Re: Re: I can't get my kid well!

November 30, 2010

Rickettsia (Tic Fever)???? or Lyme Disease?

On Tue, Nov 30, 2010 at 1:04 PM, skypinksunset wrote:

>

> >

> > Okay, advice on something seemingly ordinary. Isaac is not usually sick.

> > He had a bad strep infection once when he was 5, had the red rash and

> > everything. Since then a few sinus infections. not many. But this fall I

> > can't get him well. The doctor has tested him for mono, strep and a UTI.

> > His blood work shows some kind of infection but we can't find it. He is

> > home at least once a week. The whole family got stuffy noses over

> > Thanksgiving but we all had lots of vitamin C and went about our business

> > yesterday. I sent Isaac to school and he had big problems (he wanted his

> > own box of tissues and the teacher would not let him have them so he

> called

> > the teacher an asshole). I am keeping him home today. Tried to get the

> > school to see that his reactions was extreme and not typically Isaac but

> of

> > course there will be big consequences for this. So here the rest of us

> are

> > getting over our colds and Isaac has a fever. The strep test was done 4

> > days ago so I can't take him back yet. But he has had a fever (on and

> off)

> > and been out of sorts since September. The doctor said to think mono even

> > though he did not test positive for mono. She said that some kids just

> get

> > viral infections that take as long as mono. However, we are now well past

> > the 6 week mark for a mono like illness.

> >

> > Anyone have a magic pill?

> >

> > Lori

> >

> > Mom to Isaac 13, and Tony 11

> >

November 30, 2010

Is there a test for this?

_____

From: [mailto: ] On Behalf

Of Sara Cohen

Sent: Tuesday, November 30, 2010 2:07 PM

To:

Subject: Re: Re: I can't get my kid well!

Rickettsia (Tic Fever)???? or Lyme Disease?

On Tue, Nov 30, 2010 at 1:04 PM, skypinksunset <skypinksunset@...

<mailto:skypinksunset%40yahoo.com> >wrote:

>

> >

> > Okay, advice on something seemingly ordinary. Isaac is not usually sick.

> > He had a bad strep infection once when he was 5, had the red rash and

> > everything. Since then a few sinus infections. not many. But this fall I

> > can't get him well. The doctor has tested him for mono, strep and a UTI.

> > His blood work shows some kind of infection but we can't find it. He is

> > home at least once a week. The whole family got stuffy noses over

> > Thanksgiving but we all had lots of vitamin C and went about our

business

> > yesterday. I sent Isaac to school and he had big problems (he wanted his

> > own box of tissues and the teacher would not let him have them so he

> called

> > the teacher an asshole). I am keeping him home today. Tried to get the

> > school to see that his reactions was extreme and not typically Isaac but

> of

> > course there will be big consequences for this. So here the rest of us

> are

> > getting over our colds and Isaac has a fever. The strep test was done 4

> > days ago so I can't take him back yet. But he has had a fever (on and

> off)

> > and been out of sorts since September. The doctor said to think mono

even

> > though he did not test positive for mono. She said that some kids just

> get

> > viral infections that take as long as mono. However, we are now well

past

> > the 6 week mark for a mono like illness.

> >

> > Anyone have a magic pill?

> >

> > Lori

> >

> > Mom to Isaac 13, and Tony 11

> >

November 30, 2010

Definitely for Lyme!

Sent from my iPhone

> Is there a test for this?

>

> _____

>

> From: [mailto: ] On Behalf

> Of Sara Cohen

> Sent: Tuesday, November 30, 2010 2:07 PM

> To:

> Subject: Re: Re: I can't get my kid well!

>

> Rickettsia (Tic Fever)???? or Lyme Disease?

>

> On Tue, Nov 30, 2010 at 1:04 PM, skypinksunset <skypinksunset@...

> <mailto:skypinksunset%40yahoo.com> >wrote:

>

> >

> > >

> > > Okay, advice on something seemingly ordinary. Isaac is not usually sick.

> > > He had a bad strep infection once when he was 5, had the red rash and

> > > everything. Since then a few sinus infections. not many. But this fall I

> > > can't get him well. The doctor has tested him for mono, strep and a UTI.

