Respite-RC-Terry

[Guest guest]

,

Does that work out to about 17 hours per month per kid? Can you combine the

hours? In other words, do you have to pay the respite worker for each child

individually or can you get three for the price of one, so to speak? Are you

talking " in-home " respite? I am amazed at how each RC takes different

approaches to respite. I came from the North Los Angeles County Regional

Center area (a nightmare to be sure!) and now am in the Kern County RC area.

Kern County RC has it all over NLACRC, but from what I've seen in our small

town, most of the parents have a week or two out of home respite per year (if

they even know about it at all). I started out with 24 hours per month of

Nursing in-home respite when was little. It increased to 48 per

month and I changed it to " parent vendored " because a nurse (through an

agency) was too hard to come by. When was about 8 or 9 and his

behaviors started getting out of control, I had it increased to 6 hours per

day. (I am 's " parent " Service Coordinator.) When we moved here,

the Respite hours " rolled over " and continued through this RC. When I was

working at a Family Resource Center in Los Angeles County, I used to tell

parents that they are " entitled " to Respite, but they rarely wanted to fight

for it. Most of the time, they were afraid that they would lose whatever

services they already had if they made waves.

Terry

Mom to , 13 yrs.

[Guest guest]

We get our respite from Regional Center. 68 hurs a trimester per child. JJ

gets 10 extra a month.

& Garry, parents of (10 ds), (9 ds/g-tube), JJ (7

ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (3 ds). All adopted.

[Guest guest]

,

Thanks for your input! Tell me more about this out of the home respite!

This sounds very interesting to me!

Jeannie

Mom to Mark and

[Guest guest]

Our respite works like this. Regional Center contracts with ARC to do the

care and ARC provides me with a worker. I only have 2 people I will use.

and Debbie. Debbie is an aide and in the last 6 years has become very

close to our kids. was just appointed guerdian for the kids. So we do

have people we can trust. We culd get vendorized but understand we would be

rresponcible for paying tthe taxes, work comp and stuff.

Timmy has Medical Respite-requires a LVN. Haven't used it since June-no

nurses available. Garry told them to f--i last time-we no longer have

nursing! LOL

We can do single, double, triple or quad care. And the worker takes Tim for

what ever I feel like paying. If Debbie brings her 10yo I pay her for

helping Mom. All respite is " in-home " Families get 21 days out of home

respite--most families don't know about this. We convert it to RC paying

for camp for 12 days. We can take as may of those 68 hours a trimester and

use them as we may. Usually take about 48 hours and another 24 to get away.

Pay the differnece.

I do wish they could standardize things. It wuld be easier.

& Garry, parents of (10 ds), (9 ds/g-tube), JJ (7

ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (3 ds). All adopted.

[Guest guest]

I guess we have vendor respite. The state pays us up to $120 a month and will

let us pay a worker of our choice between $5.15 up to $10 an hour. The only

thing is we have to find the worker. They do all the rest, we send in a form

with the person's address, social security number and the hours and rate and

they file everything. It's just hard to find workers.

Loriann

Wife to Dewight

Mom to , 10 years, DS-ASD, ADHD, ODD, possibly to lose all but DS and gain

Celiac

And , 17 months and Strong Willed

[Guest guest]

In new jersey respite care is offered to families 20 to 30 hours a month. we

are trained through DDDand work out of an agency.once the client and worker meey

and feel comfortable with each otherthey set up times and datesas needed.the

worker turns in her own time sheet twice a month.

if there are extra kids they must have worker approvaland pay her themselves. i

have one girl with c p who only gets services in june july and august so they

get 40 hours a month.two girls in our agencydo hotel respite once a month. they

take between 2 to 6 kids from fri eve until sun eveto a local motel ,they eat

all meals out, go bowling to the shore ,mini golf , movies etc.this is in

addition to the regular respite hours.the clients love hotel respite and the

parents are delirious!! you would be amazed at how many people do not begin to

use their hours.my paychecks vary quite a bit every payand some times i will

call and tell them you know you have xxxx amount of hours left and it is late

in the month!! i am re quired to keep dates and what we did while i was with

them with tv being kept to a minimum. carole

Scherbert wrote: if there are extra kids

Our respite works like this. Regional Center contracts with ARC to do the

care and ARC provides me with a worker. I only have 2 people I will use.

and Debbie. Debbie is an aide and in the last 6 years has become very

close to our kids. was just appointed guerdian for the kids. So we do

have people we can trust. We culd get vendorized but understand we would be

rresponcible for paying tthe taxes, work comp and stuff.

Timmy has Medical Respite-requires a LVN. Haven't used it since June-no

nurses available. Garry told them to f--i last time-we no longer have

nursing! LOL

We can do single, double, triple or quad care. And the worker takes Tim for

what ever I feel like paying. If Debbie brings her 10yo I pay her for

helping Mom. All respite is " in-home " Families get 21 days out of home

respite--most families don't know about this. We convert it to RC paying

for camp for 12 days. We can take as may of those 68 hours a trimester and

use them as we may. Usually take about 48 hours and another 24 to get away.

Pay the differnece.

I do wish they could standardize things. It wuld be easier.

& Garry, parents of (10 ds), (9 ds/g-tube), JJ (7

ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (3 ds). All adopted.

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[Guest guest]

If we were offered a worker for our respite, we would use all our hours. We get

reimbursed $120 a month, and it was just raised from $100 a month. We only used

the full $100 once in the almost year that we've had it. That was last year the

month of December.

They ran out of workers here, that's why we get reimbursed. And especially

since we put back on gluten and he's out of control, it's hard to find

people who can watch him. Our regular " worker " is his Sunday school teachers

(husband and wife team). The wife just got back from a missions trip to Korea.

She was sick right before she went, had to have a couple of weeks to prepare for

the trip, was gone a couple weeks, and now I'm sure she'll need a couple weeks

to settle down. So we've been without respite, except when DH's parents were

here: we got one night out and they both were horrible for grandma and grandpa.

I just hope we can get respite in Illinois when we retire.

Loriann

Wife to Dewight

Mom to , 10 years, DS-ASD, ADHD, ODD, possibly to lose all but DS and gain

Celiac

And , 17 months and Strong Willed