Re: Anesthesia for Ear-tube surgery

[Guest guest]

Hi Kathy,

My son, , had ear-tube surgery when he was 4 years old also...you should

definitely see improvement in the reduction of infections , which will be

especially handy during this time of the year and a more comfortable winter for

!

I would ask the anesthesiologist specifically how he/she will administer the

anesthesia to and your concern about his cervical spine ( because of

the potential for atlantoaxial instability that all children with DS have).

's doc showed my husband and I the very pliable/plastic device that he

would use once received the " laughing gas " via a little mask (which

worked very quickly to put him asleep...crying is good by the way, while the

mask is briefly placed on the child's face because they breathe in the gas in

between sobs and go to sleep quicker) to keep his airway open, without putting

his neck at risk. An IV was put in immediately thereafter.

The ear tube surgery is generally very fast.......'s was complete in 10

minutes! He woke up a little groggy, but smiling. However, anesthesia can

effect each individual differently.....'s 90 minute orchiopexy did not

result in such a placid wakeup. did cry for about 20 minutes after he woke

up, but eventually was fine. I would bring 's favorite stuffed animal,

movie, toy, etc. to make this transition easier.

also had open-heart surgery that lasted for 4 hours, so it is never easy

for both ourselves and our kiddos, but all was ultimately well.

Don't hesitate to share all concerns and questions with your doctor, and if you

are not satisfied, ask for someone else! I personally had this experience

literally right before my cancer surgery was to commence with the

anesthesiologist in the OR......the doctor was an arrogant SOB and I " fired "

him, right there! Fortunately, my wonderful surgeon understood my concern and

was able to defuse the problem and arranged for another anesthesiologist right

away. I say all this to encourage you to trust your gut for your - and

make sure this is the right doc for his needs.

You and will be in my prayers.

Hugs,

Mom to , 4 years old, DS/PDD-NOS

Colon Cancer Survivor, 3/19/10 (Final round of chemo)

To:

From: kdudero@...

Date: Tue, 11 Jan 2011 08:50:05 -0600

Subject: Anesthesia for Ear-tube surgery

Hello!

Our four-year old with DS/ASD is due to have ear-tube surgery for

the second time this month on Monday, January 24th. I'm wondering what

advice anyone has about anesthesia - any particular kind you'd recommend or

caution us against? Is there a way to prepare his body for the experience

and recover from being anesthetized? I meet with the anesthesiologist on

the 21st. Are there any good questions I should ask him or points to

communicate with him?

Thanks,

Kathy

(in France, moving to Illinois in 2011 - hopefully - with , 4 years

old DS/ASD and Genevieve, 2 years old NT and hubby, soon-to-be PhD.)

[Guest guest]

Our kids all seem to have unique interactions with drugs. Darwyn (6) has had

lots of anaesthetic experiences, some good, some, not so great, but all

ultimately he survived them all and even the bad reaction he once had with

biting and yelling afterwards only lasted about a day. Not a nice day, but

survivable. I'd just ask if the Dr has experience with kids with DS as they

often react differently to drugs than typical kids, and you want the Dr to be

aware of that. But its probably impossible to predict. if his 1st surgery went

well, I'd suggest you ask if its possible to use the same anasthetic. By the

way, why 2 surgeries for ear tubes?

Sent on the TELUS Mobility network with BlackBerry

Anesthesia for Ear-tube surgery

Hello!

Our four-year old with DS/ASD is due to have ear-tube surgery for

the second time this month on Monday, January 24th. I'm wondering what

advice anyone has about anesthesia - any particular kind you'd recommend or

caution us against? Is there a way to prepare his body for the experience

and recover from being anesthetized? I meet with the anesthesiologist on

the 21st. Are there any good questions I should ask him or points to

communicate with him?

Thanks,

Kathy

(in France, moving to Illinois in 2011 - hopefully - with , 4 years

old DS/ASD and Genevieve, 2 years old NT and hubby, soon-to-be PhD.)

[Guest guest]

Hi Kathy,

Aden has had more surgeries than I would like to count (mainly tubes

placements). His first set of tubes was at 8 months. We have a family history of

malignant hyperthermia, so they always use a non-triggering anesthesia. I always

go in with him and hold him while they do his IV (they can't use gas on Aden).

We wrap him in a blanket or sheet with one arm out for the IV and usually it

only take about 10 seconds before he's asleep. Our doctor is also good about

letting me be there when he wakes up.

If you have any family history of problems make sure you tell the

anesthesiologist directly. From our experience you can't count on them knowing

what is in the chart (or even on the questionnaire they give you). Be very clear

about what you expect, if you want to hold him as he goes to sleep and wakes up,

let them know (in most cases a good doctor will be willing to accommodate you).

The best way we have found to help recovery along is a slow but constant stream

of fluids. Be careful about not overloading his stomach though. Most anesthetics

cause nausea.

Hope this helps,

Mom to Aden 7 DS, ASD and Aren 4 ADHD

________________________________

To:

Sent: Tue, January 11, 2011 6:50:05 AM

Subject: Anesthesia for Ear-tube surgery

 

Hello!

Our four-year old with DS/ASD is due to have ear-tube surgery for

the second time this month on Monday, January 24th. I'm wondering what

advice anyone has about anesthesia - any particular kind you'd recommend or

caution us against? Is there a way to prepare his body for the experience

and recover from being anesthetized? I meet with the anesthesiologist on

the 21st. Are there any good questions I should ask him or points to

communicate with him?

