Re: /Wheelchairs

[Guest guest]

Hi Margaret,

When did your son start answering questions? I would be thrilled if she would

say yes or no to my questions! It is very unusual for us to feel like we get an

answer to a question. I don't believe Maddie's hips have been x-rayed but we

did just last week have an evaluation by an orthopedist and he did not think

anything was out of alignment. He did mention it is something to keep an eye

on, though. Thanks for your response!

>

> Hi, Everyone.......welcome to the group. We have another

> Maddie....Donna's girl. I'm Mom to Gareth, 22 y/o, with DS/ASD/OCD. We

first heard

> the big * A * word when he was 5-6ish, too. Like you daughter, he can

> communicate, chooses not to most times, and when he does want to say

something,

> he stutters so badly that it takes him so long to get out what he wants to

> say. We're quite satisfied with a yes or no response for most things but I

> do get frustrated when he won't relay important information --- ie. when

> he was in school or at work now. I would love to hear how his day goes,

> even if it's just rambling but, if I ask, all I get is *fine*. As for her

> late walking, I'm assuming her hips have been X-rayed and all is OK? Gareth

> needed reconstructive hip surgery at age 15 because his one socket had

> eroded away. His knee patellas also *float* back and forth.

>

> Wheelchairs.....as a follow up, the Home Health Care guy and PT guy just

> left. They took health information, measured Gareth, joked about how *old*

> his wheelchair was, and will keep us posted as to whether it goes through

> the insurance. We are going for larger, air filled tires for outside. That

> might prove to be an issue but they said he definitely needs a new

> wheelchair, we may just have to buy the larger tires. Thanks everyone for

your

> help and advice.

>

> Take care, Everyone.

> Margaret

>

>

>