Re: Re: Angry phase of my RA - for Mike2

[Guest guest]

your welcome it helps all of us to talk about it with people who do understand.

i am very careful at work to try to stay away from people who are sick. i to are

on alot of immuosupressants . last year i had to stop taking my enbrel for 2

weeks so i could get over it. my work seems to be about the only thing that

makes me feel useful. and for the mans perspective can you imangine the feeling

i get when i have to ask my wife to open one of those bottles of pop... it's a

real bummer.. thanks for listening . if i can help by listening . don't be

afriad to write. always love to help anybody if i can............ your friend

mike

tracierae143 <tracierae143@...> wrote:Mike,

Thanks for giving me a man's perspective with the disease. It was

very enlightening and I appreciate it. It must be extremely

difficult for you as the " man of the house " to not be able to fix

the things as easily as you used to. I am amazed that you are still

working, don't be afraid to throw in the towel on that when the time

comes. The best thing that I did for my disease besides finding

this group was give up my job. Fighting for disability was scary,

but I did win in the end and being able to rest when I need to which

is often is priceless and I think and hope it will lengthen my life

with this disease. I am on so many of those immunosuppressants

right now that being exposed to people through a job I feel would be

dangerous. I am amazed that you are still at it, truly amazed. My

hubby actually went out this weekend and washed the windows outside

on a stepladder without anybody asking or anything. It was the

nicest gift. I love stuff like that. Somebody noticing the bird

doo on the window besides myself, especially where I do spend a lot

of time in the house. Well, thanks again for writing and take care

of yourself. I totally got the part about explaining that you were

not really angry at your wife just at her lack of understanding of

your frustration level, but telling her is a great idea. I am

trying to do more of that, just letting them know when I am upset

that I cannot do something I always did. One time, I had to ask my

hubby to write out the checks for the bills cause my thumb had

locked up which it does occasionally and I could not even manage

that simple task. I felt useless that day. Like I don't contribute

anything at all, but I know that is not true. I am here for the

family emotionally and I have a wonderful sense of humour which

lightens the mood in the house most days. Again, thanks for writing

and good luck.

Tracie

> Hi everyone,

>

> I know I have not posted in awhile, but I do read as often as I

> can. I have reached the I am really angry stage of my disease. I

> assume this is a normal transition now that I have been diagnosed

> officially with RA for a year or am I a freak? It has finally

sunk

> in that I am disabled probably for the rest of my life as every

> doctor I see agrees with the disability decision. I am angry

> because my hubby is unhappy with his job, but he can do something

> about that, like look for another one. Yes, it could take a year

or

> more for him to find something he likes, but I don't get to switch

> diseases or reapply for a different one because I don't like this

> one. I get really angry lately about the whole mess. I am sick

of

> running to doctors, sick of meds, sick of not being able to do the

> things I want. This last doctor at this pain clinic told me I

would

> not be able to walk for exercise as it would be much to hard on my

> joints, etc., etc., like I did not know that already since I have

> trouble walking through the grocery store and I have handicap

plates

> just so I can go in and out of the grocery store. Also, I am

still

> going around and around about my pain management. I now have my

> rheumy on my side who agrees that I need long-term chronic pain

> medication, but he has to have approval because of my insurance

from

> my primary care physician who " does not believe in that " . Excuse

me

> for not falling into the normal range of your patients. I would

> love to switch places with him someday. I am sure my rheumy will

> get it all straightened out as he has vowed to, but I cannot

believe

> I am still fighting to just have a semi decent quality of life.

You

> know where you get up and get dressed and maybe walk around the

> house a little and talk to your kids. I am just disgusted with

the

> whole thing and very ANGRY as I seem to keep saying. I cannot

hold

> all of this anger in because I am going to scream if I don't let

it

> out, but I just want to know if this is normal. The doctor said

> something about going through the stages of grief and that is what

I

> was doing???? Because I have lost my way of life, my job and you

> know what I miss the most - DANCING, yep, DANCING. My feet are

> horrid though. Well, thanks for letting me vent and any thoughts

> would be greatly appreciated. I cannot imagine I am the first

> person to get angry, but you never know.

