Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 Hi ALL i HAVE BEEN LURKING for awhile...just wanted to make sure i fit in here...i have thyroid disease,and my current doc is convinced i also have RA or lupus, was told i had fibro myalgia a number of years ago...do not know where to start...my endo told me to see a rheumy...but , i have not done it yet....i am in chronic pain all the time...have the swollen joints(two )in my finger...also have joint and bone pain thru out my body...i am not a wimp,(as i am sure none of you are either)i have been a marthon runner for many years, and a mountain biker....so, you see this hitting home for me too...i am a licensed massage therapist by profession,and my job so far has not been affected,(i have just figured out ways to adjust)--i have been on vioxx,bextra,relafen,celebrex,etc...none of them even took the edge off really,try really hard not to take narcotics very often,but sometimes i have to in order to sleep at all.--oh, and i had iriditis this summer too,anyone had that yet?--please tell me where to begin...thanx, jeanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 Hi Jeanne, I would recommend beginning with trying to get a diagnosis. Without a diagnosis, you can't get effective treatment. If you have RA, all research points to early treatment to prevent damage. All of the meds you've taken so far only treat the symptoms, and do nothing to alter the course of the disease. My best recommendation is to see a rheumy ASAP so you can find out what is going on. Another place to start is educating yourself on RA. I have a website with links to sites that will teach you most anything you want to know: http://rheumatoid.arthritis.freehosting.net/ The link is at the bottom of each email for easy reference. I hope you find out what is going on. a On Sep 30, 2005, at 12:40 AM, jeanne wrote: > Hi ALL i HAVE BEEN LURKING for awhile...just wanted to make sure i > fit in here...i have thyroid disease,and my current doc is convinced > i also have RA or lupus, was told i had fibro myalgia a number of > years ago...do not know where to start...my endo told me to see a > rheumy...but , i have not done it yet....i am in chronic pain all the > time...have the swollen joints(two )in my finger...also have joint > and bone pain thru out my body...i am not a wimp,(as i am sure none > of you are either)i have been a marthon runner for many years, and a > mountain biker....so, you see this hitting home for me too...i am a > licensed massage therapist by profession,and my job so far has not > been affected,(i have just figured out ways to adjust)--i have been > on vioxx,bextra,relafen,celebrex,etc...none of them even took the > edge off really,try really hard not to take narcotics very often,but > sometimes i have to in order to sleep at all.--oh, and i had iriditis > this summer too,anyone had that yet?--please tell me where to > begin...thanx, jeanne > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 Hi Jeanne, I would recommend beginning with trying to get a diagnosis. Without a diagnosis, you can't get effective treatment. If you have RA, all research points to early treatment to prevent damage. All of the meds you've taken so far only treat the symptoms, and do nothing to alter the course of the disease. My best recommendation is to see a rheumy ASAP so you can find out what is going on. Another place to start is educating yourself on RA. I have a website with links to sites that will teach you most anything you want to know: http://rheumatoid.arthritis.freehosting.net/ The link is at the bottom of each email for easy reference. I hope you find out what is going on. a On Sep 30, 2005, at 12:40 AM, jeanne wrote: > Hi ALL i HAVE BEEN LURKING for awhile...just wanted to make sure i > fit in here...i have thyroid disease,and my current doc is convinced > i also have RA or lupus, was told i had fibro myalgia a number of > years ago...do not know where to start...my endo told me to see a > rheumy...but , i have not done it yet....i am in chronic pain all the > time...have the swollen joints(two )in my finger...also have joint > and bone pain thru out my body...i am not a wimp,(as i am sure none > of you are either)i have been a marthon runner for many years, and a > mountain biker....so, you see this hitting home for me too...i am a > licensed massage therapist by profession,and my job so far has not > been affected,(i have just figured out ways to adjust)--i have been > on vioxx,bextra,relafen,celebrex,etc...none of them even took the > edge off really,try really hard not to take narcotics very often,but > sometimes i have to in order to sleep at all.--oh, and i had iriditis > this summer too,anyone had that yet?--please tell me where to > begin...thanx, jeanne > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 Hi Jeanne: Welcome to the group - glad you stopped lurking and joined in on a post. First of all, the medications you have been taking are only masking your symptoms and, if you have RA or lupus, are not doing anything to stop the progression of the disease or destruction of your joints. You need to see a rheumatologist as soon as possible to get an accurate diagnosis - hopefully this can be found out on blood work and physical exam, etc, but sometimes it does take a while to get a diagnosis. Then, if you are found to have either RA or lupus, you will need to start on an aggressive treatment program to try and stop the disease process and joint destruction - for this, you need to be on a DMARD or disease modifying drug, and there are several, so you should be able to find something that will help you. RA or lupus are not diseases to be taken lightly and you need to get the proper treatment started ASAP. Early aggressive treatment has been shown to lessen the chances of disability and deformity of the joints. Thyroid disease is also an autoimmune problem - is it Hashimoto's? Please do not delay getting a diagnosis and getting treatment. Let us know when you do and what the doctor decides to do - best of luck - Kathe in CA --- jeanne <oceangypsey@...> wrote: > Hi ALL i HAVE BEEN LURKING for awhile...just > wanted to make sure i > fit in here...i have thyroid disease,and my current > doc is convinced > i also have RA or lupus, was told i had fibro > myalgia a number of > years ago...do not know where to start...my endo > told me to see a > rheumy...but , i have not done it yet....i am in > chronic pain all the > time...have the swollen joints(two )in my > finger...also have joint > and bone pain thru out my body...i am not a wimp,(as > i am sure none > of you are either)i have been a marthon runner for > many years, and a > mountain biker....so, you see this hitting home for > me too...i am a > licensed massage therapist by profession,and my job > so far has not > been affected,(i have just figured out ways to > adjust)--i have been > on vioxx,bextra,relafen,celebrex,etc...none of them > even took the > edge off really,try really hard not to take > narcotics very often,but > sometimes i have to in order to sleep at all.--oh, > and i had iriditis > this summer too,anyone had that yet?--please tell me > where to > begin...thanx, jeanne > > > > > > Kathe in CA __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
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