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Re: Lack of Bowel Tone?

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I have often said that the reason my son was not trained for bowel ws

because he had poor muscle INFORMATION = I don't know if that is the same

thing as muscle tone. I believe he did not get messages that he NEEDED to

go. This especially came to mind since he was trained for voiding (actually

trained himself) before hew as five. But bowel trained to the point that he

could say he needed to use the rest room or go himself did not occur until

age 15. Now I wonder if core muscle training along with the timed toileting

(which we did) might have not improved his ability for his brain to receive

messages. So many questions - so few answers.

On Thu, Jan 20, 2011 at 11:29 AM, agirlnamedsuess21 <

agirlnamedsuess@...> wrote:

>

>

> I hope this is not TMI to post here, but I have a concern that my son's

> inability to make it to the potty to have a bowel movement sometimes (unless

> we take him on a regular schedule and have him sit for 15-20 minutes at a

> time) may be related to lack of muscle tone in the rectal area. He has never

> had any outward signs of poor muscle tone at all.

> But we have noticed (his entire life) that he has what *appears* to be a

> rather large opening at the anal opening. I never really thought about it

> until this morning and it does appear that the reason this might be is

> because there is no muscle tone in the sphincter (you know how you would

> normally see lines around the anal opening which shows you the sphincter has

> good muscle tone? Well, there are not any.)

> If this is common and this is the case, is there anything that can be done

> to resolve the issue? Chances are if there is no muscle tone there, then his

> intestines also lack muscle tone---which is a severe problem that I do not

> know how to solve.

> Thanks for your help and sorry if this was too much information.

>

>

>

>

--

Sara- different pathways lead to Nirvana.

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I recently told my son to tell me when his stomach started hurting like he

needed to take a *dump* (what we call it), which has begundoing, but he still

has accidents. He used to go potty all the time, but maybe it was because we

were taking him every hour and sitting him there until he went and we knew he

goes religiously every morning and if not, then he goes after lunch.

His bowel falls apart sometimes (a lot of times) and is not formed; wouldn't

this be lack of good motility within his intestines?

I know the GFCF diet has improved his bowel function, but maybe that is because

it lightened the load on his intestines?

>

> >

> >

> > I hope this is not TMI to post here, but I have a concern that my son's

> > inability to make it to the potty to have a bowel movement sometimes (unless

> > we take him on a regular schedule and have him sit for 15-20 minutes at a

> > time) may be related to lack of muscle tone in the rectal area. He has never

> > had any outward signs of poor muscle tone at all.

> > But we have noticed (his entire life) that he has what *appears* to be a

> > rather large opening at the anal opening. I never really thought about it

> > until this morning and it does appear that the reason this might be is

> > because there is no muscle tone in the sphincter (you know how you would

> > normally see lines around the anal opening which shows you the sphincter has

> > good muscle tone? Well, there are not any.)

> > If this is common and this is the case, is there anything that can be done

> > to resolve the issue? Chances are if there is no muscle tone there, then his

> > intestines also lack muscle tone---which is a severe problem that I do not

> > know how to solve.

> > Thanks for your help and sorry if this was too much information.

> >

> >

> >

> >

>

>

>

> --

> Sara- different pathways lead to Nirvana.

>

>

>

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My son has that too; he has overall low muscle tone and sometime has a wide anal

opening. He also has a high pain tolerance and never seems to know when he has

to pee or poop.

Beth

Sent from my iPhone

On Jan 20, 2011, at 11:29 AM, " agirlnamedsuess21 "

wrote:

> I hope this is not TMI to post here, but I have a concern that my son's

inability to make it to the potty to have a bowel movement sometimes (unless we

take him on a regular schedule and have him sit for 15-20 minutes at a time) may

be related to lack of muscle tone in the rectal area. He has never had any

outward signs of poor muscle tone at all.

> But we have noticed (his entire life) that he has what *appears* to be a

rather large opening at the anal opening. I never really thought about it until

this morning and it does appear that the reason this might be is because there

is no muscle tone in the sphincter (you know how you would normally see lines

around the anal opening which shows you the sphincter has good muscle tone?

Well, there are not any.)

> If this is common and this is the case, is there anything that can be done to

resolve the issue? Chances are if there is no muscle tone there, then his

intestines also lack muscle tone---which is a severe problem that I do not know

how to solve.

> Thanks for your help and sorry if this was too much information.

