Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 Hi, Everyone........I am glad to hear that you got some much awaited help. I hope the ABA helps your son. Keep us posted on how he does. Cyndi....I am really sorry to hear about . Geeeeeesssshhhh....between him, Tori, , Ashton, and Gareth, I wonder who's got the most unique problems!!! I sure hope they figure out what's wrong this time. Prayers coming your way....again!!! Take care, Everyone. Margaret Mom to Gareth, 23 y/o, with DS/ASD/OCD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2011 Report Share Posted May 25, 2011 I will I already spoke to the supervisor she said they will start working with simple things like tooth brushing and other things he dislikes to do. > > Hi, Everyone........I am glad to hear that you got some much awaited > help. I hope the ABA helps your son. Keep us posted on how he does. > > Cyndi....I am really sorry to hear about . Geeeeeesssshhhh....between > him, Tori, , Ashton, and Gareth, I wonder who's got the most unique > problems!!! I sure hope they figure out what's wrong this time. Prayers > coming your way....again!!! > > Take care, Everyone. > Margaret > Mom to Gareth, 23 y/o, with DS/ASD/OCD > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 Margaret, started some of this on Risperidone, but when we changed meds it went away. This year he did this on Abilify, risperidone and worst on the saphris. They think cannot tolerate these meds and are totally switching him to Depakote. The meds used to treat dystonia which they believe has caused to go crazy. Benedryl, valium, and cogentin all are used to reverse the symptoms of dystonia. We have ruled out seizures, heart problems, and now I am bringing in a pulmonologist to look at his throat closing. Appearantly the EMG test for dystonia is not conclusive but they are going to do a genetic test for dystonia. is an experiment to all his doctors. His heart Dr. said he had never seen anything like what is doing. I have asked about Lou Gerrig's, muscler dystrophy,etc. > > Hi, Everyone........I am glad to hear that you got some much awaited > help. I hope the ABA helps your son. Keep us posted on how he does. > > Cyndi....I am really sorry to hear about . Geeeeeesssshhhh....between > him, Tori, , Ashton, and Gareth, I wonder who's got the most unique > problems!!! I sure hope they figure out what's wrong this time. Prayers > coming your way....again!!! > > Take care, Everyone. > Margaret > Mom to Gareth, 23 y/o, with DS/ASD/OCD > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 Cyndi: I could not open the video...but have you thought about sending it to Dr.Capone?? *Liz* Let me win, but if I cannot win, let me be brave in the attempt. - Special Olympics Motto-RIP Eunice Kennedy Shriver “When we long for life without difficulties, remind us that oaks grow strong in contrary winds and diamonds are made under pressure.-Author Unknown " Knowing trees, I understand the meaning of patience. Knowing grass, I can understand persistence. " - Hal Borland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 Liz, Thanks I just sent it yesterday to Dr. Capone but I have not heard anything. Try this link:http://youtu.be/DsYsy1zGlJ8 Cyndi B > > Cyndi: I could not open the video...but have you thought about sending it > to Dr.Capone?? > > > *Liz* > > Let me win, but if I cannot win, let me be brave in the attempt. - Special > Olympics Motto-RIP Eunice Kennedy Shriver > > " When we long for life without difficulties, remind us that oaks grow strong > in contrary winds and diamonds are made under pressure.-Author Unknown > > " Knowing trees, I understand the meaning of patience. Knowing grass, I can > understand persistence. " - Hal Borland > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 Liz, I know Cyndi is not on line as often as I am so I will just answer that she did send it to Capone and to her DAN doctor for their thoughts. When I spoke with her this afternoon she had not heard from Dr. Capone yet. Holly Re: Re: /Cyndi Cyndi: I could not open the video...but have you thought about sending it to Dr.Capone?? *Liz* Let me win, but if I cannot win, let me be brave in the attempt. - Special Olympics Motto-RIP Eunice Kennedy Shriver " When we long for life without difficulties, remind us that oaks grow strong in contrary winds and diamonds are made under pressure.-Author Unknown " Knowing trees, I understand the meaning of patience. Knowing grass, I can understand persistence. " - Hal Borland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 Oh, Cyndi! It is almost like his muscles are retracting...I hope you guys can get an answer quickly... Liz On Thu, May 26, 2011 at 8:22 PM, cynthiamiltonburns < cynthiamiltonburns@...> wrote: > > > Liz, Thanks I just sent it yesterday to Dr. Capone but I have not heard > anything. Try this link:http://youtu.be/DsYsy1zGlJ8 > Cyndi B > > > > > Cyndi: I could not open the video...but have you thought about sending it > > to Dr.Capone?? > > > > > > *Liz* > > > > Let me win, but if I cannot win, let me be brave in the attempt. - > Special > > Olympics Motto-RIP Eunice Kennedy Shriver > > > > " When we long for life without difficulties, remind us that oaks grow > strong > > in contrary winds and diamonds are made under pressure.-Author Unknown > > > > " Knowing trees, I understand the meaning of patience. Knowing grass, I > can > > understand persistence. " - Hal Borland > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 Liz, thanks me to. It is hard to watch. My heart is breaking. Cyndi > > > > > > Cyndi: I could not open the video...but have you thought about sending it > > > to Dr.Capone?? > > > > > > > > > *Liz* > > > > > > Let me win, but if I cannot win, let me be brave in the attempt. - > > Special > > > Olympics Motto-RIP Eunice Kennedy Shriver > > > > > > " When we long for life without difficulties, remind us that oaks grow > > strong > > > in contrary winds and diamonds are made under pressure.-Author Unknown > > > > > > " Knowing trees, I understand the meaning of patience. Knowing grass, I > > can > > > understand persistence. " - Hal Borland > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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