment. If further information is needed, please contact us directly. Sincerely, Pravin K. Patel, M.D. Attending Plastic and Reconstructive Surgeon Director, Cleft-Craniofacial Team ----- Original Message ----- From: yeeman <yeeman@...> <Plagiocephalyegroups> Sent: Sunday, May 21, 2000 7:11 PM Subject: Re: Postural Therapies > Me too, Liz. > -----Original Message----- > From: bailykuhn@... <bailykuhn@...> > Plagiocephalyegroups <Plagiocephalyegroups> > Date: Sunday, May 21, 2000 1:03 PM > Subject: Re: Postural Therapies > > > >Sue, I would love to see your letter. > > > >Tammy & 12/8/99 > > > > > > > > > ><< made sure our dr included in his letter all of the conditions that > >. (I cheated and printed out the post with the combined list of > >symptoms created for the poll and identified 11 out of 41 that > > had.) The letter of medical necessity is very convincing. If > >anyone is interested, I can post it. > > > > Any parent just starting the process might want to get their dr to > write > >this letter up front so the insurance company has something to review > before > >it sends out that first rejection letter. > > > > Sue >> > > > > > >------------------------------------------------------------------------ > >Up to 60% OFF food! > >Buy Now and Shipping is Free. > >1/4016/4/_/689409/_/958939694/ > >------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
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