>

>

>

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What can we do about this to help our kids?

>

> > I hope this is not TMI to post here, but I have a concern that my son's

inability to make it to the potty to have a bowel movement sometimes (unless we

take him on a regular schedule and have him sit for 15-20 minutes at a time) may

be related to lack of muscle tone in the rectal area. He has never had any

outward signs of poor muscle tone at all.

> > But we have noticed (his entire life) that he has what *appears* to be a

rather large opening at the anal opening. I never really thought about it until

this morning and it does appear that the reason this might be is because there

is no muscle tone in the sphincter (you know how you would normally see lines

around the anal opening which shows you the sphincter has good muscle tone?

Well, there are not any.)

> > If this is common and this is the case, is there anything that can be done

to resolve the issue? Chances are if there is no muscle tone there, then his

intestines also lack muscle tone---which is a severe problem that I do not know

how to solve.

> > Thanks for your help and sorry if this was too much information.

> >

> >

> >

>

>

>

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My solution was increased bulk - vegetables and complex grains and

exercise. Walking seemed to work the best.

On Thu, Jan 20, 2011 at 12:53 PM, agirlnamedsuess21 <

agirlnamedsuess@...> wrote:

>

>

> What can we do about this to help our kids?

>

>

>

> >

> > > I hope this is not TMI to post here, but I have a concern that my son's

> inability to make it to the potty to have a bowel movement sometimes (unless

> we take him on a regular schedule and have him sit for 15-20 minutes at a

> time) may be related to lack of muscle tone in the rectal area. He has never

> had any outward signs of poor muscle tone at all.

> > > But we have noticed (his entire life) that he has what *appears* to be

> a rather large opening at the anal opening. I never really thought about it

> until this morning and it does appear that the reason this might be is

> because there is no muscle tone in the sphincter (you know how you would

> normally see lines around the anal opening which shows you the sphincter has

> good muscle tone? Well, there are not any.)

> > > If this is common and this is the case, is there anything that can be

> done to resolve the issue? Chances are if there is no muscle tone there,

> then his intestines also lack muscle tone---which is a severe problem that I

> do not know how to solve.

> > > Thanks for your help and sorry if this was too much information.

> > >

> > >

> > >

> >

> >

> >

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Also a little footstool under his feet when he sits on the toilet helps with the

pushing.

Sent on the TELUS Mobility network with BlackBerry

Re: Re: Lack of Bowel Tone?

My solution was increased bulk - vegetables and complex grains and

exercise. Walking seemed to work the best.

On Thu, Jan 20, 2011 at 12:53 PM, agirlnamedsuess21 <

agirlnamedsuess@...> wrote:

>

>

> What can we do about this to help our kids?

>

>

>

> >

> > > I hope this is not TMI to post here, but I have a concern that my son's

> inability to make it to the potty to have a bowel movement sometimes (unless

> we take him on a regular schedule and have him sit for 15-20 minutes at a

> time) may be related to lack of muscle tone in the rectal area. He has never

> had any outward signs of poor muscle tone at all.

> > > But we have noticed (his entire life) that he has what *appears* to be

> a rather large opening at the anal opening. I never really thought about it

> until this morning and it does appear that the reason this might be is

> because there is no muscle tone in the sphincter (you know how you would

> normally see lines around the anal opening which shows you the sphincter has

> good muscle tone? Well, there are not any.)

> > > If this is common and this is the case, is there anything that can be

> done to resolve the issue? Chances are if there is no muscle tone there,

> then his intestines also lack muscle tone---which is a severe problem that I

> do not know how to solve.

> > > Thanks for your help and sorry if this was too much information.

> > >

> > >

> > >

> >

> >

> >

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Down syndrome increases the risk of Hirschsprung's disease, in which the nerve

cells that control the function of the lower part of the colon are not present.

This results in severe constipation. We had our son tested for Hirschsprung's

disease by way of a rectal biopsy (no fun!). You might want to see a

gastrointestinal specialist to have this ruled out.

~Bonnie

>

> I hope this is not TMI to post here, but I have a concern that my son's

inability to make it to the potty to have a bowel movement sometimes (unless we

take him on a regular schedule and have him sit for 15-20 minutes at a time) may

be related to lack of muscle tone in the rectal area. He has never had any

outward signs of poor muscle tone at all.

