Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 Hi , Thanks for your email. definitely has depth perception problems. This is in addition to his fear of open spaces. (Not sure if both are part of the same problem). When he goes down stairs, especially as he nears the bottom, he is very tentative and needs to hold someone's hand. It also happens when walking on the sidewalk and he has to step down to cross the street. Thanks for your idea. It is definitely worth trying.  We could do a thick yellow line down the steps and to the car door. I don't know if carpet tiles would work on concrete -- we have 6 stairs from the house to the drive. If he continues to have problems, though expensive, we may have to consider building a ramp down the side of the house, leading to the car door.   Has anyone else's child had depth perception issues? I am wondering if physical therapy would be helpful. Or is there some other kind of therapy/training we could get for him?  Many thanks, Irene sister to ________________________________ To: Sent: Fri, January 14, 2011 2:39:36 PM Subject: Re: Irene/  This popped into my head. Darwyn (6) stops at the end of our front door concrete path where there is a broken line in the concrete. He won't cross it easily, so I made him a cedar chip path across the lawn to the car and he always walks on the cedar chip path. Could you " roll out a red carpet " or some sort of textured outdoor carpet in his favourite colour beneath the car door for your brother to walk on? He might be having strange depth perception issues about looking down from the car, or not liking the ground he's supposed to walk on. Darwyn loves to follow a specific path, if does too, could you paint a yellow line (or put down carpet tiles) from inside the house, thru the front door to car - something to guide him? Just a wacky thought that popped into my head. Ignore it if it seems too nutty! Sent on the TELUS Mobility network with BlackBerry Irene/  <<Some people have terrible side effects on one, but not on another. Also, a particular SSRI may work well on some pateints, but not others. It is really a matter of trial and error, not only for our kids, but for people in general.>> Hi, Everyone....Irene....Boy, do I agree with this. I had a psych doc tell me once that EACH psych med only worked on 15-20% of the population. That is why there are soooooooooooo many of them....each one tweaked just a tad differently because of how sensitive our brain chemistry is. I was only trying to get the point across that the *med roller coaster* can be an up and down one.........having to try many meds before hitting the right one. G's new psych doc decided today to slowly switch him from Lexapro back to Luvox. Se's not too keen on the Dr J and Mr H persona.....which she saw in full force today!!! It's funny, I just always dealt with it. What else can you do?!?!? He's been on Lexapro for over 4 yrs now, since the Scleroderma hit in Nov 06. We shall see what happens. I'll keep you posted. Prayers coming your way for ....sure hope they find a way to get him motivated to enjoy life again. <<sent DH to buy a bear of his own. He came home with an adorable bear that he'd chosen, dressed in a Phillies t-shirt...and wants nothing to do with it! Ugh.>> ....sounds like Gareth.....just HAD to have that TV for HIS bedroom wall and won't watch it!!! Take care, Everyone. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 My son also has depth perception issues. Especially rough ground - he doesn't like or refuses to walk on it. ANd switching from concrete to macadam. Painting thick yellow lines helps enormously. He also will not use stairs without a handrail. You may be able to get help building a ramp thru church group, or group like Kiwanis. It would make your parent's life easier as well. Youy may want to get some prices on what it would cost for a ramp so you can discuss actual costs with a group. Has your family considered looking into residential waiver for your brother? A host family near to your parents could start the transition that he will need to make if/when your parents are not able to care for him. > > > Hi , > Thanks for your email. > definitely has depth perception problems. This is in addition to > his > fear of open spaces. (Not sure if both are part of the same problem). > When he > goes down stairs, especially as he nears the bottom, he is very tentative > and > needs to hold someone's hand. It also happens when walking on the sidewalk > and > he has to step down to cross the street. Thanks for your idea. It is > definitely worth trying. We could do a thick yellow line down the steps > and to > the car door. I don't know if carpet tiles would work on concrete -- we > have 6 > stairs from the house to the drive. If he continues to have problems, > though > expensive, we may have to consider building a ramp down the side of the > house, leading to the car door. > > Has anyone else's child had depth perception issues? I am wondering if > physical > therapy would be helpful. Or is there some other kind of therapy/training > we > could get for him? > > Many thanks, > Irene > sister to > > ________________________________ > From: " cathynash@... <cathynash%40shaw.ca> " <cathynash@...