> > > His blood work shows some kind of infection but we can't find it. He is

> > > home at least once a week. The whole family got stuffy noses over

> > > Thanksgiving but we all had lots of vitamin C and went about our

> business

> > > yesterday. I sent Isaac to school and he had big problems (he wanted his

> > > own box of tissues and the teacher would not let him have them so he

> > called

> > > the teacher an asshole). I am keeping him home today. Tried to get the

> > > school to see that his reactions was extreme and not typically Isaac but

> > of

> > > course there will be big consequences for this. So here the rest of us

> > are

> > > getting over our colds and Isaac has a fever. The strep test was done 4

> > > days ago so I can't take him back yet. But he has had a fever (on and

> > off)

> > > and been out of sorts since September. The doctor said to think mono

> even

> > > though he did not test positive for mono. She said that some kids just

> > get

> > > viral infections that take as long as mono. However, we are now well

> past

> > > the 6 week mark for a mono like illness.

> > >

> > > Anyone have a magic pill?

> > >

> > > Lori

> > >

> > > Mom to Isaac 13, and Tony 11

> > >

November 30, 2010

Hi Kris:

My kids never throw up either! God forbid they should start. They still

can’t pee into the toilet with any aim and there is still more poop in the

bathroom than I think is necessary. Isaac sometimes doesn’t feel toilet

paper is up to the job so he will go through a whole pile of wash cloths and

leave them laying on the floor. Each and every time I make him take those

washcloths to the basement and put them in a bucket of warm water. He does

as requested and he STILL uses the washcloths when in the mood. Try

explaining this to people with NT kids. This is one of the reasons I’ve

never sent him off to camp.

Read the same article – possibly on this list serve? And we have been using

the dye free Claritin once a day for the stuffy nose. I am trying to

prevent an ear infection. The doctor has checked him twice and said no ear

or sinus infection.

And regarding the school, every time I call DPI they say exactly the same

things we do. They would enthusiastically support me filing a complaint

because he does have a plan they are supposed to follow when he calls a

teacher that word – he never used to do this but they took away all of his

support this year and then they decided to play musical SEAs. No

educational assistant is supposed to be assigned to a student, they rotate

so not only do the teachers not now the IEP but now neither do the SEAs.

Slowly out of desperation (and because I mentioned they were not following

the IEP) they have put an SEA back in his classes but they are rotating SEAs

and so far no one seems to know what is going on. So our problem is that

Isaac doesn’t feel well but just when we think he should be getting better,

off he goes to school and has an “incident” and then suddenly he is sick

again.

I wonder if being anxious can create a fever?

I forgot you guys are in Georgia. I always think you are in Minnesota, I

don’t know why.

Lori

Mom to Isaac 13, and Tony 12

_____

From: [mailto: ] On Behalf

Of kaprisock

Sent: Tuesday, November 30, 2010 3:32 PM

To:

Subject: Re: I can't get my kid well!

Hi Lori,

No majick bullet but I agree with regarding the tissue incident.

On many levels. I do not think the teacher exhibited much sensitivity &

further the school AND teacher needs to get a grip and/or a realistic

comprehension about expectations/rules designed for NT population &

expecting same when working with kiddos with special needs of any kind.

A*hole language is the least of their problems if they actually don't get it

or apply critical thinking skills to the issue(s).

This may not apply to Issac but I read something interesting in health news

the other day. A doctor(s)has been doing double blind study & the data is

showing that children with ear infections treated with antibiotics AND

antihistimines heal faster than those treated with just antibiotic. The docs

feel that all these decades of using antibiotics alone overlooked the

factoid of the sinus cavity & that the ear is part of the sinus cavity. Thus

far the findings make sense to other doctors interviewed that were not

involved in the study.

For some reason I thought of this article when I read your post outlining

all the negatives that came back from labwork. Seems you mentioned

everything but otis media or sinus infection. Perhaps this is something that

your doc might want to re-check for? One can stay chronically ill with

either or both. Heh, I know this how? DJ. Without fever or only like 98.6

(fever for him). He spent years on maintence antibiotics for half the

year-usually starting around Oct/Nov after school had started.

That ended after he was dx'd & placed on maintenance drugs for asthms/RAD

the fall of 6th grade. (hurrah!) Seems to never get even a cold now & never

seems to get sinus/ear infections. Going on 5 years now.