> But we have noticed (his entire life) that he has what *appears* to be a

rather large opening at the anal opening. I never really thought about it until

this morning and it does appear that the reason this might be is because there

is no muscle tone in the sphincter (you know how you would normally see lines

around the anal opening which shows you the sphincter has good muscle tone?

Well, there are not any.)

> If this is common and this is the case, is there anything that can be done to

resolve the issue? Chances are if there is no muscle tone there, then his

intestines also lack muscle tone---which is a severe problem that I do not know

how to solve.

> Thanks for your help and sorry if this was too much information.

>

>

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There is no problem pushing once he is sitting on the potty. The proble, other

than what I mentioned, is he is going in his pull-up (sometimes) and not running

to the bathroom.

> > >

> > > > I hope this is not TMI to post here, but I have a concern that my son's

> > inability to make it to the potty to have a bowel movement sometimes (unless

> > we take him on a regular schedule and have him sit for 15-20 minutes at a

> > time) may be related to lack of muscle tone in the rectal area. He has never

> > had any outward signs of poor muscle tone at all.

> > > > But we have noticed (his entire life) that he has what *appears* to be

> > a rather large opening at the anal opening. I never really thought about it

> > until this morning and it does appear that the reason this might be is

> > because there is no muscle tone in the sphincter (you know how you would

> > normally see lines around the anal opening which shows you the sphincter has

> > good muscle tone? Well, there are not any.)

> > > > If this is common and this is the case, is there anything that can be

> > done to resolve the issue? Chances are if there is no muscle tone there,

> > then his intestines also lack muscle tone---which is a severe problem that I

> > do not know how to solve.

> > > > Thanks for your help and sorry if this was too much information.

> > > >

> > > >

> > > >

> > >

> > >

> > >

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He goes everyday and sometimes more than once a day, but I am real worried about

there being a larger than normal opening where there should be a tight

sphincter. I think that may be the problem, along with motility issues in his

intestines.

> > >

> > > > I hope this is not TMI to post here, but I have a concern that my son's

> > inability to make it to the potty to have a bowel movement sometimes (unless

> > we take him on a regular schedule and have him sit for 15-20 minutes at a

> > time) may be related to lack of muscle tone in the rectal area. He has never

> > had any outward signs of poor muscle tone at all.

> > > > But we have noticed (his entire life) that he has what *appears* to be

> > a rather large opening at the anal opening. I never really thought about it

> > until this morning and it does appear that the reason this might be is

> > because there is no muscle tone in the sphincter (you know how you would

> > normally see lines around the anal opening which shows you the sphincter has

> > good muscle tone? Well, there are not any.)

> > > > If this is common and this is the case, is there anything that can be

> > done to resolve the issue? Chances are if there is no muscle tone there,

> > then his intestines also lack muscle tone---which is a severe problem that I

> > do not know how to solve.

> > > > Thanks for your help and sorry if this was too much information.

> > > >

> > > >

> > > >

> > >

> > >

> > >

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Also, he exercises (runs and jumps, etc...) a lot (no problems there).

He eats very well....no issues there, either.

> > >

> > > > I hope this is not TMI to post here, but I have a concern that my son's

> > inability to make it to the potty to have a bowel movement sometimes (unless

> > we take him on a regular schedule and have him sit for 15-20 minutes at a

> > time) may be related to lack of muscle tone in the rectal area. He has never

> > had any outward signs of poor muscle tone at all.

> > > > But we have noticed (his entire life) that he has what *appears* to be

> > a rather large opening at the anal opening. I never really thought about it

> > until this morning and it does appear that the reason this might be is

> > because there is no muscle tone in the sphincter (you know how you would

> > normally see lines around the anal opening which shows you the sphincter has

> > good muscle tone? Well, there are not any.)

> > > > If this is common and this is the case, is there anything that can be

> > done to resolve the issue? Chances are if there is no muscle tone there,

> > then his intestines also lack muscle tone---which is a severe problem that I

> > do not know how to solve.

> > > > Thanks for your help and sorry if this was too much information.

> > > >

> > > >

> > > >

> > >

> > >

> > >

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He is definitely not constipated. He goes. But i think he has no muscle tone

there. Would Hirschsprung's cause lack of muscle tone due to lack of nerve

cells? Since he has speech apraxia, which is neurological, nerves may be a

culprit. (But I cannot put a TENS machine on his rectum or intestines....sigh).

