Re: ocd resources?

[Guest guest]

Sara, My sons DAN doc Mumper believes that OCD is due to Strep

infections. I am giving you a link to info on PANDAS Info.

PANDAS TEST (STREP INFECTION)

CAN CAUSE ) OCD BEHAVIORS,TICS, ETC

http://www.adhd.com.au/PANDAS.htm

PANDAS info

stethescope_boy The PANDAS Resource Network is committed to providing you with

the information and tools you need to help you . We have treated with

Rochephine shots and elimanted many of the OCD tics. used to pick at his

clothes when he spilled something like water on his clothes. He no longer does

this. I hope this is helpful information. Cyndi Burns

>

> Hi all- sorry I can't seem to search well the past messages/archive for any

good resources (books, websites) for the following:

>

> My daughter Josie is 5 now with Down syndrome, asd, and is now (or has been

but I didn't identify as such) starting to display some ocd symptoms (control

with bowels, some compulsionary behaviors like can't stop hitting or pushing at

times).

>

> Can you recommend your favorite books or websites to go to? There are so many

and I'm a lil overwelmed-thought I'd ask the experts!

>

> Thanks in advance,

>

>

> Mom to Josie 5, Down Syndrome, Autism Spectrum Disorder, OCD?

> Zivia, 1

>

[Guest guest]

Sara, I forgot to add the other link. Sorry.

PANDAS info

stethescope_boy The PANDAS Resource Network is committed to providing you with

the information and tools you need to help you recognize and diagnose PANDAS.

http://www.pandasresourcenetwork.com/

You may remember last year a girl that could not stop sneezing on Good Morning

America from England I believe. The Doctors discovered she had PANDAS (strep)

and started treating her as such and she improved dramatically. I Hope you get

resolution. Cyndi

> >

> > Hi all- sorry I can't seem to search well the past messages/archive for any

good resources (books, websites) for the following:

> >

> > My daughter Josie is 5 now with Down syndrome, asd, and is now (or has been

but I didn't identify as such) starting to display some ocd symptoms (control

with bowels, some compulsionary behaviors like can't stop hitting or pushing at

times).

> >

> > Can you recommend your favorite books or websites to go to? There are so

many and I'm a lil overwelmed-thought I'd ask the experts!

> >

> > Thanks in advance,

> >

> >

> > Mom to Josie 5, Down Syndrome, Autism Spectrum Disorder, OCD?

> > Zivia, 1

> >

>

[Guest guest]

I can't think of any books specifically, but these seem like fairly basic

behaviors for our kids. For example, our son Darwyn (age 6 DS ASD) will

sometimes poop to make a statement. If he has a substitute at school he won't

have a bowel movement until he comes home (and he's usually a morning guy). Or

if I go away for 2 days, he'll poop when I get home (often in the bath or in his

pull-up- which he rarely does anymore). Or even funnier, he has one babysitter

and we joke that if he's ever constipated, we can call her to come over and the

situation will resolve itself.

As for the pushing/hitting, is it an issue of being overstimulated? Does it

happen after or during a particular activity or time of day? When Darwyn is

tired or overwhelmed he'll hit us and if he gets a reaction, he'll do it again.

He always starts hitting us after a week of school vacation because he's mad

that he's not in school. Also he will push kids out of the way sometimes, but

not maliciously, just like they are being moved aside so he can get where he's

going. Is there any possibility she played a pushing/tag game at preschool and

can't differentiate when to push? I know some parents can't allow their kids to

ever wrestle or watch wrestling because they can't understand when to stop.

Just some ideas, and if you have more details about the when and where of

hitting/pushing some others on the list might have some ideas too. Immediate

distraction and ignoring works best for us.

,

Mom to (age 10 NT) and Darwyn ( age 6 DS ASD and a few heart

surgeries), Canada

Sent on the TELUS Mobility network with BlackBerry

ocd resources?

Hi all- sorry I can't seem to search well the past messages/archive for any good

resources (books, websites) for the following:

My daughter Josie is 5 now with Down syndrome, asd, and is now (or has been but

I didn't identify as such) starting to display some ocd symptoms (control with

bowels, some compulsionary behaviors like can't stop hitting or pushing at

times).

Can you recommend your favorite books or websites to go to? There are so many

and I'm a lil overwelmed-thought I'd ask the experts!

Thanks in advance,

Mom to Josie 5, Down Syndrome, Autism Spectrum Disorder, OCD?

Zivia, 1

------------------------------------

--------------------------------------------------

Checkout our homepage for information, bookmarks, and photos of our

kids. Share favorite bookmarks, ideas, and other information by including them.

Don't forget, messages are a permanent record of the archives for our list.

http://groups.yahoo.com/group/

--------------------------------------------

[Guest guest]

Hi ,

I don't think anyone has the ability to control bowels. Hitting and pushing can

be an issue that needs to addressed with a behavior plan but I would not

characterize what you described as ocd behaviors. OCD behaviors are compulsive

and structured. They are behaviors that interfere with life as in lining up

toys, the need to put the light on three times when entering a certain room etc.

If you break that line and interrupt the structured behavior meltdowns occur.

Just a few examples to clarify true ocd behaviors. I hope this helps.

Charlyne

Subject: Re: ocd resources?

To:

Date: Wednesday, May 4, 2011, 2:01 PM

Â

Sara, My sons DAN doc Mumper believes that OCD is due to Strep

infections. I am giving you a link to info on PANDAS Info.

