Guest guest Posted May 23, 2011 Report Share Posted May 23, 2011 Hi , Is something going on at Charlie's school or day program? My brother, when in his early 20's started acting out, which was very unusual for him. This was going on for several months and we couldn't figure out what was causing it. Then one day, after my father put him on the school bus, he noticed one of the other consumers get up and start hitting him repeatedly. It turns out, was being bullied, which included repeated hitting and being beaten up at his program. Of course, the staff never informed us.  We removed from that program and he quickly returned to normal. This may not be the case with Charlie, but something else may be bothering him. It is often so hard with our kids to figure out what is wrong. But a change in behavior doesn't just happen. Something causes it. Does Charlie have access to a psychologist? Perhaps one can help figure out what is going on. If he needs medication, you may want to consult a psychiatrist. I am not a big proponent of tranquilizers, unless they are really needed. There are so many medications out there, like SSRI's i.e. Lexapro, Prozac, etc., which do not dope you up and have a positive effect on behavior. But they take some time to start working i.e. 4 - 6 weeks. If you want to go the " natural " route, you may want to contact Kent McLeod, a biochemist in Ontario, Canada, who offers customized supplements for people with Down Syndrome. However, this can be expensive and not covered by insurance or medicaid. And I believe it takes a long time to work. All the best to you, Charlie and your family. Irene sister to  ________________________________ To: Sent: Mon, May 23, 2011 11:03:08 PM Subject: Tranquilizers?  My daughters and I are not sure if we need some or my son with MDS needs some. For some reason, he has been WILD the last month and we cannot get him to settle down. He gets VERY angry and throws things, bangs tables, breaks things, and is overall wearing us out. My daughter, who has a sense of humor, inquired about something like a tranquilizer and I said, " Let's not go to that extreme for him yet. " She replied, " Not for Charlie, for me. " Honestly, we are at our wits end and need to go to the herb store and get *something* but we are not sure what. We want to be safe and only take the edge off his behavior, but we are WORN OUT. We have tried to pinpoint if anything (new food, allergy, illness, etc...) is causing the behavior, but we cannot find anything. Some people say yeast, but I do not know without expenisve tests that insurance more than llikely won't pay for. Any suggestions before we go mad here??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 , It is important to try and figure out if there is something else going on, as Irene says. But if I recall correctly, Charlie is homeschooled, isn't he? For starters, you also need to look at possible side effects of any of the supplements he is taking right now. (I know you look at homeo or naturapath things first- I think... but don't know what he's been taking.) And then also look at physical changes such as - seasonal allergies (currently the worst allergy season in years in some parts of the USA) -THYROID - thyroid changes can crank up behaviors very quickly- I can't remember if you have been down this road with him already or not -Gastro-intestinal health- the old reflux a problem? Diarrhea? Constipation? Ear infection? Headaches? Sleep apnea? insomnia? Oh, and don't overlook hormonal changes outside of thyroid- I don't remember Charlie's age, but if he's even 10 years old, you could be seeing the first stirrings of what I call " testosterone loading " . Puberty changes everything. BUT- I have a big caveat here that I know many others have shared: if Charlie is in danger of hurting himself or others, you may not have the luxury of time to try a whole bunch of different approaches. Sometimes families need a breather in order to keep everyone safe while you figure out underlying causes. My son Pete has gone through the period of going on destructive and disruptive rampages off and on. It is scary and everyone is in danger, most of all, Pete. I put off having him on meds, but as our lives became more miserable together, and he was unable to do things he'd enjoyed previously, I needed to get over that and see if there was something that could help. (After all, we had been doing sensory integration; we'd worked very, very hard on communication strategies; we had been using behavior intervention strategies, and kept him on a well-balanced diet and tried to be sure he was exercising enough.) So we consider medication to be just ONE of the tools in our toolbox. We didn't do dietary changes because he showed no intolerance to foods and had no history of GI issues; he neither too thin or too heavy, so he was thriving on what he was eating.) One thing helpful has been to sit back and think about the whole *sense* of Charlie's behaviors. Just reading your post over quickly, my immediate thought was " Charlie sounds like he is in pain. " Then I thought, " He's ENRAGED " . Then back to, " why? Is he hurting? Is someone hurting him? Has something changed and he is unable to tell you that he HATES what that change is? " If you have outside help for Charlie, or a behaviorist or someone who has done some ABA with him, a Functional Behavior Analysis (FBA) can help you look at the patterns of behaviors (when are thy occurring? Are there common triggers? Same time every day? Have they turned into a new pattern in his day? Or are you always surprised when they occur? All of that being said, my Pete has been on clonidine and risperdal for years. Few side effects besides being a little sleepier in the morning. (He gained very little weight on risperdal.) He later had depakote added for what I would call some manic upswings that happen from time to time. Risperdal has been very effective for Pete. I know it gets mixed reviews here, but like any of the " behavior " meds, it is one of the most common ones to be tried (starting at a low dosage and increasing very slowly) since it is one of the few drugs that has been researched for kids with autism. Hang in there and hope you can quickly solve this current problem. NB: I just re-read Irene's excellent response to you- and it occurred to me that the first step right now *should* be getting him in to a psychiatrist- who would be looking at all the above factors as well as behavioral/medication treatment. You will probably need to call TODAY, especially since it sounds like things are getting critical. You don't want to have to be calling 911. Not hard to picture, as we've been in your shoes. Beth 20 y/o Pete's Mum Central Ohio (wet, wet, wet central Ohio) > > My daughters and I are not sure if we need some or my son with MDS needs some. For some reason, he has been WILD the last month and we cannot get him to settle down. He gets VERY angry and throws things, bangs tables, breaks things, and is overall wearing us out. > My daughter, who has a sense of humor, inquired about something like a tranquilizer and I said, " Let's not go to that extreme for him yet. " She replied, " Not for Charlie, for me. " > Honestly, we are at our wits end and need to go to the herb store and get *something* but we are not sure what. We want to be safe and only take the edge off his behavior, but we are WORN OUT. > We have tried to pinpoint if anything (new food, allergy, illness, etc...) is causing the behavior, but we cannot find anything. > Some people say yeast, but I do not know without expenisve tests that insurance more than llikely won't pay for. > Any suggestions before we go mad here??? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 Homeschooled. I am with him 24/7 and the only thing going on is we want to pull our hair out. Now, he is fine. (Of course, it is early in the day.) Basically, the stop/drop/ and flop ordeals are getting worse. Initially they were better with diet change, time outs, etc... Now, he has decided if he is not going to do something, then he lays down and won't budge. NOTHING makes him move...NOTHING. We started giving him neurotransmitter support 5-HTP (but that did not cause it because it was to the point that we felt we needed to take action, lest everything in our be broken...or we have to follow him 24 hours a day. He gets mad that things do not go his way (spoiled maybe, yes) and then he slams doors. If you ignore him, then he keeps oing it over and over -same door over and over. The slams are so hard that the pictures move on the wall and some fall off. The 5 HTP did not help or hurt...did nothing. My assumption is it is like some of the meds you mentioned. My family is the 1% of the population that those either do not work or have a negative effect on. If he does not want to come inside (transition from one activity to another), then he lays down on the concrete outside and starts screaming. This happens with all activities. We are having an EXTREMELY difficult time transitioning. (Not sure what type of therapist works with that because he evens does this with the OT that comes to our