Would a GI doctor be the appropriate person for this or would I need some sort

of other doctor?

> >

> > I hope this is not TMI to post here, but I have a concern that my son's

inability to make it to the potty to have a bowel movement sometimes (unless we

take him on a regular schedule and have him sit for 15-20 minutes at a time) may

be related to lack of muscle tone in the rectal area. He has never had any

outward signs of poor muscle tone at all.

> > But we have noticed (his entire life) that he has what *appears* to be a

rather large opening at the anal opening. I never really thought about it until

this morning and it does appear that the reason this might be is because there

is no muscle tone in the sphincter (you know how you would normally see lines

around the anal opening which shows you the sphincter has good muscle tone?

Well, there are not any.)

> > If this is common and this is the case, is there anything that can be done

to resolve the issue? Chances are if there is no muscle tone there, then his

intestines also lack muscle tone---which is a severe problem that I do not know

how to solve.

> > Thanks for your help and sorry if this was too much information.

> >

> >

>

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We got rid of pull ups so that if Elie couldn't tell he NEEDED to go at

least he would learn that he HAD GONE and was dirty. That worked. Meant

years of extra laundry with sometimes 2 qccidents a day at school. Bought

lots of white underwear and bleach! Sent extra sets of clothes to school

for years.

He learned quickly that he didn't like being dirty and would tell someone -

if they hadn't guessed from the odor.

On Thu, Jan 20, 2011 at 5:27 PM, agirlnamedsuess21 <

agirlnamedsuess@...> wrote:

>

>

> There is no problem pushing once he is sitting on the potty. The proble,

> other than what I mentioned, is he is going in his pull-up (sometimes) and

> not running to the bathroom.

>

>

>

> > > >

> > > > > I hope this is not TMI to post here, but I have a concern that my

> son's

> > > inability to make it to the potty to have a bowel movement sometimes

> (unless

> > > we take him on a regular schedule and have him sit for 15-20 minutes at

> a

> > > time) may be related to lack of muscle tone in the rectal area. He has

> never

> > > had any outward signs of poor muscle tone at all.

> > > > > But we have noticed (his entire life) that he has what *appears* to

> be

> > > a rather large opening at the anal opening. I never really thought

> about it

> > > until this morning and it does appear that the reason this might be is

> > > because there is no muscle tone in the sphincter (you know how you

> would

> > > normally see lines around the anal opening which shows you the

> sphincter has

> > > good muscle tone? Well, there are not any.)

> > > > > If this is common and this is the case, is there anything that can

> be

> > > done to resolve the issue? Chances are if there is no muscle tone

> there,

> > > then his intestines also lack muscle tone---which is a severe problem

> that I

> > > do not know how to solve.

> > > > > Thanks for your help and sorry if this was too much information.

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > >

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We did go to a gi doc. He showed me an xray which showed backed up bowel

(altho Elie was going 2-3 times a day. He wanted a total cleanse of the

bowel. SSince that would have entailed restraints to do the enemas, I

declined and increased fiber insted - which worked.

The GI doc is the one to dx Hirschsprungs

On Thu, Jan 20, 2011 at 5:34 PM, agirlnamedsuess21 <

agirlnamedsuess@...> wrote:

>

>

> He is definitely not constipated. He goes. But i think he has no muscle

> tone there. Would Hirschsprung's cause lack of muscle tone due to lack of

> nerve cells? Since he has speech apraxia, which is neurological, nerves may

> be a culprit. (But I cannot put a TENS machine on his rectum or

> intestines....sigh).

> Would a GI doctor be the appropriate person for this or would I need some

> sort of other doctor?

>

>

> > >

> > > I hope this is not TMI to post here, but I have a concern that my son's

> inability to make it to the potty to have a bowel movement sometimes (unless

> we take him on a regular schedule and have him sit for 15-20 minutes at a

> time) may be related to lack of muscle tone in the rectal area. He has never

> had any outward signs of poor muscle tone at all.

> > > But we have noticed (his entire life) that he has what *appears* to be

> a rather large opening at the anal opening. I never really thought about it

> until this morning and it does appear that the reason this might be is

> because there is no muscle tone in the sphincter (you know how you would

> normally see lines around the anal opening which shows you the sphincter has

> good muscle tone? Well, there are not any.)

