s Staffing/Charlyne/Irene

[Guest guest]

To: Charlyne,

's staffing went well and the months ahead will have some changes to

best meet 's needs. It is so great to work with 's Home Director

and Behavior Specialist specifically; the staff from Residential and

Vocational also gave some helpful input. Also in attendance was his case

worker from the organization the Dept of Mental Health has oversee state

programs and our daug Jean. Sometimes both our daug's come to the staffing

or one or the other one as their time permits. Andy DH was able to try out

his new hearing aid in a meeting and it went well for him. Plans are for

Andy to repair a hole in 's room from the door knob and paint over

's artistic markers on the wall with our daug 's help. During one

of the times Andy is there I plan to go through 's clothes, books etc

and get rid of some things and bring back to our house clothes. He takes

them to his house and I have to get some back and then there is stuff he

doesn't need.

's Behavior Specialist will be presenting to the psychiatrist our

combined thoughts on decreasing again a med that can cause swallowing

problems (Seroquel) and deciding if the Abilify should be increased. I will

just happen to be there as I help with the psychiatrist clinic at 's

agency. Before the 24th when he will see the psychiatrist I will be

contacting a pharmacist I know for more specifics on 's meds. The

pharmacist has been helpful in the past to understand the workings of the

meds as far as the neurotransmitters dopamine and serotonin work etc.

I will also be following up again with the speech pathologist re clarifying

one area of her recommendations.

Yes, I guess you could say it just never ends but I find it challenging and

fulfilling when you see how well does when the right things are in

place. Plus when you have a great group of people to work with it helps.

Granted things don't always go well but as you know as you have faced things

often you get through that time. I too get tired and there was a period I

said I don't want to do this any more. It is then with some changes and

relaxation and sometimes a short trip with Andy I get recharged. Of course

a lot of praying and working to keep a positive mind helps. I like Dr

Amen's suggestion to get rid of the ANTS, automatic negative

thoughts. Just tell those ANTS to go away. Check out his site.

http://www.amenclinics.com/ . We will all make it.

To: Irene,

As you see above 's staffing went well. Sounds like your family still

has a lot to deal with. You are lucky to have an understanding hubby, be

sure to take some special time with him. I will be watching how things go

for .

Louise Mom to 48

<http://groups.yahoo.com/group//message/108602;_ylc=X3oDMTJyczMwZjc

5BF9TAzk3MzU5NzE1BGdycElkAzQxMDMwNQRncnBzcElkAzE3MDUwMTM0ODEEbXNnSWQDMTA4NjA

yBHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzEyOTUwOTczNzA-> Re: Our

Posted by: " charlyne1121@... "

<mailto:charlyne1121@...?Subject=%20Re%3A%20Our%20>

charlyne1121@... <http://profiles.yahoo.com/charlyne1121>

charlyne1121

Fri Jan 14, 2011 8:18 am (PST)

Hi Louise,

So sorry to hear that is still having swallowing issues. Good luck with

your staffing meeting. I am counting down the days until Zeb graduates from

HS thinking that all these difficult meetings will end but realistically I

am being to see that it just never ends. Emotionally I am not prepared to do

this for the rest of my life. Please let me know your secret to staying

mentally sane after all these years. You inspire me. I am burnt out!

Charlyne

Mom to Zeb 18 DS

<http://groups.yahoo.com/group//message/108604;_ylc=X3oDMTJybHJqdWh

lBF9TAzk3MzU5NzE1BGdycElkAzQxMDMwNQRncnBzcElkAzE3MDUwMTM0ODEEbXNnSWQDMTA4NjA

0BHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzEyOTUwOTczNzA-> Re: Irene/Our

Posted by: " Irene Diamant "

<mailto:irediamant@...?Subject=%20Re%3A%20Irene%2FOur%20>

irediamant@... <http://profiles.yahoo.com/irediamant> irediamant

Fri Jan 14, 2011 8:51 am (PST)

Hi Louise,

Thanks for your email. I am sorry to hear about 's choking episode.

Poor

guy must have been traumatized.

My parents are hanging in there, but it is definitely taking its toll. My

father has the attitude that keeps them young. My mother is

definitely

burned out and also has many health issues herself. They definitely need

help

in the house, but are reluctant to get it. I have been spending several

days/week there. I'm surprised my husband hasn't divorced me yet!!

Luckily, he

is understanding. And we've only been married two years.

I'm glad that has a good residential situation. Good luck at today's

meeting!

Irene