Future forewarning-since DJ entered high school he HAS caught stomach

viruses as well as whatever similar contagious crud of the day is. The

poopy/throw up bugs. It is just wierd because until 9th grade, DJ NEVER had

thrown up or had the poops...I have no idea why but he just never caught any

stomach bugs before high school.

Hugs to you & Issac.

Kris & DJ age 15 in GA

>

> Hi Lori,

>

> It's not a magic pill, but have you tried combining echinacea and zinc

with the

> C. The echinacea helps to boost the immune system while the zinc deters

the

> virus from reproducing. I do oneÂ pill (bought at the vitamin store) in

the

> morning with food. Just check with the doc if Isaac is on any meds that

the zinc

> won't interfere with them. Also sometimes with Aden what he really needsÂ

is

> sleep. We get a script forÂ phenergan from our doc to help him sleep (it's

the

> only thing that really seems to work for him, but can only be used short

> term)Â this also helps with the stuffy nose.

>

> Unfortunately it sounds like Isaac's assessment of the teacher is blunt

but

> accurate. What would it hurt to let him have the tissues? Seems to me that

it

> would have decreased the disruptions to the class ifÂ he didn't need to

get up

> and get a tissue every 30 seconds. GRRRR I despise teachers that have the

> " because I said so " attitude. Sorry to rant, it's a sore spot with us.

>

> Hope everything gets better soon,

>

> Mom toÂ Aden 7 DS, ASDÂ Aren 4

> Washoe Valley Nv

>

> Â Â

>

> ________________________________

>

> To: <mailto:%40yahoogroups.com>

> Sent: Tue, November 30, 2010 9:48:17 AM

> Subject: I can't get my kid well!

>

> Â

> Okay, advice on something seemingly ordinary. Isaac is not usually sick.

> He had a bad strep infection once when he was 5, had the red rash and

> everything. Since then a few sinus infections. not many. But this fall I

> can't get him well. The doctor has tested him for mono, strep and a UTI.

> His blood work shows some kind of infection but we can't find it. He is

> home at least once a week. The whole family got stuffy noses over

> Thanksgiving but we all had lots of vitamin C and went about our business

> yesterday. I sent Isaac to school and he had big problems (he wanted his

> own box of tissues and the teacher would not let him have them so he

called

> the teacher an asshole). I am keeping him home today. Tried to get the

> school to see that his reactions was extreme and not typically Isaac but

of

> course there will be big consequences for this. So here the rest of us are

> getting over our colds and Isaac has a fever. The strep test was done 4

> days ago so I can't take him back yet. But he has had a fever (on and off)

> and been out of sorts since September. The doctor said to think mono even

> though he did not test positive for mono. She said that some kids just get

> viral infections that take as long as mono. However, we are now well past

> the 6 week mark for a mono like illness.

>

> Anyone have a magic pill?

>

> Lori

>

> Mom to Isaac 13, and Tony 11

>

November 30, 2010

Funny how Elie never uses 'foul' language since he left school! Despite the

fact that he lives with s college age person and is hangin' with 20

somethings.

Also funny how his use of language is reason to sanction him, but their

failure to support is OK?

Yeah - Kris and I are in GA - as is MAry and maybe someone else.

>

> Hi Kris:

>

> My kids never throw up either! God forbid they should start. They still

> canâ€™t pee into the toilet with any aim and there is still more poop in the

> bathroom than I think is necessary. Isaac sometimes doesnâ€™t feel toilet

> paper is up to the job so he will go through a whole pile of wash cloths

> and

> leave them laying on the floor. Each and every time I make him take those

> washcloths to the basement and put them in a bucket of warm water. He does

> as requested and he STILL uses the washcloths when in the mood. Try

> explaining this to people with NT kids. This is one of the reasons Iâ€™ve

> never sent him off to camp.

>

> Read the same article â€“ possibly on this list serve? And we have been using

> the dye free Claritin once a day for the stuffy nose. I am trying to

> prevent an ear infection. The doctor has checked him twice and said no ear

> or sinus infection.

>

> And regarding the school, every time I call DPI they say exactly the same

> things we do. They would enthusiastically support me filing a complaint

> because he does have a plan they are supposed to follow when he calls a

> teacher that word â€“ he never used to do this but they took away all of his

> support this year and then they decided to play musical SEAs. No

> educational assistant is supposed to be assigned to a student, they rotate

> so not only do the teachers not now the IEP but now neither do the SEAs.

