Guest guest Posted May 21, 2011 Report Share Posted May 21, 2011 I am so glad Gareth did well & the procedure was quick & uneventful! Take gentle care of selves! Hugs from Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 Margaret, Zeb is graduating this year but I am not accepting his diploma. The district does have a responsibility to provide education until age 21. Charlyne Subject: Tracey/Charlyne To: Date: Thursday, May 26, 2011, 7:23 PM Â <<Anyone have any experience with their child having sinus surgery? >> Hi, Everyone.....Tracey.....Gareth just had 2 sinus surgeries done over the past month. The first one took almost 2 hrs and the second one, two weeks later, only took 1/2 hr. The first time, the ENT found several large polyps, super thick mucous, and bacterial colonies that had encrusted themselves. The ENT said it's the reason Gareth was always perforating his left eardrum. G's ENT did the procedure a newer way and there was no *packing* that we had to deal with. Make sure you find an ENT that doesn't do the packing....that is so painful when they yank that out after a week. Gareth had to have nasal saline sprayed up his nose every hour for the first week.......that didn't go over too well but he's gotten use to it. The doc wants it done several times a day.........forever!!! Gareth has immune deficiencies and can't fight bacterial infections. I would STRONGLY urge anyone who has a sickly kid to find an Immunologist and have them tested for immune deficiencies. <<My nasty district has decided that their nasty board attorney will be attending Zeb's IEP meeting. I had no alternative but to hire an attorney that I can lest afford. I am trying to best prepare for this adversarial meeting.>> Charlyen....I thought Zed was graduating this year and you were finished. What's another IEP for? Take care, Everyone. Margaret Mom to Gareth, 23 y/o, DS/ASD/OCD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 Char: Are you saying they are literally " kicking him out " ?? Well, I don't think so. Aren't they REQUIRED by IDEA to provide education until age 21? Liz > > > Margaret, > Zeb is graduating this year but I am not accepting his diploma. The > district does have a responsibility to provide education until age 21. > Charlyne > > > > > Subject: Tracey/Charlyne > To: > Date: Thursday, May 26, 2011, 7:23 PM > > > > <<Anyone have any experience with their child having sinus surgery? >> > > Hi, Everyone.....Tracey.....Gareth just had 2 sinus surgeries done over the > > > past month. The first one took almost 2 hrs and the second one, two weeks > > later, only took 1/2 hr. The first time, the ENT found several large > > polyps, super thick mucous, and bacterial colonies that had encrusted > > themselves. The ENT said it's the reason Gareth was always perforating his > left > > eardrum. G's ENT did the procedure a newer way and there was no *packing* > > that we had to deal with. Make sure you find an ENT that doesn't do the > > packing....that is so painful when they yank that out after a week. Gareth > had > > to have nasal saline sprayed up his nose every hour for the first > > week.......that didn't go over too well but he's gotten use to it. The doc > wants it > > done several times a day.........forever!!! Gareth has immune > > deficiencies and can't fight bacterial infections. I would STRONGLY urge > anyone who > > has a sickly kid to find an Immunologist and have them tested for immune > > deficiencies. > > <<My nasty district has decided that their nasty board attorney will be > > attending Zeb's IEP meeting. I had no alternative but to hire an attorney > > that I can lest afford. I am trying to best prepare for this > > adversarial meeting.>> > > Charlyen....I thought Zed was graduating this year and you were finished. > > What's another IEP for? > > Take care, Everyone. > > Margaret > > Mom to Gareth, 23 y/o, DS/ASD/OCD > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 Margaret, I was certainly thinking about it sometime ago but was advised not to. I can't comment on list. Call or email me privately. Charlyne Subject: Charlyne/licking objects To: Date: Thursday, May 26, 2011, 7:48 PM Â <<The district does have a responsibility to provide education until age 21.