PANDAS TEST (STREP INFECTION)

CAN CAUSE ) OCD BEHAVIORS,TICS, ETC

http://www.adhd.com.au/PANDAS.htm

PANDAS info

stethescope_boy The PANDAS Resource Network is committed to providing you with

the information and tools you need to help you . We have treated with

Rochephine shots and elimanted many of the OCD tics. used to pick at his

clothes when he spilled something like water on his clothes. He no longer does

this. I hope this is helpful information. Cyndi Burns

>

> Hi all- sorry I can't seem to search well the past messages/archive for any

good resources (books, websites) for the following:

>

> My daughter Josie is 5 now with Down syndrome, asd, and is now (or has been

but I didn't identify as such) starting to display some ocd symptoms (control

with bowels, some compulsionary behaviors like can't stop hitting or pushing at

times).

>

> Can you recommend your favorite books or websites to go to? There are so many

and I'm a lil overwelmed-thought I'd ask the experts!

>

> Thanks in advance,

>

>

> Mom to Josie 5, Down Syndrome, Autism Spectrum Disorder, OCD?

> Zivia, 1

>

[Guest guest]

Hi ,

I just noticed you have a 1 year old child too. Many of us on the list have kids

who struggle with the unpredictability of babies. I find that Darwyn is okay

with older kids, but babies (especially crying babies) overwhelm him. Is there

any chance that the hitting happens when her sister is or has been crying? For

years Darwyn would get upset when other kids cried or when video characters

cried or even during the refrain for Wheels on the Bus when the babies cried (we

had to sing it over and over and he would laugh, but also be bothered by it).

Then he started standing beside kids who cried waiting for them to stop (this is

very sweet), but often he felt compelled to throw something after that (not so

sweet).

Sorry for the longwindedness, but I'm still thinking there are probably triggers

for your daughter's hitting. Its not easy to figure those out sometimes, but

If you can find a trigger event, that can make changing the behavior so much

easier.

,

Mom to (age 10 NT) and Darwyn ( age 6 DS ASD and a few heart surgeries)

, Canada

Sent on the TELUS Mobility network with BlackBerry

ocd resources?

Hi all- sorry I can't seem to search well the past messages/archive for any good

resources (books, websites) for the following:

My daughter Josie is 5 now with Down syndrome, asd, and is now (or has been but

I didn't identify as such) starting to display some ocd symptoms (control with

bowels, some compulsionary behaviors like can't stop hitting or pushing at

times).

Can you recommend your favorite books or websites to go to? There are so many

and I'm a lil overwelmed-thought I'd ask the experts!

Thanks in advance,

Mom to Josie 5, Down Syndrome, Autism Spectrum Disorder, OCD?

Zivia, 1

------------------------------------

--------------------------------------------------

Checkout our homepage for information, bookmarks, and photos of our

kids. Share favorite bookmarks, ideas, and other information by including them.

Don't forget, messages are a permanent record of the archives for our list.

http://groups.yahoo.com/group/

--------------------------------------------

[Guest guest]

Thank you all so much! Josie has many negative behaviors in response to the 1

year old- thank you for discussing the discomfort with crying- I also see that

in Josie. The stuff that made me and my very homeopathicly-minded doc think of

OCD were some of the issues with toileting (things have to be a certain way

there) and also with some of the random things that have to be repeated a

certain way-

nothing seems 100% OCD but then again, Josie isn't 100% on the spectrum, nor is

she 100% Down syndrome compared to her peers with DS-

To help her and us all better cope, I'm on the lookout for some good books on

behavioral therapy and thought you might share some favs-

I appreciate all your input and taking the time to reply (my time is short at

the moment) and am grateful for this list!

- B.

>

> Hi ,

> I just noticed you have a 1 year old child too. Many of us on the list have

kids who struggle with the unpredictability of babies. I find that Darwyn is

okay with older kids, but babies (especially crying babies) overwhelm him. Is

there any chance that the hitting happens when her sister is or has been crying?

For years Darwyn would get upset when other kids cried or when video characters

cried or even during the refrain for Wheels on the Bus when the babies cried (we

had to sing it over and over and he would laugh, but also be bothered by it).

Then he started standing beside kids who cried waiting for them to stop (this is

very sweet), but often he felt compelled to throw something after that (not so

sweet).

> Sorry for the longwindedness, but I'm still thinking there are probably

triggers for your daughter's hitting. Its not easy to figure those out

sometimes, but

> If you can find a trigger event, that can make changing the behavior so much

easier.

> ,

> Mom to (age 10 NT) and Darwyn ( age 6 DS ASD and a few heart surgeries)

> , Canada

> Sent on the TELUS Mobility network with BlackBerry

>

> ocd resources?

>

> Hi all- sorry I can't seem to search well the past messages/archive for any

good resources (books, websites) for the following:

>

> My daughter Josie is 5 now with Down syndrome, asd, and is now (or has been

but I didn't identify as such) starting to display some ocd symptoms (control

with bowels, some compulsionary behaviors like can't stop hitting or pushing at

times).

>

> Can you recommend your favorite books or websites to go to? There are so many

and I'm a lil overwelmed-thought I'd ask the experts!

>

> Thanks in advance,

>

>

> Mom to Josie 5, Down Syndrome, Autism Spectrum Disorder, OCD?

> Zivia, 1

>

>

>

>

>

> ------------------------------------

>

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and photos of

our kids. Share favorite bookmarks, ideas, and other information by including

them. Don't forget, messages are a permanent record of the archives for our

list. http://groups.yahoo.com/group/

> --------------------------------------------