home). If he gets back outside, once in, he takes off and we have to find him like hide and seek. Although calm when we find him, he does NOT want to be directed back inside. He lays on the ground. (Dragging won't work and he is getting HEAVY.) The behavior did not just appear, but simply got more intense as he is growing. We are wondering if he is either going through a stage or is some seriously psychiatrically wrong with him. My comical daughter keeps making remarks like: " What are those jackets called that buckle in the back? " (straight jacket) " yeah, he needs one of those. " Although funny, I have to agree at this point. He did the same thing at the TACA picnic. It was time to go and he laid down on the ground and started screaming. I think he *knows* he is too heavy and we can no longer carry him and so he does this. We cannot just walk off (tried that) because he goes 100 miles an hour in the opposite direction we are going and is fine with us leaving him behind; it is what he wants. As far as herbal things, I was thinking melatonin or Kava Kava until we can figur out what to do. I think he really needs ABA by a therapist (not me), but there are some issues with that. One I do not think insurance (medicaid) covers it and two, if they did, then there is not an ABA therapist around that I am aware of. (None at school, even if we were not in a formal complaint process and even if we were able to get services from them.) I just know that everyone here is miserable, and he must be also. Maybe it is a food allergy or yeast. Now that we have this GFCF diet down pat, then maybe he has developed a new allergy. I worry about this and wonder if *he is just being a boy* (I do not think so, as boys should mind too) or we have spoiled him somehow (even though I think we have treated him the same as the other kids as far as rules go). If he had his way, he would stay outside forever, never go potty and take off into wild blue yonder on foot turning on everyone's water hose along the way. (LOL if you want, but that sums him up) Tired, > > Hi , > Is something going on at Charlie's school or day program? My brother, when in > his early 20's started acting out, which was very unusual for him. This was > going on for several months and we couldn't figure out what was causing it. > Then one day, after my father put him on the school bus, he noticed one of the > other consumers get up and start hitting him repeatedly. It turns out, > was being bullied, which included repeated hitting and being beaten up at his > program. Of course, the staff never informed us.  We removed from that > program and he quickly returned to normal. > > > This may not be the case with Charlie, but something else may be bothering him. > It is often so hard with our kids to figure out what is wrong. But a change in > behavior doesn't just happen. Something causes it. > > > Does Charlie have access to a psychologist? Perhaps one can help figure out > what is going on. If he needs medication, you may want to consult a > psychiatrist. I am not a big proponent of tranquilizers, unless they are really > needed. There are so many medications out there, like SSRI's i.e. Lexapro, > Prozac, etc., which do not dope you up and have a positive effect on behavior. > But they take some time to start working i.e. 4 - 6 weeks. If you want to go > the " natural " route, you may want to contact Kent McLeod, a biochemist in > Ontario, Canada, who offers customized supplements for people with Down > Syndrome. However, this can be expensive and not covered by insurance or > medicaid. And I believe it takes a long time to work. > > All the best to you, Charlie and your family. > > Irene > sister to  > > > > > > > ________________________________ > > To: > Sent: Mon, May 23, 2011 11:03:08 PM > Subject: Tranquilizers? > >  > My daughters and I are not sure if we need some or my son with MDS needs some. > For some reason, he has been WILD the last month and we cannot get him to settle > down. He gets VERY angry and throws things, bangs tables, breaks things, and is > overall wearing us out. > > My daughter, who has a sense of humor, inquired about something like a > tranquilizer and I said, " Let's not go to that extreme for him yet. " She > replied, " Not for Charlie, for me. " > Honestly, we are at our wits end and need to go to the herb store and get > *something* but we are not sure what. We want to be safe and only take the edge > off his behavior, but we are WORN OUT. > We have tried to pinpoint if anything (new food, allergy, illness, etc...) is > causing the behavior, but we cannot find anything. > Some people say yeast, but I do not know without expenisve tests that insurance > more than llikely won't pay for. > Any suggestions before we go mad here??? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 Think testosterone. You may want to have a blood test done. Testosterone bursts early happen with our kids. Wish I had known when Elie started his behavior spiral down at age 8 - before we knew about ASD. Check his status - is he reaching stage II? This stage lasted for our son until after age 19. Was absolutely exhausting. I used as much respite and camp and anything else that I could get or find. This is the age where we tried Risperdal and Seroquel - can only stand getting bea up so many times. BUT I am not suggesting meds. Just clueing you in. On Tue, May 24, 2011 at 12:03 AM, agirlnamedsuess21 < agirlnamedsuess@...> wrote: > > > My daughters and I are not sure if we need some or my son with MDS needs > some. For some reason, he has been WILD the last month and we cannot get him > to settle down. He gets VERY angry and throws things, bangs tables, breaks > things, and is overall wearing us out. > My daughter, who has a sense of humor, inquired about something like a > tranquilizer and I said, " Let's not go to that extreme for him yet. " She > replied, " Not for Charlie, for me. " > Honestly, we are at our wits end and need to go to the herb store and get > *something* but we are not sure what. We want to be safe and only take the > edge off his behavior, but we are WORN OUT. > We have tried to pinpoint if anything (new food, allergy, illness, etc...) > is causing the behavior, but we cannot find anything. > Some people say yeast, but I do not know without expenisve tests that > insurance more than llikely won't pay for. > Any suggestions before we go mad here??? > > > > -- Sara- different pathways lead to Nirvana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 Hi . went through behavioral changes last summer.........not like Charlie, but she wanted to be alone, stopped talking to us, stopped watching tv and started hallucinating and talking to herself. We tried everything we could think of and finally prozac was the answer. Other than trying meds, I would suggest Charlie might be happier spending a little time away from home. How old is he? Maybe he's ready for more of a social life? is 15 and LOVES her friends at school. She loves her teachers and classes and is so happy there. She feels very independent and as much like a typical teen as she can. Just a thought. Good luck to you. I know how hard it is. > > > > Hi , > > Is something going on at Charlie's school or day program? My brother, when in > > his early 20's started acting out, which was very unusual for him. This was > > going on for several months and we couldn't figure out what was causing it. > > Then one day, after my father put him on the school bus, he noticed one of the > > other consumers get up and start hitting him repeatedly. It turns out, > > was being bullied, which included repeated hitting and being beaten up at his > > program. Of course, the staff never informed us.  We removed from that > > program and he quickly returned to normal. > > > > > > This may not be the case with Charlie, but something else may be bothering him. > > It is often so hard with our kids to figure out what is wrong. But a change in > > behavior doesn't just happen. Something causes it. > > > > > > Does Charlie have access to a psychologist? Perhaps one can help figure out > > what is going on. If he needs medication, you may want to consult a > > psychiatrist. I am not a big proponent of tranquilizers, unless they are really > > needed. There are so many medications out there, like SSRI's i.e. Lexapro, > > Prozac, etc., which do not dope you up and have a positive effect on behavior. > > But they take some time to start working i.e. 4 - 6 weeks. If you want to go > > the " natural " route, you may want to contact Kent McLeod, a biochemist in > > Ontario, Canada, who offers customized supplements for people with Down > > Syndrome. However, this can be expensive and not covered by insurance or > > medicaid. And I believe it takes a long time to work. > > > > All the best to you, Charlie and your family. > > > > Irene > > sister to  > > > > > > > > > > > > > > ________________________________ > > From: agirlnamedsuess21 <agirlnamedsuess@> > > To: > > Sent: Mon, May 23, 2011 11:03:08 PM > > Subject: Tranquilizers? > > > >  > > My daughters and I are not sure if we need some or my son with MDS needs