Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 Hi Marla, Welcome! I am Terry, Mom to , 13 yrs (almost 14) with Down Syndrome and autism. (also Mom to , , Sara and Garrett (mostly grown and gone with kids of their own and wife to , my dh who really is a super guy!). I remember how happy I was to find this group....everybody has been very supportive and I have gotten a lot of really good information since I joined a couple of months ago. Enjoy! Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 In a message dated 1/8/01 7:12:30 PM Eastern Standard Time, MBeerb9414@... writes: << Hello, My name is Marla mother to who is 18 annd has Down Syndrome and Autism. I am also mother to Trey who is 10 and wife to Harold. I am so happy to find this group. I have never met anyone with a child with the same diagnosis as . I am open to any advice that all of you woderful parents can share with me. Marla >> Hello and welcome Marla. Love your name! I've been here almost one year and have more questions now than I did then. LOL One thing for sure, just when you think you have something figured out, along comes another point of view that makes you open your mind a little further. In the short time I have been here, I have learned that there is no *one way*, not even two of our kids are alike, and there are more treatments and ways of teaching than there are kids! LOL Nice to have you here Marla and I look forward to hearing more about you and your family. :-) Gail, Mom to; Seth-4 DS/ASD/PDD/PICA, jo-8, Becky-10, -23, Jen-25, Grandma to Errick-4 and wife to -my hero Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 Hey Leah, Why for the new e-mail address? When I was scanning the posts, I almost didn't recognize you! Terry Mom to , 13 yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 marla, i extend a warm and hearty welcome to you and your family........ please feel free to join in and share with us..... leah-mom to ashton 9ds-pdd and cameron 5-just hellbent on election to make me gray before my 29th birthday.....hyheehhe >From: MBeerb9414@... >Reply-To: egroups >To: egroups >Subject: New to Group >Date: Tue, 09 Jan 2001 00:03:54 -0000 > >Hello, >My name is Marla mother to who is 18 annd has Down Syndrome and >Autism. I am also mother to Trey who is 10 and wife to Harold. I am so >happy to find this group. I have never met anyone with a child with the >same diagnosis as . I am open to any advice that all of you woderful >parents can share with me. > > > >Marla > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 In a message dated 1/8/01 7:12:43 PM Eastern Standard Time, MBeerb9414@... writes: << Hello, My name is Marla mother to who is 18 annd has Down Syndrome and Autism. I am also mother to Trey who is 10 and wife to Harold. I am so happy to find this group. I have never met anyone with a child with the same diagnosis as . I am open to any advice that all of you woderful parents can share with me. Marla >> Hi Marla, I am Donna, Mom to Madison (7, DS and autism). I'm also mom to 4 others and wife to Joe. We live in Philadelphia. Where do you live? I am glad you found us too. Although, since you have an 18 year old, I suspect that we'll be the ones asking you questions..... Welcome!! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 hey terry, my dh hooked up dsl for me so we can all be connected and i no longer need to pay aol.....dsl is sooooooo much FASTER!!! we are all networked so the kids can use my printer and stuff from their rooms and keeps them OUT OF MY OFFICE!!!!!!!!thats why i am no longer on aol....hehehe >From: Imaddenmom@... >Reply-To: egroups >To: egroups >Subject: Re: New to Group >Date: Tue, 9 Jan 2001 00:30:20 EST > >Hey Leah, >Why for the new e-mail address? When I was scanning the posts, I almost >didn't recognize you! >Terry >Mom to , 13 yrs. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 Leah.... dsl? Sounds great! What is it? Sorry to be so " net " illiterate... anything that will keep everybody else (including my dh LOL) away from my stuff is my kind of connection! LOL Terry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 In a message dated 1/10/01 4:08:02 PM Eastern Standard Time, okieleah@... writes: << hey terry, my dh hooked up dsl for me so we can all be connected and i no longer need to pay aol.....dsl is sooooooo much FASTER!!! we are all networked so the kids can use my printer and stuff from their rooms and keeps them OUT OF MY OFFICE!!!!!!!!thats why i am no longer on aol....hehehe >> We just got dsl through AOL. DH has yet to figure it out and hook it up. We're almost there. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2001 Report Share Posted January 11, 2001 Hi Marla, Welcome to the group. I hope that you learn, learn from some people's personal life, and just have a good time in this group. Your son is almost as old as me. I'm 19, and I'm in McKinney, Texas- near Dallas and Arlington. I'm a college student majoring in early childhood education. I know someone with Down Syndrome and she might be in middle school I'm not sure. I can give her parent's e-mail to you if you want to. I've been babysitting Autistic children for almost 2 years now, and I've been babysitting for 6 years. I think I might have some questions for you about . Trey is a cool name, it's already on my baby list. Sincerely, > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 My name is and my 6.5 year old daughter, Maddie, has DS and was also diagnosed with autism last spring. We live in Washington State. Maddie receives speech, PT, and some OT at school as well as vision therapy. We also see a PT and speech therapist through our insurance, but our benefits are limited so we do not see an OT at this time. A big challenge is communication. Although in one sense she is very verbal as she knows lots of words and chatters constantly, she rarely communicates information to us. She communicates on an extremely limited basis. This does not seem to frustrate her and she does not seem motivated to communicate more. She is frequently in her own little world and is largely nonresponsive to most people most of the time. She was also an extremely delayed walker, she did not take her first step until she was almost 5. There was never really an explanation for the delay, other than low tone, although we now wonder if there was a sensory component. She now walks indpendently and continues to improve in strength and stability. She is also a clicker, flapper, and chews incessantly on her finger. We really don't have any strategies to reduce or eliminate those behaviors. This is my first time on a listserve and I am trying to figure out how to read everything. Hopefully I haven't made any faux pas on my first post, please excuse if I did! Looking forward to learning more about others' experiences. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Welcome to ur listserve. NAncy. THere is another Maddie on this lsit - and maybe even some people from Washington state. My son has a shirt which reads " I am in my own little world where everyone know me. " Seems to be fairly typical for our kids. Do you observe what the therapists are doing or receive notebook feedback? I would request this. Then YOU can supplement and help Maddie with her therapies as part of normal life. When my son was pre school age he only got therapy of any kind once every 6 weeks. In between I was supposed to be the primary teacher/therapy. Elie is 25 yo, dx at age 10ish. HE currently lives in his own home which he shares with his caregiver. He volunteers his time in the community. Sara, mom to 6, Elie being the youngest. North Georgia Mountains. > > > My name is and my 6.5 year old daughter, Maddie, has DS and was also > diagnosed with autism last spring. We live in Washington State. Maddie > receives speech, PT, and some OT at school as well as vision therapy. We > also see a PT and speech therapist through our insurance, but our benefits > are limited so we do not see an OT at this time. > > A big challenge is communication. Although in one sense she is very verbal > as she knows lots of words and chatters constantly, she rarely communicates > information to us. She communicates on an extremely limited basis. This does > not seem to frustrate her and she does not seem motivated to communicate > more. She is frequently in her own little world and is largely nonresponsive > to most people most of the time. > > She was also an extremely delayed walker, she did not take her first step > until she was almost 5. There was never really an explanation for the delay, > other than low tone, although we now wonder if there was a sensory > component. She now walks indpendently and continues to improve in strength > and stability. > > She is also a clicker, flapper, and chews incessantly on her finger. We > really don't have any strategies to reduce or eliminate those behaviors. > > This is my first time on a listserve and I am trying to figure out how to > read everything. Hopefully I haven't made any faux pas on my first post, > please excuse if I did! > > Looking forward to learning more about others' experiences. > > > -- Sara- different pathways lead to Nirvana. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 my daughter has the same shirt. I love it. I also have one for her that says, I don't play well with others. So true!! In a message dated 1/25/2011 3:51:18 P.M. Mountain Standard Time, pastmidvale@... writes: Welcome to ur listserve. NAncy. THere is another Maddie on this lsit - and maybe even some people from Washington state. My son has a shirt which reads " I am in my own little world where everyone know me. " Seems to be fairly typical for our kids. Do you observe what the therapists are doing or receive notebook feedback? I would request this. Then YOU can supplement and help Maddie with her therapies as part of normal life. When my son was pre school age he only got therapy of any kind once every 6 weeks. In between I was supposed to be the primary teacher/therapy. Elie is 25 yo, dx at age 10ish. HE currently lives in his own home which he shares with his caregiver. He volunteers his time in the community. Sara, mom to 6, Elie being the youngest. North Georgia Mountains. On Tue, Jan 25, 2011 at 4:33 PM, popsop24 wrote: > > > My name is and my 6.5 year old daughter, Maddie, has DS and was also > diagnosed with autism last spring. We live in Washington State. Maddie > receives speech, PT, and some OT at school as well as vision therapy. We > also see a PT and speech therapist through our insurance, but our benefits > are limited so we do not see an OT at this time. > > A big challenge is communication. Although in one sense she is very verbal > as she knows lots of words and chatters constantly, she rarely communicates > information to us. She communicates on an extremely limited basis. This does > not seem to frustrate her and she does not seem motivated to communicate > more. She is frequently in her own little world and is largely nonresponsive > to most people most of the time. > > She was also an extremely delayed walker, she did not take her first step > until she was almost 5. There was never really an explanation for the delay, > other than low tone, although we now wonder if there was a sensory > component. She now walks indpendently and continues to improve in strength > and stability. > > She is also a clicker, flapper, and chews incessantly on her finger. We > really don't have any strategies to reduce or eliminate those behaviors. > > This is my first time on a listserve and I am trying to figure out how to > read everything. Hopefully I haven't made any faux pas on my first post, > please excuse if I did! > > Looking forward to learning more about others' experiences. > > > -- Sara- different pathways lead to Nirvana. [Non-text portions of this message have been removed] ------------------------------------ -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. http://groups.yahoo.com/group/ --------------------------------------------Yahoo! Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Haha, my daughter has one that says, " I dance to my own beat. " I had to get it for her even though it was too big at the time, I saved it until she grew into it. > > > > > > > My name is and my 6.5 year old daughter, Maddie, has DS and was > also > > diagnosed with autism last spring. We live in Washington State. Maddie > > receives speech, PT, and some OT at school as well as vision therapy. We > > also see a PT and speech therapist through our insurance, but our > benefits > > are limited so we do not see an OT at this time. > > > > A big challenge is communication. Although in one sense she is very > verbal > > as she knows lots of words and chatters constantly, she rarely > communicates > > information to us. She communicates on an extremely limited basis. This > does > > not seem to frustrate her and she does not seem motivated to communicate > > more. She is frequently in her own little world and is largely > nonresponsive > > to most people most of the time. > > > > She was also an extremely delayed walker, she did not take her first > step > > until she was almost 5. There was never really an explanation for the > delay, > > other than low tone, although we now wonder if there was a sensory > > component. She now walks indpendently and continues to improve in > strength > > and stability. > > > > She is also a clicker, flapper, and chews incessantly on her finger. We > > really don't have any strategies to reduce or eliminate those behaviors. > > > > This is my first time on a listserve and I am trying to figure out how to > > read everything. Hopefully I haven't made any faux pas on my first post, > > please excuse if I did! > > > > Looking forward to learning more about others' experiences. > > > > > > > > > > -- > Sara- different pathways lead to Nirvana. > > > [Non-text portions of this message have been removed] > > > > ------------------------------------ > > -------------------------------------------------- > Checkout our homepage for information, bookmarks, and photos > of our kids. Share favorite bookmarks, ideas, and other information by > including them. Don't forget, messages are a permanent record of the archives > for our list. http://groups.yahoo.com/group/ > --------------------------------------------Yahoo! Groups Links > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Hi Sara, Haha, I want one of those shirts for my daughter! Yes, my husband or I sit in on every therapy session, and we do try to incorporate therapist suggestions as much as we can. That is one thing I like about our private therapists, they are good at suggesting ways to incorporate what they are working on at home. Howver, I frequently feel like I should or could be doing more, that is a source of anxiety for me! > > > > > > > My name is and my 6.5 year old daughter, Maddie, has DS and was also > > diagnosed with autism last spring. We live in Washington State. Maddie > > receives speech, PT, and some OT at school as well as vision therapy. We > > also see a PT and speech therapist through our insurance, but our benefits > > are limited so we do not see an OT at this time. > > > > A big challenge is communication. Although in one sense she is very verbal > > as she knows lots of words and chatters constantly, she rarely communicates > > information to us. She communicates on an extremely limited basis. This does > > not seem to frustrate her and she does not seem motivated to communicate > > more. She is frequently in her own little world and is largely nonresponsive > > to most people most of the time. > > > > She was also an extremely delayed walker, she did not take her first step > > until she was almost 5. There was never really an explanation for the delay, > > other than low tone, although we now wonder if there was a sensory > > component. She now walks indpendently and continues to improve in strength > > and stability. > > > > She is also a clicker, flapper, and chews incessantly on her finger. We > > really don't have any strategies to reduce or eliminate those behaviors. > > > > This is my first time on a listserve and I am trying to figure out how to > > read everything. Hopefully I haven't made any faux pas on my first post, > > please excuse if I did! > > > > Looking forward to learning more about others' experiences. > > > > > > > > > > -- > Sara- different pathways lead to Nirvana. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Hello , I also live in Washington state in Manson on Lake Chelan. Where are you? I have 4 kids, , 15 has DS and other problems but has not been dx with autism. I'd love to talk more and get to know you and Maddie. > > > > > > > My name is and my 6.5 year old daughter, Maddie, has DS and was also > > diagnosed with autism last spring. We live in Washington State. Maddie > > receives speech, PT, and some OT at school as well as vision therapy. We > > also see a PT and speech therapist through our insurance, but our benefits > > are limited so we do not see an OT at this time. > > > > A big challenge is communication. Although in one sense she is very verbal > > as she knows lots of words and chatters constantly, she rarely communicates > > information to us. She communicates on an extremely limited basis. This does > > not seem to frustrate her and she does not seem motivated to communicate > > more. She is frequently in her own little world and is largely nonresponsive > > to most people most of the time. > > > > She was also an extremely delayed walker, she did not take her first step > > until she was almost 5. There was never really an explanation for the delay, > > other than low tone, although we now wonder if there was a sensory > > component. She now walks indpendently and continues to improve in strength > > and stability. > > > > She is also a clicker, flapper, and chews incessantly on her finger. We > > really don't have any strategies to reduce or eliminate those behaviors. > > > > This is my first time on a listserve and I am trying to figure out how to > > read everything. Hopefully I haven't made any faux pas on my first post, > > please excuse if I did! > > > > Looking forward to learning more about others' experiences. > > > > > > > > > > -- > Sara- different pathways lead to Nirvana. > > > Quote Link to comment Share on other sites More sharing options...
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