Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 OMG! Margaret! I am so EXCITED for you all! Am keeping everything crossed that this new protocol works wonders and keeps on bringing Mr G out of his shell!! Liz > > > <<Another acronym coming up - SHDC - wonder how many of our kids have this > one too???>> > > Hi, Everyone.... & Sara....LMAO.....Gareth had this, too!!! His > autism and behavioral issues all went away as soon as he was dumped into a > Life > Skills class in the *school district from H#$$* Oh, them there magical > doors, them there magical doors!!! Unfortunately, our district did waste > over $70,000 fighting inclusion.....and lost....big time!!! After that > fiasco, the head of Spec Ed, her side kick, and the IU 13 spec ed person > all > decided to find employment elsewhere. Even the superintendent didn't last > long > after that!!! > Unfortunately, from what I hear from others still in the district, it's > still pathetic for spec ed kids. > > I finally got the courage to start Gareth on that new med last Monday. I > gave it to him in the morning (Monday) and he dozed on and off all day. So > the next day (Tuesday), I gave it to him at bedtime. The med is > Amantadine....used to prevent or lessen flu symptoms and used by Parkinson > pts. > Anyways....I don't want to be overly optimistic just yet, BUT....for the > first > time in two yrs or more, Gareth is *lucid* enough to answer questions, > promptly responds to questions/conversations, initiates conversations > (!!!), > wanted a haircut (I took 6 " off !!!), and wants to run errands with me > instead of vegging out in his hammock swing all day. The kid that I thought > we > had lost is coming back!!! The med is suppose to be eliminated from the > system daily, not build up, which is good. The other plus, and it's a big > plus!!!, is that I have dropped his nightly Risperdal completely with NO > side > affects as for anger/aggressiveness, non-compliance, etc. Sooooooooooo, > he's down to 1 mg of Risperdal in the morning and that's it. Now watch, > tomorrow morning I will wake up and the bubble will be burst!!! It's been > an > enjoyable week......... > > Take care, Everyone. > Margaret > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2011 Report Share Posted June 4, 2011 I was sooooo tongue in cheek but I got some private emails as well on SHDC. Guess we can add that to TRS and SFD. Maybe we should start a dictionary of our insider terms!!! > > > <<Another acronym coming up - SHDC - wonder how many of our kids have this > one too???>> > > Hi, Everyone.... & Sara....LMAO.....Gareth had this, too!!! His > autism and behavioral issues all went away as soon as he was dumped into a > Life > Skills class in the *school district from H#$$* Oh, them there magical > doors, them there magical doors!!! Unfortunately, our district did waste > over $70,000 fighting inclusion.....and lost....big time!!! After that > fiasco, the head of Spec Ed, her side kick, and the IU 13 spec ed person > all > decided to find employment elsewhere. Even the superintendent didn't last > long > after that!!! > Unfortunately, from what I hear from others still in the district, it's > still pathetic for spec ed kids. > > I finally got the courage to start Gareth on that new med last Monday. I > gave it to him in the morning (Monday) and he dozed on and off all day. So > the next day (Tuesday), I gave it to him at bedtime. The med is > Amantadine....used to prevent or lessen flu symptoms and used by Parkinson > pts. > Anyways....I don't want to be overly optimistic just yet, BUT....for the > first > time in two yrs or more, Gareth is *lucid* enough to answer questions, > promptly responds to questions/conversations, initiates conversations > (!!!), > wanted a haircut (I took 6 " off !!!), and wants to run errands with me > instead of vegging out in his hammock swing all day. The kid that I thought > we > had lost is coming back!!! The med is suppose to be eliminated from the > system daily, not build up, which is good. The other plus, and it's a big > plus!!!, is that I have dropped his nightly Risperdal completely with NO > side > affects as for anger/aggressiveness, non-compliance, etc. Sooooooooooo, > he's down to 1 mg of Risperdal in the morning and that's it. Now watch, > tomorrow morning I will wake up and the bubble will be burst!!! It's been > an > enjoyable week......... > > Take care, Everyone. > Margaret > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 TRS?? Sent from my iPhone > I was sooooo tongue in cheek but I got some private emails as well on SHDC. > Guess we can add that to TRS and SFD. Maybe we should start a dictionary of > our insider terms!!! > > > > > > > > > <<Another acronym coming up - SHDC - wonder how many of our kids have this > > one too???