> > > If this is common and this is the case, is there anything that can be

> done to resolve the issue? Chances are if there is no muscle tone there,

> then his intestines also lack muscle tone---which is a severe problem that I

> do not know how to solve.

> > > Thanks for your help and sorry if this was too much information.

> > >

> > >

> >

>

>

>

--

Sara- different pathways lead to Nirvana.

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We tried that, but have ruined carpet in two houses that way.

Even when he goes in his pull up and it is running down his legs, he will still

sometimes sit there. Occasionally, he will come to us at that point and tell us.

Sitting in a wet or poopy pullup that is dripping does not bother him.

> > > > >

> > > > > > I hope this is not TMI to post here, but I have a concern that my

> > son's

> > > > inability to make it to the potty to have a bowel movement sometimes

> > (unless

> > > > we take him on a regular schedule and have him sit for 15-20 minutes at

> > a

> > > > time) may be related to lack of muscle tone in the rectal area. He has

> > never

> > > > had any outward signs of poor muscle tone at all.

> > > > > > But we have noticed (his entire life) that he has what *appears* to

> > be

> > > > a rather large opening at the anal opening. I never really thought

> > about it

> > > > until this morning and it does appear that the reason this might be is

> > > > because there is no muscle tone in the sphincter (you know how you

> > would

> > > > normally see lines around the anal opening which shows you the

> > sphincter has

> > > > good muscle tone? Well, there are not any.)

> > > > > > If this is common and this is the case, is there anything that can

> > be

> > > > done to resolve the issue? Chances are if there is no muscle tone

> > there,

> > > > then his intestines also lack muscle tone---which is a severe problem

> > that I

> > > > do not know how to solve.

> > > > > > Thanks for your help and sorry if this was too much information.

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

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I will admit that we got rid of the carpets and put lino down because of the

mess. Owned stock in Resolve at one time.

On Thu, Jan 20, 2011 at 5:44 PM, agirlnamedsuess21 <

agirlnamedsuess@...> wrote:

>

>

> We tried that, but have ruined carpet in two houses that way.

> Even when he goes in his pull up and it is running down his legs, he will

> still sometimes sit there. Occasionally, he will come to us at that point

> and tell us.

> Sitting in a wet or poopy pullup that is dripping does not bother him.

>

>

>

> > > > > >

> > > > > > > I hope this is not TMI to post here, but I have a concern that

> my

> > > son's

> > > > > inability to make it to the potty to have a bowel movement

> sometimes

> > > (unless

> > > > > we take him on a regular schedule and have him sit for 15-20

> minutes at

> > > a

> > > > > time) may be related to lack of muscle tone in the rectal area. He

> has

> > > never

> > > > > had any outward signs of poor muscle tone at all.

> > > > > > > But we have noticed (his entire life) that he has what

> *appears* to

> > > be

> > > > > a rather large opening at the anal opening. I never really thought

> > > about it

> > > > > until this morning and it does appear that the reason this might be

> is

> > > > > because there is no muscle tone in the sphincter (you know how you

> > > would

> > > > > normally see lines around the anal opening which shows you the

> > > sphincter has

> > > > > good muscle tone? Well, there are not any.)

> > > > > > > If this is common and this is the case, is there anything that

> can

> > > be

> > > > > done to resolve the issue? Chances are if there is no muscle tone

> > > there,

> > > > > then his intestines also lack muscle tone---which is a severe

> problem

> > > that I

> > > > > do not know how to solve.

> > > > > > > Thanks for your help and sorry if this was too much

> information.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

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Did he have to do barium xray or just a simple xray?

He does go, usually once (maybe twice a day) and shows no overt signs of

constipation at all.

He eats really well, lots of fiber, lots of everything.

Would Hirschsprungs cause a loose sphincter? (I do not think the opening is

stretched out from, for instance, constipated bowel. It has ALWAYS been that

way...from birth, I guess. It only recently started bothering me.)

> > > >

> > > > I hope this is not TMI to post here, but I have a concern that my son's

> > inability to make it to the potty to have a bowel movement sometimes (unless

> > we take him on a regular schedule and have him sit for 15-20 minutes at a

> > time) may be related to lack of muscle tone in the rectal area. He has never

> > had any outward signs of poor muscle tone at all.

> > > > But we have noticed (his entire life) that he has what *appears* to be

> > a rather large opening at the anal opening. I never really thought about it

> > until this morning and it does appear that the reason this might be is

> > because there is no muscle tone in the sphincter (you know how you would

> > normally see lines around the anal opening which shows you the sphincter has

> > good muscle tone? Well, there are not any.)

