Woody dolls and other quirks

[Guest guest]

Isaac, Tony and I went to visit a friend from the DS teen group who is in

the hospital with pneumonia. He had a Woody doll! And a snake, the kind

you can flap! His Dad was like, " oh yeah, we have those in reserve for when

these wear out! " And I've noticed the other kids in this youth group with

the same quirks (pushing the alarm bell in the elevator, saying " yee " when

over-stimulated, not being willing to participate unless mom or dad is

present). These " typical " kids with DS are so much like mine but mine are

just one step farther on the continuum. I'm just wondering if during the

teenage years the difference between our dually diagnosed kids and other

kids with DS is diminished. It is true that my boys are a bit " more " than

these other kids but all the same behaviors.

And then in the car on the way home I was explaining to the boys (again) why

this kid has two moms and two dads and Tony decided that he now has two of

all of his imaginary friends. Great, just what we needed, two Betsys, two

Steves, two Charkies.

You have to admit, our lives can be hilarious.

Lori

Mom to Isaac 14 and Tony 12

[Guest guest]

Elie still has his favorite bears (as he calls them - even if they are

clowns, hoppos or somsething else) - evenone he shares with the dog when he

is home - she gets it the rest of the time. BUT now that he is an adult, he

can and does mostly willingly leave themin the car when we go out. And

mostly, they stay in his room while in the house. It is better. But when

he goes to social outing with his social group for people of all ages with

disabilities, his ASD makes him much closer to the autistic adults then his

ds makes him to the kids with only (or mostly) ds.

I think oyu are correct: his behaviors are just more than theirs.

>

>

> Isaac, Tony and I went to visit a friend from the DS teen group who is in

> the hospital with pneumonia. He had a Woody doll! And a snake, the kind

> you can flap! His Dad was like, " oh yeah, we have those in reserve for when

> these wear out! " And I've noticed the other kids in this youth group with

> the same quirks (pushing the alarm bell in the elevator, saying " yee " when

> over-stimulated, not being willing to participate unless mom or dad is

> present). These " typical " kids with DS are so much like mine but mine are

> just one step farther on the continuum. I'm just wondering if during the

> teenage years the difference between our dually diagnosed kids and other

> kids with DS is diminished. It is true that my boys are a bit " more " than

> these other kids but all the same behaviors.

>

> And then in the car on the way home I was explaining to the boys (again)

> why

> this kid has two moms and two dads and Tony decided that he now has two of

> all of his imaginary friends. Great, just what we needed, two Betsys, two

> Steves, two Charkies.

>

> You have to admit, our lives can be hilarious.

>

> Lori

>

> Mom to Isaac 14 and Tony 12

>

>

[Guest guest]

Lori: Tori just turned 11 today, and about 3-4 years ago she told us she

had a brother named Kenny, who lived in Kenya. When we asked if she knew

where Kenya was, she politely said " Africa, Mom!! " Sometime down the road,

she told us she also had a brother named, Danny who lives in California.

Back in Sept., she announced she had a brother named & a brother named

Max..and said they live (oh, man I can't even remember!)...

Liz

Mom to Tori

11 yr. ASD/DS.....and too many other acronyms to list

>

>

> Isaac, Tony and I went to visit a friend from the DS teen group who is in

> the hospital with pneumonia. He had a Woody doll! And a snake, the kind

> you can flap! His Dad was like, " oh yeah, we have those in reserve for when

> these wear out! " And I've noticed the other kids in this youth group with

> the same quirks (pushing the alarm bell in the elevator, saying " yee " when

> over-stimulated, not being willing to participate unless mom or dad is

> present). These " typical " kids with DS are so much like mine but mine are

> just one step farther on the continuum. I'm just wondering if during the

> teenage years the difference between our dually diagnosed kids and other

> kids with DS is diminished. It is true that my boys are a bit " more " than

> these other kids but all the same behaviors.

>

> And then in the car on the way home I was explaining to the boys (again)

> why

> this kid has two moms and two dads and Tony decided that he now has two of

> all of his imaginary friends. Great, just what we needed, two Betsys, two

> Steves, two Charkies.

>

> You have to admit, our lives can be hilarious.

>

> Lori

>

> Mom to Isaac 14 and Tony 12

>

>

[Guest guest]

Aren't you happy these brothers live elsewhere,LOL?