>> > > > > Hi, Everyone.... & Sara....LMAO.....Gareth had this, too!!! His > > autism and behavioral issues all went away as soon as he was dumped into a > > Life > > Skills class in the *school district from H#$$* Oh, them there magical > > doors, them there magical doors!!! Unfortunately, our district did waste > > over $70,000 fighting inclusion.....and lost....big time!!! After that > > fiasco, the head of Spec Ed, her side kick, and the IU 13 spec ed person > > all > > decided to find employment elsewhere. Even the superintendent didn't last > > long > > after that!!! > > Unfortunately, from what I hear from others still in the district, it's > > still pathetic for spec ed kids. > > > > I finally got the courage to start Gareth on that new med last Monday. I > > gave it to him in the morning (Monday) and he dozed on and off all day. So > > the next day (Tuesday), I gave it to him at bedtime. The med is > > Amantadine....used to prevent or lessen flu symptoms and used by Parkinson > > pts. > > Anyways....I don't want to be overly optimistic just yet, BUT....for the > > first > > time in two yrs or more, Gareth is *lucid* enough to answer questions, > > promptly responds to questions/conversations, initiates conversations > > (!!!), > > wanted a haircut (I took 6 " off !!!), and wants to run errands with me > > instead of vegging out in his hammock swing all day. The kid that I thought > > we > > had lost is coming back!!! The med is suppose to be eliminated from the > > system daily, not build up, which is good. The other plus, and it's a big > > plus!!!, is that I have dropped his nightly Risperdal completely with NO > > side > > affects as for anger/aggressiveness, non-compliance, etc. Sooooooooooo, > > he's down to 1 mg of Risperdal in the morning and that's it. Now watch, > > tomorrow morning I will wake up and the bubble will be burst!!! It's been > > an > > enjoyable week......... > > > > Take care, Everyone. > > Margaret > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 Tape Rewind Syndrome! > > > TRS?? > > Sent from my iPhone > > > > > > I was sooooo tongue in cheek but I got some private emails as well on > SHDC. > > Guess we can add that to TRS and SFD. Maybe we should start a dictionary > of > > our insider terms!!! > > > > > > > > > > > > > > > <<Another acronym coming up - SHDC - wonder how many of our kids have > this > > > one too???>> > > > > > > Hi, Everyone.... & Sara....LMAO.....Gareth had this, too!!! His > > > autism and behavioral issues all went away as soon as he was dumped > into a > > > Life > > > Skills class in the *school district from H#$$* Oh, them there magical > > > doors, them there magical doors!!! Unfortunately, our district did > waste > > > over $70,000 fighting inclusion.....and lost....big time!!! After that > > > fiasco, the head of Spec Ed, her side kick, and the IU 13 spec ed > person > > > all > > > decided to find employment elsewhere. Even the superintendent didn't > last > > > long > > > after that!!! > > > Unfortunately, from what I hear from others still in the district, it's > > > still pathetic for spec ed kids. > > > > > > I finally got the courage to start Gareth on that new med last Monday. > I > > > gave it to him in the morning (Monday) and he dozed on and off all day. > So > > > the next day (Tuesday), I gave it to him at bedtime. The med is > > > Amantadine....used to prevent or lessen flu symptoms and used by > Parkinson > > > pts. > > > Anyways....I don't want to be overly optimistic just yet, BUT....for > the > > > first > > > time in two yrs or more, Gareth is *lucid* enough to answer questions, > > > promptly responds to questions/conversations, initiates conversations > > > (!!!), > > > wanted a haircut (I took 6 " off !!!), and wants to run errands with me > > > instead of vegging out in his hammock swing all day. The kid that I > thought > > > we > > > had lost is coming back!!! The med is suppose to be eliminated from the > > > system daily, not build up, which is good. The other plus, and it's a > big > > > plus!!!, is that I have dropped his nightly Risperdal completely with > NO > > > side > > > affects as for anger/aggressiveness, non-compliance, etc. Sooooooooooo, > > > he's down to 1 mg of Risperdal in the morning and that's it. Now watch, > > > tomorrow morning I will wake up and the bubble will be burst!!! It's > been > > > an > > > enjoyable week......... > > > > > > Take care, Everyone. > > > Margaret > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 That's FABULOUS!!!!! Sent from my iPhone > <<Another acronym coming up - SHDC - wonder how many of our kids have this > one too???