UPDATE on

[Guest guest]

Lori,

How come you had to give gluten powder on 's foods. It sounds like

your giving the same food that you've been giving him for 10 months.

That's good that his behavior is evening out. I hope that you fine with all

the doctors, etc. visits. So maybe has other problems besides Autism?

I know someone that has ADHD, I can give you their e-mail if you want to

contant them or their parents, and talk about rasing a kid with ADHD; so you

know what to go though. Theirs different types of autism, from sereverly

autism to mild cases of autism. I've babysat a kid and he was like a normal

kid, untill the parents took me home and said that he had autism. He was

like 10 years old.

From,

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Hi Cyndi,

So glad to hear that is doing better.  Best wishes for a speedy recovery

for .  And some rest and peace of mind for you and your family.

Irene

sister to  

 

[Guest guest]

Hi Cyndi,

What an ordeal you all have been facing. What is this short term facility?

Sounds interesting, good to have a specialty group available that can help

with the SIB (Self Injurious Behavior) and meds. Try and get some rest and

you are all in my prayers.

Louise, Mom to 48

<http://groups.yahoo.com/group//message/108747;_ylc=X3oDMTJyOTJoaTN

xBF9TAzk3MzU5NzE1BGdycElkAzQxMDMwNQRncnBzcElkAzE3MDUwMTM0ODEEbXNnSWQDMTA4NzQ

3BHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzEyOTU1MDA5Njg-> Update on

Posted by: " cynthiamiltonburns "

<mailto:cynthiamiltonburns@...?Subject=%20Re%3A%20Update%20on%20>

cynthiamiltonburns@...

<http://profiles.yahoo.com/cynthiamiltonburns> cynthiamiltonburns

Wed Jan 19, 2011 9:15 pm (PST)

is out of the Medical Hospital and cleared of pneumonia,no MRSA,as the

Dr. said someone read the report wrong and gave me wrong information.

never had MRSA but had STaph Cellulitis. WE had dental x-rays and teeth are

great. They scoped 's esophagus,and stomach and also took samples of

stomach enzymes everything look good however the Dr. said it looks like he

may have had a little reflux which he did as a baby/toddler. He showed me

the pictures of the scoping. The CT scan on 's head showed the infection

mass under the skin was continuing to shrink from the previous open staph

wound. The CT of the face showed had broken his nose but it was like a

hairline fracture so nothing needed to be reset. The Plastic Surgeon cleaned

out 's wound on his face and biopsied for other pathogens and he is

waiting for the results. still has a little knot in his check that they

were afraid to cut out because it would make the whole on 's check

bigger causing more problems. The surgeon said it they cut it out it may

come back. In order to protect from hurting the wound further we had to

place in a short term facility that can help teach not to hit his

face and get his meds under control. Like many others on this list gets

very self injurious when he is getting sick and so since he has been so sick

I wanted professional help so does not get another infection in his

face.The wound on his face is open and larger than a quarter. His face is

swollen like he has a soft ball in his cheek and jaw. However it is looking

better everyday that we keep him from hitting himself. When had the

open staph infection on his head he hit it hard constantly because it

bothered him but since we got it closed in Nov. he know longer hits his

head. I believe once we get his face healed he no longer will hit his face

either. He keeps transfer staph from head to face and face to head. I hated

to place somewhere more than you will ever know. I guess it would be

easier if he could tell me if the staff did any inappropriate to him however

I cannot keep safe from himself while his face has an open wound. This

placement is temporary and I will be visiting him everyday.The staff has

already called me 4 times to ask questions and he has a private room.

I originally took him to the hospital for pneumonia,fever of 102, and staph

infection. has been having issues of pain for a while and his Dr. were

not able to figure out what was going on with him so while was in the

hospital I had them check his teeth since he grinds them and always puts his

fingers in his mouth and cries to rule out any dental problems. We ordered a

CT scan while he was being put to sleep for dental x-rays,cleanings, and

plastic surgery because his general surgeon wanted a CT scan after Christmas

as a follow up to a CT scan done in November to see if the infection mass

that was under the previous wound on his head was still shrinking.

Thanks Charlyne,and Liz for keeping everyone updated on my guy. Thanks for

the prayers and well wishes. I believe that he is on his road to recovery

because of all of you guys praying.thanks again. Cyndi Burns

[Guest guest]

13 has had on going issues with chronic sinusitis and MRSA in

his right ear. We are on Septra again. Over the years we have had

on and off SIB issues. Well they are rearing their ugly head again

and he is bigger and stronger. He hits his head and loves to get our

hands and twist our fingers. He also scratches. We are giving him

effexor and clonidine. We have tried MANY different things. I know

part of this is puberty. He is completely non verbal except for very

loud grunts,etc. I feel so tired all the time and I feel like I am

letting down my other children. We are constantly walking on egg

shells. We have some help that comes in afternoons but is

still here and we all have to endure his outbursts. I wish there was

a place in NC where they could go for one weekend a month to give the

family a break. Its exhausting. I had to get my license re-done the

other day and my last one was taken in 2007 I promise you I look like

I have aged 10 years or more. It made me realize how hard this is on

us emotionally and physically sometimes.

