Re: my 5yr old son w/ds@autism?

[Guest guest]

Donna, It is the same with he will bite when he gets excited, but

it is hard for his brothers to understand. Alek is 7, is 6, Logan

is 3, and Liam is 1. and of couse who is 5. All boys. My ppt is

tommarow!! I am excited and nervous at the same time. I am an aggressive

person when it comes to especially and our school system. We live

in a very small behind the times town in the northwest corner of CT. In

the stix so to speek. would be the only dual diagnosis ds/autism

in our town. In fact we only have maybe 5 children with just ds.So

implementing a program I think is going to be long and drawn out but I

am not afraid to take it thru due process!!!!~Did maddie ever throw

things, and how does she sleep?

[Guest guest]

,

The on -line test is available at http://www.autism.com/atec It is

basically a simple test for you to evaluate 's condition in four

main areas -- these are Speech/Language/Communication, Sociability,

Sensory/Cognitive

Awareness and Health/Physical/Behavior. All you have to do is to go

to the site and either file or print out a copy of the form -- this

will give you time to consider your replys and perhaps get an opinion

from other people if you like. You then return to the page and enter

you answers *live*, after this you enter the data for scoring at the

foot of the page. A computer at the site will then rapidly analyse

your asnwers an return you a *score* -- as it is your first time this

will be your *baseline* figure. From then on ANY type of treatment you

give your son whether it is diet,drugs or education can be judged

against this score and hopefully give a better result. The score

should fall as improvements are made.

ATEC have recently added a statistical analyses of the results found in

the many children that have already done this simple test. These

results will give you an idea as to where is on an ABSOLUTE

scale in comparison with other children. You simply have to click in the

fourth paragraph of the page.

You could also go to Joan's Disability Solutions site at

www.disabilitysolutions.org and read

Volume 3, Issue 5 & 6 September/October 1999 - as well as Joan's own very

piognant and useful article this issue also contains an excellent one by

Dr T. Capone. the Doctor at KKI titled (Down Syndrome and

Autistic Spectrum Disorder : A Look at What We Know)

This gives all the main guide lines in what to look for in the DS/ASD

condition.

.

[Guest guest]

still likes to bite on occasion, it comes and goes in spurts, the

oral vibrators and cold chewy rings etc for SI help greatly, there are times

he will even ask for his " chewy " . So one knows he doesnt do it out of

meaness, but iive gooten really upset as my 8yr old does to when we've been

bitten, it hurts! but is quickly forgotten at least and back to playing as

usual around the house. shawna.

>From: duffey48@...

>Reply-To: egroups

>To: egroups

>Subject: Re: my 5yr old son w/ds@autism?

>Date: Tue, 16 Jan 2001 20:13:50 EST

>

>In a message dated 1/16/01 6:43:12 PM Eastern Standard Time,

>doug.smith@... writes:

>

><< Dear Donna,

> Tahnk you for getting so personal with me about maddie. I feel we have

> much in common. bailey also is non verbal, not using the potty, and just

> today I went to see him at school and he didn't even realize I was

> there. That hurts!! once he see's me and is prompted he will come over

> and hug me. He is biting people at random and is biting himslef. This

> worries me. He likes to play alone and does not initiate play with other

> children. How does maddie do with her siblings? bailey also has 4. But

> they initiate with him, sometimes we have to deal with overstimulation

> though. Its hard for his brothers to understand. They are all so close

> in age though, hopefully they will also be his bigest advocates.. write

> soon >>

>

>,

> Maddie's latest reports from her ST and OT say... " Maddie prefers to be

>alone " . UGH!!! That hurts too. She also never initiates play with other

>children, but does much better with her siblings. We've come a real long

>way

>with that though , and probably with time, will too. Honestly,

>it wasn't too long ago, that I had to chase the other kids away so I could

>calm Maddie down (which would take anywhere from 2 to 4 hours). Maddie has

>a

>sister just one year older, but the others are spaced further. Joe is 19,

> is 17, n is 15, Allie is 8 and Maddie is 7. The span has

>served

>us well, because the older ones just have a better understanding.

>Typically, the kids initiate with Maddie. But then, they never leave her

>alone. She's like a brand new baby they can't keep their hands off of.

>Sometimes, I do have to say... " guys, CHILL....give her some space " . They

>have gotten really good though, since they are older and more mature, at

>knowing how to approach her to get her to interact. Lately, since doing

>the

>ABA, she is doing a lot of initiating, and THAT is so cool to watch!!!!!

>, we're in a MUCH better place than we were two years ago, and a place

>so

>far removed from four years ago (thank God). I know it'll be the same for

>you.

