Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Hi Kathe, Thank you so much for sharing your story with me. I appreciate it and it helps me not feel like such a " freak " . I totally feel accepted here. I have to say the best thing I did so far in my life since being diagnosed with this disease is find this group. Take care and thanks for " getting it " . Hugs from Maine, Tracie > > > Hi everyone, > > > > I know I have not posted in awhile, but I do read as > > often as I > > can. I have reached the I am really angry stage of > > my disease. I > > assume this is a normal transition now that I have > > been diagnosed > > officially with RA for a year or am I a freak? It > > has finally sunk > > in that I am disabled probably for the rest of my > > life as every > > doctor I see agrees with the disability decision. I > > am angry > > because my hubby is unhappy with his job, but he can > > do something > > about that, like look for another one. Yes, it > > could take a year or > > more for him to find something he likes, but I don't > > get to switch > > diseases or reapply for a different one because I > > don't like this > > one. I get really angry lately about the whole > > mess. I am sick of > > running to doctors, sick of meds, sick of not being > > able to do the > > things I want. This last doctor at this pain clinic > > told me I would > > not be able to walk for exercise as it would be much > > to hard on my > > joints, etc., etc., like I did not know that already > > since I have > > trouble walking through the grocery store and I have > > handicap plates > > just so I can go in and out of the grocery store. > > Also, I am still > > going around and around about my pain management. I > > now have my > > rheumy on my side who agrees that I need long-term > > chronic pain > > medication, but he has to have approval because of > > my insurance from > > my primary care physician who " does not believe in > > that " . Excuse me > > for not falling into the normal range of your > > patients. I would > > love to switch places with him someday. I am sure > > my rheumy will > > get it all straightened out as he has vowed to, but > > I cannot believe > > I am still fighting to just have a semi decent > > quality of life. You > > know where you get up and get dressed and maybe walk > > around the > > house a little and talk to your kids. I am just > > disgusted with the > > whole thing and very ANGRY as I seem to keep saying. > > I cannot hold > > all of this anger in because I am going to scream if > > I don't let it > > out, but I just want to know if this is normal. The > > doctor said > > something about going through the stages of grief > > and that is what I > > was doing???? Because I have lost my way of life, > > my job and you > > know what I miss the most - DANCING, yep, DANCING. > > My feet are > > horrid though. Well, thanks for letting me vent and > > any thoughts > > would be greatly appreciated. I cannot imagine I am > > the first > > person to get angry, but you never know. > > > > Angry in Maine > > > > Tracie > > > > > > > > > > > > Kathe in CA > > > > > __________________________________ > FareChase: Search multiple travel sites in one click. > http://farechase. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Hi Kathe, Thank you so much for sharing your story with me. I appreciate it and it helps me not feel like such a " freak " . I totally feel accepted here. I have to say the best thing I did so far in my life since being diagnosed with this disease is find this group. Take care and thanks for " getting it " . Hugs from Maine, Tracie > > > Hi everyone, > > > > I know I have not posted in awhile, but I do read as > > often as I > > can. I have reached the I am really angry stage of > > my disease. I > > assume this is a normal transition now that I have > > been diagnosed > > officially with RA for a year or am I a freak? It > > has finally sunk > > in that I am disabled probably for the rest of my > > life as every > > doctor I see agrees with the disability decision. I > > am angry > > because my hubby is unhappy with his job, but he can > > do something > > about that, like look for another one. Yes, it > > could take a year or > > more for him to find something he likes, but I don't > > get to switch > > diseases or reapply for a different one because I > > don't like this > > one. I get really angry lately about the whole > > mess. I am sick of > > running to doctors, sick of meds, sick of not being > > able to do the > > things I want. This last doctor at this pain clinic > > told me I would > > not be able to walk for exercise as it would be much > > to hard on my > > joints, etc., etc., like I did not know that already > > since I have > > trouble walking through the grocery store and I have > > handicap plates > > just so I can go in and out of the grocery store. > > Also, I am still > > going around and around about my pain management. I > > now have my > > rheumy on my side who agrees that I need long-term > > chronic pain > > medication, but he has to have approval because of > > my insurance from > > my primary care physician who " does not believe in > > that " . Excuse me > > for not falling into the normal range of your > > patients. I would > > love to switch places with him someday. I am sure > > my rheumy will > > get it all straightened out as he has vowed to, but > > I cannot believe > > I am still fighting to just have a semi decent > > quality of life. You > > know where you get up and get dressed and maybe walk > > around the > > house a little and talk to your kids. I am just > > disgusted with the > > whole thing and very ANGRY as I seem to keep saying. > > I cannot hold > > all of this anger in because I am going to scream if > > I don't let it > > out, but I just want to know if this is normal. The > > doctor said > > something about going through the stages of grief > > and that is what I > > was doing???? Because I have lost my way of life, > > my job and you > > know what I miss the most - DANCING, yep, DANCING. > > My feet are > > horrid though. Well, thanks for letting me vent and > > any thoughts > > would be greatly appreciated. I cannot imagine I am > > the first > > person to get angry, but you never know. > > > > Angry in Maine > > > > Tracie > > > > > > > > > > > > Kathe in CA > > > > > __________________________________ > FareChase: Search multiple travel sites in one click. > http://farechase. > Quote Link to comment Share on other sites More sharing options...
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