Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 Vicki! We took Tori (when she was 4 y.o.) to (she is now 11) and he knows his stuff!!! Just bring all your notes with you..and any and all questions you have for him! Liz > > > I will be traveling to Baltimore next week for an appointment with Dr. > Capone and the doctors there. Has anyone been and what should I expect. > Thanks, > Vicki & 14 DS/Autism > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2011 Report Share Posted March 22, 2011 We love Capone take questions, notes, meds list ,etc. He is very knowledgable. When I first heard him speak I cried because I knew he was talking about my son. I was relieved someone finally understood. Good luck Zahn mtzahn@... > Vicki! We took Tori (when she was 4 y.o.) to (she is now 11) and he > knows his stuff!!! Just bring all your notes with you..and any and all > questions you have for him! > > Liz > > > >> >> >> I will be traveling to Baltimore next week for an appointment with Dr. >> Capone and the doctors there. Has anyone been and what should I expect. >> Thanks, >> Vicki & 14 DS/Autism >> >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 Well, he didn't tell us anything we didn't already know, but it was great to finally talk to a doctor that understood Kayla. And it was reassuring to go to THE MAN to confirm Kayla's autism diagnosis (the local developmental pediatrician we saw just looked at her for 5 minutes and asked about 5 questions and said " yep, she has autism " - I kind of wanted a more thorough evaluation than that!). Ecki Mom to Kayla (DownSyndrome/Autism, 4/5/04) and Laurie (PDD-NOS, 7/12/01) http://oppositekids.blogspot.com/ _____ From: [mailto: ] On Behalf Of snickerr Sent: Tuesday, March 22, 2011 9:42 PM To: Subject: Visit to Dr. Capone I will be traveling to Baltimore next week for an appointment with Dr. Capone and the doctors there. Has anyone been and what should I expect. Thanks, Vicki & 14 DS/Autism No virus found in this incoming message. Checked by AVG - www.avg.com Version: 9.0.894 / Virus Database: 271.1.1/3520 - Release Date: 03/21/11 15:35:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2011 Report Share Posted March 23, 2011 I have not met him in a " clinical " setting, but we saw him at conference...and he saw Angie. I have been studying his research for years before we met him and it was all of those papers we printed and took to assessments that people finally believed our daughter has Down syndrome and Autism. Even though our meeting was brief, he was so kind. We did actually have an appt and were going to pay out of pocket and fly from CA to see him, but we have not done it yet. Update us after the appt! Good luck! 8 ds-asd > > I will be traveling to Baltimore next week for an appointment with Dr. Capone and the doctors there. Has anyone been and what should I expect. > Thanks, > Vicki & 14 DS/Autism > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2011 Report Share Posted March 26, 2011 HI Vicki - You have probably already been there! how did it go? We went 13 years ago with Andy, which led to the articles in " Disability Solutions. " The clinic has gone through a lot of changes since we were there, so I'm not a lot of help. I can tell you that some folks have had trouble with the initial intake piece - the info gathering with the nurse. They probably have kids like Andy. Any info you can provide to the team ahead of time that will make the visit good for your child is always a help. That is, within reason. Maybe ask for some photos to do social story prep with yoru daughter? is a kind man. He may use language that is a little intricate. Do not be worried about asking for an explanation. He knows he's surrounded by people who use words the rest of us don't hear too often, but he forgets, human being that he is. Also, don't hesitate to ask for any information about things that you need. OR to take time to make any therapeutic decisions. The more data you can bring in the better the visit. In fact, if you can send it ahead, that helps too. It helps them to see what you're dealing with. I'd write down what your questions are and the target issues you have when sending it in. Although all this is true for any visit to a specialist, I am presuming this is also for an " autism eval " ? keeping some information on behaviors and such before hand not only helps Dr. Capone, but it helps you later as well. You will be able to see what has changed for the better (or not) with the different interventions. Writing it down means you can evaluate later rather than in the moment. And, if you're anything like me, you don't think about evaluating things unless there are problems, so it's a good thing to take a break before thinking it through. Last, ask him how you can get in touch with him if you have questions or concerns. He'll tell you what he prefers. I hope it went well, or that it goes well! Take care, Joan (Guthrie Medlen) Mom of Andy, 22, who has autism, Ds, celiac disease, and one word. > > I will be traveling to Baltimore next week for an appointment with Dr. Capone and the doctors there. Has anyone been and what should I expect. > Thanks, > Vicki & 14 DS/Autism > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2011 Report Share Posted March 26, 2011 You know, all those years ago, that visit was the best thing I did for ME and for Andy over the years. Why? the validation that I was not losing my mind, the validation that Andy can, of course, learn, and the validation (at that time) that he could make a choice! We were about to go to due process over something as stupid as whether or not this kid could make a choice. Sheesh. Joan > > Well, he didn't tell us anything we didn't already know, but it was great to > finally talk to a doctor that understood Kayla. And it was reassuring to go > to THE MAN to confirm Kayla's autism diagnosis (the local developmental > pediatrician we saw just looked at her for 5 minutes and asked about 5 > questions and said " yep, she has autism " - I kind of wanted a more thorough > evaluation than that!). > > > > Ecki > Mom to Kayla (DownSyndrome/Autism, 4/5/04) and Laurie (PDD-NOS, 7/12/01) > http://oppositekids.blogspot.com/ > > _____ > > From: [mailto: ] On Behalf > Of snickerr > Sent: Tuesday, March 22, 2011 9:42 PM > To: > Subject: Visit to Dr. Capone > > > > > > I will be traveling to Baltimore next week for an appointment with Dr. > Capone and the doctors there. Has anyone been and what should I expect. > Thanks, > Vicki & 14 DS/Autism > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 9.0.894 / Virus Database: 271.1.1/3520 - Release Date: 03/21/11 > 15:35:00 > > > > > Quote Link to comment Share on other sites More sharing options...
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