> > > > If this is common and this is the case, is there anything that can be

> > done to resolve the issue? Chances are if there is no muscle tone there,

> > then his intestines also lack muscle tone---which is a severe problem that I

> > do not know how to solve.

> > > > Thanks for your help and sorry if this was too much information.

> > > >

> > > >

> > >

> >

> >

> >

>

>

>

> --

> Sara- different pathways lead to Nirvana.

>

>

>

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LOL...yeah, but we rent and my mother (who we rent from) would have a

COW.....She already won't replace the carpet that is in here with hardwoods. We

have asked.

> > > > > > >

> > > > > > > > I hope this is not TMI to post here, but I have a concern that

> > my

> > > > son's

> > > > > > inability to make it to the potty to have a bowel movement

> > sometimes

> > > > (unless

> > > > > > we take him on a regular schedule and have him sit for 15-20

> > minutes at

> > > > a

> > > > > > time) may be related to lack of muscle tone in the rectal area. He

> > has

> > > > never

> > > > > > had any outward signs of poor muscle tone at all.

> > > > > > > > But we have noticed (his entire life) that he has what

> > *appears* to

> > > > be

> > > > > > a rather large opening at the anal opening. I never really thought

> > > > about it

> > > > > > until this morning and it does appear that the reason this might be

> > is

> > > > > > because there is no muscle tone in the sphincter (you know how you

> > > > would

> > > > > > normally see lines around the anal opening which shows you the

> > > > sphincter has

> > > > > > good muscle tone? Well, there are not any.)

> > > > > > > > If this is common and this is the case, is there anything that

> > can

> > > > be

> > > > > > done to resolve the issue? Chances are if there is no muscle tone

> > > > there,

> > > > > > then his intestines also lack muscle tone---which is a severe

> > problem

> > > > that I

> > > > > > do not know how to solve.

> > > > > > > > Thanks for your help and sorry if this was too much

> > information.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

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Elie only had a simple stand up abd xray. It was obvious that there was a

full bowel. The doc claimed that the reason for the cow flops was simply

over flow. I don't agree and never did. There was no diarrhea, just soft

stool - like what one sees in a cow pasture. That is not diarrhea.

On Thu, Jan 20, 2011 at 5:47 PM, agirlnamedsuess21 <

agirlnamedsuess@...> wrote:

>

>

> Did he have to do barium xray or just a simple xray?

> He does go, usually once (maybe twice a day) and shows no overt signs of

> constipation at all.

> He eats really well, lots of fiber, lots of everything.

> Would Hirschsprungs cause a loose sphincter? (I do not think the opening is

> stretched out from, for instance, constipated bowel. It has ALWAYS been that

> way...from birth, I guess. It only recently started bothering me.)

>

>

>

>

> > > > >

> > > > > I hope this is not TMI to post here, but I have a concern that my

> son's

> > > inability to make it to the potty to have a bowel movement sometimes

> (unless

> > > we take him on a regular schedule and have him sit for 15-20 minutes at

> a

> > > time) may be related to lack of muscle tone in the rectal area. He has

> never

> > > had any outward signs of poor muscle tone at all.

> > > > > But we have noticed (his entire life) that he has what *appears* to

> be

> > > a rather large opening at the anal opening. I never really thought

> about it

> > > until this morning and it does appear that the reason this might be is

> > > because there is no muscle tone in the sphincter (you know how you

> would

> > > normally see lines around the anal opening which shows you the

> sphincter has

> > > good muscle tone? Well, there are not any.)

> > > > > If this is common and this is the case, is there anything that can

> be

> > > done to resolve the issue? Chances are if there is no muscle tone

> there,

> > > then his intestines also lack muscle tone---which is a severe problem

> that I

> > > do not know how to solve.

> > > > > Thanks for your help and sorry if this was too much information.

> > > > >

> > > > >

> > > >

> > >

> > >

> > >

> >

> >

> >

> > --

> > Sara- different pathways lead to Nirvana.

> >

> >

> >

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Cow flops? (I do not understand the terminology)

I am still not getting it. if he is not constipated and the issue is (at least

from what I can *see*) an abnormal sphincter (sphincters are normally closed

shut until the muscle operates to open it and his seems to be the size of a

quarter open), then how would this relate to Hirschsprungs? I am not saying it

is not, but when I looked up Hirschprungs, it seemed to fit my other son's

chronic constipation issues rather than this son's abnormal sphincter.