Charlyne

>

>

> Isaac, Tony and I went to visit a friend from the DS teen group who is in

> the hospital with pneumonia. He had a Woody doll! And a snake, the kind

> you can flap! His Dad was like, " oh yeah, we have those in reserve for when

> these wear out! " And I've noticed the other kids in this youth group with

> the same quirks (pushing the alarm bell in the elevator, saying " yee " when

> over-stimulated, not being willing to participate unless mom or dad is

> present). These " typical " kids with DS are so much like mine but mine are

> just one step farther on the continuum. I'm just wondering if during the

> teenage years the difference between our dually diagnosed kids and other

> kids with DS is diminished. It is true that my boys are a bit " more " than

> these other kids but all the same behaviors.

>

> And then in the car on the way home I was explaining to the boys (again)

> why

> this kid has two moms and two dads and Tony decided that he now has two of

> all of his imaginary friends. Great, just what we needed, two Betsys, two

> Steves, two Charkies.

>

> You have to admit, our lives can be hilarious.

>

> Lori

>

> Mom to Isaac 14 and Tony 12

>

>

[Guest guest]

Charlyne makes a good point. They can't get in the way. Tony was making a

big deal tonight about not wanting ME to cook supper but Betsy. Hopefully

Liz does not have these troubles.

_____

From: [mailto: ] On Behalf

Of charlyne1121@...

Sent: Wednesday, February 23, 2011 10:08 PM

To:

Subject: Re: Woody dolls and other quirks

Aren't you happy these brothers live elsewhere,LOL?

Charlyne

>

>

> Isaac, Tony and I went to visit a friend from the DS teen group who is in

> the hospital with pneumonia. He had a Woody doll! And a snake, the kind

> you can flap! His Dad was like, " oh yeah, we have those in reserve for

when

> these wear out! " And I've noticed the other kids in this youth group with

> the same quirks (pushing the alarm bell in the elevator, saying " yee " when

> over-stimulated, not being willing to participate unless mom or dad is

> present). These " typical " kids with DS are so much like mine but mine are

> just one step farther on the continuum. I'm just wondering if during the

> teenage years the difference between our dually diagnosed kids and other

> kids with DS is diminished. It is true that my boys are a bit " more " than

> these other kids but all the same behaviors.

>

> And then in the car on the way home I was explaining to the boys (again)

> why

> this kid has two moms and two dads and Tony decided that he now has two of

> all of his imaginary friends. Great, just what we needed, two Betsys, two

> Steves, two Charkies.

>

> You have to admit, our lives can be hilarious.

>

> Lori

>

> Mom to Isaac 14 and Tony 12

>

>

[Guest guest]

Lori, Zeb does not have autism but has his buddys, a bear named Tim and a small

plastic ghostly looking monster named Scary. He used to be obsessed with beanie

babies. I fazed those out a few years ago only becuase they were getting in the

way of his life. I have not taken away Tim and Scary only because he may replace

them with something worse. I must carefully monitor him during my work season

when we are at fairs. Zeb will work for an hour, ask to get paid and takes off

to play games. He is lucky and wins and arm load of  stuffed animals including

the huge ones that he can barely carry with less than $10.00. I no longer pay

him on the job and double check that he does not take his wallet from home or no

one gives him money. He is resourceful and somehow manages to help someone and

get paid. He ends up coming back with stuffed animals. My oldest granddaughter

went with him thinking that the gaming people were just giving him these items

because of his

disability, trying to be nice. Nope, he wins them. I have been able to talk him

into giving them away after awhile but he just loves those stuffed animals. He

gives them all names. He says they are his friends and he talks to them like

they are real,grrrr. 

Charlyne  

Subject: Woody dolls and other quirks

To:

Date: Wednesday, February 23, 2011, 8:27 PM

 

Isaac, Tony and I went to visit a friend from the DS teen group who is in

the hospital with pneumonia. He had a Woody doll! And a snake, the kind

you can flap! His Dad was like, " oh yeah, we have those in reserve for when

these wear out! " And I've noticed the other kids in this youth group with

the same quirks (pushing the alarm bell in the elevator, saying " yee " when

over-stimulated, not being willing to participate unless mom or dad is

present). These " typical " kids with DS are so much like mine but mine are

just one step farther on the continuum. I'm just wondering if during the

teenage years the difference between our dually diagnosed kids and other

kids with DS is diminished. It is true that my boys are a bit " more " than

these other kids but all the same behaviors.