>> > > Hi, Everyone.... & Sara....LMAO.....Gareth had this, too!!! His > autism and behavioral issues all went away as soon as he was dumped into a Life > Skills class in the *school district from H#$$* Oh, them there magical > doors, them there magical doors!!! Unfortunately, our district did waste > over $70,000 fighting inclusion.....and lost....big time!!! After that > fiasco, the head of Spec Ed, her side kick, and the IU 13 spec ed person all > decided to find employment elsewhere. Even the superintendent didn't last long > after that!!! > Unfortunately, from what I hear from others still in the district, it's > still pathetic for spec ed kids. > > I finally got the courage to start Gareth on that new med last Monday. I > gave it to him in the morning (Monday) and he dozed on and off all day. So > the next day (Tuesday), I gave it to him at bedtime. The med is > Amantadine....used to prevent or lessen flu symptoms and used by Parkinson pts. > Anyways....I don't want to be overly optimistic just yet, BUT....for the first > time in two yrs or more, Gareth is *lucid* enough to answer questions, > promptly responds to questions/conversations, initiates conversations (!!!), > wanted a haircut (I took 6 " off !!!), and wants to run errands with me > instead of vegging out in his hammock swing all day. The kid that I thought we > had lost is coming back!!! The med is suppose to be eliminated from the > system daily, not build up, which is good. The other plus, and it's a big > plus!!!, is that I have dropped his nightly Risperdal completely with NO side > affects as for anger/aggressiveness, non-compliance, etc. Sooooooooooo, > he's down to 1 mg of Risperdal in the morning and that's it. Now watch, > tomorrow morning I will wake up and the bubble will be burst!!! It's been an > enjoyable week......... > > Take care, Everyone. > Margaret > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 Ah, I see. Sent from my iPhone > Tape Rewind Syndrome! > > > > > > > > > TRS?? > > > > Sent from my iPhone > > > > > > > > > > > I was sooooo tongue in cheek but I got some private emails as well on > > SHDC. > > > Guess we can add that to TRS and SFD. Maybe we should start a dictionary > > of > > > our insider terms!!! > > > > > > > > > > > > > > > > > > > > > <<Another acronym coming up - SHDC - wonder how many of our kids have > > this > > > > one too???>> > > > > > > > > Hi, Everyone.... & Sara....LMAO.....Gareth had this, too!!! His > > > > autism and behavioral issues all went away as soon as he was dumped > > into a > > > > Life > > > > Skills class in the *school district from H#$$* Oh, them there magical > > > > doors, them there magical doors!!! Unfortunately, our district did > > waste > > > > over $70,000 fighting inclusion.....and lost....big time!!! After that > > > > fiasco, the head of Spec Ed, her side kick, and the IU 13 spec ed > > person > > > > all > > > > decided to find employment elsewhere. Even the superintendent didn't > > last > > > > long > > > > after that!!! > > > > Unfortunately, from what I hear from others still in the district, it's > > > > still pathetic for spec ed kids. > > > > > > > > I finally got the courage to start Gareth on that new med last Monday. > > I > > > > gave it to him in the morning (Monday) and he dozed on and off all day. > > So > > > > the next day (Tuesday), I gave it to him at bedtime. The med is > > > > Amantadine....used to prevent or lessen flu symptoms and used by > > Parkinson > > > > pts. > > > > Anyways....I don't want to be overly optimistic just yet, BUT....for > > the > > > > first > > > > time in two yrs or more, Gareth is *lucid* enough to answer questions, > > > > promptly responds to questions/conversations, initiates conversations > > > > (!!!), > > > > wanted a haircut (I took 6 " off !!!), and wants to run errands with me > > > > instead of vegging out in his hammock swing all day. The kid that I > > thought > > > > we > > > > had lost is coming back!!! The med is suppose to be eliminated from the > > > > system daily, not build up, which is good. The other plus, and it's a > > big > > > > plus!!!, is that I have dropped his nightly Risperdal completely with > > NO > > > > side > > > > affects as for anger/aggressiveness, non-compliance, etc. Sooooooooooo, > > > > he's down