Am I just not getting the whole picture? (sigh)

> > > > > >

> > > > > > I hope this is not TMI to post here, but I have a concern that my

> > son's

> > > > inability to make it to the potty to have a bowel movement sometimes

> > (unless

> > > > we take him on a regular schedule and have him sit for 15-20 minutes at

> > a

> > > > time) may be related to lack of muscle tone in the rectal area. He has

> > never

> > > > had any outward signs of poor muscle tone at all.

> > > > > > But we have noticed (his entire life) that he has what *appears* to

> > be

> > > > a rather large opening at the anal opening. I never really thought

> > about it

> > > > until this morning and it does appear that the reason this might be is

> > > > because there is no muscle tone in the sphincter (you know how you

> > would

> > > > normally see lines around the anal opening which shows you the

> > sphincter has

> > > > good muscle tone? Well, there are not any.)

> > > > > > If this is common and this is the case, is there anything that can

> > be

> > > > done to resolve the issue? Chances are if there is no muscle tone

> > there,

> > > > then his intestines also lack muscle tone---which is a severe problem

> > that I

> > > > do not know how to solve.

> > > > > > Thanks for your help and sorry if this was too much information.

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > > --

> > > Sara- different pathways lead to Nirvana.

> > >

> > >

> > >

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Cow flops - go out in a cow pasture and look at the mound which cows leave .

Because it is 92% moisture it mounds rather than makes the usual human bowel

shape.

On Thu, Jan 20, 2011 at 6:31 PM, agirlnamedsuess21 <

agirlnamedsuess@...> wrote:

>

>

> Cow flops? (I do not understand the terminology)

> I am still not getting it. if he is not constipated and the issue is (at

> least from what I can *see*) an abnormal sphincter (sphincters are normally

> closed shut until the muscle operates to open it and his seems to be the

> size of a quarter open), then how would this relate to Hirschsprungs? I am

> not saying it is not, but when I looked up Hirschprungs, it seemed to fit my

> other son's chronic constipation issues rather than this son's abnormal

> sphincter.

> Am I just not getting the whole picture? (sigh)

>

>

>

>

> > > > > > >

> > > > > > > I hope this is not TMI to post here, but I have a concern that

> my

> > > son's

> > > > > inability to make it to the potty to have a bowel movement

> sometimes

> > > (unless

> > > > > we take him on a regular schedule and have him sit for 15-20

> minutes at

> > > a

> > > > > time) may be related to lack of muscle tone in the rectal area. He

> has

> > > never

> > > > > had any outward signs of poor muscle tone at all.

> > > > > > > But we have noticed (his entire life) that he has what

> *appears* to

> > > be

> > > > > a rather large opening at the anal opening. I never really thought

> > > about it

> > > > > until this morning and it does appear that the reason this might be

> is

> > > > > because there is no muscle tone in the sphincter (you know how you

> > > would

> > > > > normally see lines around the anal opening which shows you the

> > > sphincter has

> > > > > good muscle tone? Well, there are not any.)

> > > > > > > If this is common and this is the case, is there anything that

> can

> > > be

> > > > > done to resolve the issue? Chances are if there is no muscle tone

> > > there,

> > > > > then his intestines also lack muscle tone---which is a severe

> problem

> > > that I

> > > > > do not know how to solve.

> > > > > > > Thanks for your help and sorry if this was too much

> information.

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > >

> > > > --

> > > > Sara- different pathways lead to Nirvana.

> > > >

> > > >

> > > >

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oh...lol...sorry, I have only lived out here near farmland for two years. Most

of Charlie Hart's bowels have human shape, but some tend to fall apart still

with shape, though). I would not characterize my son's poop as looking like Cow

Flops; so, maybe, that is not it. i will still ask, though.

> > > > > > > >

> > > > > > > > I hope this is not TMI to post here, but I have a concern that

> > my

> > > > son's

> > > > > > inability to make it to the potty to have a bowel movement

> > sometimes

> > > > (unless

> > > > > > we take him on a regular schedule and have him sit for 15-20

> > minutes at

> > > > a

> > > > > > time) may be related to lack of muscle tone in the rectal area. He

> > has

> > > > never

> > > > > > had any outward signs of poor muscle tone at all.