>Donna

>P.S. We went through a biting stage with Maddie, and it ripped my heart

>out. Alison would be hugging and hugging her, and Maddie would just bite

>into her shoulder. Oh, how it broke my heart to see Allie's face!!!!!! I

>still can feel that anguish!!! Maddie's biting was solely related to a

>sensory/excited issue. She never did it out of anger. We did TONS of

>oral/mouth massages with our fingers as well as with vibrators and she

>stopped shortly thereafter.

>

> http://www.onelist.com/community/

>

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[Guest guest]

what kind of things do you want tought at this time, are you leaning towards

academics or activities of daily living? How old is trish again? sorry, i

forgot. While we lived away from home the schooling was a nitemare so we

homeschooled for a good 2years before we moved back home (many hundreds of

kids homeschooled here) anyways during that time we worked on ADL's greatly

and what they call school/academic readiness skills. mastered

showering, brushing teeth, hygeine, dressing, and many household chores too,

him and little brother help out weekly! Hanging clothes on hanger has posed

to be a trouble spot but he is eager to help me, if not in his shell, and

the readiness skills, i will have to look again to name them all, but they

were things such as alphabet recog, number recog, reciting, name recog,

cutting, coloring, glueing, nathan still has trouble cutting, and just

scribbles for coloring but that is considered passing at a level, the line

thing will come maybe, he cant write yet either, but can type with his index

fingers. sorry so long, some things i could go on for ever,lol, I would

deffinately see about getting an advocate they help greatly!!! They know the

laws etc and make sure your school does what they are suppose to, if they

cant then they have to help pay for your child to attend an appropriate

school.shawna

>From: Csvillars@...

>Reply-To: egroups

>To: egroups

>Subject: Re: my 5yr old son w/ds@autism?

>Date: Tue, 16 Jan 2001 20:09:34 EST

>

>unfortuneatly our schools are a little behind the times when it comes to

>special ed, although the school will disagree with my opinion of course.

>:-)

> I have been asking for an aid for Trisha for years now only to be told

>they

>didn't think it was necessary and that was before the wandering started.

>Her

>first 3 years of school was nothing but a farce. They babysitted her more

>than anything, she wasn't given the basic skills needed to function and not

>only that we discovered her teacher was yelling and shaking the kids and

>trisha was absolutely terrified of her. The teacher left teaching that

>same

>year. We have been struggling for years with the school system and as I

>learn more and more it seems that want to fight even harder. That is why I

>want to make sure when we go into this IEP meeting I am fully prepared. If

>anyone has any examples that might help me from their own IEP's please let

>me

>know.

>

>I will continue to advocate for Trisha as long as it takes, she is more

>than

>worth the effort. She has so much to give if they would only see beyond

>the

>DS.

>

>Carol

>

>

>

[Guest guest]

that's great, give them a call! ours is two hours away, in des moines. but

htey still help. shawna.

>From: Csvillars@...

>Reply-To: egroups

>To: egroups

>Subject: Re: my 5yr old son w/ds@autism?

>Date: Tue, 16 Jan 2001 19:59:15 EST

>

>We don't have a child advocacy group close by, but there is one forming and

>her pediatrician just gave me the name and number to call.

>

>

>

[Guest guest]

In a message dated 1/18/01 1:47:51 PM Eastern Standard Time,

mashawnag@... writes:

<< sounds fun! I love tea! Have a raincheck with MIL for tea etc, will have

to

tkae her up on that, sounds deliciouly rejuvinating,lol, shawna.

>>

It was a! LOL Wish I were back there now. Seth has been sick since 4

AM and I stink from being barfed on and am exhausted! LOL I think we are

all in the same boat with the eating problems. Can't help you there!

Gail

[Guest guest]

I don't know if I can send pictures through the list but I wanted to share a

picture of my son and daughter. had it made and surprised me with

it. I am so proud of them both!!!![unable to display image] </HTML>

[Guest guest]

guess I can't :-)

[Guest guest]

In a message dated 1/18/01 11:14:49 PM Eastern Standard Time,

Csvillars@... writes:

<< I don't know if I can send pictures through the list but I wanted to share

a

picture of my son and daughter. had it made and surprised me with

it. I am so proud of them both!!!![unable to display image] >>

Carole,

Can you put it in files?

Gail

[Guest guest]

In a message dated 1/18/01 11:28:57 PM Eastern Standard Time,

Csvillars@... writes:

<< guess I can't :-) >>

Carol, do you need help?

[Guest guest]

,

First of all I don't know what a ppt is? I know what an IEPis so if

you have any questions about it please feel free to ask- I've had IEP for 18

years- so pretty much all thought public schooling. For your son that's 5

the close that I can get to your son's age is that I used to babysitt a 3

year old that's autism.

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