some. > > For some reason, he has been WILD the last month and we cannot get him to settle > > down. He gets VERY angry and throws things, bangs tables, breaks things, and is > > overall wearing us out. > > > > My daughter, who has a sense of humor, inquired about something like a > > tranquilizer and I said, " Let's not go to that extreme for him yet. " She > > replied, " Not for Charlie, for me. " > > Honestly, we are at our wits end and need to go to the herb store and get > > *something* but we are not sure what. We want to be safe and only take the edge > > off his behavior, but we are WORN OUT. > > We have tried to pinpoint if anything (new food, allergy, illness, etc...) is > > causing the behavior, but we cannot find anything. > > Some people say yeast, but I do not know without expenisve tests that insurance > > more than llikely won't pay for. > > Any suggestions before we go mad here??? > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 Yes, homeschooled. And OH GOD, I forgot about the thyroid. last time he was sick, he had an elevated TSH. The doctor cancelled the appointment due to severe snow. No one ever followed up. SH@@T. That may be it. (sigh) Thyroid is something that would change as the day went on with eating, etc... Dang it. I think I will start there. But appointments are difficult to get right away. And our PCP is only there on Mondays and Tuesdays for us. They will not let us see the other doctor (asked before) on the other days. 8, he is going to turn 8 in July. I want to add that these behaviors have always been there, but not so severe. They do not even seem to be cycling (which is what you would think of for anti-depressants). They seem to be headed in one direction only (to hell in a hat basket). <=== Sorry for the expression. No one here is hurting Charlie Hart; he is the one hurting us. My daughter is scared of him and that breaks my heart. (I think he does sense that fear, though , and that is why he continues.) I know it sounds like I am describing a monster, but sometimes that best describes it. Oh, and supplements...always been multivitamin, vitamin C with echinacea, and vitamin D. He did have to have a nebulizer treatment the other day, but there was no change (good or bad) in his behavior. It remained the same. Sometimes he can be so calm (in front of the TV), but then when it is time to go to the bathroom, he refuses to get up, blocks the TV, throws a fit, stop/drop/flops, screams bloody murder, bites, etc...(you get the picture). No one is *hurting* him, he just does not want to do what is asked of him. (Being potty time at that moment for thsi example). EVERY situation is like this. We went to my daughters award ceremony. Usually one of us stays home with the boys because of his immune deficiency. This time, we all wanted to go (BIG awards). Anyway, all was fine in the sanctuary when the awards were being given out. Then at the reception (food was chosen carefully...no infractions), he was fine for a short while. Then I guess he got bored and BAM. He was out the door, on the floor, in the parking lot. (He kinda reminds me of someone who is stir crazy....maybe he is....because we have to limit his germs and exposure. But that said, he DOES go outside daily and he does get to do things. It is not like he is cooped up all the time.) Thyroid sounds like a best fit because that will make you psychotic. Not to be funny, but that is the one fitting word sometimes (a lot of times)=> psychotic. It is not him at the present, but the day is not over yet. > > > > My daughters and I are not sure if we need some or my son with MDS needs some. For some reason, he has been WILD the last month and we cannot get him to settle down. He gets VERY angry and throws things, bangs tables, breaks things, and is overall wearing us out. > > My daughter, who has a sense of humor, inquired about something like a tranquilizer and I said, " Let's not go to that extreme for him yet. " She replied, " Not for Charlie, for me. " > > Honestly, we are at our wits end and need to go to the herb store and get *something* but we are not sure what. We want to be safe and only take the edge off his behavior, but we are WORN OUT. > > We have tried to pinpoint if anything (new food, allergy, illness, etc...) is causing the behavior, but we cannot find anything. > > Some people say yeast, but I do not know without expenisve tests that insurance more than llikely won't pay for. > > Any suggestions before we go mad here??? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 Problem is his immune deficiency. He would NEVER give up TV (LOL), which is why we have had to incorporate some of his learning in by way of TV and/or computer. An example 2 years ago when we were at a conference and *others* (professionals) were in charge for short periods of time while we were in the adult conference: THEY LOST HIM!!! When we went to pick him up for lunch, no one was left in the room. He was gone. It took an hour to find him. there is NO WAY I would trust him iin the hands of someone else. I might not get my son back or worse, I fear he would die. This is not an unreal fear. He heads towards streets, water, or anything else dangerous. And I have yet to find a single soul who is as careful as I am about watching him. He cannot even be left with my husband....if that tells you anything. When I objectively look at Charlie Hart, I see a child that is growing up and has decided he will do whatever he darn well pleases and to hell with anyone that gets in his way. He is EXTREMELY stubborn and he wants EVERYHTING to be his way. If he does not get EVERYTHING his way, then he starts acting out. Well, truth be told, everything does not go the way we each want in life, and he needs to learn that it is a give and take. He also needs to learn taht sometimes (oftentimes) things do not go the way we each want them to go. (That does not seem to be computing with him.) He has a *NOW* mentality....sort of like a teenager, if I had to compare. When he decides he is done with a school work activity, off he goes. If we try to retrieve him, then he screams, kicks bites, breaks things, throws things. Honestly, I have some nice things here that were handed down from my grandmother (...China cabinet, for example, that he threw his shoes at the other day and THANK GOD did not break the glass.) Besides him hurting things, he is killing us...we are worn out. He has broken DVD's before. Also, he has slammed his plastic sippy onto the coffee table and broken one of the 9 pieces of glass inlays (still has not been replaced because it is over $50 to get that one piece of beveled smoke glass replaced). I am really getting tired of trying to protect our belongings from him. He does not care and later will want to watch one of the DVD's he broke in half....of course, we do not go out and buy him a new one...and he throws a fit for that as well. We are worried either someone is going to seriously get hurt (my daughter ot a torn ligament & ER visit just from him grabbing her ankle as she walked by, causing her to fall, which is his typical behavior... and that was in a calm moment) or he is going to break a priceless antique and I am going to lose control. We are trying to keep him in one area (where we are is the area) at a time, but still does not work. What we need is an ABA therapist to come to the home and work with him. (No one around). And we need that endocrine appointment, which I am calling on after lunch. Thanks everyone for just listening. I think it sometimes just helps to vent and release my frustration. :/ > > > > > > Hi , > > > Is something going on at Charlie's school or day program? My brother, when in > > > his early 20's started acting out, which was very unusual for him. This was > > > going on for several months and we couldn't figure out what was causing it. > > > Then one day, after my father put him on the school bus, he noticed one of the > > > other consumers get up and start hitting him repeatedly. It turns out, > > > was being bullied, which included repeated hitting and being beaten up at his > > > program. Of course, the staff never informed us.  