> > > > > > > > But we have noticed (his entire life) that he has what

> > *appears* to

> > > > be

> > > > > > a rather large opening at the anal opening. I never really thought

> > > > about it

> > > > > > until this morning and it does appear that the reason this might be

> > is

> > > > > > because there is no muscle tone in the sphincter (you know how you

> > > > would

> > > > > > normally see lines around the anal opening which shows you the

> > > > sphincter has

> > > > > > good muscle tone? Well, there are not any.)

> > > > > > > > If this is common and this is the case, is there anything that

> > can

> > > > be

> > > > > > done to resolve the issue? Chances are if there is no muscle tone

> > > > there,

> > > > > > then his intestines also lack muscle tone---which is a severe

> > problem

> > > > that I

> > > > > > do not know how to solve.

> > > > > > > > Thanks for your help and sorry if this was too much

> > information.

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > > --

> > > > > Sara- different pathways lead to Nirvana.

> > > > >

> > > > >

> > > > >

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Share on other sites

My son (14yo) has chronic constipation because of how muscle tone which lets

him 'accumulate' and eventually leak BM. Our gastro specialist at Stanford

taught us to make sure his fiber/fluid intake is sufficient to make the BM

easy to pass. We use Miralax to help and suppositories to make him empty

completely and avoid leakage.

When he was about 9yo, they did a test to see if his spinchter muscles work

and they do. (sorry I forgot the name of the procedure). Low muscle tone is

the culprit with this issue.

On Thu, Jan 20, 2011 at 8:29 AM, agirlnamedsuess21 <

agirlnamedsuess@...> wrote:

>

>

> I hope this is not TMI to post here, but I have a concern that my son's

> inability to make it to the potty to have a bowel movement sometimes (unless

> we take him on a regular schedule and have him sit for 15-20 minutes at a

> time) may be related to lack of muscle tone in the rectal area. He has never

> had any outward signs of poor muscle tone at all.

> But we have noticed (his entire life) that he has what *appears* to be a

> rather large opening at the anal opening. I never really thought about it

> until this morning and it does appear that the reason this might be is

> because there is no muscle tone in the sphincter (you know how you would

> normally see lines around the anal opening which shows you the sphincter has

> good muscle tone? Well, there are not any.)

> If this is common and this is the case, is there anything that can be done

> to resolve the issue? Chances are if there is no muscle tone there, then his

> intestines also lack muscle tone---which is a severe problem that I do not

> know how to solve.

> Thanks for your help and sorry if this was too much information.

>

>

>

>

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Share on other sites

At times, he seems to go too easily. Most times actually, whether it is formed

or semi-formed. I personally think my son drinks too much fluid and eats too

much fiber (maybe contributing to his easy going bowels). We have tried, through

the years, to ensure my son gets plenty of fluids due to his asthma condition,

which has helped. In turn, we may have created another problem (going too

often).

Good news is we have an appointment in February. I have to drive a ways to

Atlanta, but the closer satellite office was a wait until March. I really do not

want to wait until March.

It has been really difficult getting the cooperation of his pediatricians to get

an appointment. You would think his diagnosis of Down Sydnrome would be no

problem getting a referral to a GI right away...but it has been hell for 7 years

getting a referral anywhere for my son. Sad but true. I have had it with

pediatricians.

>

> >

> >

> > I hope this is not TMI to post here, but I have a concern that my son's

> > inability to make it to the potty to have a bowel movement sometimes (unless

> > we take him on a regular schedule and have him sit for 15-20 minutes at a

> > time) may be related to lack of muscle tone in the rectal area. He has never

> > had any outward signs of poor muscle tone at all.

> > But we have noticed (his entire life) that he has what *appears* to be a

> > rather large opening at the anal opening. I never really thought about it

> > until this morning and it does appear that the reason this might be is

> > because there is no muscle tone in the sphincter (you know how you would

> > normally see lines around the anal opening which shows you the sphincter has

> > good muscle tone? Well, there are not any.)

> > If this is common and this is the case, is there anything that can be done

> > to resolve the issue? Chances are if there is no muscle tone there, then his

> > intestines also lack muscle tone---which is a severe problem that I do not

> > know how to solve.

> > Thanks for your help and sorry if this was too much information.

> >

> >

> >

> >

>

>

>

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