<cathynash%40shaw.ca> > > > To: > Sent: Fri, January 14, 2011 2:39:36 PM > Subject: Re: Irene/ > > > This popped into my head. Darwyn (6) stops at the end of our front door > concrete > path where there is a broken line in the concrete. He won't cross it > easily, so > I made him a cedar chip path across the lawn to the car and he always walks > on > the cedar chip path. Could you " roll out a red carpet " or some sort of > textured > outdoor carpet in his favourite colour beneath the car door for your > brother to > walk on? He might be having strange depth perception issues about looking > down > from the car, or not liking the ground he's supposed to walk on. > > Darwyn loves to follow a specific path, if does too, could you > paint a > yellow line (or put down carpet tiles) from inside the house, thru the > front > door to car - something to guide him? > > Just a wacky thought that popped into my head. Ignore it if it seems too > nutty! > > Sent on the TELUS Mobility network with BlackBerry > > Irene/ > > > <<Some people have terrible side effects on one, but not on another. > Also, a particular SSRI may > work well on some pateints, but not others. It is really a matter of > trial and error, not only for our kids, but for people in general.>> > > Hi, Everyone....Irene....Boy, do I agree with this. I had a psych doc > tell me once that EACH psych med only worked on 15-20% of the population. > That is why there are soooooooooooo many of them....each one tweaked just a > tad > differently because of how sensitive our brain chemistry is. I was only > trying to get the point across that the *med roller coaster* can be an up > and down one.........having to try many meds before hitting the right one. > G's new psych doc decided today to slowly switch him from Lexapro back to > Luvox. Se's not too keen on the Dr J and Mr H persona.....which she saw in > full force today!!! It's funny, I just always dealt with it. What else can > you do?!?!? He's been on Lexapro for over 4 yrs now, since the Scleroderma > hit in Nov 06. We shall see what happens. I'll keep you posted. > Prayers coming your way for ....sure hope they find a way to get him > > motivated to enjoy life again. > > <<sent DH to buy a bear of his own. He came home with an > adorable bear that he'd chosen, dressed in a Phillies t-shirt...and wants > nothing to do with it! Ugh.>> > > ....sounds like Gareth.....just HAD to have that TV for HIS bedroom > wall and won't watch it!!! > > Take care, Everyone. > Margaret > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 Tori has awful depth perception..but we think it is because she had congenital cataracts removed when she was 3 & 7 weeks old, and has not yet gotten IOLs because she was the " Queen of the Head Bangers Ball " for years. She has never transitioned from macadam to concrete well, and actually JUST started doing stairs with support last summer. I were hoping that once we can get the IOLs implanted, this will change...but now that i am reading that other kids have this issue too, maybe not??? Liz > > > My son also has depth perception issues. Especially rough ground - he > doesn't like or refuses to walk on it. ANd switching from concrete to > macadam. > > Painting thick yellow lines helps enormously. He also will not use stairs > without a handrail. > > You may be able to get help building a ramp thru church group, or group > like > Kiwanis. It would make your parent's life easier as well. Youy may want to > get some prices on what it would cost for a ramp so you can discuss actual > costs with a group. > > Has your family considered looking into residential waiver for your > brother? A host family near to your parents could start the transition that > he will need to make if/when your parents are not able to care for him. > > On Sat, Jan 15, 2011 at 8:09 PM, Irene Diamant <irediamant@...