Re: Re: Upset and to all with school age children

[Guest guest]

Hi all,

My heart is with you all as you deal with all the issues at school. The

responses are supportive and as we see no matter what age there is always

that special person in our son or daughter's life that does make a

difference. Hopefully more than one person.

Even with our son there are things that happen that we have to work

with the staff. An example is is hearing impaired with a moderate to

severe loss in the right ear and severe to profound in the left. He wears

two behind the ear hearing aids. The earmolds have to have the hole at the

end free of ear wax or he can't hear a thing. So many times when he comes

home or I see him where he lives he will indicate to me he needs a new

battery. When I check he not only needs a new battery but the earmolds are

plugged. On my To Do list is to make a video of how to care for the hearing

aids and trouble shooting if they don't work.

You will off and on find some people just don't get it how to react and help

our loved ones. Then we go to the next in line and make our point, if not

successful we keep going till we get whatever it is in place or settled. We

are very fortunate to have a wonderful team working with . There have

been times something happened and his Home Director was just as concerned as

we were. 's Behavior Specialist is also great and we all discuss and

think things through before putting something in place, i.e. a change in

medications. Even with all of this we have to deal with what happens as it

arises. Then there are the times we have to pick our battles. Example of

this is we have pretty much quit mentioning about shaving. If we see he

hasn't shaved or been shaved like we would like we know the majority of the

times he is shaved. Some things we have to decide just aren't that

important at the moment.

Each age group has its own challenges that we will meet one at a time and

move on and enjoy the wonderful times.

Hugs to you all on this journey.

Louise Mom to 48

>

> >

> >

> > Hi,

> >

> > got home from school today with dried ketchup all over his face.

The

> > bus driver even commented on it. I called his teacher, she said " oh, the

> > ketchup that we tried to wipe off his face? " . I answered that it came

off

> > easily with a diaper wipe. She said " we don't have any " , but when I said

> > that I'd just sent in a big pack of wipes last week, she said " oh, they

> > weren't where we were working " . What about taking him to the bathroom to

> > wash his face? I mean, it was crusted on thick, he looked awful. How

could

> > they send him home like that???

> >

> > Ugh. Of course, I worry, if they're not wiping his face, what else

aren't

> > they doing??? This isn't the first time this'd happened, but this is the

> > worst it's been. It's not often.

> >

> > But it shouldn't happen, right?

> >

> > Am I being petty??

> >

> >