And then in the car on the way home I was explaining to the boys (again) why

this kid has two moms and two dads and Tony decided that he now has two of

all of his imaginary friends. Great, just what we needed, two Betsys, two

Steves, two Charkies.

You have to admit, our lives can be hilarious.

Lori

Mom to Isaac 14 and Tony 12

[Guest guest]

I may have let Betsy cook specially for Tony while the rest of the family

enjoyed your cooking. The stories we could tell.

Charlyne

>

>

> Isaac, Tony and I went to visit a friend from the DS teen group who is in

> the hospital with pneumonia. He had a Woody doll! And a snake, the kind

> you can flap! His Dad was like, " oh yeah, we have those in reserve for

when

> these wear out! " And I've noticed the other kids in this youth group with

> the same quirks (pushing the alarm bell in the elevator, saying " yee " when

> over-stimulated, not being willing to participate unless mom or dad is

> present). These " typical " kids with DS are so much like mine but mine are

> just one step farther on the continuum. I'm just wondering if during the

> teenage years the difference between our dually diagnosed kids and other

> kids with DS is diminished. It is true that my boys are a bit " more " than

> these other kids but all the same behaviors.

>

> And then in the car on the way home I was explaining to the boys (again)

> why

> this kid has two moms and two dads and Tony decided that he now has two of

> all of his imaginary friends. Great, just what we needed, two Betsys, two

> Steves, two Charkies.

>

> You have to admit, our lives can be hilarious.

>

> Lori

>

> Mom to Isaac 14 and Tony 12

>

>

[Guest guest]

Char! Oh yeah! Never know what other family members may pop up!!!

Liz

>

>

> Aren't you happy these brothers live elsewhere,LOL?

> Charlyne

>

>

>

> >

> >

> > Isaac, Tony and I went to visit a friend from the DS teen group who is in

> > the hospital with pneumonia. He had a Woody doll! And a snake, the kind

> > you can flap! His Dad was like, " oh yeah, we have those in reserve for

> when

> > these wear out! " And I've noticed the other kids in this youth group with

> > the same quirks (pushing the alarm bell in the elevator, saying " yee "

> when

> > over-stimulated, not being willing to participate unless mom or dad is

> > present). These " typical " kids with DS are so much like mine but mine are

> > just one step farther on the continuum. I'm just wondering if during the

> > teenage years the difference between our dually diagnosed kids and other

> > kids with DS is diminished. It is true that my boys are a bit " more " than

> > these other kids but all the same behaviors.

> >

> > And then in the car on the way home I was explaining to the boys (again)

> > why

> > this kid has two moms and two dads and Tony decided that he now has two

> of

> > all of his imaginary friends. Great, just what we needed, two Betsys, two

> > Steves, two Charkies.

> >

> > You have to admit, our lives can be hilarious.

> >

> > Lori

> >

> > Mom to Isaac 14 and Tony 12

> >

> >

[Guest guest]

's comfort items are: the back end of the pig and the front end of the

duck from his fridge farmyard magnet toy...he tries to carry one or the other to

school every day.

He also loves his Linny and Ming-Ming stuffies (from the Wonderpets) and sleeps

with those (I sing him the song at bedtime, and pat their heads when I sing

their names, and his head when I sing Tuck's name, which always cracks him up.).

He also likes his Cookie Monster pillow ('s nickname is " Cookie Monster " ).

The Wonderpets don't leave his crib, the magnets don't enter his crib. He has

little Wonderpets figures which he plays with, but they don't get taken

anywhere. I seriously wonder what his teachers make of him carrying a pig's

butt magnet around, though!

Sent from my iPhone

> Lori, Zeb does not have autism but has his buddys, a bear named Tim and a

small plastic ghostly looking monster named Scary. He used to be obsessed with

beanie babies. I fazed those out a few years ago only becuase they were getting

in the way of his life. I have not taken away Tim and Scary only because he may

replace them with something worse. I must carefully monitor him during my work

season when we are at fairs. Zeb will work for an hour, ask to get paid and

takes off to play games. He is lucky and wins and arm load of stuffed animals

including the huge ones that he can barely carry with less than $10.00. I no

longer pay him on the job and double check that he does not take his wallet from

home or no one gives him money. He is resourceful and somehow manages to help

someone and get paid. He ends up coming back with stuffed animals. My oldest

granddaughter went with him thinking that the gaming people were just giving him

these items because of his

> disability, trying to be nice. Nope, he wins them. I have been able to talk

him into giving them away after awhile but he just loves those stuffed animals.