We removed from that > > > program and he quickly returned to normal. > > > > > > > > > This may not be the case with Charlie, but something else may be bothering him. > > > It is often so hard with our kids to figure out what is wrong. But a change in > > > behavior doesn't just happen. Something causes it. > > > > > > > > > Does Charlie have access to a psychologist? Perhaps one can help figure out > > > what is going on. If he needs medication, you may want to consult a > > > psychiatrist. I am not a big proponent of tranquilizers, unless they are really > > > needed. There are so many medications out there, like SSRI's i.e. Lexapro, > > > Prozac, etc., which do not dope you up and have a positive effect on behavior. > > > But they take some time to start working i.e. 4 - 6 weeks. If you want to go > > > the " natural " route, you may want to contact Kent McLeod, a biochemist in > > > Ontario, Canada, who offers customized supplements for people with Down > > > Syndrome. However, this can be expensive and not covered by insurance or > > > medicaid. And I believe it takes a long time to work. > > > > > > All the best to you, Charlie and your family. > > > > > > Irene > > > sister to  > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > From: agirlnamedsuess21 <agirlnamedsuess@> > > > To: > > > Sent: Mon, May 23, 2011 11:03:08 PM > > > Subject: Tranquilizers? > > > > > >  > > > My daughters and I are not sure if we need some or my son with MDS needs some. > > > For some reason, he has been WILD the last month and we cannot get him to settle > > > down. He gets VERY angry and throws things, bangs tables, breaks things, and is > > > overall wearing us out. > > > > > > My daughter, who has a sense of humor, inquired about something like a > > > tranquilizer and I said, " Let's not go to that extreme for him yet. " She > > > replied, " Not for Charlie, for me. " > > > Honestly, we are at our wits end and need to go to the herb store and get > > > *something* but we are not sure what. We want to be safe and only take the edge > > > off his behavior, but we are WORN OUT. > > > We have tried to pinpoint if anything (new food, allergy, illness, etc...) is > > > causing the behavior, but we cannot find anything. > > > Some people say yeast, but I do not know without expenisve tests that insurance > > > more than llikely won't pay for. > > > Any suggestions before we go mad here??? > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 Yeah, that sounds like it. Except our lives are so busy (4 kids still here to take care of) that we haven't the *time* to wait him out. He tends to do this when we are on our way to an appointment (speech, doctor, etc...) The appointments can't and won't wait. (sigh) > > > > > > > > My daughters and I are not sure if we need some or my son with MDS > > needs some. For some reason, he has been WILD the last month and we cannot > > get him to settle down. He gets VERY angry and throws things, bangs tables, > > breaks things, and is overall wearing us out. > > > > My daughter, who has a sense of humor, inquired about something like a > > tranquilizer and I said, " Let's not go to that extreme for him yet. " She > > replied, " Not for Charlie, for me. " > > > > Honestly, we are at our wits end and need to go to the herb store and > > get *something* but we are not sure what. We want to be safe and only take > > the edge off his behavior, but we are WORN OUT. > > > > We have tried to pinpoint if anything (new food, allergy, illness, > > etc...) is causing the behavior, but we cannot find anything. > > > > Some people say yeast, but I do not know without expenisve tests that > > insurance more than llikely won't pay for. > > > > Any suggestions before we go mad here??? > > > > > > > > > > > > > > > > > > > > > -- > Sara- different pathways lead to Nirvana. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 Getting a doctor to cooperate with testing his testerone is the MAIN problem. But we will try. (sigh) Not sure what status is. Never heard of that. Could you explain? Oops, I hear one daughter screaming and my son slammed a door. I have to go. I thought they were eating. > > > > > > > My daughters and I are not sure if we need some or my son with MDS needs > > some. For some reason, he has been WILD the last month and we cannot get him > > to settle down. He gets VERY angry and throws things, bangs tables, breaks > > things, and is overall wearing us out. > > My daughter, who has a sense of humor, inquired about something like a > > tranquilizer and I said, " Let's not go to that extreme for him yet. " She > > replied, " Not for Charlie, for me. " > > Honestly, we are at our wits end and need to go to the herb store and get > > *something* but we are not sure what. We want to be safe and only take the > > edge off his behavior, but we are WORN OUT. > > We have tried to pinpoint if anything (new food, allergy, illness, etc...) > > is causing the behavior, but we cannot find anything. > > Some people say yeast, but I do not know without expenisve tests that > > insurance more than llikely won't pay for. > > Any suggestions before we go mad here??? > > > > > > > > > > > > -- > Sara- different pathways lead to Nirvana. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 I guess I need to live out of a storage unit then because I refuse to put my house into storage. He will throw plates, glasses (of he does not get his drink fast enough).We have first then schedules. They worked at first, then the answer became " NO " followed with bad behavior. What is FSD? I think he fully understands what is expected of him; no doubt about that. He just chooses to do his own will. That is very obvious. He understands right from wrong, but he cares not. Reminds me of my husband, which is why I think there is a medical reason for his behavior. > > > > > > > > > > Hi , > > > > > Is something going on at Charlie's school or day program? My > > brother, when in > > > > > his early 20's started acting out, which was very unusual for him. > > This was > > > > > going on for several months and we couldn't figure out what was > > causing it. > > > > > Then one day, after my father put him on the school bus, he noticed > > one of the > > > > > other consumers get up and start hitting him repeatedly. It turns > > out, > > > > > was being bullied, which included repeated hitting and being beaten > > up at his > > > > > program. Of course, the staff never informed us.  We removed > > from that > > > > > program and he quickly returned to normal. > > > > > > > > > > > > > > > This may not be the case with Charlie, but something else may be > > bothering him. > > > > > It is often so hard with our kids to figure out what is wrong. But > > a change in > > > > > behavior doesn't just happen. Something causes it. > > > > > > > > > > > > > > > Does Charlie have access to a psychologist? Perhaps one can help > > figure out > > > > > what is going on. If he needs medication, you may want to consult a > > > > > > > psychiatrist. I am not a big proponent of tranquilizers, unless > > they are really > > > > > needed. There are so many medications out there, like SSRI's i.e. > > Lexapro, > > > > > Prozac, etc., which do not dope you up and have a positive effect on > > behavior. > > > > > But they take some time to start working i.e. 4 - 6 weeks. If you > > want to go > > > > > the " natural " route, you may want to contact Kent McLeod, a > > biochemist in > > > > > Ontario, Canada, who offers customized supplements for people with > > Down > > > > > Syndrome. However, this can be expensive and not covered by > > insurance or > > > > > medicaid. And I believe it takes a long time to work. > > > > > > > > > > All the best to you, Charlie and your family. > > > > > > > > > > Irene > > > > > sister to  > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > From: agirlnamedsuess21 <agirlnamedsuess@> > > > > > To: > > > > > Sent: Mon, May 23, 2011 11:03:08 PM > > > > > Subject: Tranquilizers? > > > > > > > > > >  > > > > > My daughters and I are not sure if we need some or my son with MDS > > needs some. > > > > > For some reason, he has been WILD the last month and we cannot get > > him to settle > > > > > down. He gets VERY angry and throws things, bangs tables, breaks > > things, and is > > > > > overall wearing us out. > > > > > > > > > > My daughter, who has a sense of humor, inquired about something like > > a > > > > > tranquilizer and I said, " Let's not go to that extreme for him yet. " > > She > > > > > replied, " Not for Charlie, for me. " > > > > > Honestly, we are at our wits end and need to go to the herb store and > > get > > > > > *something* but we are not sure what. We want to be safe and only > > take the edge > > > > > off his behavior, but we are WORN OUT. > > > > > We have tried to pinpoint if anything (new food, allergy, illness, > > etc...) is > > > > > causing the behavior, but we cannot find anything. > > > > > Some people say yeast, but I do not know without expenisve tests that > > insurance > > > > > more than llikely won't pay for. > > > > > Any suggestions before we go mad here??? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 One more thing....he says " please " and expects us to comply. That one, I am not so sure he understands meaning of. he thinnks if he says please, then the answer is always yes. More often the answer is usually no for what he says please to. > > > > > > > > > > > > Hi , > > > > > > Is something going on at Charlie's school or day program? My > > > brother, when in > > > > > > his early 20's started acting out, which was very unusual for him. > > > This was > > > > > > going on for several months and we couldn't figure out what was > > > causing it. > > > > > > Then one day, after my father put him on the school bus, he noticed > > > one of the > > > > > > other consumers get up and start hitting him repeatedly. It turns > > > out, > > > > > > was being bullied, which included repeated hitting and being beaten > > > up at his > > > > > > program. Of course, the staff never informed us.  