Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Hi Irene, Just caught your note on Beth's post. Wow what an ordeal. Glad you finally got some answers. Andy and I were in CO the week after Easter giving some support to my sister whose husband has Alzheimer's. Then came home and Andy had an awful cough dealt with that plus other things. A call to Andy's sister in FL found her husband was hospitalized and then to a nursing facility as he has dementia. Dr Chicoine recently had an article on DS and Alz on Facebook. A thought in the back of my mind off and on as I see at Glenkirk where lives a few individuals with DS who have Alz. Then was home this weekend and we had a choking incident again but all is OK there. Thinking of your Mom, you and and will try and catch your next post on more results and treatment for . Louise Mom to 48 > > Dear friends, > Thank you all very much for your advice and support. came out of the > hospital yesterday. He went through quite an ordeal, and we along with him. He > wound up having 2 colonoscopies because the nurse told us half the bottle of > go-lightly (the gook they give you to drink the night before) would be enough. > We were tempted not to put him through it a second time, but are glad we did. > They found out has a prolapsed rectum, in addition to hemmorhoids, which > explains the heavy bleeding. He also had a small polyp which they removed and > sent for biopsy. He also got an EKG for the first time in his life and an > echocardiogram. We had to fight to get the echo. My mother was convinced they > were neglecting because of his disability. After we had asked for it > several times over the course of 3 days, they came in the room to do an echo on > the other patient who was admitted after . At that point, my mother > flipped out and the technician agreed to do it. > > > When we got to the hospital, would not come out so we had to wait until > the Ativan kicked in. I took Lori's advice and went in myself to register him > and explain the situation. We got him out of the car, by using the beach chair > we carry around, which is somewhat of a security blanket for . He > refused to go into the wheelchair they brought so they had to come out with a > gurney and lift him into it. Luckily, we avoided having to wait in the er > waiting room which was a zoo. > > > Margaret, I remembered you when this happened. If didn't cause such a > commotion, we would have been stuck waiting to get into the er for several > hours. At the end of his stay, we had the same problem. Though he kept asking > to go home, again he was afraid to walk through the hall to leave. Security had > to lift him into the wheelchair to get him out. > > Lori, your advice on explaining the situation to helped me in preparing > him. He understood why we were putting him through this. After the first > colonoscopy, when he came out of anesthesia, he said " hemmorhoids. " He also > said, " doctor said, " which was his way of asking " what did the doctor say? " > and he seemed okay with our explanation. I didn't have time to look up " social > stories " but I will do so now. > > Charlyne, my mother and I stayed with him the whole time. I agree with you on > the fact that you can't leave our kids or the elderly alone in a hospital. In > addition to lack of staff, they make so many mistakes. At one point, one of the > nurses was briefing the other when they were changing shifts and told her that > had seizures. I overheard it and informed them this was not true. She > said that the er had written this in his chart. Another nurse was giving him > water to drink which was prohibited before the colonoscopy. > > This experience convinced me to get a smartphone. I was not able to use email > for 4 days and missed advice which would have been very helpful. > > , they gave the go-lightly and he became extremely sick before the > second colonoscopy. He was up all night in pain and nauseous. They had to give > him intravenous medication for cramps and vomiting. I will keep your suggestion > of the Miralax mix in mind when he gets his next colonoscopy in 5 years. > > Debby, we never even thought to ask for a private room. It would have made a > big difference and there were empty beds, so we may have gotten it. He had no > problem drinking the horrible potion. Maybe if he had, they would have given > him the Miralax mix, which wouldn't have made him so sick. > > Thank you all very much. I appreciate it. > > Irene > sister to Quote Link to comment Share on other sites More sharing options...
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