to 1 mg of Risperdal in the morning and that's it. Now watch, > > > > tomorrow morning I will wake up and the bubble will be burst!!! It's > > been > > > > an > > > > enjoyable week......... > > > > > > > > Take care, Everyone. > > > > Margaret > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 Oh, Margaret, this is the best possible news!! Prayers for continued improvement and happier days. Could you please tell us again which doc rx'd this med and how s/he came to recommend it for Gareth? (You've had so many twists and turns in the road with him, I confess I haven't been able to keep them all straight.) But it sounds like the spirit of House showed up for this last dr. visit!!! Big hugs, Beth > > I finally got the courage to start Gareth on that new med last Monday. I > gave it to him in the morning (Monday) and he dozed on and off all day. So > the next day (Tuesday), I gave it to him at bedtime. The med is > Amantadine....used to prevent or lessen flu symptoms and used by Parkinson pts. > Anyways....I don't want to be overly optimistic just yet, BUT....for the first > time in two yrs or more, Gareth is *lucid* enough to answer questions, > promptly responds to questions/conversations, initiates conversations (!!!), > wanted a haircut (I took 6 " off !!!), and wants to run errands with me > instead of vegging out in his hammock swing all day. The kid that I thought we > had lost is coming back!!! The med is suppose to be eliminated from the > system daily, not build up, which is good. The other plus, and it's a big > plus!!!, is that I have dropped his nightly Risperdal completely with NO side > affects as for anger/aggressiveness, non-compliance, etc. Sooooooooooo, > he's down to 1 mg of Risperdal in the morning and that's it. Now watch, > tomorrow morning I will wake up and the bubble will be burst!!! It's been an > enjoyable week......... > > Take care, Everyone. > Margaret > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 What state is this that spent $70 grand and lost? Sounds like Georgia. > > <<Another acronym coming up - SHDC - wonder how many of our kids have this > one too???>> > > Hi, Everyone.... & Sara....LMAO.....Gareth had this, too!!! His > autism and behavioral issues all went away as soon as he was dumped into a Life > Skills class in the *school district from H#$$* Oh, them there magical > doors, them there magical doors!!! Unfortunately, our district did waste > over $70,000 fighting inclusion.....and lost....big time!!! After that > fiasco, the head of Spec Ed, her side kick, and the IU 13 spec ed person all > decided to find employment elsewhere. Even the superintendent didn't last long > after that!!! > Unfortunately, from what I hear from others still in the district, it's > still pathetic for spec ed kids. > > I finally got the courage to start Gareth on that new med last Monday. I > gave it to him in the morning (Monday) and he dozed on and off all day. So > the next day (Tuesday), I gave it to him at bedtime. The med is > Amantadine....used to prevent or lessen flu symptoms and used by Parkinson pts. > Anyways....I don't want to be overly optimistic just yet, BUT....for the first > time in two yrs or more, Gareth is *lucid* enough to answer questions, > promptly responds to questions/conversations, initiates conversations (!!!), > wanted a haircut (I took 6 " off !!!), and wants to run errands with me > instead of vegging out in his hammock swing all day. The kid that I thought we > had lost is coming back!!! The med is suppose to be eliminated from the > system daily, not build up, which is good. The other plus, and it's a big > plus!!!, is that I have dropped his nightly Risperdal completely with NO side > affects as for anger/aggressiveness, non-compliance, etc. Sooooooooooo, > he's down to 1 mg of Risperdal in the morning and that's it. Now watch, > tomorrow morning I will wake up and the bubble will be burst!!! It's been an > enjoyable week......... > > Take care, Everyone. > Margaret > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 " I was sooooo tongue in cheek but I got some private emails as well on SHDC. Guess we can add that to TRS and SFD. Maybe we should start a dictionary of our insider terms!!! " Yes, yes, PLEASE!!!! TRS and SFD? I have forgotten these. And if I don't see it for a while, I have no idea what it means. Too much info in the brain to easily find memories. TMIITBTEFM. Ha! Joni, Nick's mom, 13, Nick is 13, not me Schuylerville, NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 Too funny. WEithhout a good laugh now an then we could