We removed > > > from that > > > > > > program and he quickly returned to normal. > > > > > > > > > > > > > > > > > > This may not be the case with Charlie, but something else may be > > > bothering him. > > > > > > It is often so hard with our kids to figure out what is wrong. But > > > a change in > > > > > > behavior doesn't just happen. Something causes it. > > > > > > > > > > > > > > > > > > Does Charlie have access to a psychologist? Perhaps one can help > > > figure out > > > > > > what is going on. If he needs medication, you may want to consult a > > > > > > > > > psychiatrist. I am not a big proponent of tranquilizers, unless > > > they are really > > > > > > needed. There are so many medications out there, like SSRI's i.e. > > > Lexapro, > > > > > > Prozac, etc., which do not dope you up and have a positive effect on > > > behavior. > > > > > > But they take some time to start working i.e. 4 - 6 weeks. If you > > > want to go > > > > > > the " natural " route, you may want to contact Kent McLeod, a > > > biochemist in > > > > > > Ontario, Canada, who offers customized supplements for people with > > > Down > > > > > > Syndrome. However, this can be expensive and not covered by > > > insurance or > > > > > > medicaid. And I believe it takes a long time to work. > > > > > > > > > > > > All the best to you, Charlie and your family. > > > > > > > > > > > > Irene > > > > > > sister to  > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > From: agirlnamedsuess21 <agirlnamedsuess@> > > > > > > To: > > > > > > Sent: Mon, May 23, 2011 11:03:08 PM > > > > > > Subject: Tranquilizers? > > > > > > > > > > > >  > > > > > > My daughters and I are not sure if we need some or my son with MDS > > > needs some. > > > > > > For some reason, he has been WILD the last month and we cannot get > > > him to settle > > > > > > down. He gets VERY angry and throws things, bangs tables, breaks > > > things, and is > > > > > > overall wearing us out. > > > > > > > > > > > > My daughter, who has a sense of humor, inquired about something like > > > a > > > > > > tranquilizer and I said, " Let's not go to that extreme for him yet. " > > > She > > > > > > replied, " Not for Charlie, for me. " > > > > > > Honestly, we are at our wits end and need to go to the herb store and > > > get > > > > > > *something* but we are not sure what. We want to be safe and only > > > take the edge > > > > > > off his behavior, but we are WORN OUT. > > > > > > We have tried to pinpoint if anything (new food, allergy, illness, > > > etc...) is > > > > > > causing the behavior, but we cannot find anything. > > > > > > Some people say yeast, but I do not know without expenisve tests that > > > insurance > > > > > > more than llikely won't pay for. > > > > > > Any suggestions before we go mad here??? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 , My family and I are experiencing something similar with ph (who also has MDS). I understand the frustration and wish for tranquilizers. ph started banging on things, throwing things, and breaking things when he was 3, but it got much worse when he turned 12 last September and started puberty. ph also hits people when he gets frustrated. We've used Yerba Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. All have worked to some degree. We don't use them very often. Only when he's really out of control. We also took him to a developmental psychologist, who finally diagnosed ph with autism and gave us the titles of some books to read and a DVD to watch. They've given us some good advice for our other kids, but very little to help us with ph. The doctor told us that hitting Mom or younger siblings was not to be tolerated and that ph was to be locked in his room for 30 minutes when he hit someone. ph's hitting episodes have decreased dramatically since we've implemented putting him in his room for 30 minutes after hitting someone. As far as the throwing things, destroying things and other such behavior goes, we've haven't come up with a solution to stop it. We've tried the 30 minutes in his room for that, too, but it hasn't worked. We are going to discuss medication with ph's doctor when we see him next time. I wish I could be of more help to you, but all I can do is sympathize. Dena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 GOt it. (And sometimes it is flop, stop, and drop<=== He has learned to carefully lay down before pitching his fit) > > > > > > > > > > > > > > Hi , > > > > > > > Is something going on at Charlie's school or day program? My > > > > brother, when in > > > > > > > his early 20's started acting out, which was very unusual for > > him. > > > > > > This was > > > > > > > going on for several months and we couldn't figure out what was > > > > causing it. > > > > > > > > > Then one day, after my father put him on the school bus, he > > noticed > > > > one of the > > > > > > > other consumers get up and start hitting him repeatedly. It > > turns > > > > out, > > > > > > > > > was being bullied, which included repeated hitting and being > > beaten > > > > up at his > > > > > > > program. Of course, the staff never informed us.  We > > removed > > > > from that > > > > > > > program and he quickly returned to normal. > > > > > > > > > > > > > > > > > > > > > > > This may not be the case with Charlie, but something else may be > > > > bothering him. > > > > > > > It is often so hard with our kids to figure out what is wrong. > > But > > > > a change in > > > > > > > behavior doesn't just happen. Something causes it. > > > > > > > > > > > > > > > > > > > > > Does Charlie have access to a psychologist? Perhaps one can > > help > > > > figure out > > > > > > > what is going on. If he needs medication, you may want to > > consult a > > > > > > > > > > > psychiatrist. I am not a big proponent of tranquilizers, unless > > > > they are really > > > > > > > needed. There are so many medications out there, like SSRI's > > i.e. > > > > > > Lexapro, > > > > > > > Prozac, etc., which do not dope you up and have a positive effect > > on > > > > behavior. > > > > > > > But they take some time to start working i.e. 4 - 6 weeks. If > > you > > > > > > want to go > > > > > > > the " natural " route, you may want to contact Kent McLeod, a > > > > biochemist in > > > > > > > Ontario, Canada, who offers customized supplements for people > > with > > > > Down > > > > > > > Syndrome. However, this can be expensive and not covered by > > > > insurance or > > > > > > > medicaid. And I believe it takes a long time to work. > > > > > > > > > > > > > > All the best to you, Charlie and your family. > > > > > > > > > > > > > > Irene > > > > > > > sister to  > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > > From: agirlnamedsuess21 <agirlnamedsuess@> > > > > > > > To: > > > > > > > Sent: Mon, May 23, 2011 11:03:08 PM > > > > > > > Subject: Tranquilizers? > > > > > > > > > > > > > >  > > > > > > > > > My daughters and I are not sure if we need some or my son with > > MDS > > > > needs some. > > > > > > > For some reason, he has been WILD the last month and we cannot > > get > > > > him to settle > > > > > > > down. He gets VERY angry and throws things, bangs tables, breaks > > > > things, and is > > > > > > > overall wearing us out. > > > > > > > > > > > > > > My daughter, who has a sense of humor, inquired about something > > like > > > > a > > > > > > > tranquilizer and I said, " Let's not go to that extreme for him > > yet. " > > > > She > > > > > > > replied, " Not for Charlie, for me. " > > > > > > > Honestly, we are at our wits end and need to go to the herb store > > and > > > > get > > > > > > > *something* but we are not sure what. We want to be safe and only > > > > take the edge > > > > > > > off his behavior, but we are WORN OUT. > > > > > > > We have tried to pinpoint if anything (new food, allergy, > > illness, > > > > etc...) is > > > > > > > causing the behavior, but we cannot find anything. > > > > > > > Some people say yeast, but I do not know without expenisve tests > > that > > > > insurance > > > > > > > more than llikely won't pay for. > > > > > > > Any suggestions before we go mad here??? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 My son is only 7 (8 in July). Today has been a mild day, which makes me wonder what is different. I know we did not give him corn last night (still wondering about allergies). He has a script for loratidine, maybe that will help? Where I live the medical care just sucks and the doctors are so very unsupportive. Sometimes my son will drink coffee, sometimes he won't. He goes in June to Marcus Institute (but in my opinion some of that crowd ain't with the program...what am I saying...most of them are not with it). Problem is with his DS, he sometimes puts on the charm for others. That is what makes this so difficult. having the diagnosis won't help me solve the behavioral issues. Someone e-mailed me personally aboout public school, but that option is out (even if my son did not have an immune deficiency); I would not board my dog there. (true, if I had a dog) Besides we are in due process (well, formal complaint process, now, and it is not moving fast at all.still have not heard from the investigator at all. <= don't they ahve a time limit? UGH...ADD scattering my brain off topic again.) Main problems: no services at all in this county, no services from school at all for THREE years (been fighting), no qualified/knowledgable medical doctors in this or surrounding counties, limited resources due to medicaid (again no resources in this county at all), and lastly----> doing it all myself with my two girls. > > > , > My family and I are experiencing something similar with ph (who also has MDS). I understand the frustration and wish for tranquilizers. ph started banging on things, throwing things, and breaking things when he was 3, but it got much worse when he turned 12 last September and started puberty. ph also hits people when he gets frustrated. We've used Yerba Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. All have worked to some degree. We don't use them very often. Only when he's really out of control. We also took him to a developmental psychologist, who finally diagnosed ph with autism and gave us the titles of some books to read and a DVD to watch. They've given us some good advice for our other kids, but very little to help us with ph. The doctor told us that hitting Mom or younger siblings was not to be tolerated and that ph was to be locked in his room for 30 minutes when he hit someone. ph's hitting episodes have decreased dramatically since we've implemented putting him in his room for 30 minutes after hitting someone. As far as the throwing things, destroying things and other such behavior goes, we've haven't come up with a solution to stop it. We've tried the 30 minutes in his room for that, too, but it hasn't worked. We are going to discuss medication with ph's doctor when we see him next time. I wish I could be of more help to you, but all I can do is sympathize. > > Dena > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 She will be participating in MERGE during the first week of June. They do go to friend's houses. And she is involved in the yearbook committee, etc.... I think we all feel like we need knock-out pills. Kidding, but serious in some ways. We do get *some* breaks, but clearly when we come back, it is the same thing. Today was a better day; not sure what we did differently, but it was still better than most days. (even though he had to be redirected 31 times to time out before he stayed.) > > > > > > , > > My family and I are experiencing something similar with ph (who also has MDS). I understand the frustration and wish for tranquilizers. ph started banging on things, throwing things, and breaking things when he was 3, but it got much worse when he turned 12 last September and started puberty. ph also hits people when he gets frustrated. We've used Yerba Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. All have worked to some degree. We don't use them very often. Only when he's really out of control. We also took him to a developmental psychologist, who finally diagnosed ph with autism and gave us the titles of some books to read and a DVD to watch. They've given us some good advice for our other kids, but very little to help us with ph. The doctor told us that hitting Mom or younger siblings was not to be tolerated and that ph was to be locked in his room for 30 minutes when he hit someone. ph's hitting episodes have decreased > dramatically since we've implemented putting him in his room for 30 minutes after hitting someone. As far as the throwing things, destroying things and other such behavior goes, we've haven't come up with a solution to stop it. We've tried the 30 minutes in his room for that, too, but it hasn't worked. We are going to discuss medication with ph's doctor when we see him next time. I wish I could be of more help to you, but all I can do is sympathize. > > > > Dena > > > > > > > ------------------------------------ > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ > -------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 The medicaid van would be an option for further away. We also need a new allergy / asthma doctor. > > > > > > > > > , > > > My family and I are experiencing something similar with ph (who also > > has MDS). I understand the frustration and wish for tranquilizers. ph > > started banging on things, throwing things, and breaking things when he was > > 3, but it got much worse when he turned 12 last September and started > > puberty. ph also hits people when he gets frustrated. We've used Yerba > > Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. > > All have worked to some degree. We don't use them very often. Only when he's > > really out of control. We also took him to a developmental psychologist, who > > finally diagnosed ph with autism and gave us the titles of some books to > > read and a DVD to watch. They've given us some good advice for our other > > kids, but very little to help us with ph. The doctor told us that > > hitting Mom or younger siblings was not to be tolerated and that ph was > > to be locked in his room for 30 minutes when he hit someone. ph's > > hitting episodes have decreased dramatically since we've implemented putting > > him in his room for 30 minutes after hitting someone. As far as the throwing > > things, destroying things and other such behavior goes, we've haven't come > > up with a solution to stop it. We've tried the 30 minutes in his room for > > that, too, but it hasn't worked. We are going to discuss medication with > > ph's doctor when we see him next time. I wish I could be of more help to > > you, but all I can do is sympathize. > > > > > > Dena > > > > > > > > > > > > > -- > Sara- different pathways lead to Nirvana. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2011 Report Share Posted May 24, 2011 That is a thought. Wonder what would be noxious enough to him but would not affect us for the moment at hand. I would hate to train our brains to expect a noxious smell every single time he acts up. We know why he is acting up...it is because he is not getting his way. We just do not know what to do about it. We also think he might have Tourette's. He screams out things at people when angry for not getting his way and it sounds like apraxic cursing or something similar. (sigh) Maybe it is just the ASD. > > > > > , > > My family and I are experiencing something similar with ph (who also has MDS). I understand the frustration and wish for tranquilizers. ph started banging on things, throwing things, and breaking things when he was 3, but it got much worse when he turned 12 last September and started puberty. ph also hits people when he gets frustrated. We've used Yerba Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. All have worked to some degree. We don't use them very often. Only when he's really out of control. We also took him to a developmental psychologist, who finally diagnosed ph with autism and gave us the titles of some books to read and a DVD to watch. They've given us some good advice for our other kids, but very little to help us with ph. The doctor told us that hitting Mom or younger siblings was not to be tolerated and that ph was to be locked in his room for 30 minutes when he hit someone. ph's hitting episodes have decreased dramatically since we've implemented putting him in his room for 30 minutes after hitting someone. As far as the throwing things, destroying things and other such behavior goes, we've haven't come up with a solution to stop it. We've tried the 30 minutes in his room for that, too, but it hasn't worked. We are going to discuss medication with ph's doctor when we see him next time. I wish I could be of more help to you, but all I can do is sympathize. > > > > Dena > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 Hi , I am really behind on reading all the posts but happened to see this one & wanted to share some things. The bad air days have been extreme this past two weeks. Don't know if this is impacting your son. It has impacted my child (DJ)even with daily preventative maintenance meds. The Marcus Center is fantastic! Very team oriented & thorough. When we took DJ it was before the center's focus on autism. Our appointment was with the then center head, Dr. Blackston. From him, we met individually with team of specialists including psychologist (who gave tips for behavior management) We were provided with referals to outside specialists for things like comprehensive vision, celiac testing, reflux testing, etc. We were given RX for intensive ST, etc. This took all day for several days. We ended back with Dr. Blackston after seeing everyone else & was mailed the most comprehensive developmental report I have ever seen in my life to date. I seriously do not feel that the high standards we experienced then have altered, so I am so excited for you that you have an appointment! Just based on my observations & experiences, I agree with others who suggest looking for a possible cause for this behavior. Ruling out any medical issues before thinking it is just a behavior or ASD is the best line of defense towards eliminating a problem. Seems to be a variety of behaviors and/or concerns, not just one, don't you