RE: Gareth's doctor visit/Margaret

[Guest guest]

Hi Margaret,

Thank goodness this was just a fill-in doc for Gareth, and not his regular PCP,

who I'm sure understands Gareth and your concerns. If these docs were in your

shoes, they would be doing exactly the same thing (or at least one would hope

they would) by taking their son or daughter to the doctor for treatment, even if

it ends up being a different diagnosis. Thank goodness you did, as ear

infections can be painful and certainly need to be treated.

To me a good doctor is like a good hair colorist/stylist: they are rare gems

and once you find them, you don't want to let them go! I was just saying to my

husband the other day how fortunate we are that 's " medical team " is really

good: they are very experienced with special needs, compassionate, respect our

position as parents, and genuinely love our son. I joke with 's ENT all

the time that he has to live to 100 yrs. old and remain in practice in order to

treat . He told me a few weeks ago that he and his wife would like to be

guests at 's wedding!! This is even after many wrestling matches, piercing

sceams, and running away episodes with in his office,.......Dr. Fieldman

is one in a million.

We are also one in a million on this list-serv to endure with our kids all that

they go through......a toast to all of us!!!!!

Hugs,

Mom to , 7 yrs. old DS/PDD-NOS

Northern New Jersey

Colon Cancer Survivor, 3/19/10 (last round of chemo)

To:

From: mfroof@...

Date: Thu, 17 Feb 2011 22:01:03 -0500

Subject: Gareth's doctor visit

Hi, Everyone....Today, I had Gareth to the PCP because he has been

complaining of a sore throat since yesterday and " monia back " , so I thought

perhaps he'd need a chest X-ray. He hasn't run a fever, per say, since it only

got to 98 - 99 and his temp is usually 96-97.........but, he's got that MBL

deficiency so his body doesn't know to fight bacterial infections. He kept

pointing to the same area that the pneumonia started the past 3

times....LRL. I swear the doc looked at me like I was some sort of crazy Mom,

out

looking for attention, because the ONLY thing wrong with G was that he had a

left ear infection!!! Thankfully, Strep was negative. The doc wasn't his

normal one, but geeeeesshhh, I do know my kid!!! He kept asking Gareth

these really in depth questions and G just looked at him, and then at me,

waiting for me to answer for him or knock the question down for G to understand.

Just a petty rant............you would think doctor visits would get

easier, but they haven't. If G cries wolf, I listen.....over and over and over

and over.

Take care, Everyone.

Margaret

Mom to Gareth, 22 y/o, DS/ASD/OCD