<irediamant%40yahoo.com>> > wrote: > > > > > > > Hi , > > Thanks for your email. > > definitely has depth perception problems. This is in addition to > > his > > fear of open spaces. (Not sure if both are part of the same problem). > > When he > > goes down stairs, especially as he nears the bottom, he is very tentative > > and > > needs to hold someone's hand. It also happens when walking on the > sidewalk > > and > > he has to step down to cross the street. Thanks for your idea. It is > > definitely worth trying. We could do a thick yellow line down the steps > > and to > > the car door. I don't know if carpet tiles would work on concrete -- we > > have 6 > > stairs from the house to the drive. If he continues to have problems, > > though > > expensive, we may have to consider building a ramp down the side of the > > house, leading to the car door. > > > > Has anyone else's child had depth perception issues? I am wondering if > > physical > > therapy would be helpful. Or is there some other kind of therapy/training > > we > > could get for him? > > > > Many thanks, > > Irene > > sister to > > > > ________________________________ > > From: " cathynash@... <cathynash%40shaw.ca> <cathynash%40shaw.ca> " < > cathynash@... <cathynash%40shaw.ca><cathynash%40shaw.ca> > > > > > To: <% > 40yahoogroups.com> > > Sent: Fri, January 14, 2011 2:39:36 PM > > Subject: Re: Irene/ > > > > > > This popped into my head. Darwyn (6) stops at the end of our front door > > concrete > > path where there is a broken line in the concrete. He won't cross it > > easily, so > > I made him a cedar chip path across the lawn to the car and he always > walks > > on > > the cedar chip path. Could you " roll out a red carpet " or some sort of > > textured > > outdoor carpet in his favourite colour beneath the car door for your > > brother to > > walk on? He might be having strange depth perception issues about looking > > down > > from the car, or not liking the ground he's supposed to walk on. > > > > Darwyn loves to follow a specific path, if does too, could you > > paint a > > yellow line (or put down carpet tiles) from inside the house, thru the > > front > > door to car - something to guide him? > > > > Just a wacky thought that popped into my head. Ignore it if it seems too > > nutty! > > > > Sent on the TELUS Mobility network with BlackBerry > > > > Irene/ > > > > > > <<Some people have terrible side effects on one, but not on another. > > Also, a particular SSRI may > > work well on some pateints, but not others. It is really a matter of > > trial and error, not only for our kids, but for people in general.>> > > > > Hi, Everyone....Irene....Boy, do I agree with this. I had a psych doc > > tell me once that EACH psych med only worked on 15-20% of the population. > > That is why there are soooooooooooo many of them....each one tweaked just > a > > tad > > differently because of how sensitive our brain chemistry is. I was only > > trying to get the point across that the *med roller coaster* can be an up > > and down one.........having to try many meds before hitting the right > one. > > G's new psych doc decided today to slowly switch him from Lexapro back to > > Luvox. Se's not too keen on the Dr J and Mr H persona.....which she saw > in > > full force today!!! It's funny, I just always dealt with it. What else > can > > you do?!?!? He's been on Lexapro for over 4 yrs now, since the > Scleroderma > > hit in Nov 06. We shall see what happens. I'll keep you posted. > > Prayers coming your way for ....sure hope they find a way to get > him > > > > motivated to enjoy life again. > > > > <<sent DH to buy a bear of his own. He came home with an > > adorable bear that he'd chosen, dressed in a Phillies t-shirt...and wants > > nothing to do with it! Ugh.>> > > > > ....sounds like Gareth.....just HAD to have that TV for HIS bedroom > > wall and won't watch it!!! > > > > Take care, Everyone. > > Margaret > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 Elie just got one contact for his severe astigmatism about 6 months ago. He is a little less fearful but I don't see a really big difference. On Sat, Jan 15, 2011 at 9:02 PM, Liz DeSantis wrote: > Tori has awful depth perception..but we think it is because she had > congenital cataracts removed when she was 3 & 7 weeks old, and has not yet > gotten IOLs because she was the " Queen of the Head Bangers Ball " for years. > She has never transitioned from macadam to concrete well, and actually JUST > started doing stairs with support last summer. I were hoping that once we > can get the IOLs implanted, this will change...but now that i am reading > that other kids have this issue too, maybe not??? > > Liz > > > > > > > > > My son also has depth perception issues. Especially rough ground - he > > doesn't like or refuses to walk on it. ANd switching from concrete to > > macadam. > > > > Painting thick yellow lines helps enormously. He also will not use stairs > > without a handrail. > > > > You may be able to get help building a ramp thru church group, or group > > like > > Kiwanis. It would make your parent's life easier as well. Youy may want > to > > get some prices on what it would cost for a ramp so you can discuss > actual > > costs with a group. > > > > Has your family considered looking into residential waiver for your > > brother? A host family near to your parents could start the transition > that > > he will need to make if/when your parents are not able to care for him. > > > > On Sat, Jan 15, 2011 at 8:09 PM, Irene Diamant <irediamant@... > <irediamant%40yahoo.com>> > > wrote: > > > > > > > > > > > Hi , > > > Thanks for your email. > > > definitely has depth perception problems. This is in addition > to > > > his > > > fear of open spaces. (Not sure if both are part of the same problem). > > > When he > > > goes down stairs, especially as he nears the bottom, he is very > tentative > > > and > > > needs to hold someone's hand. It also happens when walking on the > > sidewalk > > > and > > > he has to step down to cross the street. Thanks for your idea. It is > > > definitely worth trying. We could do a thick yellow line down the steps > > > and to > > > the car door. I don't know if carpet tiles would work on concrete -- we > > > have 6 > > > stairs from the house to the drive. If he continues to have problems, > > > though > > > expensive, we may have to consider building a ramp down the side of the > > > house, leading to the car door. > > > > > > Has anyone else's child had depth perception issues? I am wondering if > > > physical > > > therapy would be helpful. Or is there some other kind of > therapy/training > > > we > > > could get for him? > > > > > > Many thanks, > > > Irene > > > sister to > > > > > > ________________________________ > > > From: " cathynash@... <cathynash%40shaw.ca> <cathynash%40shaw.ca> " > < > > cathynash@... <cathynash%40shaw.ca><cathynash%40shaw.ca> > > > > > > > To: > <% > > 40yahoogroups.com> > > > Sent: Fri, January 14, 2011 2:39:36 PM > > > Subject: Re: Irene/ > > > > > > > > > This popped into my head. Darwyn (6) stops at the end of our front door > > > concrete > > > path where there is a broken line in the concrete. He won't cross it > > > easily, so > > > I made him a cedar chip path across the lawn to the car and he always > > walks > > > on > > > the cedar chip path. Could you " roll out a red carpet " or some sort of > > > textured > > > outdoor carpet in his favourite colour beneath the car door for your > > > brother to > > > walk on? He might be having strange depth perception issues about > looking > > > down > > > from the car, or not liking the ground he's supposed to walk on. > > > > > > Darwyn loves to follow a specific path, if does too, could you > > > paint a > > > yellow line (or put down carpet tiles) from inside the house, thru the > > > front > > > door to car - something to guide him? > > > > > > Just a wacky thought that popped into my head. Ignore it if it seems > too > > > nutty! > > > > > > Sent on the TELUS Mobility network with BlackBerry > > > > > > Irene/ > > > > > > > > > <<Some people have terrible side effects on one, but not on another. > > > Also, a particular SSRI may > > > work well on some pateints, but not others. It is really a matter of > > > trial and error, not only for our kids, but for people in general.>> > > > > > > Hi, Everyone....Irene....Boy, do I agree with this. I had a psych doc > > > tell me once that EACH psych med only worked on 15-20% of the > population. > > > That is why there are soooooooooooo many of them....each one tweaked > just > > a > > > tad > > > differently because of how sensitive our brain chemistry is. I was only > > > trying to get the point across that the *med roller coaster* can be an > up > > > and down one.........having to try many meds before hitting the right > > one. > > > G's new psych doc decided today to slowly switch him from Lexapro back > to > > > Luvox. Se's not too keen on the Dr J and Mr H persona.....which she saw > > in > > > full force today!!! It's funny, I just always dealt with it. What else > > can > > > you do?!?!? He's been on Lexapro for over 4 yrs now, since the > > Scleroderma > > > hit in Nov 06. We shall see what happens. I'll keep you posted. > > > Prayers coming your way for ....sure hope they find a way to get > > him > > > > > > motivated to enjoy life again. > > > > > > <<sent DH to buy a bear of his own. He came home with an > > > adorable bear that he'd chosen, dressed in a Phillies t-shirt...and > wants > > > nothing to do with it! Ugh.>> > > > > > > ....sounds like Gareth.....just HAD to have that TV for HIS bedroom > > > wall and won't watch it!!! > > > > > > Take care, Everyone. > > > Margaret > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 Hi Sara, Is a residential waiver part of medicaid waiver? Please clarify what you mean by host family.  