think? Oh & medicaid ( Beckett Deeming Waiver) paid the entire substantial fees for our Marcus Center experience. I think they will be able to help you a great deal with any developmental-medical-behavioral issues. Just be prepared to give them specific info in whatever category of concerns you have so that they have a clear overview. You have my sincere empathy & best wishes during this stressful time. Remember to take gentle care of self! Hugs, Kris > > > > > > , > > My family and I are experiencing something similar with ph (who also has MDS). I understand the frustration and wish for tranquilizers. ph started banging on things, throwing things, and breaking things when he was 3, but it got much worse when he turned 12 last September and started puberty. ph also hits people when he gets frustrated. We've used Yerba Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. All have worked to some degree. We don't use them very often. Only when he's really out of control. We also took him to a developmental psychologist, who finally diagnosed ph with autism and gave us the titles of some books to read and a DVD to watch. They've given us some good advice for our other kids, but very little to help us with ph. The doctor told us that hitting Mom or younger siblings was not to be tolerated and that ph was to be locked in his room for 30 minutes when he hit someone. ph's hitting episodes have decreased dramatically since we've implemented putting him in his room for 30 minutes after hitting someone. As far as the throwing things, destroying things and other such behavior goes, we've haven't come up with a solution to stop it. We've tried the 30 minutes in his room for that, too, but it hasn't worked. We are going to discuss medication with ph's doctor when we see him next time. I wish I could be of more help to you, but all I can do is sympathize. > > > > Dena > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 Ack! Otherwise known as adversives. Back in the 80's ( & before then & no doubt still) many used this technique you describe. I will never ever forget the first time I witnessed the use. Lemon juice sprayed into a wheelchair bound,blind child's face. Just imagine how that felt coming unseen & how lemon juice would feel to eyeballs! Last time I witnessed it as well. Fortunately, I learned & taught during a time & in a place where adversives were forbidden. Since those days of yore, many proponents of adversives in the AB arena (such as Lovaas)have completely reversed on the use. Horrifically though, there are some that use electric shock as well...I read about a facility where these things are attached to kids backpacks & stuff... Apparantly enough studies have been compiled to show that there is NO long term gain from the use of these extreme adversive techniques. I am not & never will be a proponent on the use of adversives. Besides being totally alien to my own temperment et al, I cannot help but connect the dots of lemon juice or noxious smells sprayed in a face to electric jolts applied. Mighty fine line. Sorry about the rant. 20 years or so later & that memory is still fresh enough to produce a visceral reaction.... Kris > > > > > , > > My family and I are experiencing something similar with ph (who also has MDS). I understand the frustration and wish for tranquilizers. ph started banging on things, throwing things, and breaking things when he was 3, but it got much worse when he turned 12 last September and started puberty. ph also hits people when he gets frustrated. We've used Yerba Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. All have worked to some degree. We don't use them very often. Only when he's really out of control. We also took him to a developmental psychologist, who finally diagnosed ph with autism and gave us the titles of some books to read and a DVD to watch. They've given us some good advice for our other kids, but very little to help us with ph. The doctor told us that hitting Mom or younger siblings was not to be tolerated and that ph was to be locked in his room for 30 minutes when he hit someone. ph's hitting episodes have decreased dramatically since we've implemented putting him in his room for 30 minutes after hitting someone. As far as the throwing things, destroying things and other such behavior goes, we've haven't come up with a solution to stop it. We've tried the 30 minutes in his room for that, too, but it hasn't worked. We are going to discuss medication with ph's doctor when we see him next time. I wish I could be of more help to you, but all I can do is sympathize. > > > > Dena > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 Dang my daughter is too smart. That is what she asked and I told her no. (Guess I better shut up! LOL) We actually have some of those. Thanks~ > > > > > > > > > > > , > > > > My family and I are experiencing something similar with ph (who also has MDS). I understand the frustration and wish for tranquilizers. ph started banging on things, throwing things, and breaking things when he was 3, but it got much worse when he turned 12 last September and started puberty. ph also hits people when he gets frustrated. We've used Yerba Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. All have worked to some degree. We don't use them very often. Only when he's really out of control. We also took him to a developmental psychologist, who finally diagnosed ph with autism and gave us the titles of some books to read and a DVD to watch. They've given us some good advice for our other kids, but very little to help us with ph. The doctor told us that hitting Mom or younger siblings was not to be tolerated and that ph was to be locked in his room for 30 minutes when he hit someone. ph's hitting episodes have decreased dramatically since we've implemented putting him in his room for 30 minutes after hitting someone. As far as the throwing things, destroying things and other such behavior goes, we've haven't come up with a solution to stop it. We've tried the 30 minutes in his room for that, too, but it hasn't worked. We are going to discuss medication with ph's doctor when we see him next time. I wish I could be of more help to you, but all I can do is sympathize. > > > > > > > > Dena > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 Since we believe we fall in the category of *allergy-related autism*, I have considered whether it was allergies (pollen) outside or bad air (my son has severe respiratory problems, BUT not really showing symptoms though right now....maybe the symptoms are manifesting as behavior?). We also have considered *corn* and *soy*. He has been off corn for a couple of days and even though it was extremely difficult to get him to sleep this morning (last night) until about 1:30 am, yesterday was a mild day (my daughter thinks it was a horrible day, but I can see & feel that it was definitely not one of the worst days we have had). All that said, i have cometo the conclusion, through speaking with many people, that this is just autistic behavior. What worries me is will this get better in the long run with everything I am doing or will it just get worse and worse. I think that is my fear. The words that come to mind with my son are the following: self-centered and all about him With his communnication/speech issues, behavior, and social issues, I just keeping coming back to one word: autism. The sad thing is I see these same traits in my husband (just at an adult level). I have gotten an e-mail suggesting that if I place him in PS that things will be better; I have to question, " For who? " I do not push my problems to other people who won't address the issues and help my son (believe me, my county schools have already pre-decided a placement for my son of placing him in a profoundly mentally retarded classroom...I do not even want to discuss the hell of what I have been through with the county school system...it is in due process---rather dispute resolution---now) Education is not where I am concerned because he is learning schoolwork. The issue at hand is him being destructive when he does not get his way or what he asks for, self-centered (everything centers around Charlie Hart--and truthfully we have spent many years fighting for him and maybe that is where the attention has been coming from), or hurting one of his siblings or himself. (Not necessarily in that order) > > > > > > > > > , > > > My family and I are experiencing something similar with ph (who also has MDS). I understand the frustration and wish for tranquilizers. ph started banging on things, throwing things, and breaking things when he was 3, but it got much worse when he turned 12 last September and started puberty. ph also hits people when he gets frustrated. We've used Yerba Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. All have worked to some degree. We don't use them very often. Only when he's really out of control. We also took him to a developmental psychologist, who finally diagnosed ph with autism and gave us the titles of some books to read and a DVD to watch. They've given us some good advice for our other kids, but very little to