>> Hi, Everyone...Charlyne....I know this but I thought you said a while back that you were going to opt out of that....that you were finished fighting the district. Is Zed going through vocational training or some other program? PICA....is also licking and eating non-food items. Maddie and Seth both have this, if I'm not mistaken. Take care, Everyone. Margaret Mom to Gareth, 23 y/o, DS/ASD/OCD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2011 Report Share Posted June 28, 2011 Hi Margaret, I am repeating what the university director told me yesterday. I am certain that they will go to DC with him many times before he is independent. He most likely will not be the only student traveling. What employers did Gareth intern with and what career choices was he interested in pursueing? Charlyne Subject: Bobbie Jo/Charlyne/Liz/Cyndi To: Date: Tuesday, June 28, 2011, 7:34 PM Â <<A very low dose .125ml in am and then again in pm for the first week. Then it will be upped to .25ml for morning and night>> Hi, Everyone....Bobbie Jo....I am wondering why Risperdal at such a young age? Does he already have extreme behavioral issues and head banging, etc? Like Sara said, I'd start with one dosage for a few days before adding the second dosage per day. Also, I would recommend that you start at bedtime, not the morning. It will, initially, make tired. As for wt gain......Gareth put on 20 #'s the first two months, and then, leveled off. <<They expect Zeb to be fully able to independently get to classes and work by the spring. He will take the train to Washington D.C. I am still trying to learn more. Last minute notice during my work season is complicating my life. I am not certain if the Penn State program is the same>> Charlyne.....the town home and campus classes, etc, sound like the PSU program only their students are not allowed to wonder around without a mentor. There would be no way a spec ed kid could take a train or bus anywhere without a mentor with them. Liz.......glad to hear Ms Tori is doing so well. Pretty soon, she'll be off and running again!!! Cyndi.....please, continue to keep us posted on and your daughter. Fibroadenomas are common Prayers still coming your way. Take care, Everyone. Margaret Mom to Gareth, 23 y/o, with DS/ASD/OCD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2011 Report Share Posted June 29, 2011 I am so impressed with these older students that have a career path. It is making me take more seriously Isaac's desire to teach sign language to students who need it. Isaac is quite the caregiver and he is very good at it. When he sees other kids with disabilities who are not verbal he always tries to teach them a few signs - whether they want to learn or not! But this could be channeled into something productive maybe? We always assume Tony will work in a library where it is nice and quiet and where he can organize books (a hobby of his). As a midesterner, Washington DC always sounds so big! Kuddos to you Charlyne for having the courage to send Zeb along. Margaret, what is the full name of the program Gareth went through. I would like to google it. Lori Mom to Isaac 14 and Tony 12 > ** > > > Hi Margaret, > I am repeating what the university director told me yesterday. I am certain > that they will go to DC with him many times before he is independent. He > most likely will not be the only student traveling. What employers did > Gareth intern with and what career choices was he interested in pursueing? > Charlyne > > > > > Subject: Bobbie Jo/Charlyne/Liz/Cyndi > To: > Date: Tuesday, June 28, 2011, 7:34 PM > > > > <<A very low dose .125ml in am and then again in pm for the first week. > > Then it will be upped to .25ml for morning and night>> > > Hi, Everyone....Bobbie Jo....I am wondering why Risperdal at such a young > > age? Does he already have extreme behavioral issues and head banging, etc? > > Like Sara said, I'd start with one dosage for a few days before adding > > the second dosage per day. Also, I would recommend that you start at > > bedtime, not the morning. It will, initially, make tired. As for wt > > gain......Gareth put on 20 #'s the first two months, and then, leveled off. > > <<They expect Zeb to be fully able to independently get to classes and > > work by the spring. He will take the train to Washington D.C. I am still > > trying to learn more. Last minute notice during my work season is > > complicating my life. I am not certain if the Penn State program is the > > same>> > > Charlyne.....the town home and campus classes, etc, sound like the PSU > > program only their students are not allowed to wonder around without a > mentor. > > There would be no way a spec ed kid could take a train or bus anywhere > > without a mentor with them. > > Liz.......glad to hear Ms Tori is doing so well. Pretty soon, she'll be > > off and running again!!! > > Cyndi.....please, continue to keep us posted on and your daughter. > > Fibroadenomas are common Prayers still coming your way. > > Take care, Everyone. > > Margaret > > Mom to Gareth, 23 y/o, with DS/ASD/OCD > > Quote Link to comment Share on other sites More sharing options...
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