He gives them all names. He says they are his friends and he talks to them like

they are real,grrrr.

> Charlyne

>

>

>

>

> Subject: Woody dolls and other quirks

> To:

> Date: Wednesday, February 23, 2011, 8:27 PM

>

>

>

> Isaac, Tony and I went to visit a friend from the DS teen group who is in

>

> the hospital with pneumonia. He had a Woody doll! And a snake, the kind

>

> you can flap! His Dad was like, " oh yeah, we have those in reserve for when

>

> these wear out! " And I've noticed the other kids in this youth group with

>

> the same quirks (pushing the alarm bell in the elevator, saying " yee " when

>

> over-stimulated, not being willing to participate unless mom or dad is

>

> present). These " typical " kids with DS are so much like mine but mine are

>

> just one step farther on the continuum. I'm just wondering if during the

>

> teenage years the difference between our dually diagnosed kids and other

>

> kids with DS is diminished. It is true that my boys are a bit " more " than

>

> these other kids but all the same behaviors.

>

> And then in the car on the way home I was explaining to the boys (again) why

>

> this kid has two moms and two dads and Tony decided that he now has two of

>

> all of his imaginary friends. Great, just what we needed, two Betsys, two

>

> Steves, two Charkies.

>

> You have to admit, our lives can be hilarious.

>

> Lori

>

> Mom to Isaac 14 and Tony 12

>

>

[Guest guest]

, at 's age it is more acceptable than in the teen years. I think all

kids have their quirks. My oldest typical son had to have a watch on his wrist

from the time he was 3 and never left home without a pocket of matchbox trucks.

My daughter had this piece of rag(was a blanket) that she had to have in her

bed. She is 30, married with her own home and children but that rag remains in

her bed, go figure. Zeb had many more quirky habits when he was younger than he

does now, thankfully. Today he tried to sneak his baby photo album to school. I

was waiting for him in the car(slow as ---) and he came out the door with the PE

duffle, backpack and a store bag. He refused to tell me what was in the bag,

although I could see what it was. I explained that he had no reason to bring

that in and it was not an appropriate item to bring to HS especially for a

senior. We had a tug of war in the school parking lot. Mom won. I will never

understand why he wanted

to bring that to HS. Last week I spotted my bra in the mesh area of his

backpack. We were on the way to school. I have been driving him to school lately

because our driveway is so icy, good thing. Why would he want to take my

underwear? He makes me nuts.

Charlyne

Mom to Zeb DS 18

>

>

> Subject: Woody dolls and other quirks

> To:

> Date: Wednesday, February 23, 2011, 8:27 PM

>

>

>

> Isaac, Tony and I went to visit a friend from the DS teen group who is in

>

> the hospital with pneumonia. He had a Woody doll! And a snake, the kind

>

> you can flap! His Dad was like, " oh yeah, we have those in reserve for when

>

> these wear out! " And I've noticed the other kids in this youth group with

>

> the same quirks (pushing the alarm bell in the elevator, saying " yee " when

>

> over-stimulated, not being willing to participate unless mom or dad is

>

> present). These " typical " kids with DS are so much like mine but mine are

>

> just one step farther on the continuum. I'm just wondering if during the

>

> teenage years the difference between our dually diagnosed kids and other

>

> kids with DS is diminished. It is true that my boys are a bit " more " than

>

> these other kids but all the same behaviors.

>

> And then in the car on the way home I was explaining to the boys (again) why

>

> this kid has two moms and two dads and Tony decided that he now has two of

>

> all of his imaginary friends. Great, just what we needed, two Betsys, two

>

> Steves, two Charkies.

>

> You have to admit, our lives can be hilarious.

>

> Lori

>

> Mom to Isaac 14 and Tony 12

>

>

[Guest guest]

Lol, I think the bra would've raised a few eyebrows!!!

