Guest guest Posted May 26, 2011 Report Share Posted May 26, 2011 How are your plans with moving Zeb to college for next year? On Thu, May 26, 2011 at 2:42 PM, Desi McKenzie wrote: > > > Charlyne, > > As you MUST know by now...you are my champion, my mentor, my hero! You are > my > inspiration! While I am taking the baby steps, you are taking the GIANT > STEPS > that will pave the way for many, many to come! > > Remember this in those adversarial meetings-YOUR SON HAS THE RIGHT TO BE > TREATED > AS AN EQUAL in every, single, sense of the word and don't you ever feel > guilty > about expecting it! > > In Hawai'i, we use the word " pono " which means " to do what is right " ---if > only I > could make you understand the POWER in that word that transcends > translation! > You are doing what is PONO!!!!!!!!!!!!!!!!!!!! > > And for some good news for a change, I am off to Aubrey's first hula > performance > with her halau, albeit on the last day of school. Small, " hula " steps... > > I MUA!!! (CHARGE ON! FORWARD!!!) > Desi > " Doing the POSSIBLE so that GOD can do the IMPOSSIBLE! " > > ________________________________ > > To: > Sent: Wed, May 25, 2011 6:30:48 PM > Subject: RE: /Learning Expectations > > , thank you for the compliment. I really needed to hear words of > encouragement today. My nasty district has decided that their nasty board > attorney will be attending Zeb's IEP meeting. I had no alternative but to > hire > an attorney that I can lest afford. I am trying to best prepare for this > adversarial meeting. I could have avoided conflict if I had agreed to a > segregated rather than an inclusive environment with real academic goals in > > those early years. I made a conscious decision to pioneer inclusion and see > this > through, however, it's been the most difficult 13 years of my life. 21 days > and > counting!!! > > Charlyne > > > > > Subject: Learning Expectations > To: " " < > > Date: Tuesday, May 24, 2011, 9:11 PM > > Good Evening Everyone, > > 's re-evaluation/IEP meeting is coming up, plus an augmentative > communication reeval. The case manager (who is a child psychologist) > interviewed > me today for input for the Vineland diagnostic test, one of the many pieces > of > the puzzle that we will discuss at these upcoming meetings. > > I walked away from today's interview feeling very sad- I was actually not > expecting to be at all, considering 's progress, albeit very gradual, > but > he is making his strides. > > He still does not know his letters, numbers- just starting to show > recognition > of A/B and 1/2 through ABA programming, but not really motivated. > > . He will be 8 yrs. old on 8/25 and I thought he would have recognized more > of > letters and #s by now. > > I wonder if I have realistic expectations......is it just more time that is > > needed or is it possibly 's reality he will not be able to learn even > basic > academics? If this is ultimately the case, I would be OK- I just wonder if > there > is anything else we could be doing or is it just patience? > > was a very late walker (5 yrs.), limited fine motor skills- he is > just > scribbling over this past year, loves music/water, beginning to " socialize " > with > others by looking at them, waving, and is adorably stubborn and can be > extremely > difficult to motivate. > > If there is anyone out there who is or has been in a similar situation, I > would > love to hear from you. > > Thank you for reading and " listening " . > > Best, > > > > Mom to , 7 .5 yrs. old, DS/PDD-NOS > > Colon Cancer Survivor- 21 months and counting! > > Quote Link to comment Share on other sites More sharing options...
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