> is out of the Medical Hospital and cleared of pneumonia,no

> MRSA,as the Dr. said someone read the report wrong and gave me

> wrong information. never had MRSA but had STaph Cellulitis. WE

> had dental x-rays and teeth are great. They scoped 's

> esophagus,and stomach and also took samples of stomach enzymes

> everything look good however the Dr. said it looks like he may have

> had a little reflux which he did as a baby/toddler. He showed me

> the pictures of the scoping. The CT scan on 's head showed the

> infection mass under the skin was continuing to shrink from the

> previous open staph wound. The CT of the face showed had

> broken his nose but it was like a hairline fracture so nothing

> needed to be reset. The Plastic Surgeon cleaned out 's wound on

> his face and biopsied for other pathogens and he is waiting for the

> results. still has a little knot in his check that they were

> afraid to cut out because it would make the whole on 's check

> bigger causing more problems. The surgeon said it they cut it out

> it may come back. In order to protect from hurting the wound

> further we had to place in a short term facility that can help

> teach not to hit his face and get his meds under control. Like

> many others on this list gets very self injurious when he is

> getting sick and so since he has been so sick I wanted professional

> help so does not get another infection in his face.The wound

> on his face is open and larger than a quarter. His face is swollen

> like he has a soft ball in his cheek and jaw. However it is looking

> better everyday that we keep him from hitting himself. When

> had the open staph infection on his head he hit it hard constantly

> because it bothered him but since we got it closed in Nov. he know

> longer hits his head. I believe once we get his face healed he no

> longer will hit his face either. He keeps transfer staph from head

> to face and face to head. I hated to place somewhere more than

> you will ever know. I guess it would be easier if he could tell me

> if the staff did any inappropriate to him however I cannot keep

> safe from himself while his face has an open wound. This

> placement is temporary and I will be visiting him everyday.The

> staff has already called me 4 times to ask questions and he has a

> private room.

>

> I originally took him to the hospital for pneumonia,fever of 102,

> and staph infection. has been having issues of pain for a

> while and his Dr. were not able to figure out what was going on

> with him so while was in the hospital I had them check his

> teeth since he grinds them and always puts his fingers in his mouth

> and cries to rule out any dental problems. We ordered a CT scan

> while he was being put to sleep for dental x-rays,cleanings, and

> plastic surgery because his general surgeon wanted a CT scan after

> Christmas as a follow up to a CT scan done in November to see if

> the infection mass that was under the previous wound on his head

> was still shrinking.

>

> Thanks Charlyne,and Liz for keeping everyone updated on my guy.

> Thanks for the prayers and well wishes. I believe that he is on his

> road to recovery because of all of you guys praying.thanks again.

> Cyndi Burns

>

>

[Guest guest]

So happy he is NOT infected with MRSA. And that he is recovering. And

even more sorry that he needs the help of yet another facility to help him

get well.

On the other hand - he is getting well. I know that is a relif to you.

My best and biggest hugs, Cyndi.

On Thu, Jan 20, 2011 at 12:15 AM, cynthiamiltonburns <

cynthiamiltonburns@...> wrote:

>

>

> is out of the Medical Hospital and cleared of pneumonia,no MRSA,as the

> Dr. said someone read the report wrong and gave me wrong information.