And I thought the pig butt was bad! They sure do keep us in our toes.

Sent from my iPhone

> , at 's age it is more acceptable than in the teen years. I think

all kids have their quirks. My oldest typical son had to have a watch on his

wrist from the time he was 3 and never left home without a pocket of matchbox

trucks. My daughter had this piece of rag(was a blanket) that she had to have in

her bed. She is 30, married with her own home and children but that rag remains

in her bed, go figure. Zeb had many more quirky habits when he was younger than

he does now, thankfully. Today he tried to sneak his baby photo album to school.

I was waiting for him in the car(slow as ---) and he came out the door with the

PE duffle, backpack and a store bag. He refused to tell me what was in the bag,

although I could see what it was. I explained that he had no reason to bring

that in and it was not an appropriate item to bring to HS especially for a

senior. We had a tug of war in the school parking lot. Mom won. I will never

understand why he wanted

> to bring that to HS. Last week I spotted my bra in the mesh area of his

backpack. We were on the way to school. I have been driving him to school lately

because our driveway is so icy, good thing. Why would he want to take my

underwear? He makes me nuts.

> Charlyne

> Mom to Zeb DS 18

>

>

>

> >

>

> >

>

> > Subject: Woody dolls and other quirks

>

> > To:

>

> > Date: Wednesday, February 23, 2011, 8:27 PM

>

> >

>

> >

>

> >

>

> > Isaac, Tony and I went to visit a friend from the DS teen group who is in

>

> >

>

> > the hospital with pneumonia. He had a Woody doll! And a snake, the kind

>

> >

>

> > you can flap! His Dad was like, " oh yeah, we have those in reserve for when

>

> >

>

> > these wear out! " And I've noticed the other kids in this youth group with

>

> >

>

> > the same quirks (pushing the alarm bell in the elevator, saying " yee " when

>

> >

>

> > over-stimulated, not being willing to participate unless mom or dad is

>

> >

>

> > present). These " typical " kids with DS are so much like mine but mine are

>

> >

>

> > just one step farther on the continuum. I'm just wondering if during the

>

> >

>

> > teenage years the difference between our dually diagnosed kids and other

>

> >

>

> > kids with DS is diminished. It is true that my boys are a bit " more " than

>

> >

>

> > these other kids but all the same behaviors.

>

> >

>

> > And then in the car on the way home I was explaining to the boys (again) why

>

> >

>

> > this kid has two moms and two dads and Tony decided that he now has two of

>

> >

>

> > all of his imaginary friends. Great, just what we needed, two Betsys, two

>

> >

>

> > Steves, two Charkies.

>

> >

>

> > You have to admit, our lives can be hilarious.

>

> >

>

> > Lori

>

> >

>

> > Mom to Isaac 14 and Tony 12

>

> >

>

> >

[Guest guest]

, no raised eyebrows, just a school suspension. The HS would be more than

happy to find a reason to be rid of a sped kid and I would have been embarrassed

beyond words, well, I am never without words,LOL.

Charlyne

>

> >

>

> >

>

> > Subject: Woody dolls and other quirks

>

> > To:

>

> > Date: Wednesday, February 23, 2011, 8:27 PM

>

> >

>

> >

>

> >

>

> > Isaac, Tony and I went to visit a friend from the DS teen group who is in

>

> >

>

> > the hospital with pneumonia. He had a Woody doll! And a snake, the kind

>

> >

>

> > you can flap! His Dad was like, " oh yeah, we have those in reserve for when

>

> >

>

> > these wear out! " And I've noticed the other kids in this youth group with

>

> >

>

> > the same quirks (pushing the alarm bell in the elevator, saying " yee " when

>

> >

>

> > over-stimulated, not being willing to participate unless mom or dad is

>

> >

>

> > present). These " typical " kids with DS are so much like mine but mine are

>

> >

>

> > just one step farther on the continuum. I'm just wondering if during the

>

> >

>

> > teenage years the difference between our dually diagnosed kids and other

>

> >

>

> > kids with DS is diminished. It is true that my boys are a bit " more " than

>

> >

>

> > these other kids but all the same behaviors.

>

> >

>

> > And then in the car on the way home I was explaining to the boys (again) why

>

> >

>

> > this kid has two moms and two dads and Tony decided that he now has two of

>

> >

>

> > all of his imaginary friends. Great, just what we needed, two Betsys, two

>

> >

>

> > Steves, two Charkies.