be as crazy as some of the 'professionals' we have to deal with. Note from DH: Next time a school person says that as far as they are concerned, your child does not have ASD - despite what medical people say, burst into loud applause with cheers and request that you be allowed to watch how their system works so well that your child does not show ASD!! Tell them you would like to video their expert technique. And you would like permission to record and publish their protocol so that other experts can learn from them. > > > " I was sooooo tongue in cheek but I got some private emails as well on > SHDC. > Guess we can add that to TRS and SFD. Maybe we should start a dictionary of > our insider terms!!! " > > Yes, yes, PLEASE!!!! TRS and SFD? I have forgotten these. And if I > don't see it for a while, I have no idea what it means. Too much info > in the brain to easily find memories. TMIITBTEFM. Ha! > > Joni, Nick's mom, 13, Nick is 13, not me > Schuylerville, NY > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 I know SFD is Stop Flop Drop, but I have no idea what the others are. (But I am sure I can relate once explained) > > " I was sooooo tongue in cheek but I got some private emails as well on SHDC. > Guess we can add that to TRS and SFD. Maybe we should start a dictionary of > our insider terms!!! " > > > Yes, yes, PLEASE!!!! TRS and SFD? I have forgotten these. And if I > don't see it for a while, I have no idea what it means. Too much info > in the brain to easily find memories. TMIITBTEFM. Ha! > > Joni, Nick's mom, 13, Nick is 13, not me > Schuylerville, NY > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2011 Report Share Posted June 7, 2011 SFD you got TRS= Tape Rewind Syndrome (our olderkids who had VCR tapes would do this endlessly. SHDC_ SChool House Door CUre for those kids whose school systems insist that they do not have ASD. On Mon, Jun 6, 2011 at 11:48 PM, agirlnamedsuess21 < agirlnamedsuess@...> wrote: > > > I know SFD is Stop Flop Drop, but I have no idea what the others are. (But > I am sure I can relate once explained) > > > > > > > > " I was sooooo tongue in cheek but I got some private emails as well on > SHDC. > > Guess we can add that to TRS and SFD. Maybe we should start a dictionary > of > > our insider terms!!! " > > > > > > Yes, yes, PLEASE!!!! TRS and SFD? I have forgotten these. And if I > > don't see it for a while, I have no idea what it means. Too much info > > in the brain to easily find memories. TMIITBTEFM. Ha! > > > > Joni, Nick's mom, 13, Nick is 13, not me > > Schuylerville, NY > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2011 Report Share Posted June 7, 2011 Oh God. My 7 year-old does this. He plays the same movie, rewinds, rewatches, and rewinds again!!! That is an autistic trait? If it is a DVD, he goes back to the menu OVER and OVER and OVER again and replays the SAME scene OVER AND OVER again. > > > > > > " I was sooooo tongue in cheek but I got some private emails as well on > > SHDC. > > > Guess we can add that to TRS and SFD. Maybe we should start a dictionary > > of > > > our insider terms!!! " > > > > > > > > > Yes, yes, PLEASE!!!! TRS and SFD? I have forgotten these. And if I > > > don't see it for a while, I have no idea what it means. Too much info > > > in the brain to easily find memories. TMIITBTEFM. Ha! > > > > > > Joni, Nick's mom, 13, Nick is 13, not me > > > Schuylerville, NY > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2011 Report Share Posted June 7, 2011 Be glad it is a scene. ELie rewinds mere seconds of a sceam or a laugh or part of a word. On Tue, Jun 7, 2011 at 5:35 PM, agirlnamedsuess21 < agirlnamedsuess@...> wrote: > > > Oh God. My 7 year-old does this. He plays the same movie, rewinds, > rewatches, and rewinds again!!! > That is an autistic trait? > If it is a DVD, he goes back to the menu OVER and OVER and OVER again and > replays the SAME scene OVER AND OVER again. > > > > > > > > > > > > " I was sooooo tongue in cheek but I got some private emails as well > on > > > SHDC. > > > > Guess we can add that to TRS and SFD. Maybe we should start a > dictionary > > > of > > > > our insider terms!!! " > > > > > > > > > > > > Yes, yes, PLEASE!!!! TRS and SFD? I have forgotten these. And if I > > > > don't see it for a while, I have no idea what it means. Too much info > > > > in the brain to easily find memories. TMIITBTEFM. Ha! > > > > > > > > Joni, Nick's mom, 13, Nick is 13, not me > > > > Schuylerville, NY > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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