> never had MRSA but had STaph Cellulitis. WE had dental x-rays and teeth are

> great. They scoped 's esophagus,and stomach and also took samples of

> stomach enzymes everything look good however the Dr. said it looks like he

> may have had a little reflux which he did as a baby/toddler. He showed me

> the pictures of the scoping. The CT scan on 's head showed the infection

> mass under the skin was continuing to shrink from the previous open staph

> wound. The CT of the face showed had broken his nose but it was like a

> hairline fracture so nothing needed to be reset. The Plastic Surgeon cleaned

> out 's wound on his face and biopsied for other pathogens and he is

> waiting for the results. still has a little knot in his check that they

> were afraid to cut out because it would make the whole on 's check

> bigger causing more problems. The surgeon said it they cut it out it may

> come back. In order to protect from hurting the wound further we had to

> place in a short term facility that can help teach not to hit his

> face and get his meds under control. Like many others on this list gets

> very self injurious when he is getting sick and so since he has been so sick

> I wanted professional help so does not get another infection in his

> face.The wound on his face is open and larger than a quarter. His face is

> swollen like he has a soft ball in his cheek and jaw. However it is looking

> better everyday that we keep him from hitting himself. When had the

> open staph infection on his head he hit it hard constantly because it

> bothered him but since we got it closed in Nov. he know longer hits his

> head. I believe once we get his face healed he no longer will hit his face

> either. He keeps transfer staph from head to face and face to head. I hated

> to place somewhere more than you will ever know. I guess it would be

> easier if he could tell me if the staff did any inappropriate to him however

> I cannot keep safe from himself while his face has an open wound. This

> placement is temporary and I will be visiting him everyday.The staff has

> already called me 4 times to ask questions and he has a private room.

>

> I originally took him to the hospital for pneumonia,fever of 102, and staph

> infection. has been having issues of pain for a while and his Dr. were

> not able to figure out what was going on with him so while was in the

> hospital I had them check his teeth since he grinds them and always puts his

> fingers in his mouth and cries to rule out any dental problems. We ordered a

> CT scan while he was being put to sleep for dental x-rays,cleanings, and

> plastic surgery because his general surgeon wanted a CT scan after Christmas

> as a follow up to a CT scan done in November to see if the infection mass

> that was under the previous wound on his head was still shrinking.

>

> Thanks Charlyne,and Liz for keeping everyone updated on my guy. Thanks for

> the prayers and well wishes. I believe that he is on his road to recovery

> because of all of you guys praying.thanks again. Cyndi Burns

>

>

>

--

Sara- different pathways lead to Nirvana.

[Guest guest]

I will keep you both im my thoughts and prayers! I am releived to see alex is on

his road to recovery! shawna

 

 

 http://sewshawna.blogspot.com

________________________________

To:

Sent: Wed, January 19, 2011 11:15:32 PM

Subject: Update on

 

is out of the Medical Hospital and cleared of pneumonia,no MRSA,as the Dr.

said someone read the report wrong and gave me wrong information. never had

MRSA but had STaph Cellulitis. WE had dental x-rays and teeth are great. They

scoped 's esophagus,and stomach and also took samples of stomach enzymes

everything look good however the Dr. said it looks like he may have had a little

reflux which he did as a baby/toddler. He showed me the pictures of the scoping.

The CT scan on 's head showed the infection mass under the skin was

continuing to shrink from the previous open staph wound. The CT of the face

showed had broken his nose but it was like a hairline fracture so nothing

needed to be reset. The Plastic Surgeon cleaned out 's wound on his face and

biopsied for other pathogens and he is waiting for the results. still has a

little knot in his check that they were afraid to cut out because it would make

the whole on 's check bigger causing more problems. The surgeon said it they

cut it out it may come back. In order to protect from hurting the wound

further we had to place in a short term facility that can help teach

not to hit his face and get his meds under control. Like many others on this

list gets very self injurious when he is getting sick and so since he has

been so sick I wanted professional help so does not get another infection

in his face.The wound on his face is open and larger than a quarter. His face is

swollen like he has a soft ball in his cheek and jaw. However it is looking

better everyday that we keep him from hitting himself. When had the open

staph infection on his head he hit it hard constantly because it bothered him

but since we got it closed in Nov. he know longer hits his head. I believe once

we get his face healed he no longer will hit his face either. He keeps transfer

staph from head to face and face to head. I hated to place somewhere more

than you will ever know. I guess it would be easier if he could tell me if the

staff did any inappropriate to him however I cannot keep safe from himself

while his face has an open wound. This placement is temporary and I will be

visiting him everyday.The staff has already called me 4 times to ask questions

and he has a private room.

I originally took him to the hospital for pneumonia,fever of 102, and staph

infection. has been having issues of pain for a while and his Dr. were not

able to figure out what was going on with him so while was in the hospital

I had them check his teeth since he grinds them and always puts his fingers in

his mouth and cries to rule out any dental problems. We ordered a CT scan while

he was being put to sleep for dental x-rays,cleanings, and plastic surgery

because his general surgeon wanted a CT scan after Christmas as a follow up to a

CT scan done in November to see if the infection mass that was under the

previous wound on his head was still shrinking.

Thanks Charlyne,and Liz for keeping everyone updated on my guy. Thanks for the

prayers and well wishes. I believe that he is on his road to recovery because of

all of you guys praying.thanks again. Cyndi Burns

[Guest guest]

Just heard from Cyndi and.....

is doing great and the hospital seems to be helping him learn to stop

hitting his face and keeping the wound open. has several little blonde

girlfriends there. I have to laugh because can't talk but the girls

think he is cute and talk his arm off. They love helping him too.