>

> Angry in Maine

>

> Tracie

>

>

>

>

>

>

[Guest guest]

your welcome it helps all of us to talk about it with people who do understand.

i am very careful at work to try to stay away from people who are sick. i to are

on alot of immuosupressants . last year i had to stop taking my enbrel for 2

weeks so i could get over it. my work seems to be about the only thing that

makes me feel useful. and for the mans perspective can you imangine the feeling

i get when i have to ask my wife to open one of those bottles of pop... it's a

real bummer.. thanks for listening . if i can help by listening . don't be

afriad to write. always love to help anybody if i can............ your friend

mike

tracierae143 <tracierae143@...> wrote:Mike,

Thanks for giving me a man's perspective with the disease. It was

very enlightening and I appreciate it. It must be extremely

difficult for you as the " man of the house " to not be able to fix

the things as easily as you used to. I am amazed that you are still

working, don't be afraid to throw in the towel on that when the time

comes. The best thing that I did for my disease besides finding

this group was give up my job. Fighting for disability was scary,

but I did win in the end and being able to rest when I need to which

is often is priceless and I think and hope it will lengthen my life

with this disease. I am on so many of those immunosuppressants

right now that being exposed to people through a job I feel would be

dangerous. I am amazed that you are still at it, truly amazed. My

hubby actually went out this weekend and washed the windows outside

on a stepladder without anybody asking or anything. It was the

nicest gift. I love stuff like that. Somebody noticing the bird

doo on the window besides myself, especially where I do spend a lot

of time in the house. Well, thanks again for writing and take care

of yourself. I totally got the part about explaining that you were

not really angry at your wife just at her lack of understanding of

your frustration level, but telling her is a great idea. I am

trying to do more of that, just letting them know when I am upset

that I cannot do something I always did. One time, I had to ask my

hubby to write out the checks for the bills cause my thumb had

locked up which it does occasionally and I could not even manage

that simple task. I felt useless that day. Like I don't contribute

anything at all, but I know that is not true. I am here for the

family emotionally and I have a wonderful sense of humour which

lightens the mood in the house most days. Again, thanks for writing

and good luck.

Tracie

> Hi everyone,

>

> I know I have not posted in awhile, but I do read as often as I

> can. I have reached the I am really angry stage of my disease. I

> assume this is a normal transition now that I have been diagnosed

> officially with RA for a year or am I a freak? It has finally

sunk

> in that I am disabled probably for the rest of my life as every

> doctor I see agrees with the disability decision. I am angry

> because my hubby is unhappy with his job, but he can do something

> about that, like look for another one. Yes, it could take a year

or

> more for him to find something he likes, but I don't get to switch

> diseases or reapply for a different one because I don't like this

> one. I get really angry lately about the whole mess. I am sick

of

> running to doctors, sick of meds, sick of not being able to do the

> things I want. This last doctor at this pain clinic told me I

would

> not be able to walk for exercise as it would be much to hard on my

> joints, etc., etc., like I did not know that already since I have

> trouble walking through the grocery store and I have handicap

plates

> just so I can go in and out of the grocery store. Also, I am

still

> going around and around about my pain management. I now have my

> rheumy on my side who agrees that I need long-term chronic pain

> medication, but he has to have approval because of my insurance

from

> my primary care physician who " does not believe in that " . Excuse

me

> for not falling into the normal range of your patients. I would

> love to switch places with him someday. I am sure my rheumy will

> get it all straightened out as he has vowed to, but I cannot

believe

> I am still fighting to just have a semi decent quality of life.

You

> know where you get up and get dressed and maybe walk around the

> house a little and talk to your kids. I am just disgusted with

the

> whole thing and very ANGRY as I seem to keep saying. I cannot

hold

> all of this anger in because I am going to scream if I don't let

it

> out, but I just want to know if this is normal. The doctor said

> something about going through the stages of grief and that is what

I

> was doing???? Because I have lost my way of life, my job and you

> know what I miss the most - DANCING, yep, DANCING. My feet are

> horrid though. Well, thanks for letting me vent and any thoughts

> would be greatly appreciated. I cannot imagine I am the first

> person to get angry, but you never know.

>

> Angry in Maine

>

> Tracie

>

>

>

>

>

>