Are you referring to a group home? Thanks, Irene ________________________________ To: Sent: Sat, January 15, 2011 7:50:03 PM Subject: Re: depth perception problems  My son also has depth perception issues. Especially rough ground - he doesn't like or refuses to walk on it. ANd switching from concrete to macadam. Painting thick yellow lines helps enormously. He also will not use stairs without a handrail. You may be able to get help building a ramp thru church group, or group like Kiwanis. It would make your parent's life easier as well. Youy may want to get some prices on what it would cost for a ramp so you can discuss actual costs with a group. Has your family considered looking into residential waiver for your brother? A host family near to your parents could start the transition that he will need to make if/when your parents are not able to care for him. > > > Hi , > Thanks for your email. > definitely has depth perception problems. This is in addition to > his > fear of open spaces. (Not sure if both are part of the same problem). > When he > goes down stairs, especially as he nears the bottom, he is very tentative > and > needs to hold someone's hand. It also happens when walking on the sidewalk > and > he has to step down to cross the street. Thanks for your idea. It is > definitely worth trying. We could do a thick yellow line down the steps > and to > the car door. I don't know if carpet tiles would work on concrete -- we > have 6 > stairs from the house to the drive. If he continues to have problems, > though > expensive, we may have to consider building a ramp down the side of the > house, leading to the car door. > > Has anyone else's child had depth perception issues? I am wondering if > physical > therapy would be helpful. Or is there some other kind of therapy/training > we > could get for him? > > Many thanks, > Irene > sister to > > ________________________________ > From: " cathynash@... <cathynash%40shaw.ca> " ><cathynash@...<cathynash%40shaw.ca> > > > To: > Sent: Fri, January 14, 2011 2:39:36 PM > Subject: Re: Irene/ > > > This popped into my head. Darwyn (6) stops at the end of our front door > concrete > path where there is a broken line in the concrete. He won't cross it > easily, so > I made him a cedar chip path across the lawn to the car and he always walks > on > the cedar chip path. Could you " roll out a red carpet " or some sort of > textured > outdoor carpet in his favourite colour beneath the car door for your > brother to > walk on? He might be having strange depth perception issues about looking > down > from the car, or not liking the ground he's supposed to walk on. > > Darwyn loves to follow a specific path, if does too, could you > paint a > yellow line (or put down carpet tiles) from inside the house, thru the > front > door to car - something to guide him? > > Just a wacky thought that popped into my head. Ignore it if it seems too > nutty! > > Sent on the TELUS Mobility network with BlackBerry > > Irene/ > > > <<Some people have terrible side effects on one, but not on another. > Also, a particular SSRI may > work well on some pateints, but not others. It is really a matter of > trial and error, not only for our kids, but for people in general.>> > > Hi, Everyone....Irene....Boy, do I agree with this. I had a psych doc > tell me once that EACH psych med only worked on 15-20% of the population. > That is why there are soooooooooooo many of them....each one tweaked just a > tad > differently because of how sensitive our brain chemistry is. I was only > trying to get the point across that the *med roller coaster* can be an up > and down one.........having to try many meds before hitting the right one. > G's new psych doc decided today to slowly switch him from Lexapro back to > Luvox. Se's not too keen on the Dr J and Mr H persona.....which she saw in > full force today!!! It's funny, I just always dealt with it. What else can > you do?!?!? He's been on Lexapro for over 4 yrs now, since the Scleroderma > hit in Nov 06. We shall see what happens. I'll keep you posted. > Prayers coming your way for ....sure hope they find a way to get him > > motivated to enjoy life again. > > <<sent DH to buy a bear of his own. He came home with an > adorable bear that he'd chosen, dressed in a Phillies t-shirt...and wants > nothing to do with it! Ugh.>> > > ....sounds like Gareth.....just HAD to have that TV for HIS bedroom > wall and won't watch it!!! > > Take care, Everyone. > Margaret > > Quote Link to comment Share on other sites More sharing options...
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