Liz

[Guest guest]

Cyndi B, hearthugs to you both.

And about the man on Dr Oz...try reiki out. NOT to replace doctors/meds. It has

been known to enhance well being. FWIW, I always advocate trying a few sessions

& if reiki is something one likes, then take a reiki 1 class so that one can

perform self reiki & reiki on others. That way it is less costly as well as

readily available 24/7, (there is NO need to take Reiki2 or Reiki3 unless one

wants to teach/go into business)

Hugs again,

Kris

>

> Group, woke up this past Friday cheeks swelled up like a chipmunk. As I

suspected another staph infection. Today I saw an episode of Dr. Oz were there

mans heals people by touching them and praying on them. I wish someone could

heal . Every time gets one of these staph infections it sets him way

back. I have done everything I can to keep 's immune system healthy and all

this plays heavy on my mind. I called to get an appointment with 's DAN doc

and she is booked until August. I hope she has a cancellation since she seems to

be the only Dr. that can really help . We have not seen here since 2009.

>

> Last Sunday I woke up with a terrible tooth ache and needed a root canal. This

week I had the root canal and I have been in terrible pain today. I just want to

know when does life get better?? I try to remain positive but this year I have

had to many downers. Cyndi B

>

[Guest guest]

OMG, Cyndi! I just don't know what to say...Hope you feel better..and that

you can get in to see someone quickly.

Liz

On Wed, Jun 15, 2011 at 12:18 AM, cynthiamiltonburns <

cynthiamiltonburns@...> wrote:

>

>

> Group, woke up this past Friday cheeks swelled up like a chipmunk. As

> I suspected another staph infection. Today I saw an episode of Dr. Oz were

> there mans heals people by touching them and praying on them. I wish someone

> could heal . Every time gets one of these staph infections it sets

> him way back. I have done everything I can to keep 's immune system

> healthy and all this plays heavy on my mind. I called to get an appointment

> with 's DAN doc and she is booked until August. I hope she has a

> cancellation since she seems to be the only Dr. that can really help .

> We have not seen here since 2009.

>

> Last Sunday I woke up with a terrible tooth ache and needed a root canal.

> This week I had the root canal and I have been in terrible pain today. I

> just want to know when does life get better?? I try to remain positive but

> this year I have had to many downers. Cyndi B

>

>

>

--

*Liz*

Let me win, but if I cannot win, let me be brave in the attempt. - Special

Olympics Motto-RIP Eunice Kennedy Shriver

“When we long for life without difficulties, remind us that oaks grow strong

in contrary winds and diamonds are made under pressure.-Author Unknown

" Knowing trees, I understand the meaning of patience. Knowing grass, I can

understand persistence. " - Hal Borland

[Guest guest]

Oh Cyndi, My thoughts and prayers are with you and . 

 

Becky

[Guest guest]

Sara, is constantly hitting himself since he came home from the hospital

March 12th. He has regressed to almost infantile behaviors. We cannot keep him

from contaminating himself with staph over and over. You had a good thought on

my dental pain but is the culprit. We have an appointment with his DAN doc

but we could not get him in until August. I am really worried about him. Cyndi

B

>

> >

> >

> > Cyndi, Poor just can't get a break and you too. I hope he feels better

> > soon. I had 3 root canals this year and one of them was extremely painful 4

> > or 5 days later. I lived on motrin but after a week it was fine. If it's not

> > better by the end of the week I would give the dentist a call. Sometimes

> > they miss a canal and need to redo it. They told me they wait to put the

> > permanent crown on to make sure there's no infection. I hope things get

> > better for you guys real soon.

> > Terry

> >

> >

> > Update on

> >

> > Group, woke up this past Friday cheeks swelled up like a chipmunk. As

> > I suspected another staph infection. Today I saw an episode of Dr. Oz were

> > there mans heals people by touching them and praying on them. I wish someone

> > could heal . Every time gets one of these staph infections it sets

> > him way back. I have done everything I can to keep 's immune system

> > healthy and all this plays heavy on my mind. I called to get an appointment

> > with 's DAN doc and she is booked until August. I hope she has a

> > cancellation since she seems to be the only Dr. that can really help .

> > We have not seen here since 2009.

> >

> > Last Sunday I woke up with a terrible tooth ache and needed a root canal.

> > This week I had the root canal and I have been in terrible pain today. I

> > just want to know when does life get better?? I try to remain positive but

> > this year I have had to many downers. Cyndi B

> >

> >