help us with ph. The doctor told us that hitting Mom or younger siblings was not to be tolerated and that ph was to be locked in his room for 30 minutes when he hit someone. ph's hitting episodes have decreased dramatically since we've implemented putting him in his room for 30 minutes after hitting someone. As far as the throwing things, destroying things and other such behavior goes, we've haven't come up with a solution to stop it. We've tried the 30 minutes in his room for that, too, but it hasn't worked. We are going to discuss medication with ph's doctor when we see him next time. I wish I could be of more help to you, but all I can do is sympathize. > > > > > > Dena > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 I definitely would *NOT* spray anything (lemon juice or pepper spray, as many police officers are doing these days) into my child's face. And no way in hell is anyonegiving him shock treatments. Those won't help at all. A smelling salt is not something I would compare to thse directly, but now that you put it that way, I can put that into context and see how it is similar to smell something awful repeatedly being compared to shocking repeatedly. So, that is out. From personal experience, you are correct....adversarial treatment does not have any positive effects and the long term repercussions are devastating. I do not want my son to associate *me* with something *bad*. You know, I do sometimes see a really sweet little boy. What I cannot understand is why he just does not comply. I keep coming back to *self-centeredness*, *stubbornness*, *the feeling he has that he can do whatever he wants whenever he wants*, etc... I *do* believe that my child understands and understands quite well, but maybe he does not understand his *role* in the family and society. <== That is it. Is that part of autism? Not understanding one's role in society and how one is supposed to behave? P.S. Would melatonin be considered adversive or just biomedical? The thing that worries me about Marcus is they do not believe in *any* biomedical and it took an act of congress to get him into the psychologist; they wanted to send him to a psychiatrist first, but they told me the psychiatrist would not be able to give the ASD diagnosis. > > > > > > > > , > > > My family and I are experiencing something similar with ph (who also has MDS). I understand the frustration and wish for tranquilizers. ph started banging on things, throwing things, and breaking things when he was 3, but it got much worse when he turned 12 last September and started puberty. ph also hits people when he gets frustrated. We've used Yerba Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. All have worked to some degree. We don't use them very often. Only when he's really out of control. We also took him to a developmental psychologist, who finally diagnosed ph with autism and gave us the titles of some books to read and a DVD to watch. They've given us some good advice for our other kids, but very little to help us with ph. The doctor told us that hitting Mom or younger siblings was not to be tolerated and that ph was to be locked in his room for 30 minutes when he hit someone. ph's hitting episodes have decreased dramatically since we've implemented putting him in his room for 30 minutes after hitting someone. As far as the throwing things, destroying things and other such behavior goes, we've haven't come up with a solution to stop it. We've tried the 30 minutes in his room for that, too, but it hasn't worked. We are going to discuss medication with ph's doctor when we see him next time. I wish I could be of more help to you, but all I can do is sympathize. > > > > > > Dena > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 I can relate. > > > > > > > > > > > > > > > , > > > > > My family and I are experiencing something similar with ph (who also has MDS). I understand the frustration and wish for tranquilizers. ph started banging on things, throwing things, and breaking things when he was 3, but it got much worse when he turned 12 last September and started puberty. ph also hits people when he gets frustrated. We've used Yerba Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. All have worked to some degree. We don't use them very often. Only when he's really out of control. We also took him to a developmental psychologist, who finally diagnosed ph with autism and gave us the titles of some books to read and a DVD to watch. They've given us some good advice for our other kids, but very little to help us with ph. The doctor told us that hitting Mom or younger siblings was not to be tolerated and that ph was to be locked in his room for 30 minutes when he hit someone. ph's hitting episodes have decreased dramatically since we've implemented putting him in his room for 30 minutes after hitting someone. As far as the throwing things, destroying things and other such behavior goes, we've haven't come up with a solution to stop it. We've tried the 30 minutes in his room for that, too, but it hasn't worked. We are going to discuss medication with ph's doctor when we see him next time. I wish I could be of more help to you, but all I can do is sympathize. > > > > > > > > > > Dena > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 I understand. I would like to get Temple Grandin's movie or at leats check it out. My moom is very much self-centered and probably ASD; she is 78. I do think the self-centered-ness is part of the ASD, but I can see where it is also developmental. Does this ever change for ASD kids? I think the DS (overexpression of the genes) is causing the extreme stubbornness. Not so sure that ASD is the cause of the stubbornness. When he is sweet, he is SOOO sweet. When he is stubborn, he is so stubborn. When he has a meltdown, it is a HUGE meltdown. All the genes are overexpressed. > > > > > > > > > > > > > > > > > > , > > > > > > My family and I are experiencing something similar with ph (who > > also has MDS). I understand the frustration and wish for tranquilizers. > > ph started banging on things, throwing things, and breaking things when > > he was 3, but it got much worse when he turned 12 last September and started > > puberty. ph also hits people when he gets frustrated. We've used Yerba > > Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. > > All have worked to some degree. We don't use them very often. Only when he's > > really out of control. We also took him to a developmental psychologist, who > > finally diagnosed ph with autism and gave us the titles of some books to > > read and a DVD to watch. They've given us some good advice for our other > > kids, but very little to help us with ph. The doctor told us that > > hitting Mom or younger siblings was not to be tolerated and that ph was > > to be locked in his room for 30 minutes when he hit someone. ph's > > hitting episodes have decreased dramatically since we've implemented putting > > him in his room for 30 minutes after hitting someone. As far as the throwing > > things, destroying things and other such behavior goes, we've haven't come > > up with a solution to stop it. We've tried the 30 minutes in his room for > > that, too, but it hasn't worked. We are going to discuss medication with > > ph's doctor when we see him next time. I wish I could be of more help to > > you, but all I can do is sympathize. > > > > > > > > > > > > Dena > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 Could you please explain *central cohesion* without me having to do the research on it first? Thanks~ > > > > > > > > > > > > > > , > > > > > My family and I are experiencing something similar with ph (who also has MDS). I understand the frustration and wish for tranquilizers. ph started banging on things, throwing things, and breaking things when he was 3, but it got much worse when he turned 12 last September and started puberty. ph also hits people when he gets frustrated. We've used Yerba Mate tea, Happy Camper herbal blend capsules, and coffee to calm him down. All have worked to some degree. We don't use them very often. Only when he's really out of control. We also took him to a developmental psychologist, who finally diagnosed ph with autism and gave us the titles of some books to read and a DVD to watch. They've given us some good advice for our other kids, but very little to help us with ph. The doctor told us that hitting Mom or younger siblings was not to be tolerated and that ph was to be locked in his room for 30 minutes when he hit someone. ph's hitting episodes have decreased dramatically since we've implemented putting him in his room for 30 minutes after hitting someone. As far as the throwing things, destroying things and other such behavior goes, we've haven't come up with a solution to stop it. We've tried the 30 minutes in his room for that, too, but it hasn't worked. We are going to discuss medication with ph's doctor when we see him next time. I wish I could be of more help to you, but all I can do is sympathize. > > > > > > > > > > Dena > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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