>

> >

>

> > You have to admit, our lives can be hilarious.

>

> >

>

> > Lori

>

> >

>

> > Mom to Isaac 14 and Tony 12

>

> >

>

> >

[Guest guest]

There is another kid in Isaac's group - high functioning - who has a bear he

talks to. When his mom tries to tell him the bear can't talk back and isn't

real he just says, " mom, mom that's enough " and walks away from her.

Their reality is better. We should all have bears to talk our problems over

with. :-)

_____

From: [mailto: ] On Behalf

Of charlyne1121@...

Sent: Wednesday, February 23, 2011 10:44 PM

To:

Subject: Re: Woody dolls and other quirks

Lori, Zeb does not have autism but has his buddys, a bear named Tim and a

small plastic ghostly looking monster named Scary. He used to be obsessed

with beanie babies. I fazed those out a few years ago only becuase they were

getting in the way of his life. I have not taken away Tim and Scary only

because he may replace them with something worse. I must carefully monitor

him during my work season when we are at fairs. Zeb will work for an hour,

ask to get paid and takes off to play games. He is lucky and wins and arm

load of stuffed animals including the huge ones that he can barely carry

with less than $10.00. I no longer pay him on the job and double check that

he does not take his wallet from home or no one gives him money. He is

resourceful and somehow manages to help someone and get paid. He ends up

coming back with stuffed animals. My oldest granddaughter went with him

thinking that the gaming people were just giving him these items because of

his

disability, trying to be nice. Nope, he wins them. I have been able to talk

him into giving them away after awhile but he just loves those stuffed

animals. He gives them all names. He says they are his friends and he talks

to them like they are real,grrrr.

Charlyne

From: Lori <uccpowell@... <mailto:uccpowell%40tds.net> >

Subject: Woody dolls and other quirks

To: <mailto:%40yahoogroups.com>

Date: Wednesday, February 23, 2011, 8:27 PM

Isaac, Tony and I went to visit a friend from the DS teen group who is in

the hospital with pneumonia. He had a Woody doll! And a snake, the kind

you can flap! His Dad was like, " oh yeah, we have those in reserve for when

these wear out! " And I've noticed the other kids in this youth group with

the same quirks (pushing the alarm bell in the elevator, saying " yee " when

over-stimulated, not being willing to participate unless mom or dad is

present). These " typical " kids with DS are so much like mine but mine are

just one step farther on the continuum. I'm just wondering if during the

teenage years the difference between our dually diagnosed kids and other

kids with DS is diminished. It is true that my boys are a bit " more " than

these other kids but all the same behaviors.

And then in the car on the way home I was explaining to the boys (again) why

this kid has two moms and two dads and Tony decided that he now has two of

all of his imaginary friends. Great, just what we needed, two Betsys, two

Steves, two Charkies.

You have to admit, our lives can be hilarious.

Lori

Mom to Isaac 14 and Tony 12

[Guest guest]

heehe at 19yrs nathan still plays with his woody and jessie dolls,

espeically in the evening during HIS time, shawna

 http://sewshawna.blogspot.com

To:

Cc:

Sent: Wednesday, February 23, 2011 7:27 PM

Subject: Woody dolls and other quirks

 

Isaac, Tony and I went to visit a friend from the DS teen group who is in

the hospital with pneumonia. He had a Woody doll! And a snake, the kind

you can flap! His Dad was like, " oh yeah, we have those in reserve for when

these wear out! " And I've noticed the other kids in this youth group with

the same quirks (pushing the alarm bell in the elevator, saying " yee " when

over-stimulated, not being willing to participate unless mom or dad is

present). These " typical " kids with DS are so much like mine but mine are

just one step farther on the continuum. I'm just wondering if during the

teenage years the difference between our dually diagnosed kids and other

kids with DS is diminished. It is true that my boys are a bit " more " than

these other kids but all the same behaviors.

And then in the car on the way home I was explaining to the boys (again) why

this kid has two moms and two dads and Tony decided that he now has two of

all of his imaginary friends. Great, just what we needed, two Betsys, two

Steves, two Charkies.

You have to admit, our lives can be hilarious.