> Slowly out of desperation (and because I mentioned they were not following

> the IEP) they have put an SEA back in his classes but they are rotating

> SEAs

> and so far no one seems to know what is going on. So our problem is that

> Isaac doesnâ€™t feel well but just when we think he should be getting better,

> off he goes to school and has an â€œincidentâ€ and then suddenly he is sick

> again.

>

> I wonder if being anxious can create a fever?

>

> I forgot you guys are in Georgia. I always think you are in Minnesota, I

> donâ€™t know why.

>

> Lori

>

> Mom to Isaac 13, and Tony 12

>

> _____

>

> From: [mailto:

> ] On Behalf

> Of kaprisock

> Sent: Tuesday, November 30, 2010 3:32 PM

> To:

> Subject: Re: I can't get my kid well!

>

> Hi Lori,

> No majick bullet but I agree with regarding the tissue incident.

> On many levels. I do not think the teacher exhibited much sensitivity &

> further the school AND teacher needs to get a grip and/or a realistic

> comprehension about expectations/rules designed for NT population &

> expecting same when working with kiddos with special needs of any kind.

> A*hole language is the least of their problems if they actually don't get

> it

> or apply critical thinking skills to the issue(s).

>

> This may not apply to Issac but I read something interesting in health news

> the other day. A doctor(s)has been doing double blind study & the data is

> showing that children with ear infections treated with antibiotics AND

> antihistimines heal faster than those treated with just antibiotic. The

> docs

> feel that all these decades of using antibiotics alone overlooked the

> factoid of the sinus cavity & that the ear is part of the sinus cavity.

> Thus

> far the findings make sense to other doctors interviewed that were not

> involved in the study.

>

> For some reason I thought of this article when I read your post outlining

> all the negatives that came back from labwork. Seems you mentioned

> everything but otis media or sinus infection. Perhaps this is something

> that

> your doc might want to re-check for? One can stay chronically ill with

> either or both. Heh, I know this how? DJ. Without fever or only like 98.6

> (fever for him). He spent years on maintence antibiotics for half the

> year-usually starting around Oct/Nov after school had started.

>

> That ended after he was dx'd & placed on maintenance drugs for asthms/RAD

> the fall of 6th grade. (hurrah!) Seems to never get even a cold now & never

> seems to get sinus/ear infections. Going on 5 years now.

>

> Future forewarning-since DJ entered high school he HAS caught stomach

> viruses as well as whatever similar contagious crud of the day is. The

> poopy/throw up bugs. It is just wierd because until 9th grade, DJ NEVER had

> thrown up or had the poops...I have no idea why but he just never caught

> any

> stomach bugs before high school.

>

> Hugs to you & Issac.

> Kris & DJ age 15 in GA

>

> >

> > Hi Lori,

> >

> > It's not a magic pill, but have you tried combining echinacea and zinc

> with the

> > C. The echinacea helps to boost the immune system while the zinc deters

> the

> > virus from reproducing. I do oneÃ‚ pill (bought at the vitamin store) in

> the

> > morning with food. Just check with the doc if Isaac is on any meds that

> the zinc

> > won't interfere with them. Also sometimes with Aden what he really needsÃ‚

> is

> > sleep. We get a script forÃ‚ phenergan from our doc to help him sleep

> (it's

> the

> > only thing that really seems to work for him, but can only be used short

> > term)Ã‚ this also helps with the stuffy nose.

> >

> > Unfortunately it sounds like Isaac's assessment of the teacher is blunt

> but

> > accurate. What would it hurt to let him have the tissues? Seems to me

> that

> it

> > would have decreased the disruptions to the class ifÃ‚ he didn't need to

> get up

> > and get a tissue every 30 seconds. GRRRR I despise teachers that have the

>

> > " because I said so " attitude. Sorry to rant, it's a sore spot with us.

> >

> > Hope everything gets better soon,

> >

> > Mom toÃ‚ Aden 7 DS, ASDÃ‚ Aren 4

> > Washoe Valley Nv

> >

> > Ã‚ Ã‚

> >

> > ________________________________

> >

> > To: <mailto:

> %40yahoogroups.com <%2540yahoogroups.com>>

> > Sent: Tue, November 30, 2010 9:48:17 AM

> > Subject: I can't get my kid well!

> >

> > Ã‚