Thanks,

Kathy

(in France, moving to Illinois in 2011 - hopefully - with , 4 years

old DS/ASD and Genevieve, 2 years old NT and hubby, soon-to-be PhD.)

[Guest guest]

Dear - 's first ear tubes, inserted in 2007, fell out

somewhere along the way. I was under the impression that all ear tubes fall

out after a few years...? Thanks, Kathy

_____

From: [mailto: ] On Behalf

Of cathynash@...

Sent: Tuesday, January 11, 2011 8:21 PM

To:

Subject: Re: Anesthesia for Ear-tube surgery

Our kids all seem to have unique interactions with drugs. Darwyn (6) has had

lots of anaesthetic experiences, some good, some, not so great, but all

ultimately he survived them all and even the bad reaction he once had with

biting and yelling afterwards only lasted about a day. Not a nice day, but

survivable. I'd just ask if the Dr has experience with kids with DS as they

often react differently to drugs than typical kids, and you want the Dr to

be aware of that. But its probably impossible to predict. if his 1st surgery

went well, I'd suggest you ask if its possible to use the same anasthetic.

By the way, why 2 surgeries for ear tubes?

Sent on the TELUS Mobility network with BlackBerry

Anesthesia for Ear-tube surgery

Hello!

Our four-year old with DS/ASD is due to have ear-tube surgery for

the second time this month on Monday, January 24th. I'm wondering what

advice anyone has about anesthesia - any particular kind you'd recommend or

caution us against? Is there a way to prepare his body for the experience

and recover from being anesthetized? I meet with the anesthesiologist on

the 21st. Are there any good questions I should ask him or points to

communicate with him?

Thanks,

Kathy

(in France, moving to Illinois in 2011 - hopefully - with , 4 years

old DS/ASD and Genevieve, 2 years old NT and hubby, soon-to-be PhD.)

[Guest guest]

Kathy,

With my Riley (DS-ASD), 4 years old, we have had 6 sets of PE tubes as of now. I

find that, once he wakes up from the doctors waking him up, he needs a good 2

more hours of sleep. If he sleeps the anesthesia off, we have no problems at

all. My oldest who is 10 years old now (ADHD) was a terror coming off of the

anesthesia.

Wish you luck,

Kaylynn

>

> Hello!

>

> Our four-year old with DS/ASD is due to have ear-tube surgery for

> the second time this month on Monday, January 24th. I'm wondering what

> advice anyone has about anesthesia - any particular kind you'd recommend or

> caution us against? Is there a way to prepare his body for the experience

> and recover from being anesthetized? I meet with the anesthesiologist on

> the 21st. Are there any good questions I should ask him or points to

> communicate with him?

>

> Thanks,

> Kathy

> (in France, moving to Illinois in 2011 - hopefully - with , 4 years

> old DS/ASD and Genevieve, 2 years old NT and hubby, soon-to-be PhD.)

>

>

>

[Guest guest]

Every child is different but our son 13 ds/autism and non verbal does

not wake up well when they use vercet as pre-med? spelling?? He

wakes up more agitated and also is hard to wake up. We have found

that if he goes back with them and they get the mask on then they can

get him asleep enough to then put in IV and administer the MAC drugs.

>

>

> Kathy,

> With my Riley (DS-ASD), 4 years old, we have had 6 sets of PE tubes

> as of now. I find that, once he wakes up from the doctors waking

> him up, he needs a good 2 more hours of sleep. If he sleeps the

> anesthesia off, we have no problems at all. My oldest who is 10

> years old now (ADHD) was a terror coming off of the anesthesia.

>

> Wish you luck,

> Kaylynn

>

>

> >

> > Hello!

> >

> > Our four-year old with DS/ASD is due to have ear-tube

> surgery for

> > the second time this month on Monday, January 24th. I'm wondering

> what

> > advice anyone has about anesthesia - any particular kind you'd

> recommend or

> > caution us against? Is there a way to prepare his body for the

> experience

> > and recover from being anesthetized? I meet with the

> anesthesiologist on

> > the 21st. Are there any good questions I should ask him or points to

> > communicate with him?

> >

> > Thanks,

> > Kathy

> > (in France, moving to Illinois in 2011 - hopefully - with

> , 4 years

> > old DS/ASD and Genevieve, 2 years old NT and hubby, soon-to-be PhD.)

> >

> >

> >

[Guest guest]

Hi Kathy - sorry I misunderstood and thought he was getting a 2nd surgery within

the SAME month! All tubes do work their way out eventually, but 30 days seemed

a bit fast.

Hope all goes well with the surgery.

Sent on the TELUS Mobility network with BlackBerry

Anesthesia for Ear-tube surgery

Hello!

Our four-year old with DS/ASD is due to have ear-tube surgery for

the second time this month on Monday, January 24th. I'm wondering what

advice anyone has about anesthesia - any particular kind you'd recommend or

caution us against? Is there a way to prepare his body for the experience

and recover from being anesthetized? I meet with the anesthesiologist on

the 21st. Are there any good questions I should ask him or points to

communicate with him?

Thanks,

Kathy

(in France, moving to Illinois in 2011 - hopefully - with , 4 years

old DS/ASD and Genevieve, 2 years old NT and hubby, soon-to-be PhD.)