Lori

Mom to Isaac 14 and Tony 12

[Guest guest]

i know what you mean, at 19yrs I have nathan's toys down to basically a huge

carry bag, i got from make a wish foundation at university hospitals, nathan

seems to have a thing for " bag " we have some speical olympic ones and beinga

quilter etc i often make them for the store, he occasionally switches them out

and carries his " dangly toys " in it. he has ofcourse his several woody dolls,

jessie and bullzye, and then several animals with long legs he just LOVES, and

then a couple " baby " hand made dolls withlong arms and legs. He is always on the

look out for a new " dangly " toy especially at grandma's, she did daycare for

years and still has lots of toys to go through(we have to pat him down before we

leave, lol) shawna

 

 http://sewshawna.blogspot.com

To:

Cc:

Sent: Wednesday, February 23, 2011 10:43 PM

Subject: Re: Woody dolls and other quirks

 

Lori, Zeb does not have autism but has his buddys, a bear named Tim and a small

plastic ghostly looking monster named Scary. He used to be obsessed with beanie

babies. I fazed those out a few years ago only becuase they were getting in the

way of his life. I have not taken away Tim and Scary only because he may replace

them with something worse. I must carefully monitor him during my work season

when we are at fairs. Zeb will work for an hour, ask to get paid and takes off

to play games. He is lucky and wins and arm load of  stuffed animals including

the huge ones that he can barely carry with less than $10.00. I no longer pay

him on the job and double check that he does not take his wallet from home or no

one gives him money. He is resourceful and somehow manages to help someone and

get paid. He ends up coming back with stuffed animals. My oldest granddaughter

went with him thinking that the gaming people were just giving him these items

because of his

disability, trying to be nice. Nope, he wins them. I have been able to talk him

into giving them away after awhile but he just loves those stuffed animals. He

gives them all names. He says they are his friends and he talks to them like

they are real,grrrr. 

Charlyne  

Subject: Woody dolls and other quirks

To:

Date: Wednesday, February 23, 2011, 8:27 PM

 

Isaac, Tony and I went to visit a friend from the DS teen group who is in

the hospital with pneumonia. He had a Woody doll! And a snake, the kind

you can flap! His Dad was like, " oh yeah, we have those in reserve for when

these wear out! " And I've noticed the other kids in this youth group with

the same quirks (pushing the alarm bell in the elevator, saying " yee " when

over-stimulated, not being willing to participate unless mom or dad is

present). These " typical " kids with DS are so much like mine but mine are

just one step farther on the continuum. I'm just wondering if during the

teenage years the difference between our dually diagnosed kids and other

kids with DS is diminished. It is true that my boys are a bit " more " than

these other kids but all the same behaviors.

And then in the car on the way home I was explaining to the boys (again) why

this kid has two moms and two dads and Tony decided that he now has two of

all of his imaginary friends. Great, just what we needed, two Betsys, two

Steves, two Charkies.

You have to admit, our lives can be hilarious.

Lori

Mom to Isaac 14 and Tony 12

[Guest guest]

Lori,

You may be right and thankfully we have each other.

Charlyne

From: Lori <uccpowell@... <mailto:uccpowell%40tds.net> >

Subject: Woody dolls and other quirks

To: <mailto:%40yahoogroups.com>

Date: Wednesday, February 23, 2011, 8:27 PM

Isaac, Tony and I went to visit a friend from the DS teen group who is in

the hospital with pneumonia. He had a Woody doll! And a snake, the kind

you can flap! His Dad was like, " oh yeah, we have those in reserve for when

these wear out! " And I've noticed the other kids in this youth group with

the same quirks (pushing the alarm bell in the elevator, saying " yee " when

over-stimulated, not being willing to participate unless mom or dad is

present). These " typical " kids with DS are so much like mine but mine are

just one step farther on the continuum. I'm just wondering if during the

teenage years the difference between our dually diagnosed kids and other

kids with DS is diminished. It is true that my boys are a bit " more " than

these other kids but all the same behaviors.

And then in the car on the way home I was explaining to the boys (again) why

this kid has two moms and two dads and Tony decided that he now has two of

all of his imaginary friends. Great, just what we needed, two Betsys, two

Steves, two Charkies.

You have to admit, our lives can be hilarious.

Lori

Mom to Isaac 14 and Tony 12